Re: New Member...Don't know what I am doing just yet

[Guest guest]

Hi ,

welcome to the list. Unfortunately abnormal CTs and psedomonas

infections are within the range of what to expect when your child has

CF. It's good that Peyton was dxed early in life and that his docs

treat the pseudomonas agressively from the very beginning.

Where do you come from? We live in Germany.

Peace

Torsten, dad of Fiona 5wcf and down two teeth since Sunday

> Hi, My name is and I have a 11 month old son named Peyton

with

> cf. We found out the had the disease whe he was 2 months old.

> Everything has been going good so far. Just this month he had a

CAT

> SCAN and it came back slightly abnormal. We also found out he has

P.

> aeruginosa and has started on TOBI. I guess i just need support or

> people telling me that these things are going to happen to people

> with cf. Thanks

[Guest guest]

Hi ,

welcome to the list. Unfortunately abnormal CTs and psedomonas

infections are within the range of what to expect when your child has

CF. It's good that Peyton was dxed early in life and that his docs

treat the pseudomonas agressively from the very beginning.

Where do you come from? We live in Germany.

Peace

Torsten, dad of Fiona 5wcf and down two teeth since Sunday

> Hi, My name is and I have a 11 month old son named Peyton

with

> cf. We found out the had the disease whe he was 2 months old.

> Everything has been going good so far. Just this month he had a

CAT

> SCAN and it came back slightly abnormal. We also found out he has

P.

> aeruginosa and has started on TOBI. I guess i just need support or

> people telling me that these things are going to happen to people

> with cf. Thanks

[Guest guest]

In a message dated 11/26/2002 1:15:04 AM Central Standard Time,

arm50_99@... writes:

> Hi, My name is and I have a 11 month old son named Peyton with

> cf. We found out the had the disease whe he was 2 months old.

> Everything has been going good so far. Just this month he had a CAT

> SCAN and it came back slightly abnormal. We also found out he has P.

> aeruginosa and has started on TOBI. I guess i just need support or

> people telling me that these things are going to happen to people

> with cf. Thanks

Well, I am one of those people that is going to tell you that having

psuedomonas aeruginosa is one of those things you really be dealing with for

the rest of his live (unless they find a cure which I am hoping for soon). I

have three daughters and two of them have CF my oldest is 10 and my youngest

is 5. My oldest has been fight psuedomonas for the last year and my youngest

has off and on. You will get lots of support here. This group has help me

through a lot of ups and downs. So pull up a chair and join in. Where do you

live? We are in Iowa. Deb A

[Guest guest]

In a message dated 11/26/2002 1:15:04 AM Central Standard Time,

arm50_99@... writes:

> Hi, My name is and I have a 11 month old son named Peyton with

> cf. We found out the had the disease whe he was 2 months old.

> Everything has been going good so far. Just this month he had a CAT

> SCAN and it came back slightly abnormal. We also found out he has P.

> aeruginosa and has started on TOBI. I guess i just need support or

> people telling me that these things are going to happen to people

> with cf. Thanks

Well, I am one of those people that is going to tell you that having

psuedomonas aeruginosa is one of those things you really be dealing with for

the rest of his live (unless they find a cure which I am hoping for soon). I

have three daughters and two of them have CF my oldest is 10 and my youngest

is 5. My oldest has been fight psuedomonas for the last year and my youngest

has off and on. You will get lots of support here. This group has help me

through a lot of ups and downs. So pull up a chair and join in. Where do you

live? We are in Iowa. Deb A

[Guest guest]

In a message dated 11/26/2002 1:15:04 AM Central Standard Time,

arm50_99@... writes:

> Hi, My name is and I have a 11 month old son named Peyton with

> cf. We found out the had the disease whe he was 2 months old.

> Everything has been going good so far. Just this month he had a CAT

> SCAN and it came back slightly abnormal. We also found out he has P.

> aeruginosa and has started on TOBI. I guess i just need support or

> people telling me that these things are going to happen to people

> with cf. Thanks

Well, I am one of those people that is going to tell you that having

psuedomonas aeruginosa is one of those things you really be dealing with for

the rest of his live (unless they find a cure which I am hoping for soon). I

have three daughters and two of them have CF my oldest is 10 and my youngest

is 5. My oldest has been fight psuedomonas for the last year and my youngest

has off and on. You will get lots of support here. This group has help me

through a lot of ups and downs. So pull up a chair and join in. Where do you

live? We are in Iowa. Deb A

[Guest guest]

WELCOME TO THIS GREAT LIST, I look forward to hearing from you.

LOVE & HUGS, grandmomBEV

New Member...Don't know what I am doing just yet

Hi, My name is and I have a 11 month old son named Peyton with

cf. We found out the had the disease whe he was 2 months old.

Everything has been going good so far. Just this month he had a CAT

SCAN and it came back slightly abnormal. We also found out he has P.

aeruginosa and has started on TOBI. I guess i just need support or

people telling me that these things are going to happen to people

with cf. Thanks

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

[Guest guest]

WELCOME TO THIS GREAT LIST, I look forward to hearing from you.

LOVE & HUGS, grandmomBEV

New Member...Don't know what I am doing just yet

Hi, My name is and I have a 11 month old son named Peyton with

cf. We found out the had the disease whe he was 2 months old.

Everything has been going good so far. Just this month he had a CAT

SCAN and it came back slightly abnormal. We also found out he has P.

aeruginosa and has started on TOBI. I guess i just need support or

people telling me that these things are going to happen to people

with cf. Thanks

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

[Guest guest]

WELCOME TO THIS GREAT LIST, I look forward to hearing from you.

LOVE & HUGS, grandmomBEV

New Member...Don't know what I am doing just yet

Hi, My name is and I have a 11 month old son named Peyton with

cf. We found out the had the disease whe he was 2 months old.

Everything has been going good so far. Just this month he had a CAT

SCAN and it came back slightly abnormal. We also found out he has P.

aeruginosa and has started on TOBI. I guess i just need support or

people telling me that these things are going to happen to people

with cf. Thanks

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

[Guest guest]

HI,

MY NAME IS AMY ,I HAVE A 19 MONTH OLD WITH CF WHO WAS DX AFTER HAVING MECONIUM

ILIEUS AT BIRTH. I WOULD BE MORE THAN HAPPY TO SHARE WHAT WE HAVE CAME ACROSS SO

FAR , HE HAD PSUEDOMONAS IN AUG ,WAS ON TOBI AND NOW IT IS GONE.WE HAVE HAD SOME

UPS AND DOWNS BUT MOSTLY UPS. IF YOU WANT TO EMAIL ME PERSONALLY THAT WOULD BE

FINE

AMY, MOM TO NATHAN 19 MO WITH CF

New Member...Don't know what I am doing just yet

Hi, My name is and I have a 11 month old son named Peyton with

cf. We found out the had the disease whe he was 2 months old.

Everything has been going good so far. Just this month he had a CAT

SCAN and it came back slightly abnormal. We also found out he has P.

aeruginosa and has started on TOBI. I guess i just need support or

people telling me that these things are going to happen to people

with cf. Thanks

[Guest guest]

HI,

MY NAME IS AMY ,I HAVE A 19 MONTH OLD WITH CF WHO WAS DX AFTER HAVING MECONIUM

ILIEUS AT BIRTH. I WOULD BE MORE THAN HAPPY TO SHARE WHAT WE HAVE CAME ACROSS SO

FAR , HE HAD PSUEDOMONAS IN AUG ,WAS ON TOBI AND NOW IT IS GONE.WE HAVE HAD SOME

UPS AND DOWNS BUT MOSTLY UPS. IF YOU WANT TO EMAIL ME PERSONALLY THAT WOULD BE

FINE

AMY, MOM TO NATHAN 19 MO WITH CF

New Member...Don't know what I am doing just yet

Hi, My name is and I have a 11 month old son named Peyton with

cf. We found out the had the disease whe he was 2 months old.

Everything has been going good so far. Just this month he had a CAT

SCAN and it came back slightly abnormal. We also found out he has P.

aeruginosa and has started on TOBI. I guess i just need support or

people telling me that these things are going to happen to people

with cf. Thanks

[Guest guest]

HI,

MY NAME IS AMY ,I HAVE A 19 MONTH OLD WITH CF WHO WAS DX AFTER HAVING MECONIUM

ILIEUS AT BIRTH. I WOULD BE MORE THAN HAPPY TO SHARE WHAT WE HAVE CAME ACROSS SO

FAR , HE HAD PSUEDOMONAS IN AUG ,WAS ON TOBI AND NOW IT IS GONE.WE HAVE HAD SOME

UPS AND DOWNS BUT MOSTLY UPS. IF YOU WANT TO EMAIL ME PERSONALLY THAT WOULD BE

FINE

AMY, MOM TO NATHAN 19 MO WITH CF

New Member...Don't know what I am doing just yet

Hi, My name is and I have a 11 month old son named Peyton with

cf. We found out the had the disease whe he was 2 months old.

Everything has been going good so far. Just this month he had a CAT

SCAN and it came back slightly abnormal. We also found out he has P.

aeruginosa and has started on TOBI. I guess i just need support or

people telling me that these things are going to happen to people

with cf. Thanks

[Guest guest]

In a message dated 11/27/2002 5:16:03 AM Central Standard Time, bevd@...

writes:

> WELCOME TO ALL .

> WE ARE VERY HAPPY & LUCKY TO HAVE SO MANY COMING ONTO

> THE LISTS . I HOPE YOU ALL HAVE A WONDERFUL HOLIDAY & WILL

> VISIT LATER WITH YOU ALL.

>

> Love & hugs,

> GRANDMOMBEV

>

Same to you Grandmombev!!!! Have a Happy Thanksgiving Holiday!! DEB A

[Guest guest]

In a message dated 11/27/2002 5:16:03 AM Central Standard Time, bevd@...

writes:

> WELCOME TO ALL .

> WE ARE VERY HAPPY & LUCKY TO HAVE SO MANY COMING ONTO

> THE LISTS . I HOPE YOU ALL HAVE A WONDERFUL HOLIDAY & WILL

> VISIT LATER WITH YOU ALL.

>

> Love & hugs,

> GRANDMOMBEV

>

Same to you Grandmombev!!!! Have a Happy Thanksgiving Holiday!! DEB A

[Guest guest]

In a message dated 11/27/2002 5:16:03 AM Central Standard Time, bevd@...

writes:

> WELCOME TO ALL .

> WE ARE VERY HAPPY & LUCKY TO HAVE SO MANY COMING ONTO

> THE LISTS . I HOPE YOU ALL HAVE A WONDERFUL HOLIDAY & WILL

> VISIT LATER WITH YOU ALL.

>

> Love & hugs,

> GRANDMOMBEV

>

Same to you Grandmombev!!!! Have a Happy Thanksgiving Holiday!! DEB A

[Guest guest]

WELCOME TO ALL .

WE ARE VERY HAPPY & LUCKY TO HAVE SO MANY COMING ONTO

THE LISTS . I HOPE YOU ALL HAVE A WONDERFUL HOLIDAY & WILL

VISIT LATER WITH YOU ALL.

Love & hugs,

GRANDMOMBEV

Re: New Member...Don't know what I am doing just

yet

HI,

MY NAME IS AMY ,I HAVE A 19 MONTH OLD WITH CF WHO WAS DX AFTER HAVING

MECONIUM ILIEUS AT BIRTH. I WOULD BE MORE THAN HAPPY TO SHARE WHAT WE HAVE

CAME ACROSS SO FAR , HE HAD PSUEDOMONAS IN AUG ,WAS ON TOBI AND NOW IT IS

GONE.WE HAVE HAD SOME UPS AND DOWNS BUT MOSTLY UPS. IF YOU WANT TO EMAIL ME

PERSONALLY THAT WOULD BE FINE

AMY, MOM TO NATHAN 19 MO WITH CF

New Member...Don't know what I am doing just yet

Hi, My name is and I have a 11 month old son named Peyton with

cf. We found out the had the disease whe he was 2 months old.

Everything has been going good so far. Just this month he had a CAT

SCAN and it came back slightly abnormal. We also found out he has P.

aeruginosa and has started on TOBI. I guess i just need support or

people telling me that these things are going to happen to people

with cf. Thanks

[Guest guest]

WELCOME TO ALL .

WE ARE VERY HAPPY & LUCKY TO HAVE SO MANY COMING ONTO

THE LISTS . I HOPE YOU ALL HAVE A WONDERFUL HOLIDAY & WILL

VISIT LATER WITH YOU ALL.

Love & hugs,

GRANDMOMBEV

Re: New Member...Don't know what I am doing just

yet

HI,

MY NAME IS AMY ,I HAVE A 19 MONTH OLD WITH CF WHO WAS DX AFTER HAVING

MECONIUM ILIEUS AT BIRTH. I WOULD BE MORE THAN HAPPY TO SHARE WHAT WE HAVE

CAME ACROSS SO FAR , HE HAD PSUEDOMONAS IN AUG ,WAS ON TOBI AND NOW IT IS

GONE.WE HAVE HAD SOME UPS AND DOWNS BUT MOSTLY UPS. IF YOU WANT TO EMAIL ME

PERSONALLY THAT WOULD BE FINE

AMY, MOM TO NATHAN 19 MO WITH CF

New Member...Don't know what I am doing just yet

Hi, My name is and I have a 11 month old son named Peyton with

cf. We found out the had the disease whe he was 2 months old.

Everything has been going good so far. Just this month he had a CAT

SCAN and it came back slightly abnormal. We also found out he has P.

aeruginosa and has started on TOBI. I guess i just need support or

people telling me that these things are going to happen to people

with cf. Thanks

[Guest guest]

WELCOME TO ALL .

WE ARE VERY HAPPY & LUCKY TO HAVE SO MANY COMING ONTO

THE LISTS . I HOPE YOU ALL HAVE A WONDERFUL HOLIDAY & WILL

VISIT LATER WITH YOU ALL.

Love & hugs,

GRANDMOMBEV

Re: New Member...Don't know what I am doing just

yet

HI,

MY NAME IS AMY ,I HAVE A 19 MONTH OLD WITH CF WHO WAS DX AFTER HAVING

MECONIUM ILIEUS AT BIRTH. I WOULD BE MORE THAN HAPPY TO SHARE WHAT WE HAVE

CAME ACROSS SO FAR , HE HAD PSUEDOMONAS IN AUG ,WAS ON TOBI AND NOW IT IS

GONE.WE HAVE HAD SOME UPS AND DOWNS BUT MOSTLY UPS. IF YOU WANT TO EMAIL ME

PERSONALLY THAT WOULD BE FINE

AMY, MOM TO NATHAN 19 MO WITH CF

New Member...Don't know what I am doing just yet

Hi, My name is and I have a 11 month old son named Peyton with

cf. We found out the had the disease whe he was 2 months old.

Everything has been going good so far. Just this month he had a CAT

SCAN and it came back slightly abnormal. We also found out he has P.

aeruginosa and has started on TOBI. I guess i just need support or

people telling me that these things are going to happen to people

with cf. Thanks