RE: CF? a friend of 's has eerie symptoms, neg sweat test

[Guest guest]

Why in the world is she waiting. Every day waiting could hurt the

lungs-if it is CF-I feel so strongly about early checking. Preventive &

as much natural as you can is better always. All the docs I have spoken

with & believe me you cant count the numbers.....HAVE TOLD ME THAT. Of,

course , it just makes good sense. I sure hope she will listen to you.

Your great with the info & awareness. Bless you & Thanks

Stop in sometime & let me see those sweeties during holidays. (or

anytime!!

LOVE & HUGS,

grandmomBEV

CF? a friend of 's has eerie symptoms, neg

sweat test

's new best friend in preschool came over last week with his mom.

We got to talking and I told her that had CF. Her son was sweat

tested twice for CF. He had reflux, difficulty growing, oily stools,

salt crystals on his forehead after sleeping, and a bout of asthma and

pneumonia that landed him in the hospital for a week. He's now four and

the salt crystals and oily stools have just gone away, his mom says. And

he is now growing very well. He has in the past been diagnosed with food

allergies and is in general a very allergic child.

I think I kind of freaked out his mom, because I said that he could have

a negative sweat test but still have CF. He has never had the genetic

test for CF done. What do you all think? She decided to wait on pursuing

the bloodwork, since he is doing so well now, and if he ends up with

pulmonary problems again, to insist on it.

Just wanted input...it scared me, the part about the salt crystals and

the oil in the stool! Oh, he was also tested for celiac and that was

negative. To me, he looks pretty healthy, but he does look a bit pale

and skinny. He is quite tall though.

)O(

mama to , 2yo, w/CF, and , 4yo, no CF

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

------------------------------------

[Guest guest]

Why in the world is she waiting. Every day waiting could hurt the

lungs-if it is CF-I feel so strongly about early checking. Preventive &

as much natural as you can is better always. All the docs I have spoken

with & believe me you cant count the numbers.....HAVE TOLD ME THAT. Of,

course , it just makes good sense. I sure hope she will listen to you.

Your great with the info & awareness. Bless you & Thanks

Stop in sometime & let me see those sweeties during holidays. (or

anytime!!

LOVE & HUGS,

grandmomBEV

CF? a friend of 's has eerie symptoms, neg

sweat test

's new best friend in preschool came over last week with his mom.

We got to talking and I told her that had CF. Her son was sweat

tested twice for CF. He had reflux, difficulty growing, oily stools,

salt crystals on his forehead after sleeping, and a bout of asthma and

pneumonia that landed him in the hospital for a week. He's now four and

the salt crystals and oily stools have just gone away, his mom says. And

he is now growing very well. He has in the past been diagnosed with food

allergies and is in general a very allergic child.

I think I kind of freaked out his mom, because I said that he could have

a negative sweat test but still have CF. He has never had the genetic

test for CF done. What do you all think? She decided to wait on pursuing

the bloodwork, since he is doing so well now, and if he ends up with

pulmonary problems again, to insist on it.

Just wanted input...it scared me, the part about the salt crystals and

the oil in the stool! Oh, he was also tested for celiac and that was

negative. To me, he looks pretty healthy, but he does look a bit pale

and skinny. He is quite tall though.

)O(

mama to , 2yo, w/CF, and , 4yo, no CF

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

------------------------------------

[Guest guest]

Why in the world is she waiting. Every day waiting could hurt the

lungs-if it is CF-I feel so strongly about early checking. Preventive &

as much natural as you can is better always. All the docs I have spoken

with & believe me you cant count the numbers.....HAVE TOLD ME THAT. Of,

course , it just makes good sense. I sure hope she will listen to you.

Your great with the info & awareness. Bless you & Thanks

Stop in sometime & let me see those sweeties during holidays. (or

anytime!!

LOVE & HUGS,

grandmomBEV

CF? a friend of 's has eerie symptoms, neg

sweat test

's new best friend in preschool came over last week with his mom.

We got to talking and I told her that had CF. Her son was sweat

tested twice for CF. He had reflux, difficulty growing, oily stools,

salt crystals on his forehead after sleeping, and a bout of asthma and

pneumonia that landed him in the hospital for a week. He's now four and

the salt crystals and oily stools have just gone away, his mom says. And

he is now growing very well. He has in the past been diagnosed with food

allergies and is in general a very allergic child.

I think I kind of freaked out his mom, because I said that he could have

a negative sweat test but still have CF. He has never had the genetic

test for CF done. What do you all think? She decided to wait on pursuing

the bloodwork, since he is doing so well now, and if he ends up with

pulmonary problems again, to insist on it.

Just wanted input...it scared me, the part about the salt crystals and

the oil in the stool! Oh, he was also tested for celiac and that was

negative. To me, he looks pretty healthy, but he does look a bit pale

and skinny. He is quite tall though.

)O(

mama to , 2yo, w/CF, and , 4yo, no CF

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

------------------------------------

[Guest guest]

I think the simple answer is denial....but I agree. I just have to bite

my tongue in a way because I hardly know her, you know? I think also she

feels he is in good health now, and if he has any problems she will

insist on genetic testing.

Thanks Bev, we are so maxed out here as usual, but coming to the end of

our " crazily busy " time just in time for the holidays. We'd love to drop

by and see you! And will do so as soon as we can. We need to get down to

Orlando pretty soon for flu shots...kids have been sick most of November

with viruses and are just getting well enough to get them. So maybe we

will stop by then; I know you're not far but I don't get down into

Orlando very often. Only 20 minutes! :-)

)O(

mama to , 2yo, w/CF, and , 4yo, no CF

CF? a friend of 's has eerie symptoms, neg

sweat test

's new best friend in preschool came over last week with his mom.

We got to talking and I told her that had CF. Her son was sweat

tested twice for CF. He had reflux, difficulty growing, oily stools,

salt crystals on his forehead after sleeping, and a bout of asthma and

pneumonia that landed him in the hospital for a week. He's now four and

the salt crystals and oily stools have just gone away, his mom says. And

he is now growing very well. He has in the past been diagnosed with food

allergies and is in general a very allergic child.

I think I kind of freaked out his mom, because I said that he could have

a negative sweat test but still have CF. He has never had the genetic

test for CF done. What do you all think? She decided to wait on pursuing

the bloodwork, since he is doing so well now, and if he ends up with

pulmonary problems again, to insist on it.

Just wanted input...it scared me, the part about the salt crystals and

the oil in the stool! Oh, he was also tested for celiac and that was

negative. To me, he looks pretty healthy, but he does look a bit pale

and skinny. He is quite tall though.

)O(

mama to , 2yo, w/CF, and , 4yo, no CF

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

------------------------------------

[Guest guest]

I think the simple answer is denial....but I agree. I just have to bite

my tongue in a way because I hardly know her, you know? I think also she

feels he is in good health now, and if he has any problems she will

insist on genetic testing.

Thanks Bev, we are so maxed out here as usual, but coming to the end of

our " crazily busy " time just in time for the holidays. We'd love to drop

by and see you! And will do so as soon as we can. We need to get down to

Orlando pretty soon for flu shots...kids have been sick most of November

with viruses and are just getting well enough to get them. So maybe we

will stop by then; I know you're not far but I don't get down into

Orlando very often. Only 20 minutes! :-)

)O(

mama to , 2yo, w/CF, and , 4yo, no CF

CF? a friend of 's has eerie symptoms, neg

sweat test

's new best friend in preschool came over last week with his mom.

We got to talking and I told her that had CF. Her son was sweat

tested twice for CF. He had reflux, difficulty growing, oily stools,

salt crystals on his forehead after sleeping, and a bout of asthma and

pneumonia that landed him in the hospital for a week. He's now four and

the salt crystals and oily stools have just gone away, his mom says. And

he is now growing very well. He has in the past been diagnosed with food

allergies and is in general a very allergic child.

I think I kind of freaked out his mom, because I said that he could have

a negative sweat test but still have CF. He has never had the genetic

test for CF done. What do you all think? She decided to wait on pursuing

the bloodwork, since he is doing so well now, and if he ends up with

pulmonary problems again, to insist on it.

Just wanted input...it scared me, the part about the salt crystals and

the oil in the stool! Oh, he was also tested for celiac and that was

negative. To me, he looks pretty healthy, but he does look a bit pale

and skinny. He is quite tall though.

)O(

mama to , 2yo, w/CF, and , 4yo, no CF

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

------------------------------------

[Guest guest]

I think the simple answer is denial....but I agree. I just have to bite

my tongue in a way because I hardly know her, you know? I think also she

feels he is in good health now, and if he has any problems she will

insist on genetic testing.

Thanks Bev, we are so maxed out here as usual, but coming to the end of

our " crazily busy " time just in time for the holidays. We'd love to drop

by and see you! And will do so as soon as we can. We need to get down to

Orlando pretty soon for flu shots...kids have been sick most of November

with viruses and are just getting well enough to get them. So maybe we

will stop by then; I know you're not far but I don't get down into

Orlando very often. Only 20 minutes! :-)

)O(

mama to , 2yo, w/CF, and , 4yo, no CF

CF? a friend of 's has eerie symptoms, neg

sweat test

's new best friend in preschool came over last week with his mom.

We got to talking and I told her that had CF. Her son was sweat

tested twice for CF. He had reflux, difficulty growing, oily stools,

salt crystals on his forehead after sleeping, and a bout of asthma and

pneumonia that landed him in the hospital for a week. He's now four and

the salt crystals and oily stools have just gone away, his mom says. And

he is now growing very well. He has in the past been diagnosed with food

allergies and is in general a very allergic child.

I think I kind of freaked out his mom, because I said that he could have

a negative sweat test but still have CF. He has never had the genetic

test for CF done. What do you all think? She decided to wait on pursuing

the bloodwork, since he is doing so well now, and if he ends up with

pulmonary problems again, to insist on it.

Just wanted input...it scared me, the part about the salt crystals and

the oil in the stool! Oh, he was also tested for celiac and that was

negative. To me, he looks pretty healthy, but he does look a bit pale

and skinny. He is quite tall though.

)O(

mama to , 2yo, w/CF, and , 4yo, no CF

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

------------------------------------

[Guest guest]

GREAT. I do really understand. Our worlds are very busy. Yours especially

..Your such a great hands on mom as well as working. Gets pretty hectic

sometimes. But, Know I am here & do care ...Always love seeing you & those

wonderful kiddo's Oh, How is your mom Are they here also or going to be??

LOVE & HUGS, GrandmomBEV

CF? a friend of 's has eerie symptoms, neg

sweat test

's new best friend in preschool came over last week with his mom.

We got to talking and I told her that had CF. Her son was sweat

tested twice for CF. He had reflux, difficulty growing, oily stools,

salt crystals on his forehead after sleeping, and a bout of asthma and

pneumonia that landed him in the hospital for a week. He's now four and

the salt crystals and oily stools have just gone away, his mom says. And

he is now growing very well. He has in the past been diagnosed with food

allergies and is in general a very allergic child.

I think I kind of freaked out his mom, because I said that he could have

a negative sweat test but still have CF. He has never had the genetic

test for CF done. What do you all think? She decided to wait on pursuing

the bloodwork, since he is doing so well now, and if he ends up with

pulmonary problems again, to insist on it.

Just wanted input...it scared me, the part about the salt crystals and

the oil in the stool! Oh, he was also tested for celiac and that was

negative. To me, he looks pretty healthy, but he does look a bit pale

and skinny. He is quite tall though.

)O(

mama to , 2yo, w/CF, and , 4yo, no CF

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

------------------------------------