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Yes, I have that. And I DO TAKE CRATAEGUS, which is incidentally

a cardiovascular stimulant, so it actually helps.

Just to clear this up.

n, who is as close to irked as she ever gets as she cannot move

UNTIL FRIDAY--WHICH WILL NOW BE MY NEW EVENT, and if any

thing delays my move, everyone in cyberspace will hear about it!!!!!!!

Love to all at cfparents and at crataegus--M.

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In a message dated 12/17/2002 1:10:54 PM Central Standard Time,

kimpayne@... writes:

>

> Hi Deb,

>

> It sounds like your daughter has " white coat syndrome. " This is a

> clinically recognized form of temporary high blood pressure -- blood

> pressure shoots up when the person gets around medical situations

> (hence, the white coat name). My ex-husband has this too and I'd

> always have to remind ER people, otherwise they'd freak out whenever

> they took his b/p.

>

> Long ago, the Danes recognized that female CF carriers tend to have

> lower blood pressure than the non-CF carrier population (and also a

> higher incidence of asthma). Swedish doctors also note this low blood

> pressure condition in the CF-carrier population.

>

> Low blood pressure is one symptom of an essential fatty acid

> deficiency -- specifically omega-3. And again, people with CF AND CF

> carriers are deficient in omega-3's.

>

> When you are deficent then you are prone to more inflammatory

> response diseases such as arthritis, asthma, migraines, sinusitis,

> heart disease, etc. And of course you know the devastation that

> inflammation creates in the lungs of people with CF.

>

> So you might want to increase your family's omega-3 intake. You can

> do this by eating more fatty fish, such as salmon, tuna, herring,

> mackerel; eating flax seed or supplementing with flax seed oil, and

> very dark green leafy vegetables such as kale.

>

> At the same time, you can reduce inflammation by reducing foods known

> to contribute to inflammation: processed foods containing lard,

> shortening, cottonseed oils, etc. Look at the ingredient labels of

> foods and you'll see how US manufacturers put these crappy, cheap

> fats in nearly all processed foods just to save a buck! But in the

> meantime our health is worsening.

>

> For picky eaters, it's easier to take a DHA (omega-3) supplemment.

> But you can only do so much unless you also cut back on those cheap,

> crappy harmful fats. My son and daughter and I use DHA from GNC

> stores (not DHEA, which is a hormone).

>

> If you can afford the best, then check out www.martekbio.com This is

> the DHA that was used in the CF study. These researchers found that

> giving CF knock-out mice high doses of DHA, they were able to reverse

> CF symptoms.

>

> Many CF parents use " The Omega Diet " book by Dr. Artemis Simopolus as

> a " CF Bible. " It explains the role of omega-3's -- good fats vs bad

> fats and why the US has such a higher incidence of inflammatory-

> related diseases in this country. Believe me, it will convince you to

> cut out all oils except olive oil and canola oil.

>

> (Olive oil isn't an omega-3, but it's type of oil apparently

> necessary for carrying the omega-3 into the cell, and it's very heart

> healthy).

>

> It's an inexpensive book -- about $14 from Amazon, I think. And

> Amazon is offering free shipping right now, so a good deal to buy a

> copy for yourself and give a copy as a Christmas present.

>

> P.s. If you go to Tucker's site www.milanfoundation.com you can

> click on the Amazon link to purchase this book. Then Amazon will

> donate a portion to help the mission of the MilanFoundation -- CF

> Awareness. I just did all my Amazon book shopping thru her site last

> week!

>

> Kim

> Mom of (23 with asthma and cf) and (asthma no cf)

>

Thanks for all of the information Kim I will look into it. My husband is

taking the Omega-3 right now because of his arthritis but I never though

about me need it. My daughter also when she went into surgery broke out in a

rash before she went in and after she got sick she did to. It was the

weirdest thing after she got sick it was about 15 min. later the rash was

gone. It was funny because the nurse was going around talking to everyone to

find out what she could have had that might have caused the rash (med.'s) and

as soon as she got back the rash was gone. Well, thanks again I will look

into that book. Deb A

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Share on other sites

In a message dated 12/17/2002 1:10:54 PM Central Standard Time,

kimpayne@... writes:

>

> Hi Deb,

>

> It sounds like your daughter has " white coat syndrome. " This is a

> clinically recognized form of temporary high blood pressure -- blood

> pressure shoots up when the person gets around medical situations

> (hence, the white coat name). My ex-husband has this too and I'd

> always have to remind ER people, otherwise they'd freak out whenever

> they took his b/p.

>

> Long ago, the Danes recognized that female CF carriers tend to have

> lower blood pressure than the non-CF carrier population (and also a

> higher incidence of asthma). Swedish doctors also note this low blood

> pressure condition in the CF-carrier population.

>

> Low blood pressure is one symptom of an essential fatty acid

> deficiency -- specifically omega-3. And again, people with CF AND CF

> carriers are deficient in omega-3's.

>

> When you are deficent then you are prone to more inflammatory

> response diseases such as arthritis, asthma, migraines, sinusitis,

> heart disease, etc. And of course you know the devastation that

> inflammation creates in the lungs of people with CF.

>

> So you might want to increase your family's omega-3 intake. You can

> do this by eating more fatty fish, such as salmon, tuna, herring,

> mackerel; eating flax seed or supplementing with flax seed oil, and

> very dark green leafy vegetables such as kale.

>

> At the same time, you can reduce inflammation by reducing foods known

> to contribute to inflammation: processed foods containing lard,

> shortening, cottonseed oils, etc. Look at the ingredient labels of

> foods and you'll see how US manufacturers put these crappy, cheap

> fats in nearly all processed foods just to save a buck! But in the

> meantime our health is worsening.

>

> For picky eaters, it's easier to take a DHA (omega-3) supplemment.

> But you can only do so much unless you also cut back on those cheap,

> crappy harmful fats. My son and daughter and I use DHA from GNC

> stores (not DHEA, which is a hormone).

>

> If you can afford the best, then check out www.martekbio.com This is

> the DHA that was used in the CF study. These researchers found that

> giving CF knock-out mice high doses of DHA, they were able to reverse

> CF symptoms.

>

> Many CF parents use " The Omega Diet " book by Dr. Artemis Simopolus as

> a " CF Bible. " It explains the role of omega-3's -- good fats vs bad

> fats and why the US has such a higher incidence of inflammatory-

> related diseases in this country. Believe me, it will convince you to

> cut out all oils except olive oil and canola oil.

>

> (Olive oil isn't an omega-3, but it's type of oil apparently

> necessary for carrying the omega-3 into the cell, and it's very heart

> healthy).

>

> It's an inexpensive book -- about $14 from Amazon, I think. And

> Amazon is offering free shipping right now, so a good deal to buy a

> copy for yourself and give a copy as a Christmas present.

>

> P.s. If you go to Tucker's site www.milanfoundation.com you can

> click on the Amazon link to purchase this book. Then Amazon will

> donate a portion to help the mission of the MilanFoundation -- CF

> Awareness. I just did all my Amazon book shopping thru her site last

> week!

>

> Kim

> Mom of (23 with asthma and cf) and (asthma no cf)

>

Thanks for all of the information Kim I will look into it. My husband is

taking the Omega-3 right now because of his arthritis but I never though

about me need it. My daughter also when she went into surgery broke out in a

rash before she went in and after she got sick she did to. It was the

weirdest thing after she got sick it was about 15 min. later the rash was

gone. It was funny because the nurse was going around talking to everyone to

find out what she could have had that might have caused the rash (med.'s) and

as soon as she got back the rash was gone. Well, thanks again I will look

into that book. Deb A

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Share on other sites

In a message dated 12/17/2002 1:10:54 PM Central Standard Time,

kimpayne@... writes:

>

> Hi Deb,

>

> It sounds like your daughter has " white coat syndrome. " This is a

> clinically recognized form of temporary high blood pressure -- blood

> pressure shoots up when the person gets around medical situations

> (hence, the white coat name). My ex-husband has this too and I'd

> always have to remind ER people, otherwise they'd freak out whenever

> they took his b/p.

>

> Long ago, the Danes recognized that female CF carriers tend to have

> lower blood pressure than the non-CF carrier population (and also a

> higher incidence of asthma). Swedish doctors also note this low blood

> pressure condition in the CF-carrier population.

>

> Low blood pressure is one symptom of an essential fatty acid

> deficiency -- specifically omega-3. And again, people with CF AND CF

> carriers are deficient in omega-3's.

>

> When you are deficent then you are prone to more inflammatory

> response diseases such as arthritis, asthma, migraines, sinusitis,

> heart disease, etc. And of course you know the devastation that

> inflammation creates in the lungs of people with CF.

>

> So you might want to increase your family's omega-3 intake. You can

> do this by eating more fatty fish, such as salmon, tuna, herring,

> mackerel; eating flax seed or supplementing with flax seed oil, and

> very dark green leafy vegetables such as kale.

>

> At the same time, you can reduce inflammation by reducing foods known

> to contribute to inflammation: processed foods containing lard,

> shortening, cottonseed oils, etc. Look at the ingredient labels of

> foods and you'll see how US manufacturers put these crappy, cheap

> fats in nearly all processed foods just to save a buck! But in the

> meantime our health is worsening.

>

> For picky eaters, it's easier to take a DHA (omega-3) supplemment.

> But you can only do so much unless you also cut back on those cheap,

> crappy harmful fats. My son and daughter and I use DHA from GNC

> stores (not DHEA, which is a hormone).

>

> If you can afford the best, then check out www.martekbio.com This is

> the DHA that was used in the CF study. These researchers found that

> giving CF knock-out mice high doses of DHA, they were able to reverse

> CF symptoms.

>

> Many CF parents use " The Omega Diet " book by Dr. Artemis Simopolus as

> a " CF Bible. " It explains the role of omega-3's -- good fats vs bad

> fats and why the US has such a higher incidence of inflammatory-

> related diseases in this country. Believe me, it will convince you to

> cut out all oils except olive oil and canola oil.

>

> (Olive oil isn't an omega-3, but it's type of oil apparently

> necessary for carrying the omega-3 into the cell, and it's very heart

> healthy).

>

> It's an inexpensive book -- about $14 from Amazon, I think. And

> Amazon is offering free shipping right now, so a good deal to buy a

> copy for yourself and give a copy as a Christmas present.

>

> P.s. If you go to Tucker's site www.milanfoundation.com you can

> click on the Amazon link to purchase this book. Then Amazon will

> donate a portion to help the mission of the MilanFoundation -- CF

> Awareness. I just did all my Amazon book shopping thru her site last

> week!

>

> Kim

> Mom of (23 with asthma and cf) and (asthma no cf)

>

Thanks for all of the information Kim I will look into it. My husband is

taking the Omega-3 right now because of his arthritis but I never though

about me need it. My daughter also when she went into surgery broke out in a

rash before she went in and after she got sick she did to. It was the

weirdest thing after she got sick it was about 15 min. later the rash was

gone. It was funny because the nurse was going around talking to everyone to

find out what she could have had that might have caused the rash (med.'s) and

as soon as she got back the rash was gone. Well, thanks again I will look

into that book. Deb A

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Share on other sites

Hi Deb,

It sounds like your daughter has " white coat syndrome. " This is a

clinically recognized form of temporary high blood pressure -- blood

pressure shoots up when the person gets around medical situations

(hence, the white coat name). My ex-husband has this too and I'd

always have to remind ER people, otherwise they'd freak out whenever

they took his b/p.

Long ago, the Danes recognized that female CF carriers tend to have

lower blood pressure than the non-CF carrier population (and also a

higher incidence of asthma). Swedish doctors also note this low blood

pressure condition in the CF-carrier population.

Low blood pressure is one symptom of an essential fatty acid

deficiency -- specifically omega-3. And again, people with CF AND CF

carriers are deficient in omega-3's.

When you are deficent then you are prone to more inflammatory

response diseases such as arthritis, asthma, migraines, sinusitis,

heart disease, etc. And of course you know the devastation that

inflammation creates in the lungs of people with CF.

So you might want to increase your family's omega-3 intake. You can

do this by eating more fatty fish, such as salmon, tuna, herring,

mackerel; eating flax seed or supplementing with flax seed oil, and

very dark green leafy vegetables such as kale.

At the same time, you can reduce inflammation by reducing foods known

to contribute to inflammation: processed foods containing lard,

shortening, cottonseed oils, etc. Look at the ingredient labels of

foods and you'll see how US manufacturers put these crappy, cheap

fats in nearly all processed foods just to save a buck! But in the

meantime our health is worsening.

For picky eaters, it's easier to take a DHA (omega-3) supplemment.

But you can only do so much unless you also cut back on those cheap,

crappy harmful fats. My son and daughter and I use DHA from GNC

stores (not DHEA, which is a hormone).

If you can afford the best, then check out www.martekbio.com This is

the DHA that was used in the CF study. These researchers found that

giving CF knock-out mice high doses of DHA, they were able to reverse

CF symptoms.

Many CF parents use " The Omega Diet " book by Dr. Artemis Simopolus as

a " CF Bible. " It explains the role of omega-3's -- good fats vs bad

fats and why the US has such a higher incidence of inflammatory-

related diseases in this country. Believe me, it will convince you to

cut out all oils except olive oil and canola oil.

(Olive oil isn't an omega-3, but it's type of oil apparently

necessary for carrying the omega-3 into the cell, and it's very heart

healthy).

It's an inexpensive book -- about $14 from Amazon, I think. And

Amazon is offering free shipping right now, so a good deal to buy a

copy for yourself and give a copy as a Christmas present.

P.s. If you go to Tucker's site www.milanfoundation.com you can

click on the Amazon link to purchase this book. Then Amazon will

donate a portion to help the mission of the MilanFoundation -- CF

Awareness. I just did all my Amazon book shopping thru her site last

week!

Kim

Mom of (23 with asthma and cf) and (asthma no cf)

I always have low blood pressure but I am only a carrier of CF. Now

my daughter went in for her surgery her blood pressure was high but

under the circumstances mine probably would be high to. After her

surgery it went down but it was still 127 of 73. When we went in it

was 140 over 80. Deb A

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Hi Deb,

It sounds like your daughter has " white coat syndrome. " This is a

clinically recognized form of temporary high blood pressure -- blood

pressure shoots up when the person gets around medical situations

(hence, the white coat name). My ex-husband has this too and I'd

always have to remind ER people, otherwise they'd freak out whenever

they took his b/p.

Long ago, the Danes recognized that female CF carriers tend to have

lower blood pressure than the non-CF carrier population (and also a

higher incidence of asthma). Swedish doctors also note this low blood

pressure condition in the CF-carrier population.

Low blood pressure is one symptom of an essential fatty acid

deficiency -- specifically omega-3. And again, people with CF AND CF

carriers are deficient in omega-3's.

When you are deficent then you are prone to more inflammatory

response diseases such as arthritis, asthma, migraines, sinusitis,

heart disease, etc. And of course you know the devastation that

inflammation creates in the lungs of people with CF.

So you might want to increase your family's omega-3 intake. You can

do this by eating more fatty fish, such as salmon, tuna, herring,

mackerel; eating flax seed or supplementing with flax seed oil, and

very dark green leafy vegetables such as kale.

At the same time, you can reduce inflammation by reducing foods known

to contribute to inflammation: processed foods containing lard,

shortening, cottonseed oils, etc. Look at the ingredient labels of

foods and you'll see how US manufacturers put these crappy, cheap

fats in nearly all processed foods just to save a buck! But in the

meantime our health is worsening.

For picky eaters, it's easier to take a DHA (omega-3) supplemment.

But you can only do so much unless you also cut back on those cheap,

crappy harmful fats. My son and daughter and I use DHA from GNC

stores (not DHEA, which is a hormone).

If you can afford the best, then check out www.martekbio.com This is

the DHA that was used in the CF study. These researchers found that

giving CF knock-out mice high doses of DHA, they were able to reverse

CF symptoms.

Many CF parents use " The Omega Diet " book by Dr. Artemis Simopolus as

a " CF Bible. " It explains the role of omega-3's -- good fats vs bad

fats and why the US has such a higher incidence of inflammatory-

related diseases in this country. Believe me, it will convince you to

cut out all oils except olive oil and canola oil.

(Olive oil isn't an omega-3, but it's type of oil apparently

necessary for carrying the omega-3 into the cell, and it's very heart

healthy).

It's an inexpensive book -- about $14 from Amazon, I think. And

Amazon is offering free shipping right now, so a good deal to buy a

copy for yourself and give a copy as a Christmas present.

P.s. If you go to Tucker's site www.milanfoundation.com you can

click on the Amazon link to purchase this book. Then Amazon will

donate a portion to help the mission of the MilanFoundation -- CF

Awareness. I just did all my Amazon book shopping thru her site last

week!

Kim

Mom of (23 with asthma and cf) and (asthma no cf)

I always have low blood pressure but I am only a carrier of CF. Now

my daughter went in for her surgery her blood pressure was high but

under the circumstances mine probably would be high to. After her

surgery it went down but it was still 127 of 73. When we went in it

was 140 over 80. Deb A

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Share on other sites

Hi Deb,

It sounds like your daughter has " white coat syndrome. " This is a

clinically recognized form of temporary high blood pressure -- blood

pressure shoots up when the person gets around medical situations

(hence, the white coat name). My ex-husband has this too and I'd

always have to remind ER people, otherwise they'd freak out whenever

they took his b/p.

Long ago, the Danes recognized that female CF carriers tend to have

lower blood pressure than the non-CF carrier population (and also a

higher incidence of asthma). Swedish doctors also note this low blood

pressure condition in the CF-carrier population.

Low blood pressure is one symptom of an essential fatty acid

deficiency -- specifically omega-3. And again, people with CF AND CF

carriers are deficient in omega-3's.

When you are deficent then you are prone to more inflammatory

response diseases such as arthritis, asthma, migraines, sinusitis,

heart disease, etc. And of course you know the devastation that

inflammation creates in the lungs of people with CF.

So you might want to increase your family's omega-3 intake. You can

do this by eating more fatty fish, such as salmon, tuna, herring,

mackerel; eating flax seed or supplementing with flax seed oil, and

very dark green leafy vegetables such as kale.

At the same time, you can reduce inflammation by reducing foods known

to contribute to inflammation: processed foods containing lard,

shortening, cottonseed oils, etc. Look at the ingredient labels of

foods and you'll see how US manufacturers put these crappy, cheap

fats in nearly all processed foods just to save a buck! But in the

meantime our health is worsening.

For picky eaters, it's easier to take a DHA (omega-3) supplemment.

But you can only do so much unless you also cut back on those cheap,

crappy harmful fats. My son and daughter and I use DHA from GNC

stores (not DHEA, which is a hormone).

If you can afford the best, then check out www.martekbio.com This is

the DHA that was used in the CF study. These researchers found that

giving CF knock-out mice high doses of DHA, they were able to reverse

CF symptoms.

Many CF parents use " The Omega Diet " book by Dr. Artemis Simopolus as

a " CF Bible. " It explains the role of omega-3's -- good fats vs bad

fats and why the US has such a higher incidence of inflammatory-

related diseases in this country. Believe me, it will convince you to

cut out all oils except olive oil and canola oil.

(Olive oil isn't an omega-3, but it's type of oil apparently

necessary for carrying the omega-3 into the cell, and it's very heart

healthy).

It's an inexpensive book -- about $14 from Amazon, I think. And

Amazon is offering free shipping right now, so a good deal to buy a

copy for yourself and give a copy as a Christmas present.

P.s. If you go to Tucker's site www.milanfoundation.com you can

click on the Amazon link to purchase this book. Then Amazon will

donate a portion to help the mission of the MilanFoundation -- CF

Awareness. I just did all my Amazon book shopping thru her site last

week!

Kim

Mom of (23 with asthma and cf) and (asthma no cf)

I always have low blood pressure but I am only a carrier of CF. Now

my daughter went in for her surgery her blood pressure was high but

under the circumstances mine probably would be high to. After her

surgery it went down but it was still 127 of 73. When we went in it

was 140 over 80. Deb A

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