Guest guest Posted December 3, 2002 Report Share Posted December 3, 2002 Hi Deb A, Your email address looks familiar, but I don't really remember you. It's nice to meet you, thanks for the welcomes. It's not cold here yet but I was almost tempted to turn on the heat, because it was a little chilly tonight. More about my family? Are you sure? Well I am pretty much a nutcase and am on more meds than . The last time she was inpatient I went totally bonkers, I couldn't even remember a lot of what happened. Since then I've gotten psych help and antidepressants and I'm doing better. Of course her being healthy helps ALOT!! As for the most problems she has had has been sinus problems. She has had 12 or 13 sinus surgeries. I can't even remember anymore, but the last time was when she was inpatient 3 yrs ago like I said. She's also had pneumonia 4 or 5 times, about the same amount of bowel obstructions, but she never had to have surgery for that, she got Golightly by ng tube and was OK. She also has asthma and GERD, and she had a lot of kidney problems once when she had been on IV tobramycin for around six weeks. That was the doctors mistake and it ended up that we changed CF Centers. They told us her kidneys were permanently damaged and she's have to take pottasium forever but she doesn't. My husband is basically healthy except for overweight and high blood pressure. He is dieting and I need to too but can't summon up the willpower right now. And my son Nick is probably the healthiest person around here, he has asthma but it's pretty much non existant now. He had it bad when he was around age 3-8, at one point he was on nebs and cpt like . Nick's a junior at Cal Poly Pomona majoring in Chemistry and he is doing really great! He's coming home this pm for winter break so I'll be happy to have both of my kids home! OK Torsten, Thanks also and I'm glad to hear is getting along so well. I hope Fiona is too. I haven't heard from Carol lately. I went for about 6 months not going online at all so some people may have tried to write but got no response, I don't know. Hi Kim, Nice to see you here. I remember that phone call too, but don't really remember what we talked about either. Could have been that weird person who used to be on cystic-l (do you remember her) or maybe it was W.(OH MY GOD) I haven't talked to Lori in ages, I don't know if she's still mad at me. I think I did hear from her since we had a falling out, and I don't think she was mad anymore but we haven't been in touch much at all. Hi , Thanks also for your message. Sounds like you really went through the wringer with your there when she was diagnosed and all the other problems. I hope things continue to go well now. BTW, I love that name --That was 's best CF friends name. That died in 1998 at the age of 15. She had picked up cepacia from either the hospital or CF Camp in 1995 and she'd just pretty much went downhill from there. We were SO lucky didn't get it, as had probably had it for quite a while before they finally found it in her sputum culture, and the two girls had been very close spending lots of time together and even sleeping over at each others houses. To n, thanks for the sweet thoughts. I love you too To Rosemary, Thanks and yes I remember the other 's. I take it they aren't around anymore? I think there were 4 but one wasn't on this list. I remember P(eaty?) something like that and she used to push Mannatech or whatever that stuff is called. And mom of triplets, I don't remember the kids names except who has CF and some other problems I can't remember. But that was really sweet. And Jen of course I remember you! How could I ever forget? I am so glad you're still on this list. If you have the time (you probably don't but) I'd love to hear how all your brood is doing. I'll never forget the chia pet disease and all the fun we had chatting from Canada. Is Mo still around? She was pretty busy too as I recall. And Tucker, thanks for the welcomes. I went to your website even before this, I saw it on cystic-l and checked it out. Your daughter Milan is a very beautiful little girl! I saw you're trying to get a walk going, I assume for the Milan Foundation and not the CFF? Where is it that you live? Maybe and I could come help out in some way? I can't promise as I don't do well in the morning but I could give it a try. Or if there's something I could do to help from home? Oh and thanks for saying I have been popular that's sweet of you. Well sorry this is so long but I tried not to leave anyone out, if I did I'm sorry. thanks again! love, Quote Link to comment Share on other sites More sharing options...
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