Re: Coughing blood

[Guest guest]

Tina,

One of the mysteries of CF. Why do we have hemoptysis? Most doctors agree

they are not sure. Some people do it when they are on IV antiobiotics, and

in fact my CF center said numerous times someone is in for a tune up and

doing well and cough up blood. Well the explanation - they feel that you are

clearing junk from your lungs and now new areas are exposed and irratated and

can break easily - that being capilaries and vessels.

I have never been told it was definitely infection. I would do it whenever,

doing whatever. Just be sure you get some guidelines of what your action

should be for the amounts that are coughed up. Sometimes I just continued on

my way, others stop nebs and chest PT, others call the doc, others rest,

others go to ER.

It is a scarey event and I never really got use to it, despite have 2 major

episodes and numerous small ones. The only thing that would calm me down is I

kept repeating to myself " I have millions of small capaliaries in my lungs

and one burst " . That for some reason helped me.

Hope this helped a little. By the way, I am 39 years old and my sister is

48.We both have Cf and we both have had a lung tx. Partly due to coughing up

blood I chose to get new lungs, I could not stand not reaching, lifting, or

running because the fear of coughing up blood was so great.

Joanne Schum

> My 6 year old was coughing small amounts of blood for 2 days last week.

> The pediatrician sent us to ER where they did a sputum and throat culture.

> The cultures have come back normal. The pulm. Dr thought it was going to

> grow and that would be the reason for the blood. But now what. I'm glad

> there is no infection, but what could the blood be from? It stopped after

> 2 days on another antibiotic.

>

> Tina

>