FW: An exciting TV program on CF!

November 26, 2002

FOLKS,

Please pass this on to as many folks as you can. organizations ,chat rooms,

other lists involved in CF & medicine/health, your centers.....all social

workers at your clinic for them to also pass on. Any medical schools you

know of, so they will refer their clinician students to view/request it at

their area stations, Try to get your radio stations to tell folks about it .

TALK ABOUT AN AWARENESS CAMPAIGN.......WOW!! THIS IS GREAT!!!

THANKS TO ALL. .. I DON'T THINK IT WILL BE SHOWN OR PICKED UP OUT

OF THE STATES, BUT.............ASK FOR IT. MAYBE SOMEONE COULD TAPE & SEND

TO STATIONS OUT OF USA ....................?????????

BLESS YOU ALL THANKS Soooooooooooo MUCH.

grdmbev

An exciting TV program on CF!

Dear Friends of the CF community,

My name is Isabel Stenzel Byrnes and I am a 30 year old twin with CF. My

twin sister, Anabel and I were graciously invited to Washington, DC this

year, to be interviewed for a tv show called " Medical Answers " . The program

shows once a week on PBS or a PBS affiliate station and features and expert

who talks about a specific disease each session. Ana and I were interviewed

for their session on cystic fibrosis, which will consist of 4 half hour

segments over 4 weeks. We realize the staff at Medical Answers has done an

excellent job of putting together a very informative program on cystic

fibrosis and it will be sent to PBS stations on Thursday, November 28th.

Please read the enclosed information on how you and your friends can learn

about how to watch this excellent program. Ana and I absolutely love sharing

our stories and we hope your CF community members can also learn something

about CF by watching the show. We are very grateful to Genentech, Inc, who

sponsored this terrific program and is equally interested in spreading the

word about CF.

I kindly ask that you please post this message on your websites, online

programs, newsletters, etc. There is a little work to be done to get the

program on all local channels...THank you very much for your help.

Please let your friends, familiy members, health care teams, newly diagnosed

community members, etc. know about this upcoming program.

Thanks so much for your work for the CF community. In gratitude,

Isabel Stenzel Byrnes.

Here is the flyer: I have also attached it as well. Please share the info

ASAP!

CALL TO ACTION FLYER

MEDICAL ANSWERS

REAL QUESTIONS: REAL ANSWERS ON CYSTIC FIBROSIS

YOUR CALL CAN MAKE THE DIFFERENCE IN HOW MANY PEOPLE AFFECTED BY CF WILL

HAVE THE OPPORTUNITY TO SEE IT.

Presently airing on PBS across the country, “Medical Answers,” will be

offering local PBS stations the opportunity to air an important 4-part

series on Cystic Fibrosis beginning November 28th.

Real life questions and answers on CF are given face to face in this 4-part

series featuring experts representing various perspectives on Cystic

Fibrosis:

Ø Segment 1: Kirchner, MD, Pediatric Pulmonologist

Ø Segment 2: Bob Beall, President and CEO of the Cystic Fibrosis Foundation

Ø Segments 3 and 4: Anabel and Isabel Stenzel, twin sisters with CF

Your PBS station may not regularly carry “Medical Answers.”

YOU CAN CHANGE THAT. Because PBS stations are supported in part by their

local viewers, the stations will listen to you. CALL YOUR LOCAL PBS STATION

TODAY, ask to speak with the program director and tell them you want to see

this critical series on your PBS station.

Provide your PBS station with the following information:

Name of Series: “Medical Answers” MDAN 801-813

FREE OF CHARGE TO PBS STATIONS

Link Coordinates: 2000-2030 ET, 511

Show Titles: 800 Series: “Cystic Fibrosis:” 801,802,803,804

Feed Dates: Thursday, November 28, 2002: Segment 801

Thursday, December 5, 2002: Segment 802

Thursday, December 12, 2002: Segment 803

Thursday, December 19, 2002: Segment 804

PBS Express Link Coordinates: 2000-2030 ET, 511

Medical Answers (MA), with Dr. Doyle, Medical Director -town

University Medical Center, now in its second successful year of airing on

various PBS stations across the country, is back with all new programs. MA

is a free, 30 minute program spotlighting a single illness (physical or

mental) each week with invited guest specialists from nationally recognized

medical teaching hospitals, universities and medical centers.

For those of you in the Bay Area of California, we found the show will air

on KCSM Channel 17 on Saturdays, 2-2:30. Check your own listings to make

sure.

THanks! Isabel

_________________________________________________________________

MSN 8 with e-mail virus protection service: 2 months FREE*

http://join.msn.com/?page=features/virus

November 27, 2002

LISA, that is truly wonderful , now if all could do this !!! Lets AWARE the

daylights out of folks................

LOVE &HUGS, GrandmomBEV

Re: FW: An exciting TV program on CF!

I talked to my local affiliate on Friday. Since they are not longer on a 24

hour program schedule, they cannot guarantee they will run the shows. They

did say however that they will look into fitting it in. I gave all the

information from the original e-mail listing the segments and the show name.

I will follow-up with them tomorrow.

If there is anyone else in the Los Angeles area, please help me by calling

them as well. Maybe if they hear from enough people, they will show it.

Our local affiliate is KCET and their number is on the website at

www.kcet.org. Sorry, I thought I had it written down. I also have a call

and e-mail in to them on doing a story about CF. Wish me luck.

bev bevd@...> wrote: