Re: I can never believe that doctors say things

[Guest guest]

Sure. . .but I met them in Pendleton, Oregon when their youngest son

and I had the same doctor. Kid died in 1988. Parents were both from

Ireland, did not know diddly about medical care, why they had lost rela

tives from an older generation at so young an age due to lung disease,

just thought it must have been TB. The carrier rate in Ireland is very

high, and the rest you can imagine. I think that they were more than

halfway through the lot of the kids before anyone even suggested cf,

and then it was not taken seriously--so no one got decent medical care,

and only one lived most of his life after the possibility of some genetic

identification--and never had it--just could not bring themselves to go

clear into Portland to get that blood drawn--just too far--not bad parents,

just did not have a clue as to the significance that it might make.

They are still together, had always gotten on well, and are only a bit ol

der than I, but look years older. I still keep in touch with them--partly be

cause they do not have anyone else left in the usa.

Love,

n

[Guest guest]

---n, they don't live to far from me. I am in Walla Walla, we

go to the CF Clinic in Spokane, didn't know there was one in

Portland. Have gone to Childrens in Seattle before, but way to far

to drive every 3 months.

Margo

In cfparents@y..., Mcesana@a... wrote:

> Sure. . .but I met them in Pendleton, Oregon when their youngest

son

> and I had the same doctor. Kid died in 1988. Parents were both

from

> Ireland, did not know diddly about medical care, why they had lost

rela

> tives from an older generation at so young an age due to lung

disease,

> just thought it must have been TB. The carrier rate in Ireland is

very

> high, and the rest you can imagine. I think that they were more

than

> halfway through the lot of the kids before anyone even suggested

cf,

> and then it was not taken seriously--so no one got decent medical

care,

> and only one lived most of his life after the possibility of some

genetic

> identification--and never had it--just could not bring themselves

to go

> clear into Portland to get that blood drawn--just too far--not bad

parents,

> just did not have a clue as to the significance that it might make.

> They are still together, had always gotten on well, and are only a

bit ol

> der than I, but look years older. I still keep in touch with them-

-partly be

> cause they do not have anyone else left in the usa.

> Love,

> n

>

>

>

[Guest guest]

---n, they don't live to far from me. I am in Walla Walla, we

go to the CF Clinic in Spokane, didn't know there was one in

Portland. Have gone to Childrens in Seattle before, but way to far

to drive every 3 months.

Margo

In cfparents@y..., Mcesana@a... wrote:

> Sure. . .but I met them in Pendleton, Oregon when their youngest

son

> and I had the same doctor. Kid died in 1988. Parents were both

from

> Ireland, did not know diddly about medical care, why they had lost

rela

> tives from an older generation at so young an age due to lung

disease,

> just thought it must have been TB. The carrier rate in Ireland is

very

> high, and the rest you can imagine. I think that they were more

than

> halfway through the lot of the kids before anyone even suggested

cf,

> and then it was not taken seriously--so no one got decent medical

care,

> and only one lived most of his life after the possibility of some

genetic

> identification--and never had it--just could not bring themselves

to go

> clear into Portland to get that blood drawn--just too far--not bad

parents,

> just did not have a clue as to the significance that it might make.

> They are still together, had always gotten on well, and are only a

bit ol

> der than I, but look years older. I still keep in touch with them-

-partly be

> cause they do not have anyone else left in the usa.

> Love,

> n

>

>

>

[Guest guest]

---n, they don't live to far from me. I am in Walla Walla, we

go to the CF Clinic in Spokane, didn't know there was one in

Portland. Have gone to Childrens in Seattle before, but way to far

to drive every 3 months.

Margo

In cfparents@y..., Mcesana@a... wrote:

> Sure. . .but I met them in Pendleton, Oregon when their youngest

son

> and I had the same doctor. Kid died in 1988. Parents were both

from

> Ireland, did not know diddly about medical care, why they had lost

rela

> tives from an older generation at so young an age due to lung

disease,

> just thought it must have been TB. The carrier rate in Ireland is

very

> high, and the rest you can imagine. I think that they were more

than

> halfway through the lot of the kids before anyone even suggested

cf,

> and then it was not taken seriously--so no one got decent medical

care,

> and only one lived most of his life after the possibility of some

genetic

> identification--and never had it--just could not bring themselves

to go

> clear into Portland to get that blood drawn--just too far--not bad

parents,

> just did not have a clue as to the significance that it might make.

> They are still together, had always gotten on well, and are only a

bit ol

> der than I, but look years older. I still keep in touch with them-

-partly be

> cause they do not have anyone else left in the usa.

> Love,

> n

>

>

>