Guest guest Posted March 7, 2006 Report Share Posted March 7, 2006 Sharon, I would consider going back to what he was eating when the seizure activity was the lowest. Then re-add the foods again, one at a time to see if you can pinpoint a particular food that might be causing a problem. Also, I've read that Taurine helps with seizures. Have you tried it before? Jody mom to -7 and -9 SCD 1/03 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2006 Report Share Posted March 7, 2006 My boys take 650mg of Taurine a day (half in the morning, half at bedtime). They sleep all night when the take it. That was a big relief after almost 5 years of not sleeping through the night. Jody mom to -7 and -9 SCD 1/03 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2006 Report Share Posted March 7, 2006 My boys take 650mg of Taurine a day (half in the morning, half at bedtime). They sleep all night when the take it. That was a big relief after almost 5 years of not sleeping through the night. Jody mom to -7 and -9 SCD 1/03 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2006 Report Share Posted March 7, 2006 My boys take 650mg of Taurine a day (half in the morning, half at bedtime). They sleep all night when the take it. That was a big relief after almost 5 years of not sleeping through the night. Jody mom to -7 and -9 SCD 1/03 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2006 Report Share Posted March 7, 2006 Did they have seizures too? has always slept through the night. How big (weight-wise) are your boys and how did you know how much to give them? Sharon, mom to 3, SCD 1 month, HIE, CP, epilepsy, cortically blind My boys take 650mg of Taurine a day (half in the morning, half at bedtime). They sleep all night when the take it. That was a big relief after almost 5 years of not sleeping through the night. Jody mom to -7 and -9 SCD 1/03 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 Hi Sharon, I hope that the olive oil is working. If not, I know one mom who uses coconut oil on her skin and her children's skin right before bedtime. The coconut oil is a solid in the jar but has a low melting point, so it melts in your hand and can be put on like a lotion. (I have never used it for lotion). Carolyn > had been doing well on the diet - seizures reduced, nice BMs etc, >We messed up with vanilla and stopped that about 5 days ago, but the >nanny is giving him a morning massage and I'm wondering if the skin >scream she is using (baby, hypo allergenic) could be the problem - it >has an ingredients list as long as my arm, including aloe vera. I'm >going to ask her to use olive oil, but was wondering if anyone had >experienced bad things with skin cream (I may be reaching here, but when >he was on the pure beginner diet, his seizures died off immediately). >Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 Hi Sharon, I hope that the olive oil is working. If not, I know one mom who uses coconut oil on her skin and her children's skin right before bedtime. The coconut oil is a solid in the jar but has a low melting point, so it melts in your hand and can be put on like a lotion. (I have never used it for lotion). Carolyn > had been doing well on the diet - seizures reduced, nice BMs etc, >We messed up with vanilla and stopped that about 5 days ago, but the >nanny is giving him a morning massage and I'm wondering if the skin >scream she is using (baby, hypo allergenic) could be the problem - it >has an ingredients list as long as my arm, including aloe vera. I'm >going to ask her to use olive oil, but was wondering if anyone had >experienced bad things with skin cream (I may be reaching here, but when >he was on the pure beginner diet, his seizures died off immediately). >Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 I use coconut oil for lotion, it is the only thing that doesn't break me out > >Reply-To: pecanbread >To: pecanbread > >Subject: RE: Re: Skin Cream? >Date: Wed, 8 Mar 2006 17:27:00 -0500 > >That's a great idea, and I actually have some. He'll smell good enough >to eat I bet. Thanks. > > If not, I know one mom who uses >coconut oil on her skin and her children's skin right before bedtime. >The coconut oil is a solid in the jar but has a low melting point, so it >melts in your hand and can be put on like a lotion. (I have never used >it for lotion). > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 I use coconut oil for lotion, it is the only thing that doesn't break me out > >Reply-To: pecanbread >To: pecanbread > >Subject: RE: Re: Skin Cream? >Date: Wed, 8 Mar 2006 17:27:00 -0500 > >That's a great idea, and I actually have some. He'll smell good enough >to eat I bet. Thanks. > > If not, I know one mom who uses >coconut oil on her skin and her children's skin right before bedtime. >The coconut oil is a solid in the jar but has a low melting point, so it >melts in your hand and can be put on like a lotion. (I have never used >it for lotion). > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 make sure it soaks all the way in as it can stain clothes and sheets... > > That's a great idea, and I actually have some. He'll smell good enough > to eat I bet. Thanks. > > If not, I know one mom who uses > coconut oil on her skin and her children's skin right before bedtime. > The coconut oil is a solid in the jar but has a low melting point, so it > melts in your hand and can be put on like a lotion. (I have never used > it for lotion). > > > > > > Quote Link to comment Share on other sites More sharing options...
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