Re: Baby's first illness - what now?

[Guest guest]

We too were always told to call asap with cold symptoms, weekends/holidays or

whatever. If she gets a cold she always gets a sinus infection so they put

her on antibiotics immediately, usually Septra. I wouldn't wait until

Monday.

Sally

Springville

Bri 14, 12 w/asthma, 9w/cf&ds

[Guest guest]

We too were always told to call asap with cold symptoms, weekends/holidays or

whatever. If she gets a cold she always gets a sinus infection so they put

her on antibiotics immediately, usually Septra. I wouldn't wait until

Monday.

Sally

Springville

Bri 14, 12 w/asthma, 9w/cf&ds

[Guest guest]

Keeley,

I have 2 children w/cf, one is 14 and the other is 11 wks. My son Evan is

the baby and he recently had a lung infection, he just got out of the

hospital after being there for 16 days . I was on the phone and at the cf

center 2x a week they never heard his cough so they assumed it was from

reflux because each time they listened to his lungs they said he sounded

clear, I didn't like his cough or stuffy nose but they kept assuring me that

he was fine. In the mean time my 14 year old got sick (most likely caught

it from Evan) she was admitted to the hospital and while she was there I had

Evan w/me(we were in a private room and he wore a mask, he slept most of

time) anyway Evan started coughing and the nurse looked alarmed at his

cough...I told her it was from reflux and she said " no, I don't think so

....let me go get the dr. " .

Guess what? they admitted him with a lung infection and a small part of his

lung collapsed. He's ok now, just got off of augmentin but he was on 2 i.v.

meds while in the hospital.

I just wanted to tell you to make sure you are persistant with your doctors,

just to be sure get an xray.

I was really upset with the drs. but they have been so great with my

daughter, her FEV1 is 105!!!! she wasn't diagnosed until she was 5 so I'm

nervous...even if he sneezes I'm pacing the floor. They assured me from now

on they will treat Evan differently. I'm sure that means a lot of xrays,

which also makes me nervous!

He is doing great now, I also asked the question about his cpt, I do it 3

times a day, sometimes more and he doesn't cough anything up, the drs.

explained that babies swallow their mucus and then poop it out.

Please let me know how Leila is doing. Good luck....be persistant

mom to 14 w/cf, Cody 11 wocf, Zoey 3 wocf, Evan 11 wks w/cf

[Guest guest]

Keeley,

I have 2 children w/cf, one is 14 and the other is 11 wks. My son Evan is

the baby and he recently had a lung infection, he just got out of the

hospital after being there for 16 days . I was on the phone and at the cf

center 2x a week they never heard his cough so they assumed it was from

reflux because each time they listened to his lungs they said he sounded

clear, I didn't like his cough or stuffy nose but they kept assuring me that

he was fine. In the mean time my 14 year old got sick (most likely caught

it from Evan) she was admitted to the hospital and while she was there I had

Evan w/me(we were in a private room and he wore a mask, he slept most of

time) anyway Evan started coughing and the nurse looked alarmed at his

cough...I told her it was from reflux and she said " no, I don't think so

....let me go get the dr. " .

Guess what? they admitted him with a lung infection and a small part of his

lung collapsed. He's ok now, just got off of augmentin but he was on 2 i.v.

meds while in the hospital.

I just wanted to tell you to make sure you are persistant with your doctors,

just to be sure get an xray.

I was really upset with the drs. but they have been so great with my

daughter, her FEV1 is 105!!!! she wasn't diagnosed until she was 5 so I'm

nervous...even if he sneezes I'm pacing the floor. They assured me from now

on they will treat Evan differently. I'm sure that means a lot of xrays,

which also makes me nervous!

He is doing great now, I also asked the question about his cpt, I do it 3

times a day, sometimes more and he doesn't cough anything up, the drs.

explained that babies swallow their mucus and then poop it out.

Please let me know how Leila is doing. Good luck....be persistant

mom to 14 w/cf, Cody 11 wocf, Zoey 3 wocf, Evan 11 wks w/cf

[Guest guest]

Keeley,

I have 2 children w/cf, one is 14 and the other is 11 wks. My son Evan is

the baby and he recently had a lung infection, he just got out of the

hospital after being there for 16 days . I was on the phone and at the cf

center 2x a week they never heard his cough so they assumed it was from

reflux because each time they listened to his lungs they said he sounded

clear, I didn't like his cough or stuffy nose but they kept assuring me that

he was fine. In the mean time my 14 year old got sick (most likely caught

it from Evan) she was admitted to the hospital and while she was there I had

Evan w/me(we were in a private room and he wore a mask, he slept most of

time) anyway Evan started coughing and the nurse looked alarmed at his

cough...I told her it was from reflux and she said " no, I don't think so

....let me go get the dr. " .

Guess what? they admitted him with a lung infection and a small part of his

lung collapsed. He's ok now, just got off of augmentin but he was on 2 i.v.

meds while in the hospital.

I just wanted to tell you to make sure you are persistant with your doctors,

just to be sure get an xray.

I was really upset with the drs. but they have been so great with my

daughter, her FEV1 is 105!!!! she wasn't diagnosed until she was 5 so I'm

nervous...even if he sneezes I'm pacing the floor. They assured me from now

on they will treat Evan differently. I'm sure that means a lot of xrays,

which also makes me nervous!

He is doing great now, I also asked the question about his cpt, I do it 3

times a day, sometimes more and he doesn't cough anything up, the drs.

explained that babies swallow their mucus and then poop it out.

Please let me know how Leila is doing. Good luck....be persistant

mom to 14 w/cf, Cody 11 wocf, Zoey 3 wocf, Evan 11 wks w/cf

[Guest guest]

---Hi Keeley,

I am certainly not an authority but I can tell you how we handle

colds. My daughter is 10 wcf. Typically when she gets a cold we put

her on Augmentin not for the cold itself as antibiotics don't work on

viruses but for the secondary infection that may occur. Our rule of

thumb is the second any cough starts she goes right on antibiotics.

And of course this always happens on the weekends!!!!! If I were you

I would call your pulmonologist or the on call pulmonologist to see

what there protocol is. Ours is to treat aggressively. Good Luck

and better to be cautious and call.

J.

In cfparents@y..., " Keeley Browder " wrote:

> My little Leila has her first cold. I'm not surprised, actually,

because her older sister started it and now we all have it. If Leila

were a child w/o CF I would be completely unconcerned. She has a

mild runny nose, but still smiles & plays, eating well, no fever,

sleeping fine. It started on Wednesday, and she had a little cough

then. This morning she was really coughing on awakening and couldn't

breath because her little nose was so clogged. I did CPT and she

coughed a little, but nothing came up. If today were a week day I'd

call her pulmonologist, but here we are on a weekend (aren't they

always sick on holiday/weekends?). I am concerned because I was told

if she got sick she would be put on antibiotics, but does that mean

every time she gets a runny nose? I guess I'm still unsure what I'm

supposed to be looking for. Is this CF or a cold or both? I feel

like a new parent and I'm not! I'm worried, but I'm not sure if I

should be or not. Arrrgh!

>

> Keeley, mom to Leila, 4 months wcf and Hadley, 2.5 yrs. nocf

>

>

>

[Guest guest]

---Hi Keeley,

I am certainly not an authority but I can tell you how we handle

colds. My daughter is 10 wcf. Typically when she gets a cold we put

her on Augmentin not for the cold itself as antibiotics don't work on

viruses but for the secondary infection that may occur. Our rule of

thumb is the second any cough starts she goes right on antibiotics.

And of course this always happens on the weekends!!!!! If I were you

I would call your pulmonologist or the on call pulmonologist to see

what there protocol is. Ours is to treat aggressively. Good Luck

and better to be cautious and call.

J.

In cfparents@y..., " Keeley Browder " wrote:

> My little Leila has her first cold. I'm not surprised, actually,

because her older sister started it and now we all have it. If Leila

were a child w/o CF I would be completely unconcerned. She has a

mild runny nose, but still smiles & plays, eating well, no fever,

sleeping fine. It started on Wednesday, and she had a little cough

then. This morning she was really coughing on awakening and couldn't

breath because her little nose was so clogged. I did CPT and she

coughed a little, but nothing came up. If today were a week day I'd

call her pulmonologist, but here we are on a weekend (aren't they

always sick on holiday/weekends?). I am concerned because I was told

if she got sick she would be put on antibiotics, but does that mean

every time she gets a runny nose? I guess I'm still unsure what I'm

supposed to be looking for. Is this CF or a cold or both? I feel

like a new parent and I'm not! I'm worried, but I'm not sure if I

should be or not. Arrrgh!

>

> Keeley, mom to Leila, 4 months wcf and Hadley, 2.5 yrs. nocf

>

>

>

[Guest guest]

---Hi Keeley,

I am certainly not an authority but I can tell you how we handle

colds. My daughter is 10 wcf. Typically when she gets a cold we put

her on Augmentin not for the cold itself as antibiotics don't work on

viruses but for the secondary infection that may occur. Our rule of

thumb is the second any cough starts she goes right on antibiotics.

And of course this always happens on the weekends!!!!! If I were you

I would call your pulmonologist or the on call pulmonologist to see

what there protocol is. Ours is to treat aggressively. Good Luck

and better to be cautious and call.

J.

In cfparents@y..., " Keeley Browder " wrote:

> My little Leila has her first cold. I'm not surprised, actually,

because her older sister started it and now we all have it. If Leila

were a child w/o CF I would be completely unconcerned. She has a

mild runny nose, but still smiles & plays, eating well, no fever,

sleeping fine. It started on Wednesday, and she had a little cough

then. This morning she was really coughing on awakening and couldn't

breath because her little nose was so clogged. I did CPT and she

coughed a little, but nothing came up. If today were a week day I'd

call her pulmonologist, but here we are on a weekend (aren't they

always sick on holiday/weekends?). I am concerned because I was told

if she got sick she would be put on antibiotics, but does that mean

every time she gets a runny nose? I guess I'm still unsure what I'm

supposed to be looking for. Is this CF or a cold or both? I feel

like a new parent and I'm not! I'm worried, but I'm not sure if I

should be or not. Arrrgh!

>

> Keeley, mom to Leila, 4 months wcf and Hadley, 2.5 yrs. nocf

>

>

>

[Guest guest]

I'll tell ya, because I know we are in the same region geographically.

We've had two colds in the past three weeks. The first one my dd (no CF)

got badly, and had fever and felt awful...Jake barely got it. The second

one started Friday night, last week. My dd who is four also started with

it and then got it as well. It consisted of a very runny nose,

mostly clear in color, but lots of mucus, then two to three days of a

very yucky sounding cough. It was only because my dd coughed just as

much and almost as yucky-sounding that I didn't panic when Jake coughed

(I can count on one hand the number of times he's coughed in his life).

His sounded a little deeper. But, it cleared within 2-3 days. The

stuffed/runny nose lasted Monday to today, and he's just clearing up

today. He seems fine and I don't think he'll need antibiotics this time.

Both my kids felt fine, played normally, no fever throughout this cold

so it sounds really similar to what you have.

Clinics vary in what they do with colds. Ours says that if a runny nose

lasts more than a week or ten days, they will want to do antibiotics. I

always check in with them anyway. I think they said a cough of more than

a few days. 's cough happened the day before T-day, T-day, and

yesterday so I didn't call them about it. It's just about gone now. It

followed the exact same pattern as my dd's cough but took one more day

to disappear.

So...my advice is check in with your clinic on Monday -- sooner if she

is really coughing hard throughout the day or takes a turn for the

worse, like fever or green snot, but I really think she sounds ok, just

like a normal cold virus. It really does take them just a little longer

to get over colds than " normal " kids but they can do it.

Hey, did you know, Leila was one of our first choices if was a

girl. We had plenty of girl names but no boy names so he had no name

till he was, ahem, ten days old. :-D

)O(

mama to , 2yo, w/CF, and , 4yo, no CF

Baby's first illness - what now?

My little Leila has her first cold. I'm not surprised, actually,

because her older sister started it and now we all have it. If Leila

were a child w/o CF I would be completely unconcerned. She has a mild

runny nose, but still smiles & plays, eating well, no fever, sleeping

fine. It started on Wednesday, and she had a little cough then. This

morning she was really coughing on awakening and couldn't breath because

her little nose was so clogged. I did CPT and she coughed a little, but

nothing came up. If today were a week day I'd call her pulmonologist,

but here we are on a weekend (aren't they always sick on

holiday/weekends?). I am concerned because I was told if she got sick

she would be put on antibiotics, but does that mean every time she gets

a runny nose? I guess I'm still unsure what I'm supposed to be looking

for. Is this CF or a cold or both? I feel like a new parent and I'm

not! I'm worried, but I'm not sure if I should be or not. Arrrgh!

Keeley, mom to Leila, 4 months wcf and Hadley, 2.5 yrs. nocf

[Guest guest]

I'll tell ya, because I know we are in the same region geographically.

We've had two colds in the past three weeks. The first one my dd (no CF)

got badly, and had fever and felt awful...Jake barely got it. The second

one started Friday night, last week. My dd who is four also started with

it and then got it as well. It consisted of a very runny nose,

mostly clear in color, but lots of mucus, then two to three days of a

very yucky sounding cough. It was only because my dd coughed just as

much and almost as yucky-sounding that I didn't panic when Jake coughed

(I can count on one hand the number of times he's coughed in his life).

His sounded a little deeper. But, it cleared within 2-3 days. The

stuffed/runny nose lasted Monday to today, and he's just clearing up

today. He seems fine and I don't think he'll need antibiotics this time.

Both my kids felt fine, played normally, no fever throughout this cold

so it sounds really similar to what you have.

Clinics vary in what they do with colds. Ours says that if a runny nose

lasts more than a week or ten days, they will want to do antibiotics. I

always check in with them anyway. I think they said a cough of more than

a few days. 's cough happened the day before T-day, T-day, and

yesterday so I didn't call them about it. It's just about gone now. It

followed the exact same pattern as my dd's cough but took one more day

to disappear.

So...my advice is check in with your clinic on Monday -- sooner if she

is really coughing hard throughout the day or takes a turn for the

worse, like fever or green snot, but I really think she sounds ok, just

like a normal cold virus. It really does take them just a little longer

to get over colds than " normal " kids but they can do it.

Hey, did you know, Leila was one of our first choices if was a

girl. We had plenty of girl names but no boy names so he had no name

till he was, ahem, ten days old. :-D

)O(

mama to , 2yo, w/CF, and , 4yo, no CF

Baby's first illness - what now?

My little Leila has her first cold. I'm not surprised, actually,

because her older sister started it and now we all have it. If Leila

were a child w/o CF I would be completely unconcerned. She has a mild

runny nose, but still smiles & plays, eating well, no fever, sleeping

fine. It started on Wednesday, and she had a little cough then. This

morning she was really coughing on awakening and couldn't breath because

her little nose was so clogged. I did CPT and she coughed a little, but

nothing came up. If today were a week day I'd call her pulmonologist,

but here we are on a weekend (aren't they always sick on

holiday/weekends?). I am concerned because I was told if she got sick

she would be put on antibiotics, but does that mean every time she gets

a runny nose? I guess I'm still unsure what I'm supposed to be looking

for. Is this CF or a cold or both? I feel like a new parent and I'm

not! I'm worried, but I'm not sure if I should be or not. Arrrgh!

Keeley, mom to Leila, 4 months wcf and Hadley, 2.5 yrs. nocf

[Guest guest]

I'll tell ya, because I know we are in the same region geographically.

We've had two colds in the past three weeks. The first one my dd (no CF)

got badly, and had fever and felt awful...Jake barely got it. The second

one started Friday night, last week. My dd who is four also started with

it and then got it as well. It consisted of a very runny nose,

mostly clear in color, but lots of mucus, then two to three days of a

very yucky sounding cough. It was only because my dd coughed just as

much and almost as yucky-sounding that I didn't panic when Jake coughed

(I can count on one hand the number of times he's coughed in his life).

His sounded a little deeper. But, it cleared within 2-3 days. The

stuffed/runny nose lasted Monday to today, and he's just clearing up

today. He seems fine and I don't think he'll need antibiotics this time.

Both my kids felt fine, played normally, no fever throughout this cold

so it sounds really similar to what you have.

Clinics vary in what they do with colds. Ours says that if a runny nose

lasts more than a week or ten days, they will want to do antibiotics. I

always check in with them anyway. I think they said a cough of more than

a few days. 's cough happened the day before T-day, T-day, and

yesterday so I didn't call them about it. It's just about gone now. It

followed the exact same pattern as my dd's cough but took one more day

to disappear.

So...my advice is check in with your clinic on Monday -- sooner if she

is really coughing hard throughout the day or takes a turn for the

worse, like fever or green snot, but I really think she sounds ok, just

like a normal cold virus. It really does take them just a little longer

to get over colds than " normal " kids but they can do it.

Hey, did you know, Leila was one of our first choices if was a

girl. We had plenty of girl names but no boy names so he had no name

till he was, ahem, ten days old. :-D

)O(

mama to , 2yo, w/CF, and , 4yo, no CF

Baby's first illness - what now?

My little Leila has her first cold. I'm not surprised, actually,

because her older sister started it and now we all have it. If Leila

were a child w/o CF I would be completely unconcerned. She has a mild

runny nose, but still smiles & plays, eating well, no fever, sleeping

fine. It started on Wednesday, and she had a little cough then. This

morning she was really coughing on awakening and couldn't breath because

her little nose was so clogged. I did CPT and she coughed a little, but

nothing came up. If today were a week day I'd call her pulmonologist,

but here we are on a weekend (aren't they always sick on

holiday/weekends?). I am concerned because I was told if she got sick

she would be put on antibiotics, but does that mean every time she gets

a runny nose? I guess I'm still unsure what I'm supposed to be looking

for. Is this CF or a cold or both? I feel like a new parent and I'm

not! I'm worried, but I'm not sure if I should be or not. Arrrgh!

Keeley, mom to Leila, 4 months wcf and Hadley, 2.5 yrs. nocf

[Guest guest]

Hi Keeley,

We do the same as J. We also up the Albuterol nebulizers to as many

as we can per day. the doc recommends 4 but we usually squeeze in 3.

You are right to take action and try to get rid of it early.

-Lenora in Colorado

>---Hi Keeley,

>I am certainly not an authority but I can tell you how we handle

>colds. My daughter is 10 wcf. Typically when she gets a cold we put

>her on Augmentin not for the cold itself as antibiotics don't work on

>viruses but for the secondary infection that may occur. Our rule of

>thumb is the second any cough starts she goes right on antibiotics.

>And of course this always happens on the weekends!!!!! If I were you

>I would call your pulmonologist or the on call pulmonologist to see

>what there protocol is. Ours is to treat aggressively. Good Luck

>and better to be cautious and call.

>J.

>

>

>In cfparents@y..., " Keeley Browder " wrote:

>> My little Leila has her first cold. I'm not surprised, actually,

>because her older sister started it and now we all have it. If Leila

>were a child w/o CF I would be completely unconcerned. She has a

>mild runny nose, but still smiles & plays, eating well, no fever,

>sleeping fine. It started on Wednesday, and she had a little cough

>then. This morning she was really coughing on awakening and couldn't

>breath because her little nose was so clogged. I did CPT and she

>coughed a little, but nothing came up. If today were a week day I'd

>call her pulmonologist, but here we are on a weekend (aren't they

>always sick on holiday/weekends?). I am concerned because I was told

>if she got sick she would be put on antibiotics, but does that mean

>every time she gets a runny nose? I guess I'm still unsure what I'm

>supposed to be looking for. Is this CF or a cold or both? I feel

>like a new parent and I'm not! I'm worried, but I'm not sure if I

>should be or not. Arrrgh!

>>

>> Keeley, mom to Leila, 4 months wcf and Hadley, 2.5 yrs. nocf

>>

>>

>>

[Guest guest]

Hi Keeley,

We do the same as J. We also up the Albuterol nebulizers to as many

as we can per day. the doc recommends 4 but we usually squeeze in 3.

You are right to take action and try to get rid of it early.

-Lenora in Colorado

>---Hi Keeley,

>I am certainly not an authority but I can tell you how we handle

>colds. My daughter is 10 wcf. Typically when she gets a cold we put

>her on Augmentin not for the cold itself as antibiotics don't work on

>viruses but for the secondary infection that may occur. Our rule of

>thumb is the second any cough starts she goes right on antibiotics.

>And of course this always happens on the weekends!!!!! If I were you

>I would call your pulmonologist or the on call pulmonologist to see

>what there protocol is. Ours is to treat aggressively. Good Luck

>and better to be cautious and call.

>J.

>

>

>In cfparents@y..., " Keeley Browder " wrote:

>> My little Leila has her first cold. I'm not surprised, actually,

>because her older sister started it and now we all have it. If Leila

>were a child w/o CF I would be completely unconcerned. She has a

>mild runny nose, but still smiles & plays, eating well, no fever,

>sleeping fine. It started on Wednesday, and she had a little cough

>then. This morning she was really coughing on awakening and couldn't

>breath because her little nose was so clogged. I did CPT and she

>coughed a little, but nothing came up. If today were a week day I'd

>call her pulmonologist, but here we are on a weekend (aren't they

>always sick on holiday/weekends?). I am concerned because I was told

>if she got sick she would be put on antibiotics, but does that mean

>every time she gets a runny nose? I guess I'm still unsure what I'm

>supposed to be looking for. Is this CF or a cold or both? I feel

>like a new parent and I'm not! I'm worried, but I'm not sure if I

>should be or not. Arrrgh!

>>

>> Keeley, mom to Leila, 4 months wcf and Hadley, 2.5 yrs. nocf

>>

>>

>>

[Guest guest]

Hi Lenora,

When I called the doc asked me if they (I assume he meant the clinic) had

gotten us a nebulizer. We don't have one, and they haven't mentioned anything

about it. I don't understand why she would need it unless she was wheezing,

which hasn't been the case. Does your child have asthma as well, or do they use

albuterol for something else?

Keeley

Re: Baby's first illness - what now?

Hi Keeley,

We do the same as J. We also up the Albuterol nebulizers to as many

as we can per day. the doc recommends 4 but we usually squeeze in 3.

You are right to take action and try to get rid of it early.

-Lenora in Colorado

>---Hi Keeley,

>I am certainly not an authority but I can tell you how we handle

>colds. My daughter is 10 wcf. Typically when she gets a cold we put

>her on Augmentin not for the cold itself as antibiotics don't work on

>viruses but for the secondary infection that may occur. Our rule of

>thumb is the second any cough starts she goes right on antibiotics.

>And of course this always happens on the weekends!!!!! If I were you

>I would call your pulmonologist or the on call pulmonologist to see

>what there protocol is. Ours is to treat aggressively. Good Luck

>and better to be cautious and call.

>J.

>

>

>In cfparents@y..., " Keeley Browder " wrote:

>> My little Leila has her first cold. I'm not surprised, actually,

>because her older sister started it and now we all have it. If Leila

>were a child w/o CF I would be completely unconcerned. She has a

>mild runny nose, but still smiles & plays, eating well, no fever,

>sleeping fine. It started on Wednesday, and she had a little cough

>then. This morning she was really coughing on awakening and couldn't

>breath because her little nose was so clogged. I did CPT and she

>coughed a little, but nothing came up. If today were a week day I'd

>call her pulmonologist, but here we are on a weekend (aren't they

>always sick on holiday/weekends?). I am concerned because I was told

>if she got sick she would be put on antibiotics, but does that mean

>every time she gets a runny nose? I guess I'm still unsure what I'm

>supposed to be looking for. Is this CF or a cold or both? I feel

>like a new parent and I'm not! I'm worried, but I'm not sure if I

>should be or not. Arrrgh!

>>

>> Keeley, mom to Leila, 4 months wcf and Hadley, 2.5 yrs. nocf

>>

>>

>>

[Guest guest]

Hi Lenora,

When I called the doc asked me if they (I assume he meant the clinic) had

gotten us a nebulizer. We don't have one, and they haven't mentioned anything

about it. I don't understand why she would need it unless she was wheezing,

which hasn't been the case. Does your child have asthma as well, or do they use

albuterol for something else?

Keeley

Re: Baby's first illness - what now?

Hi Keeley,

We do the same as J. We also up the Albuterol nebulizers to as many

as we can per day. the doc recommends 4 but we usually squeeze in 3.

You are right to take action and try to get rid of it early.

-Lenora in Colorado

>---Hi Keeley,

>I am certainly not an authority but I can tell you how we handle

>colds. My daughter is 10 wcf. Typically when she gets a cold we put

>her on Augmentin not for the cold itself as antibiotics don't work on

>viruses but for the secondary infection that may occur. Our rule of

>thumb is the second any cough starts she goes right on antibiotics.

>And of course this always happens on the weekends!!!!! If I were you

>I would call your pulmonologist or the on call pulmonologist to see

>what there protocol is. Ours is to treat aggressively. Good Luck

>and better to be cautious and call.

>J.

>

>

>In cfparents@y..., " Keeley Browder " wrote:

>> My little Leila has her first cold. I'm not surprised, actually,

>because her older sister started it and now we all have it. If Leila

>were a child w/o CF I would be completely unconcerned. She has a

>mild runny nose, but still smiles & plays, eating well, no fever,

>sleeping fine. It started on Wednesday, and she had a little cough

>then. This morning she was really coughing on awakening and couldn't

>breath because her little nose was so clogged. I did CPT and she

>coughed a little, but nothing came up. If today were a week day I'd

>call her pulmonologist, but here we are on a weekend (aren't they

>always sick on holiday/weekends?). I am concerned because I was told

>if she got sick she would be put on antibiotics, but does that mean

>every time she gets a runny nose? I guess I'm still unsure what I'm

>supposed to be looking for. Is this CF or a cold or both? I feel

>like a new parent and I'm not! I'm worried, but I'm not sure if I

>should be or not. Arrrgh!

>>

>> Keeley, mom to Leila, 4 months wcf and Hadley, 2.5 yrs. nocf

>>

>>

>>

[Guest guest]

Ah, so you've had the crud your way too. It really hasn't been too bad. My big

girl hasn't acted even slightly ill, but she has a lgt. yellow runny nose and

night cough. I hope Leila ends up doing as well as your Jake. Hadley has only

been sick a couple times in her life, and hasn't ever had antibiotics. She

stays at home with me and while we do attend a play group, we are careful about

handwashing. I wasn't too surprised our doc wanted us on antibiotics, but I'm

not thrilled about it. I know the antibiotics are preventative, but I hate

giving them when she doesn't need it now. What about bug resistance? We'll do

what we have too to keep her well, but I don't have to like it!

So I take it you didn't know you were having a boy before he was born? Leila is

a family name for us. It took us a long time to agree on a second name, but

when we found this one it seemed perfect. How nice that you have a boy and a

girl. My husband really wanted a boy, but I definitely wanted another girl.

Now I'd like a third to be a boy, but we'll see if that third actually happens.

Keeley

Baby's first illness - what now?

My little Leila has her first cold. I'm not surprised, actually,

because her older sister started it and now we all have it. If Leila

were a child w/o CF I would be completely unconcerned. She has a mild

runny nose, but still smiles & plays, eating well, no fever, sleeping

fine. It started on Wednesday, and she had a little cough then. This

morning she was really coughing on awakening and couldn't breath because

her little nose was so clogged. I did CPT and she coughed a little, but

nothing came up. If today were a week day I'd call her pulmonologist,

but here we are on a weekend (aren't they always sick on

holiday/weekends?). I am concerned because I was told if she got sick

she would be put on antibiotics, but does that mean every time she gets

a runny nose? I guess I'm still unsure what I'm supposed to be looking

for. Is this CF or a cold or both? I feel like a new parent and I'm

not! I'm worried, but I'm not sure if I should be or not. Arrrgh!

Keeley, mom to Leila, 4 months wcf and Hadley, 2.5 yrs. nocf

[Guest guest]

Ah, so you've had the crud your way too. It really hasn't been too bad. My big

girl hasn't acted even slightly ill, but she has a lgt. yellow runny nose and

night cough. I hope Leila ends up doing as well as your Jake. Hadley has only

been sick a couple times in her life, and hasn't ever had antibiotics. She

stays at home with me and while we do attend a play group, we are careful about

handwashing. I wasn't too surprised our doc wanted us on antibiotics, but I'm

not thrilled about it. I know the antibiotics are preventative, but I hate

giving them when she doesn't need it now. What about bug resistance? We'll do

what we have too to keep her well, but I don't have to like it!

So I take it you didn't know you were having a boy before he was born? Leila is

a family name for us. It took us a long time to agree on a second name, but

when we found this one it seemed perfect. How nice that you have a boy and a

girl. My husband really wanted a boy, but I definitely wanted another girl.

Now I'd like a third to be a boy, but we'll see if that third actually happens.

Keeley

Baby's first illness - what now?

My little Leila has her first cold. I'm not surprised, actually,

because her older sister started it and now we all have it. If Leila

were a child w/o CF I would be completely unconcerned. She has a mild

runny nose, but still smiles & plays, eating well, no fever, sleeping

fine. It started on Wednesday, and she had a little cough then. This

morning she was really coughing on awakening and couldn't breath because

her little nose was so clogged. I did CPT and she coughed a little, but

nothing came up. If today were a week day I'd call her pulmonologist,

but here we are on a weekend (aren't they always sick on

holiday/weekends?). I am concerned because I was told if she got sick

she would be put on antibiotics, but does that mean every time she gets

a runny nose? I guess I'm still unsure what I'm supposed to be looking

for. Is this CF or a cold or both? I feel like a new parent and I'm

not! I'm worried, but I'm not sure if I should be or not. Arrrgh!

Keeley, mom to Leila, 4 months wcf and Hadley, 2.5 yrs. nocf

[Guest guest]

Ah, so you've had the crud your way too. It really hasn't been too bad. My big

girl hasn't acted even slightly ill, but she has a lgt. yellow runny nose and

night cough. I hope Leila ends up doing as well as your Jake. Hadley has only

been sick a couple times in her life, and hasn't ever had antibiotics. She

stays at home with me and while we do attend a play group, we are careful about

handwashing. I wasn't too surprised our doc wanted us on antibiotics, but I'm

not thrilled about it. I know the antibiotics are preventative, but I hate

giving them when she doesn't need it now. What about bug resistance? We'll do

what we have too to keep her well, but I don't have to like it!

So I take it you didn't know you were having a boy before he was born? Leila is

a family name for us. It took us a long time to agree on a second name, but

when we found this one it seemed perfect. How nice that you have a boy and a

girl. My husband really wanted a boy, but I definitely wanted another girl.

Now I'd like a third to be a boy, but we'll see if that third actually happens.

Keeley

Baby's first illness - what now?

My little Leila has her first cold. I'm not surprised, actually,

because her older sister started it and now we all have it. If Leila

were a child w/o CF I would be completely unconcerned. She has a mild

runny nose, but still smiles & plays, eating well, no fever, sleeping

fine. It started on Wednesday, and she had a little cough then. This

morning she was really coughing on awakening and couldn't breath because

her little nose was so clogged. I did CPT and she coughed a little, but

nothing came up. If today were a week day I'd call her pulmonologist,

but here we are on a weekend (aren't they always sick on

holiday/weekends?). I am concerned because I was told if she got sick

she would be put on antibiotics, but does that mean every time she gets

a runny nose? I guess I'm still unsure what I'm supposed to be looking

for. Is this CF or a cold or both? I feel like a new parent and I'm

not! I'm worried, but I'm not sure if I should be or not. Arrrgh!

Keeley, mom to Leila, 4 months wcf and Hadley, 2.5 yrs. nocf

[Guest guest]

Yes, I always thought we'd have a third, but now, that is probably not

going to happen. I wanted another girl to be honest, mainly because I

never had a sister and wanted to have one. But of course I am very

happy with a boy, too!

No, I didn't know what I was having before he was born. I had a home

birth and the pregnancy had as little intervention as possible. I did

have a late ultrasound at about 28 weeks due to possible preterm labor

but I asked them not to tell me -- they said he had his legs crossed

anyway so they couldn't tell. ;-) In retrospect I am glad I had one so

that if there was any bowel blockage they would have seen it. There

wasn't, we lucked out in that respect. Jake has tended toward the other

end of things GI-wise -- that is, too loose rather than too firm. LOL.

I feel the same way you do about antibiotics. I worry about bug

resistance as well. Lately I have begun insisting on a throat culture

before doing antibiotics for just nasal/sinus congestion due to viral

infection, because tends to get sinus congestion that goes on for

ten days to two weeks before clearing. And I use signs like paleness of

skin, lack of energy, and cough to determine if I think it's time for

antibiotics. So far we have done ok but Jake has been on antibiotics 7

times since diagnosis. My dd has been on them once in her life, for a

lymph node that became bacterially infected after the flu last year.

Hope Leila feels better real soon!

)O(

mama to , 2yo, w/CF, and , 4yo, no CF

Re: Baby's first illness - what now?

Ah, so you've had the crud your way too. It really hasn't been too bad.

My big girl hasn't acted even slightly ill, but she has a lgt. yellow

runny nose and night cough. I hope Leila ends up doing as well as your

Jake. Hadley has only been sick a couple times in her life, and hasn't

ever had antibiotics. She stays at home with me and while we do attend

a play group, we are careful about handwashing. I wasn't too surprised

our doc wanted us on antibiotics, but I'm not thrilled about it. I know

the antibiotics are preventative, but I hate giving them when she

doesn't need it now. What about bug resistance? We'll do what we have

too to keep her well, but I don't have to like it!

So I take it you didn't know you were having a boy before he was born?

Leila is a family name for us. It took us a long time to agree on a

second name, but when we found this one it seemed perfect. How nice

that you have a boy and a girl. My husband really wanted a boy, but I

definitely wanted another girl. Now I'd like a third to be a boy, but

we'll see if that third actually happens.

Keeley

[Guest guest]

Yes, I always thought we'd have a third, but now, that is probably not

going to happen. I wanted another girl to be honest, mainly because I

never had a sister and wanted to have one. But of course I am very

happy with a boy, too!

No, I didn't know what I was having before he was born. I had a home

birth and the pregnancy had as little intervention as possible. I did

have a late ultrasound at about 28 weeks due to possible preterm labor

but I asked them not to tell me -- they said he had his legs crossed

anyway so they couldn't tell. ;-) In retrospect I am glad I had one so

that if there was any bowel blockage they would have seen it. There

wasn't, we lucked out in that respect. Jake has tended toward the other

end of things GI-wise -- that is, too loose rather than too firm. LOL.

I feel the same way you do about antibiotics. I worry about bug

resistance as well. Lately I have begun insisting on a throat culture

before doing antibiotics for just nasal/sinus congestion due to viral

infection, because tends to get sinus congestion that goes on for

ten days to two weeks before clearing. And I use signs like paleness of

skin, lack of energy, and cough to determine if I think it's time for

antibiotics. So far we have done ok but Jake has been on antibiotics 7

times since diagnosis. My dd has been on them once in her life, for a

lymph node that became bacterially infected after the flu last year.

Hope Leila feels better real soon!

)O(

mama to , 2yo, w/CF, and , 4yo, no CF

Re: Baby's first illness - what now?

Ah, so you've had the crud your way too. It really hasn't been too bad.

My big girl hasn't acted even slightly ill, but she has a lgt. yellow

runny nose and night cough. I hope Leila ends up doing as well as your

Jake. Hadley has only been sick a couple times in her life, and hasn't

ever had antibiotics. She stays at home with me and while we do attend

a play group, we are careful about handwashing. I wasn't too surprised

our doc wanted us on antibiotics, but I'm not thrilled about it. I know

the antibiotics are preventative, but I hate giving them when she

doesn't need it now. What about bug resistance? We'll do what we have

too to keep her well, but I don't have to like it!

So I take it you didn't know you were having a boy before he was born?

Leila is a family name for us. It took us a long time to agree on a

second name, but when we found this one it seemed perfect. How nice

that you have a boy and a girl. My husband really wanted a boy, but I

definitely wanted another girl. Now I'd like a third to be a boy, but

we'll see if that third actually happens.

Keeley

[Guest guest]

Yes, I always thought we'd have a third, but now, that is probably not

going to happen. I wanted another girl to be honest, mainly because I

never had a sister and wanted to have one. But of course I am very

happy with a boy, too!

No, I didn't know what I was having before he was born. I had a home

birth and the pregnancy had as little intervention as possible. I did

have a late ultrasound at about 28 weeks due to possible preterm labor

but I asked them not to tell me -- they said he had his legs crossed

anyway so they couldn't tell. ;-) In retrospect I am glad I had one so

that if there was any bowel blockage they would have seen it. There

wasn't, we lucked out in that respect. Jake has tended toward the other

end of things GI-wise -- that is, too loose rather than too firm. LOL.

I feel the same way you do about antibiotics. I worry about bug

resistance as well. Lately I have begun insisting on a throat culture

before doing antibiotics for just nasal/sinus congestion due to viral

infection, because tends to get sinus congestion that goes on for

ten days to two weeks before clearing. And I use signs like paleness of

skin, lack of energy, and cough to determine if I think it's time for

antibiotics. So far we have done ok but Jake has been on antibiotics 7

times since diagnosis. My dd has been on them once in her life, for a

lymph node that became bacterially infected after the flu last year.

Hope Leila feels better real soon!

)O(

mama to , 2yo, w/CF, and , 4yo, no CF

Re: Baby's first illness - what now?

Ah, so you've had the crud your way too. It really hasn't been too bad.

My big girl hasn't acted even slightly ill, but she has a lgt. yellow

runny nose and night cough. I hope Leila ends up doing as well as your

Jake. Hadley has only been sick a couple times in her life, and hasn't

ever had antibiotics. She stays at home with me and while we do attend

a play group, we are careful about handwashing. I wasn't too surprised

our doc wanted us on antibiotics, but I'm not thrilled about it. I know

the antibiotics are preventative, but I hate giving them when she

doesn't need it now. What about bug resistance? We'll do what we have

too to keep her well, but I don't have to like it!

So I take it you didn't know you were having a boy before he was born?

Leila is a family name for us. It took us a long time to agree on a

second name, but when we found this one it seemed perfect. How nice

that you have a boy and a girl. My husband really wanted a boy, but I

definitely wanted another girl. Now I'd like a third to be a boy, but

we'll see if that third actually happens.

Keeley

[Guest guest]

Keeley,

You'll learn all about FEV1 and other pft's, 105 is excellent.

As far as the cpt goes, Evan gets a neb 3x a day with the pt, we just fit it

in our schedule, I don't have a choice, I know that doing this is only going

to help him. My 3 year old knows that this gets done before anything else,

then she gets quality time, my husband helps with this as well.

My 11 year old knows the routine from his older sister so its nothing new to

him.

by the way, my situation is probably different from most families with more

than 1 child with cf. I got remarried 5 years ago, my second husband is also

a carrier. We didn't know Evan had cf until he was 12 days old, we didn't

even know he was tested. Two years ago they started screening newborns in PA

for genetic diseases. Needless to say we were shocked when we found out. I

have two children with cf that have 2 different last names, it still seems so

unbelieveable but what else can we do but fight it the best way we can!

mom of 14 w/cf, Cody 11 wocf, Zoey 3 wocf, Evan 11 wks w/cf

[Guest guest]

Hi Kee;ey,

has had the nebulizer since he was a few weeks old, even

thought he was not diagnosed with asthma until 5 years later.

I think it is a common cf item to have and I am guessing you may get one soon.

Not only is it used to dispense Pulmozyme, but also albuterol, which

is a way to keep airways open, with or without asthma.

Keep us posted! I am sure things will heal up quickly!

Lenora

>Hi Lenora,

>

> When I called the doc asked me if they (I assume he meant the

>clinic) had gotten us a nebulizer. We don't have one, and they

>haven't mentioned anything about it. I don't understand why she

>would need it unless she was wheezing, which hasn't been the case.

>Does your child have asthma as well, or do they use albuterol for

>something else?

>

>Keeley

> Re: Baby's first illness - what now?

>

>

> Hi Keeley,

> We do the same as J. We also up the Albuterol nebulizers to as many

> as we can per day. the doc recommends 4 but we usually squeeze in 3.

> You are right to take action and try to get rid of it early.

> -Lenora in Colorado

>

> >---Hi Keeley,

> >I am certainly not an authority but I can tell you how we handle

> >colds. My daughter is 10 wcf. Typically when she gets a cold we put

> >her on Augmentin not for the cold itself as antibiotics don't work on

> >viruses but for the secondary infection that may occur. Our rule of

> >thumb is the second any cough starts she goes right on antibiotics.

> >And of course this always happens on the weekends!!!!! If I were you

> >I would call your pulmonologist or the on call pulmonologist to see

> >what there protocol is. Ours is to treat aggressively. Good Luck

> >and better to be cautious and call.

> >J.

> >

> >

> >In cfparents@y..., " Keeley Browder " wrote:

> >> My little Leila has her first cold. I'm not surprised, actually,

> >because her older sister started it and now we all have it. If Leila

> >were a child w/o CF I would be completely unconcerned. She has a

> >mild runny nose, but still smiles & plays, eating well, no fever,

> >sleeping fine. It started on Wednesday, and she had a little cough

> >then. This morning she was really coughing on awakening and couldn't

> >breath because her little nose was so clogged. I did CPT and she

> >coughed a little, but nothing came up. If today were a week day I'd

> >call her pulmonologist, but here we are on a weekend (aren't they

> >always sick on holiday/weekends?). I am concerned because I was told

> >if she got sick she would be put on antibiotics, but does that mean

> >every time she gets a runny nose? I guess I'm still unsure what I'm

> >supposed to be looking for. Is this CF or a cold or both? I feel

> >like a new parent and I'm not! I'm worried, but I'm not sure if I

> >should be or not. Arrrgh!

> >>

> >> Keeley, mom to Leila, 4 months wcf and Hadley, 2.5 yrs. nocf

> >>

> >>

> >>

[Guest guest]

Hi Kee;ey,

has had the nebulizer since he was a few weeks old, even

thought he was not diagnosed with asthma until 5 years later.

I think it is a common cf item to have and I am guessing you may get one soon.

Not only is it used to dispense Pulmozyme, but also albuterol, which

is a way to keep airways open, with or without asthma.

Keep us posted! I am sure things will heal up quickly!

Lenora

>Hi Lenora,

>

> When I called the doc asked me if they (I assume he meant the

>clinic) had gotten us a nebulizer. We don't have one, and they

>haven't mentioned anything about it. I don't understand why she

>would need it unless she was wheezing, which hasn't been the case.

>Does your child have asthma as well, or do they use albuterol for

>something else?

>

>Keeley

> Re: Baby's first illness - what now?

>

>

> Hi Keeley,

> We do the same as J. We also up the Albuterol nebulizers to as many

> as we can per day. the doc recommends 4 but we usually squeeze in 3.

> You are right to take action and try to get rid of it early.

> -Lenora in Colorado

>

> >---Hi Keeley,

> >I am certainly not an authority but I can tell you how we handle

> >colds. My daughter is 10 wcf. Typically when she gets a cold we put

> >her on Augmentin not for the cold itself as antibiotics don't work on

> >viruses but for the secondary infection that may occur. Our rule of

> >thumb is the second any cough starts she goes right on antibiotics.

> >And of course this always happens on the weekends!!!!! If I were you

> >I would call your pulmonologist or the on call pulmonologist to see

> >what there protocol is. Ours is to treat aggressively. Good Luck

> >and better to be cautious and call.

> >J.

> >

> >

> >In cfparents@y..., " Keeley Browder " wrote:

> >> My little Leila has her first cold. I'm not surprised, actually,

> >because her older sister started it and now we all have it. If Leila

> >were a child w/o CF I would be completely unconcerned. She has a

> >mild runny nose, but still smiles & plays, eating well, no fever,

> >sleeping fine. It started on Wednesday, and she had a little cough

> >then. This morning she was really coughing on awakening and couldn't

> >breath because her little nose was so clogged. I did CPT and she

> >coughed a little, but nothing came up. If today were a week day I'd

> >call her pulmonologist, but here we are on a weekend (aren't they

> >always sick on holiday/weekends?). I am concerned because I was told

> >if she got sick she would be put on antibiotics, but does that mean

> >every time she gets a runny nose? I guess I'm still unsure what I'm

> >supposed to be looking for. Is this CF or a cold or both? I feel

> >like a new parent and I'm not! I'm worried, but I'm not sure if I

> >should be or not. Arrrgh!

> >>

> >> Keeley, mom to Leila, 4 months wcf and Hadley, 2.5 yrs. nocf

> >>

> >>

> >>

[Guest guest]

Hi Kee;ey,

has had the nebulizer since he was a few weeks old, even

thought he was not diagnosed with asthma until 5 years later.

I think it is a common cf item to have and I am guessing you may get one soon.

Not only is it used to dispense Pulmozyme, but also albuterol, which

is a way to keep airways open, with or without asthma.

Keep us posted! I am sure things will heal up quickly!

Lenora

>Hi Lenora,

>

> When I called the doc asked me if they (I assume he meant the

>clinic) had gotten us a nebulizer. We don't have one, and they

>haven't mentioned anything about it. I don't understand why she

>would need it unless she was wheezing, which hasn't been the case.

>Does your child have asthma as well, or do they use albuterol for

>something else?

>

>Keeley

> Re: Baby's first illness - what now?

>

>

> Hi Keeley,

> We do the same as J. We also up the Albuterol nebulizers to as many

> as we can per day. the doc recommends 4 but we usually squeeze in 3.

> You are right to take action and try to get rid of it early.

> -Lenora in Colorado

>

> >---Hi Keeley,

> >I am certainly not an authority but I can tell you how we handle

> >colds. My daughter is 10 wcf. Typically when she gets a cold we put

> >her on Augmentin not for the cold itself as antibiotics don't work on

> >viruses but for the secondary infection that may occur. Our rule of

> >thumb is the second any cough starts she goes right on antibiotics.

> >And of course this always happens on the weekends!!!!! If I were you

> >I would call your pulmonologist or the on call pulmonologist to see

> >what there protocol is. Ours is to treat aggressively. Good Luck

> >and better to be cautious and call.

> >J.

> >

> >

> >In cfparents@y..., " Keeley Browder " wrote:

> >> My little Leila has her first cold. I'm not surprised, actually,

> >because her older sister started it and now we all have it. If Leila

> >were a child w/o CF I would be completely unconcerned. She has a

> >mild runny nose, but still smiles & plays, eating well, no fever,

> >sleeping fine. It started on Wednesday, and she had a little cough

> >then. This morning she was really coughing on awakening and couldn't

> >breath because her little nose was so clogged. I did CPT and she

> >coughed a little, but nothing came up. If today were a week day I'd

> >call her pulmonologist, but here we are on a weekend (aren't they

> >always sick on holiday/weekends?). I am concerned because I was told

> >if she got sick she would be put on antibiotics, but does that mean

> >every time she gets a runny nose? I guess I'm still unsure what I'm

> >supposed to be looking for. Is this CF or a cold or both? I feel

> >like a new parent and I'm not! I'm worried, but I'm not sure if I

> >should be or not. Arrrgh!

> >>

> >> Keeley, mom to Leila, 4 months wcf and Hadley, 2.5 yrs. nocf

> >>

> >>

> >>