Re: Dot Map Fingerprint Dystrophy and cea?

[Guest guest]

> I've been reading this site and learned about ocular cea. Has

> anyone else heared about this possible link between problems with

> the cornea and cea?

Jo, about 10% of those with ocular rosacea have corneal involvement,

though not the particular manifestation you describe. Only an

ophthalmologist is likely to know a great deal about Dot Map

Fingerprint Dystrophy.

> I'm off the drops now, but was told to stay on the Doxycycline for

> 3 months. My face cleared up, for the first time ever! How great!

How long did it take for your face to clear up on the doxycycline?

What do you mean by " clear up. " (I ask because a very quick response

to doxycycline isn't characteristic of rosacea, and I can't imagine

you were on the medication for very long, if you attribute your

subsequent side effects to doxycycline.)

> But... I had horrible side effects! My chest started breaking out

> in hives and I had bad early morning foot and leg cramps!! I

> literally woke up screaming in pain in the mornings. As soon as I

> stopped taking that anti-biotic, the cramps and breakout on my

> chest went away. Strange! Now I don't want my face to start

> breaking out again.

>

> I was looking at side effects of Doxycycline and saw that one can

> have skin reactions but nothing about severe leg and foot cramps.

A true allergy to doxycycline is very rare, but more common and

therefore something to consider is hypersensitivity vasculitis. It's

a drug reaction that involves the immune system in a different way

than typical allergies, and so produce different symptoms. In

addition to the hives, many people with hypersensitivity vasculitis

feel flu-like achiness, low grade fever -- overall just not feeling

well, which also resolves along with the rash. The cramps aren't

characteristic, but who knows.

It's impossible to tell over the Web, so I would recommend touching

base with your primary care doctor. I can't know, but it doesn't

sound like you're manifesting the typical signs and symptoms of

ocular rosacea, and (although I'm doubtful) you may have shown an

immune response to doxycycline. Tell your doctor how many days into

the doxycycline treatment the hives/leg cramps started, and how many

days it took for the symptoms to resolve once your stopped the drug.

If a hypersensitivity vasculitis makes sense, you'll need blood tests

to insure it has completely resolved, and additional blood work as

part of a connective tissue workup may be appropriate (although Dot

Map Fingerprint Dystrophy is not classically associated with

connective tissue diseases).

Good luck! Keep us posted.

Marjorie

Marjorie Lazoff, MD

[Guest guest]

> I've been reading this site and learned about ocular cea. Has

> anyone else heared about this possible link between problems with

> the cornea and cea?

Jo, about 10% of those with ocular rosacea have corneal involvement,

though not the particular manifestation you describe. Only an

ophthalmologist is likely to know a great deal about Dot Map

Fingerprint Dystrophy.

> I'm off the drops now, but was told to stay on the Doxycycline for

> 3 months. My face cleared up, for the first time ever! How great!

How long did it take for your face to clear up on the doxycycline?

What do you mean by " clear up. " (I ask because a very quick response

to doxycycline isn't characteristic of rosacea, and I can't imagine

you were on the medication for very long, if you attribute your

subsequent side effects to doxycycline.)

> But... I had horrible side effects! My chest started breaking out

> in hives and I had bad early morning foot and leg cramps!! I

> literally woke up screaming in pain in the mornings. As soon as I

> stopped taking that anti-biotic, the cramps and breakout on my

> chest went away. Strange! Now I don't want my face to start

> breaking out again.

>

> I was looking at side effects of Doxycycline and saw that one can

> have skin reactions but nothing about severe leg and foot cramps.

A true allergy to doxycycline is very rare, but more common and

therefore something to consider is hypersensitivity vasculitis. It's

a drug reaction that involves the immune system in a different way

than typical allergies, and so produce different symptoms. In

addition to the hives, many people with hypersensitivity vasculitis

feel flu-like achiness, low grade fever -- overall just not feeling

well, which also resolves along with the rash. The cramps aren't

characteristic, but who knows.

It's impossible to tell over the Web, so I would recommend touching

base with your primary care doctor. I can't know, but it doesn't

sound like you're manifesting the typical signs and symptoms of

ocular rosacea, and (although I'm doubtful) you may have shown an

immune response to doxycycline. Tell your doctor how many days into

the doxycycline treatment the hives/leg cramps started, and how many

days it took for the symptoms to resolve once your stopped the drug.

If a hypersensitivity vasculitis makes sense, you'll need blood tests

to insure it has completely resolved, and additional blood work as

part of a connective tissue workup may be appropriate (although Dot

Map Fingerprint Dystrophy is not classically associated with

connective tissue diseases).

Good luck! Keep us posted.

Marjorie

Marjorie Lazoff, MD

[Guest guest]

Hi Jo-

You mentioned that you were " reading a site " which mentioned something about

Type A+.

I am interested in what this site had to say, as I too am type A+. Could

you send the link?

Thanks,

Dot Map Fingerprint Dystrophy and cea?

> Hi,

>

> I'm newly diagonosed with cea but it wasn't found by a

> dermitologist, it was found by my Opthimologist. A couple of months

> ago I was diagnosed with Dot Map Fingerprint Dystrophy, where the

> " glue " on the cornea in the eye starts sluffing off causing much pain

> and blurred vision.

>

> I was treated and my symptoms sort of went away, but I still had some

> discomfort.

>

> I had to return to the eye doctor a couple of weeks ago with the same

> problem. He then looked at my face and asked if I had cea. I

> didn't know, I always had a red face and some breakouts but never

> thought about it. He said that he recently went to a lecture that

> mentioned treatments for rosacea have also helped with this Dot Map

> Fingerprint Dystrophy. Maybe there is a link?

>

> I've been reading this site and learned about ocular cea. Has

> anyone else heared about this possible link between problems with the

> cornea and cea?

>

> I was put on Ocuflox and Prednisolone eye drops. Then also

> Doxycycline. In a couple of days the results were amazing! My eye

> was pretty much healed! The doc was very impressed because I was his

> first patient on this treatment.

>

> I'm off the drops now, but was told to stay on the Doxycycline for 3

> months. My face cleared up, for the first time ever! How great!

>

> But... I had horrible side effects! My chest started breaking out in

> hives and I had bad early morning foot and leg cramps!! I literally

> woke up screaming in pain in the mornings. As soon as I stopped

> taking that anti-biotic, the cramps and breakout on my chest went

> away. Strange! Now I don't want my face to start breaking out again.

>

> I was looking at side effects of Doxycycline and saw that one can

> have skin reactions but nothing about severe leg and foot cramps.

>

> Has anyone had such reactions? I'm now going to go to a

> dermatologist and try other treatments for my face.

>

> For my eye I continue treatment with Muro 128 5% Ointment, at night,

> so that my eyelid doesn't stick to my eye during the night.

>

> Another interesting thing I read, on this site was about blood type.

> I am a Type A+ also.... hmmmmmm interesting.... could it all be linked?

>

> Thanks!

>

> Jo

>

>

>

>

>

> --

> Please read the list highlights before posting to the whole group

(http://rosacea.ii.net/toc.html). Your post will be delayed if you don't

give a meaningful subject or trim your reply text. You must change the

subject when replying to a digest !

>

> See http://www.drnase.com for info on his recently published book.

>

> To leave the list send an email to

rosacea-support-unsubscribe

>

>

[Guest guest]

Hi Jo-

You mentioned that you were " reading a site " which mentioned something about

Type A+.

I am interested in what this site had to say, as I too am type A+. Could

you send the link?

Thanks,

Dot Map Fingerprint Dystrophy and cea?

> Hi,

>

> I'm newly diagonosed with cea but it wasn't found by a

> dermitologist, it was found by my Opthimologist. A couple of months

> ago I was diagnosed with Dot Map Fingerprint Dystrophy, where the

> " glue " on the cornea in the eye starts sluffing off causing much pain

> and blurred vision.

>

> I was treated and my symptoms sort of went away, but I still had some

> discomfort.

>

> I had to return to the eye doctor a couple of weeks ago with the same

> problem. He then looked at my face and asked if I had cea. I

> didn't know, I always had a red face and some breakouts but never

> thought about it. He said that he recently went to a lecture that

> mentioned treatments for rosacea have also helped with this Dot Map

> Fingerprint Dystrophy. Maybe there is a link?

>

> I've been reading this site and learned about ocular cea. Has

> anyone else heared about this possible link between problems with the

> cornea and cea?

>

> I was put on Ocuflox and Prednisolone eye drops. Then also

> Doxycycline. In a couple of days the results were amazing! My eye

> was pretty much healed! The doc was very impressed because I was his

> first patient on this treatment.

>

> I'm off the drops now, but was told to stay on the Doxycycline for 3

> months. My face cleared up, for the first time ever! How great!

>

> But... I had horrible side effects! My chest started breaking out in

> hives and I had bad early morning foot and leg cramps!! I literally

> woke up screaming in pain in the mornings. As soon as I stopped

> taking that anti-biotic, the cramps and breakout on my chest went

> away. Strange! Now I don't want my face to start breaking out again.

>

> I was looking at side effects of Doxycycline and saw that one can

> have skin reactions but nothing about severe leg and foot cramps.

>

> Has anyone had such reactions? I'm now going to go to a

> dermatologist and try other treatments for my face.

>

> For my eye I continue treatment with Muro 128 5% Ointment, at night,

> so that my eyelid doesn't stick to my eye during the night.

>

> Another interesting thing I read, on this site was about blood type.

> I am a Type A+ also.... hmmmmmm interesting.... could it all be linked?

>

> Thanks!

>

> Jo

>

>

>

>

>

> --

> Please read the list highlights before posting to the whole group

(http://rosacea.ii.net/toc.html). Your post will be delayed if you don't

give a meaningful subject or trim your reply text. You must change the

subject when replying to a digest !

>

> See http://www.drnase.com for info on his recently published book.

>

> To leave the list send an email to

rosacea-support-unsubscribe

>

>