CSD for infant w/seizures & constipation?

[Guest guest]

I would like to know if this diet will be helpful for my son who does

NOT have diarrhea? In fact, he is leaning toward the constipated

side. I bought the " Breaking the Vicious Cycle " book, and it keeps

referencing how to control diarrhea through the diet.

My ultimate goal is to get my 10 month old son's seizures controlled,

so he can continue developing. Is there any good literature on the

application of the diet with babies/toddlers?

Thanks for your insight.

______________________

V.

Mother to Owen (dx w/Infantile Spasms on 10/14/05 @6mos., weaning off

Topomax, and started Vigabatrin on 1/24/05.)

Note: The information contained in this e-mail is confidential and

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[Guest guest]

Hi, .

I cannot express how much SCD has helped our son, Dakota, who has a seizure

disorder. Although it has not resolved his seizures, they are significantly

better (from thousands of discharges and countless seizures to a few

seizures a day). As with most children with significant seizures,

constipation was a constant battle for Dakota since birth (despite being

exclusively breastfed). SCD dramatically resolved this and relatively

quickly (within a few weeks). I think the biggest gain for us has been an

overall clarity and understanding Dakota far better now---when seizure

activity increases, we know that he is either getting sick (which rarely

happens now) or that something related to his Neurofibromatosis/plexiform

tumors. His communication has soared, his social skills are better, and it

is easier to understand everything about him so much more---no more cycles

of sickness, constipation, and seizures and not being able to figure out

what was going on. He is still on Depakote, but we have not had to up his

dosage despite a growth spurt---he is finally on the growth charts in the

25th percentile rather than being at the 5% or off the charts. He responds

to therapies well (speech/OT/PT), but we still have school battles (even

though he is homeschooled for 88% of his school day). However, without SCD

I am fairly confident that this year he would have been exclusively

classified as homebound/hospital setting.

Feel free to e-mail off-list any time. Good luck, and we will keep your son

in our prayers.

whole family SCD 2 years

Mom to Dakota (8--Neurofibromatosis I, Childhood Disintegrative Disorder,

and Seizure Disorder/LGS)

and (5--happy, healthy supportive little brother)

[Guest guest]

Hi, .

I cannot express how much SCD has helped our son, Dakota, who has a seizure

disorder. Although it has not resolved his seizures, they are significantly

better (from thousands of discharges and countless seizures to a few

seizures a day). As with most children with significant seizures,

constipation was a constant battle for Dakota since birth (despite being

exclusively breastfed). SCD dramatically resolved this and relatively

quickly (within a few weeks). I think the biggest gain for us has been an

overall clarity and understanding Dakota far better now---when seizure

activity increases, we know that he is either getting sick (which rarely

happens now) or that something related to his Neurofibromatosis/plexiform

tumors. His communication has soared, his social skills are better, and it

is easier to understand everything about him so much more---no more cycles

of sickness, constipation, and seizures and not being able to figure out

what was going on. He is still on Depakote, but we have not had to up his

dosage despite a growth spurt---he is finally on the growth charts in the

25th percentile rather than being at the 5% or off the charts. He responds

to therapies well (speech/OT/PT), but we still have school battles (even

though he is homeschooled for 88% of his school day). However, without SCD

I am fairly confident that this year he would have been exclusively

classified as homebound/hospital setting.

Feel free to e-mail off-list any time. Good luck, and we will keep your son

in our prayers.

whole family SCD 2 years

Mom to Dakota (8--Neurofibromatosis I, Childhood Disintegrative Disorder,

and Seizure Disorder/LGS)

and (5--happy, healthy supportive little brother)

[Guest guest]

Hi, .

I cannot express how much SCD has helped our son, Dakota, who has a seizure

disorder. Although it has not resolved his seizures, they are significantly

better (from thousands of discharges and countless seizures to a few

seizures a day). As with most children with significant seizures,

constipation was a constant battle for Dakota since birth (despite being

exclusively breastfed). SCD dramatically resolved this and relatively

quickly (within a few weeks). I think the biggest gain for us has been an

overall clarity and understanding Dakota far better now---when seizure

activity increases, we know that he is either getting sick (which rarely

happens now) or that something related to his Neurofibromatosis/plexiform

tumors. His communication has soared, his social skills are better, and it

is easier to understand everything about him so much more---no more cycles

of sickness, constipation, and seizures and not being able to figure out

what was going on. He is still on Depakote, but we have not had to up his

dosage despite a growth spurt---he is finally on the growth charts in the

25th percentile rather than being at the 5% or off the charts. He responds

to therapies well (speech/OT/PT), but we still have school battles (even

though he is homeschooled for 88% of his school day). However, without SCD

I am fairly confident that this year he would have been exclusively

classified as homebound/hospital setting.

Feel free to e-mail off-list any time. Good luck, and we will keep your son

in our prayers.

whole family SCD 2 years

Mom to Dakota (8--Neurofibromatosis I, Childhood Disintegrative Disorder,

and Seizure Disorder/LGS)

and (5--happy, healthy supportive little brother)