Re: appetite problems breastfeeding stressful

[Guest guest]

Teething at 15 weeks?????? bit young isnt it

appetite problems breastfeeding stressful

Liam and I have been havinh some dramas over feeding, he is 15 weeks

now. He is only wanting to feed now for about 5-10 mins per time, like

every 3 hours. He use to feed about 10 mins per side or longer. I have

tried to force him but that only stresses him and me and then afecting

my milk supply. I am scared that he is not getting enough, I wouldnt

care about this if he didnt have CF. I really want to continue

breastfeeding, but it is really starting to try me. This has been

getting pregresively worse over the last few weeks. He is not sick, no

fever, etc. But has been grizzily and irritable over the las few days,

but still laughing and smiling as well. I dont really know what is

going on and I hate when I dont understand what is the matter, its not

like he can say whats wrong, if he could it would make it easier!! He

is still putting on enough weight and is in the 75% percentile now so I

guess he is getting enough but I dont really know, he also wants to be

carried around all the time now and often now keen on laying down.

Anyway just needed to vent a bit. I have just feed him to sleep on the

bed, he actually wanted my breast to comfort which was nice for both of

us.

mum to Liam

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

[Guest guest]

Teething at 15 weeks?????? bit young isnt it

appetite problems breastfeeding stressful

Liam and I have been havinh some dramas over feeding, he is 15 weeks

now. He is only wanting to feed now for about 5-10 mins per time, like

every 3 hours. He use to feed about 10 mins per side or longer. I have

tried to force him but that only stresses him and me and then afecting

my milk supply. I am scared that he is not getting enough, I wouldnt

care about this if he didnt have CF. I really want to continue

breastfeeding, but it is really starting to try me. This has been

getting pregresively worse over the last few weeks. He is not sick, no

fever, etc. But has been grizzily and irritable over the las few days,

but still laughing and smiling as well. I dont really know what is

going on and I hate when I dont understand what is the matter, its not

like he can say whats wrong, if he could it would make it easier!! He

is still putting on enough weight and is in the 75% percentile now so I

guess he is getting enough but I dont really know, he also wants to be

carried around all the time now and often now keen on laying down.

Anyway just needed to vent a bit. I have just feed him to sleep on the

bed, he actually wanted my breast to comfort which was nice for both of

us.

mum to Liam

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

[Guest guest]

Hmmmm, I'm sorry I really have no suggestions. Except you might want to try

geoparent.com they have a breastfeeding board where the gals may be able to

give you some advice. Good luck and let us know how he's doing.

Jen A. mom to ALex 4, Yolo 3 and Phynix 7 months all w/cf.

>

>Reply-To: cfparents

>To: cfparents >,crataegus >

>Subject: appetite problems breastfeeding stressful

>Date: Mon, 9 Dec 2002 04:57:08 +1000

>

>Liam and I have been havinh some dramas over feeding, he is 15 weeks now.

>He is only wanting to feed now for about 5-10 mins per time, like every 3

>hours. He use to feed about 10 mins per side or longer. I have tried to

>force him but that only stresses him and me and then afecting my milk

>supply. I am scared that he is not getting enough, I wouldnt care about

>this if he didnt have CF. I really want to continue breastfeeding, but it

>is really starting to try me. This has been getting pregresively worse

>over the last few weeks. He is not sick, no fever, etc. But has been

>grizzily and irritable over the las few days, but still laughing and

>smiling as well. I dont really know what is going on and I hate when I

>dont understand what is the matter, its not like he can say whats wrong, if

>he could it would make it easier!! He is still putting on enough weight

>and is in the 75% percentile now so I guess he is getting enough but I dont

>really know, he also wants to be carried around all the time now and often

>now keen on laying down. Anyway just needed to vent a bit. I have just

>feed him to sleep on the bed, he actually wanted my breast to comfort which

>was nice for both of us.

> mum to Liam

>

>

>

>

[Guest guest]

Hmmmm, I'm sorry I really have no suggestions. Except you might want to try

geoparent.com they have a breastfeeding board where the gals may be able to

give you some advice. Good luck and let us know how he's doing.

Jen A. mom to ALex 4, Yolo 3 and Phynix 7 months all w/cf.

>

>Reply-To: cfparents

>To: cfparents >,crataegus >

>Subject: appetite problems breastfeeding stressful

>Date: Mon, 9 Dec 2002 04:57:08 +1000

>

>Liam and I have been havinh some dramas over feeding, he is 15 weeks now.

>He is only wanting to feed now for about 5-10 mins per time, like every 3

>hours. He use to feed about 10 mins per side or longer. I have tried to

>force him but that only stresses him and me and then afecting my milk

>supply. I am scared that he is not getting enough, I wouldnt care about

>this if he didnt have CF. I really want to continue breastfeeding, but it

>is really starting to try me. This has been getting pregresively worse

>over the last few weeks. He is not sick, no fever, etc. But has been

>grizzily and irritable over the las few days, but still laughing and

>smiling as well. I dont really know what is going on and I hate when I

>dont understand what is the matter, its not like he can say whats wrong, if

>he could it would make it easier!! He is still putting on enough weight

>and is in the 75% percentile now so I guess he is getting enough but I dont

>really know, he also wants to be carried around all the time now and often

>now keen on laying down. Anyway just needed to vent a bit. I have just

>feed him to sleep on the bed, he actually wanted my breast to comfort which

>was nice for both of us.

> mum to Liam

>

>

>

>

[Guest guest]

Hi

I no nothing about cf, but my babies started getting there teeth at 3 months and

they did everything you said. They would only nurse long enough for the hunger

pains, but it hurt to nurse so they quit till they were hungry again.

My advice would be just relax, keep nursing as much as you can. Make sure you do

not have a new deodorant, lotion or anything smelly that the baby might not

like. Keep watch on babies weight and do nothing different unless you see a

problem.

Void this advice if someone says something different.

Nanci

appetite problems breastfeeding stressful

Liam and I have been havinh some dramas over feeding, he is 15 weeks now. He

is only wanting to feed now for about 5-10 mins per time, like every 3 hours.

He use to feed about 10 mins per side or longer. I have tried to force him but

that only stresses him and me and then afecting my milk supply. I am scared

that he is not getting enough, I wouldnt care about this if he didnt have CF. I

really want to continue breastfeeding, but it is really starting to try me.

This has been getting pregresively worse over the last few weeks. He is not

sick, no fever, etc. But has been grizzily and irritable over the las few days,

but still laughing and smiling as well. I dont really know what is going on and

I hate when I dont understand what is the m atter, its not like he can say whats

wrong, if he could it would make it easier!! He is still putting on enough

weight and is in the 75% percentile now so I guess he is getting enough but I

dont really know, he also wants to be carried around all the time now and often

now keen on laying down. Anyway just needed to vent a bit. I have just feed

him to sleep on the bed, he actually wanted my breast to comfort which was nice

for both of us.

mum to Liam

[Guest guest]

Hi

I no nothing about cf, but my babies started getting there teeth at 3 months and

they did everything you said. They would only nurse long enough for the hunger

pains, but it hurt to nurse so they quit till they were hungry again.

My advice would be just relax, keep nursing as much as you can. Make sure you do

not have a new deodorant, lotion or anything smelly that the baby might not

like. Keep watch on babies weight and do nothing different unless you see a

problem.

Void this advice if someone says something different.

Nanci

appetite problems breastfeeding stressful

Liam and I have been havinh some dramas over feeding, he is 15 weeks now. He

is only wanting to feed now for about 5-10 mins per time, like every 3 hours.

He use to feed about 10 mins per side or longer. I have tried to force him but

that only stresses him and me and then afecting my milk supply. I am scared

that he is not getting enough, I wouldnt care about this if he didnt have CF. I

really want to continue breastfeeding, but it is really starting to try me.

This has been getting pregresively worse over the last few weeks. He is not

sick, no fever, etc. But has been grizzily and irritable over the las few days,

but still laughing and smiling as well. I dont really know what is going on and

I hate when I dont understand what is the m atter, its not like he can say whats

wrong, if he could it would make it easier!! He is still putting on enough

weight and is in the 75% percentile now so I guess he is getting enough but I

dont really know, he also wants to be carried around all the time now and often

now keen on laying down. Anyway just needed to vent a bit. I have just feed

him to sleep on the bed, he actually wanted my breast to comfort which was nice

for both of us.

mum to Liam

[Guest guest]

Hi

I no nothing about cf, but my babies started getting there teeth at 3 months and

they did everything you said. They would only nurse long enough for the hunger

pains, but it hurt to nurse so they quit till they were hungry again.

My advice would be just relax, keep nursing as much as you can. Make sure you do

not have a new deodorant, lotion or anything smelly that the baby might not

like. Keep watch on babies weight and do nothing different unless you see a

problem.

Void this advice if someone says something different.

Nanci

appetite problems breastfeeding stressful

Liam and I have been havinh some dramas over feeding, he is 15 weeks now. He

is only wanting to feed now for about 5-10 mins per time, like every 3 hours.

He use to feed about 10 mins per side or longer. I have tried to force him but

that only stresses him and me and then afecting my milk supply. I am scared

that he is not getting enough, I wouldnt care about this if he didnt have CF. I

really want to continue breastfeeding, but it is really starting to try me.

This has been getting pregresively worse over the last few weeks. He is not

sick, no fever, etc. But has been grizzily and irritable over the las few days,

but still laughing and smiling as well. I dont really know what is going on and

I hate when I dont understand what is the m atter, its not like he can say whats

wrong, if he could it would make it easier!! He is still putting on enough

weight and is in the 75% percentile now so I guess he is getting enough but I

dont really know, he also wants to be carried around all the time now and often

now keen on laying down. Anyway just needed to vent a bit. I have just feed

him to sleep on the bed, he actually wanted my breast to comfort which was nice

for both of us.

mum to Liam

[Guest guest]

Could be teething. Some babies don't want to eat as much when they are

teething, and definitely act cranky and don't want to be put down. He is

a bit young for solids, but maybe you could try a nice teething biscuit

from the freezer? If he really actively and excitedly gums this, or is

drooling lots, or chewing on things, it's teething.

Keep going on the nursing! You will get through this. I wouldn't try to

force him, as long as he is still gaining weight he's fine.

)O(

mama to , 2yo, w/CF, and , 4yo, no CF

appetite problems breastfeeding stressful

Liam and I have been havinh some dramas over feeding, he is 15 weeks

now. He is only wanting to feed now for about 5-10 mins per time, like

every 3 hours. He use to feed about 10 mins per side or longer. I have

tried to force him but that only stresses him and me and then afecting

my milk supply. I am scared that he is not getting enough, I wouldnt

care about this if he didnt have CF. I really want to continue

breastfeeding, but it is really starting to try me. This has been

getting pregresively worse over the last few weeks. He is not sick, no

fever, etc. But has been grizzily and irritable over the las few days,

but still laughing and smiling as well. I dont really know what is

going on and I hate when I dont understand what is the matter, its not

like he can say whats wrong, if he could it would make it easier!! He

is still putting on enough weight and is in the 75% percentile now so I

guess he is getting enough but I dont really know, he also wants to be

carried around all the time now and often now keen on laying down.

Anyway just needed to vent a bit. I have just feed him to sleep on the

bed, he actually wanted my breast to comfort which was nice for both of

us.

mum to Liam

[Guest guest]

Could be teething. Some babies don't want to eat as much when they are

teething, and definitely act cranky and don't want to be put down. He is

a bit young for solids, but maybe you could try a nice teething biscuit

from the freezer? If he really actively and excitedly gums this, or is

drooling lots, or chewing on things, it's teething.

Keep going on the nursing! You will get through this. I wouldn't try to

force him, as long as he is still gaining weight he's fine.

)O(

mama to , 2yo, w/CF, and , 4yo, no CF

appetite problems breastfeeding stressful

Liam and I have been havinh some dramas over feeding, he is 15 weeks

now. He is only wanting to feed now for about 5-10 mins per time, like

every 3 hours. He use to feed about 10 mins per side or longer. I have

tried to force him but that only stresses him and me and then afecting

my milk supply. I am scared that he is not getting enough, I wouldnt

care about this if he didnt have CF. I really want to continue

breastfeeding, but it is really starting to try me. This has been

getting pregresively worse over the last few weeks. He is not sick, no

fever, etc. But has been grizzily and irritable over the las few days,

but still laughing and smiling as well. I dont really know what is

going on and I hate when I dont understand what is the matter, its not

like he can say whats wrong, if he could it would make it easier!! He

is still putting on enough weight and is in the 75% percentile now so I

guess he is getting enough but I dont really know, he also wants to be

carried around all the time now and often now keen on laying down.

Anyway just needed to vent a bit. I have just feed him to sleep on the

bed, he actually wanted my breast to comfort which was nice for both of

us.

mum to Liam

[Guest guest]

Could be teething. Some babies don't want to eat as much when they are

teething, and definitely act cranky and don't want to be put down. He is

a bit young for solids, but maybe you could try a nice teething biscuit

from the freezer? If he really actively and excitedly gums this, or is

drooling lots, or chewing on things, it's teething.

Keep going on the nursing! You will get through this. I wouldn't try to

force him, as long as he is still gaining weight he's fine.

)O(

mama to , 2yo, w/CF, and , 4yo, no CF

appetite problems breastfeeding stressful

Liam and I have been havinh some dramas over feeding, he is 15 weeks

now. He is only wanting to feed now for about 5-10 mins per time, like

every 3 hours. He use to feed about 10 mins per side or longer. I have

tried to force him but that only stresses him and me and then afecting

my milk supply. I am scared that he is not getting enough, I wouldnt

care about this if he didnt have CF. I really want to continue

breastfeeding, but it is really starting to try me. This has been

getting pregresively worse over the last few weeks. He is not sick, no

fever, etc. But has been grizzily and irritable over the las few days,

but still laughing and smiling as well. I dont really know what is

going on and I hate when I dont understand what is the matter, its not

like he can say whats wrong, if he could it would make it easier!! He

is still putting on enough weight and is in the 75% percentile now so I

guess he is getting enough but I dont really know, he also wants to be

carried around all the time now and often now keen on laying down.

Anyway just needed to vent a bit. I have just feed him to sleep on the

bed, he actually wanted my breast to comfort which was nice for both of

us.

mum to Liam

[Guest guest]

Actually, I don't think so. Most babies are cutting the first tooth at 6

months. Mine were late and didn't cut the first till 9-10 months, but

they had bouts with teething-related pain and crankiness from 4 months.

He is almost 4 months! The crankiness of teething can start severeal

months before the tooth actually erupts.

And, my friend just had her second, she is about Liam's age, a little

younger. She started with teething behaviors at 3 months! The mom is

pretty frustrated and exhausted, but it's definitely teething.

Oh, I forgot, homeopathic chamomila and/or Hyland's Teething Tablets

work really well for most teething babies. The Teething Tablets are a

mix of chamomila and other homeopathics.

)O(

mama to , 2yo, w/CF, and , 4yo, no CF

Re: appetite problems breastfeeding stressful

Teething at 15 weeks?????? bit young isnt it

[Guest guest]

Actually, I don't think so. Most babies are cutting the first tooth at 6

months. Mine were late and didn't cut the first till 9-10 months, but

they had bouts with teething-related pain and crankiness from 4 months.

He is almost 4 months! The crankiness of teething can start severeal

months before the tooth actually erupts.

And, my friend just had her second, she is about Liam's age, a little

younger. She started with teething behaviors at 3 months! The mom is

pretty frustrated and exhausted, but it's definitely teething.

Oh, I forgot, homeopathic chamomila and/or Hyland's Teething Tablets

work really well for most teething babies. The Teething Tablets are a

mix of chamomila and other homeopathics.

)O(

mama to , 2yo, w/CF, and , 4yo, no CF

Re: appetite problems breastfeeding stressful

Teething at 15 weeks?????? bit young isnt it

[Guest guest]

Actually, I don't think so. Most babies are cutting the first tooth at 6

months. Mine were late and didn't cut the first till 9-10 months, but

they had bouts with teething-related pain and crankiness from 4 months.

He is almost 4 months! The crankiness of teething can start severeal

months before the tooth actually erupts.

And, my friend just had her second, she is about Liam's age, a little

younger. She started with teething behaviors at 3 months! The mom is

pretty frustrated and exhausted, but it's definitely teething.

Oh, I forgot, homeopathic chamomila and/or Hyland's Teething Tablets

work really well for most teething babies. The Teething Tablets are a

mix of chamomila and other homeopathics.

)O(

mama to , 2yo, w/CF, and , 4yo, no CF

Re: appetite problems breastfeeding stressful

Teething at 15 weeks?????? bit young isnt it

[Guest guest]

, You may already know this but if you keep Liam nursing on the same side

for the whole feeding he will get to the hind milk which has more calories. If

he only nurses for a short time and then wants to nurse again soon, put him back

on that same side at first to get to the more nutrient-dense milk.

Try and stay relaxed. Lots of babies go through little nursing strikes. At

least he is still nursing.

And, while most babies don't get teeth at 15 weeks, many of them have teething

issues for months.

Lori in Florida

appetite problems breastfeeding stressful

Liam and I have been havinh some dramas over feeding, he is 15 weeks now. He

is only wanting to feed now for about 5-10 mins per time, like every 3 hours.

He use to feed about 10 mins per side or longer. I have tried to force him but

that only stresses him and me and then afecting my milk supply. I am scared

that he is not getting enough, I wouldnt care about this if he didnt have CF. I

really want to continue breastfeeding, but it is really starting to try me.

This has been getting pregresively worse over the last few weeks. He is not

sick, no fever, etc. But has been grizzily and irritable over the las few days,

but still laughing and smiling as well. I dont really know what is going on and

I hate when I dont understand what is the matter, its not like he can say whats

wrong, if he could it would make it easier!! He is still putting on enough

weight and is in the 75% percentile now so I guess he is getting enough but I

dont really know, he also wants to be carried around all the time now and often

now keen on laying down. Anyway just needed to vent a bit. I have just feed

him to sleep on the bed, he actually wanted my breast to comfort which was nice

for both of us.

mum to Liam

[Guest guest]

, You may already know this but if you keep Liam nursing on the same side

for the whole feeding he will get to the hind milk which has more calories. If

he only nurses for a short time and then wants to nurse again soon, put him back

on that same side at first to get to the more nutrient-dense milk.

Try and stay relaxed. Lots of babies go through little nursing strikes. At

least he is still nursing.

And, while most babies don't get teeth at 15 weeks, many of them have teething

issues for months.

Lori in Florida

appetite problems breastfeeding stressful

Liam and I have been havinh some dramas over feeding, he is 15 weeks now. He

is only wanting to feed now for about 5-10 mins per time, like every 3 hours.

He use to feed about 10 mins per side or longer. I have tried to force him but

that only stresses him and me and then afecting my milk supply. I am scared

that he is not getting enough, I wouldnt care about this if he didnt have CF. I

really want to continue breastfeeding, but it is really starting to try me.

This has been getting pregresively worse over the last few weeks. He is not

sick, no fever, etc. But has been grizzily and irritable over the las few days,

but still laughing and smiling as well. I dont really know what is going on and

I hate when I dont understand what is the matter, its not like he can say whats

wrong, if he could it would make it easier!! He is still putting on enough

weight and is in the 75% percentile now so I guess he is getting enough but I

dont really know, he also wants to be carried around all the time now and often

now keen on laying down. Anyway just needed to vent a bit. I have just feed

him to sleep on the bed, he actually wanted my breast to comfort which was nice

for both of us.

mum to Liam

[Guest guest]

,

Lots of babies begin teething at this age -- it doesn't mean that a

tooth will break through the gums soon, though. It's a process --

often a longgggggg, painful process.

You said you were concerned about your milk supply since Liam isn't

nursing as much, so I was curious what nursing moms like had

to say.

, when your kiddos weren't as intersted in nursing because of

teething, did you just " go with the flow " and not worry about

dwindling milk, or did you pump and freeze just to be sure you didn't

dry up?

(Did that makes sense?)

Kim

Mom of (23 with asthma and cf) and (20 asthma no cf)

> Teething at 15 weeks?????? bit young isnt it

> appetite problems breastfeeding stressful

>

> Liam and I have been havinh some dramas over feeding, he is 15

weeks

> now. He is only wanting to feed now for about 5-10 mins per

time, like

> every 3 hours. He use to feed about 10 mins per side or longer.

I have

> tried to force him but that only stresses him and me and then

afecting

> my milk supply. I am scared that he is not getting enough, I

wouldnt

> care about this if he didnt have CF. I really want to continue

> breastfeeding, but it is really starting to try me. This has been

> getting pregresively worse over the last few weeks. He is not

sick, no

> fever, etc. But has been grizzily and irritable over the las few

days,

> but still laughing and smiling as well. I dont really know what

is

> going on and I hate when I dont understand what is the matter,

its not

> like he can say whats wrong, if he could it would make it

easier!! He

> is still putting on enough weight and is in the 75% percentile

now so I

> guess he is getting enough but I dont really know, he also wants

to be

> carried around all the time now and often now keen on laying down.

> Anyway just needed to vent a bit. I have just feed him to sleep

on the

> bed, he actually wanted my breast to comfort which was nice for

both of

> us.

> mum to Liam

>

>

>

>

> -------------------------------------------

> The opinions and information exchanged on this list should IN NO

WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> ------------------------------------

>

>

>

[Guest guest]

,

This can be a sign of acid reflux. My daughter Emma, who is now two

years old and diagnosed at birth with CF, was a breastfeed baby

supplemented with formula (as instructed by her CF doctors). She had

severe feeding problems which started right around when five months or

so. She showed absolutely none of the typical signs of acid reflux, no

crying when laying down, no throwing up (while her sister vomited

constantly when she was an infant she went through 3-5 outfits a day), no

signs of acid reflux at all. She just slowly over time started getting

progressively worse about eating. I brought it up to her doctors and

they felt I was making her nervous or upset when she was eating and gave

me instructions to relax when I was feeding her. This did not help at

all. I kept pushing and pushing the issue because I was getting more and

more frustrated with her not eating hardly anything. Eventually they

tested her for acid reflux (milk scan it is often called) as well as how

well her stomach empties (swallow study). The test for acid reflux

indicated she did in fact have acid reflux. They labeled it as silent

acid reflux since there were no real symptoms present other than lack of

appetite or desire to eat. She was put on meds but they didn't do much

for her. She eventually stopped drinking and eating totally. Her

doctors were less than attentive when this happened (the fact that she

was not peeing at all at night didn't seem to bother them). I lost it on

them and transferred her to her current CF team at CHOP. They

hospitalized her that day for dehydration and when she left, we started

using an NG tube to supplement her feeding. Her meds were also changed

and she started eating again. At that point, she finally started

vomiting on a regular basis but at least she was eating. It is now a

year and a half later and she still has a G tube because she won't drink

enough liquids during the day. She only eats pureed foods but for the

most part, she keeps them down (vomits here and there) and her weight is

great. She's around the 50th percentile (much heavier than her older

non-CF sister at this age). So ... if it continues, I would talk to your

doctors about getting him tested for acid reflux. Silent acid reflux is

not common and they made me feel like I was totally crazy and neurotic

about her eating. I wished I had know earlier about silent reflux, I

would have insisted they test her a lot sooner rather than four months

after it all started. Good Luck. If you need any more information, let

me know.

Law - mom to Emma 2 years w/cf and reflux and Isabelle 4 years old

wo/cf

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[Guest guest]

,

This can be a sign of acid reflux. My daughter Emma, who is now two

years old and diagnosed at birth with CF, was a breastfeed baby

supplemented with formula (as instructed by her CF doctors). She had

severe feeding problems which started right around when five months or

so. She showed absolutely none of the typical signs of acid reflux, no

crying when laying down, no throwing up (while her sister vomited

constantly when she was an infant she went through 3-5 outfits a day), no

signs of acid reflux at all. She just slowly over time started getting

progressively worse about eating. I brought it up to her doctors and

they felt I was making her nervous or upset when she was eating and gave

me instructions to relax when I was feeding her. This did not help at

all. I kept pushing and pushing the issue because I was getting more and

more frustrated with her not eating hardly anything. Eventually they

tested her for acid reflux (milk scan it is often called) as well as how

well her stomach empties (swallow study). The test for acid reflux

indicated she did in fact have acid reflux. They labeled it as silent

acid reflux since there were no real symptoms present other than lack of

appetite or desire to eat. She was put on meds but they didn't do much

for her. She eventually stopped drinking and eating totally. Her

doctors were less than attentive when this happened (the fact that she

was not peeing at all at night didn't seem to bother them). I lost it on

them and transferred her to her current CF team at CHOP. They

hospitalized her that day for dehydration and when she left, we started

using an NG tube to supplement her feeding. Her meds were also changed

and she started eating again. At that point, she finally started

vomiting on a regular basis but at least she was eating. It is now a

year and a half later and she still has a G tube because she won't drink

enough liquids during the day. She only eats pureed foods but for the

most part, she keeps them down (vomits here and there) and her weight is

great. She's around the 50th percentile (much heavier than her older

non-CF sister at this age). So ... if it continues, I would talk to your

doctors about getting him tested for acid reflux. Silent acid reflux is

not common and they made me feel like I was totally crazy and neurotic

about her eating. I wished I had know earlier about silent reflux, I

would have insisted they test her a lot sooner rather than four months

after it all started. Good Luck. If you need any more information, let

me know.

Law - mom to Emma 2 years w/cf and reflux and Isabelle 4 years old

wo/cf

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[Guest guest]

A few are even born with teeth...so yup...you can start teething any time...have

a cousin-in-law who didn't get any till age 2.

Shanna

mom of Triana, age 2 wcf

appetite problems breastfeeding stressful

Liam and I have been havinh some dramas over feeding, he is 15 weeks

now. He is only wanting to feed now for about 5-10 mins per time, like

every 3 hours. He use to feed about 10 mins per side or longer. I have

tried to force him but that only stresses him and me and then afecting

my milk supply. I am scared that he is not getting enough, I wouldnt

care about this if he didnt have CF. I really want to continue

breastfeeding, but it is really starting to try me. This has been

getting pregresively worse over the last few weeks. He is not sick, no

fever, etc. But has been grizzily and irritable over the las few days,

but still laughing and smiling as well. I dont really know what is

going on and I hate when I dont understand what is the matter, its not

like he can say whats wrong, if he could it would make it easier!! He

is still putting on enough weight and is in the 75% percentile now so I

guess he is getting enough but I dont really know, he also wants to be

carried around all the time now and often now keen on laying down.

Anyway just needed to vent a bit. I have just feed him to sleep on the

bed, he actually wanted my breast to comfort which was nice for both of

us.

mum to Liam

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

[Guest guest]

,

I know you have gotten alot of feedback already on this one, but I thought

I'd add some other ideas too....

At 15 weeks Liam is likely to be a much more efficient breast-feeder. He

may be taking all he needs in a short amount of time. If he is still gaining

weight well, then I think you can relax on the timing issue. The other thing

is, Liam has come to that age where he is very aware of his surroundings.

Everything is interesting and it's more difficult to get them to focus on

nursing. I have had troubles with Leila over that very same issue. She gets

distracted by lights, or her big sister, or the dog barking, or you name it.

She has had days where she barely nursed during the day (much to the dismay of

my breasts) and then realized she was starving in the evening (after her noisy

sister went to bed) and pigged out. Leila is a little butterball, so I know she

eventually gets enough. As far as teething goes, I have to agree with the rest,

the process starts long before you see the teeth. Leila has been chewing on

stuff for awhile now.

Hang in there, , nursing is definitely worth all the trials and

tribulations!

Keeley

mom to Leila, 4 m. wcf currently not on nursing strike and wanting to sleep on

the breast any chance she gets, and Hadley, a 2.5 y/o who never stops talking or

singing or making some kind of noise wocf

appetite problems breastfeeding stressful

Liam and I have been havinh some dramas over feeding, he is 15 weeks now. He

is only wanting to feed now for about 5-10 mins per time, like every 3 hours.

He use to feed about 10 mins per side or longer. I have tried to force him but

that only stresses him and me and then afecting my milk supply. I am scared

that he is not getting enough, I wouldnt care about this if he didnt have CF. I

really want to continue breastfeeding, but it is really starting to try me.

This has been getting pregresively worse over the last few weeks. He is not

sick, no fever, etc. But has been grizzily and irritable over the las few days,

but still laughing and smiling as well. I dont really know what is going on and

I hate when I dont understand what is the matter, its not like he can say whats

wrong, if he could it would make it easier!! He is still putting on enough

weight and is in the 75% percentile now so I guess he is getting enough but I

dont really know, he also wants to be carried around all the time now and often

now keen on laying down. Anyway just needed to vent a bit. I have just feed

him to sleep on the bed, he actually wanted my breast to comfort which was nice

for both of us.

mum to Liam

[Guest guest]

,

I know you have gotten alot of feedback already on this one, but I thought

I'd add some other ideas too....

At 15 weeks Liam is likely to be a much more efficient breast-feeder. He

may be taking all he needs in a short amount of time. If he is still gaining

weight well, then I think you can relax on the timing issue. The other thing

is, Liam has come to that age where he is very aware of his surroundings.

Everything is interesting and it's more difficult to get them to focus on

nursing. I have had troubles with Leila over that very same issue. She gets

distracted by lights, or her big sister, or the dog barking, or you name it.

She has had days where she barely nursed during the day (much to the dismay of

my breasts) and then realized she was starving in the evening (after her noisy

sister went to bed) and pigged out. Leila is a little butterball, so I know she

eventually gets enough. As far as teething goes, I have to agree with the rest,

the process starts long before you see the teeth. Leila has been chewing on

stuff for awhile now.

Hang in there, , nursing is definitely worth all the trials and

tribulations!

Keeley

mom to Leila, 4 m. wcf currently not on nursing strike and wanting to sleep on

the breast any chance she gets, and Hadley, a 2.5 y/o who never stops talking or

singing or making some kind of noise wocf

appetite problems breastfeeding stressful

Liam and I have been havinh some dramas over feeding, he is 15 weeks now. He

is only wanting to feed now for about 5-10 mins per time, like every 3 hours.

He use to feed about 10 mins per side or longer. I have tried to force him but

that only stresses him and me and then afecting my milk supply. I am scared

that he is not getting enough, I wouldnt care about this if he didnt have CF. I

really want to continue breastfeeding, but it is really starting to try me.

This has been getting pregresively worse over the last few weeks. He is not

sick, no fever, etc. But has been grizzily and irritable over the las few days,

but still laughing and smiling as well. I dont really know what is going on and

I hate when I dont understand what is the matter, its not like he can say whats

wrong, if he could it would make it easier!! He is still putting on enough

weight and is in the 75% percentile now so I guess he is getting enough but I

dont really know, he also wants to be carried around all the time now and often

now keen on laying down. Anyway just needed to vent a bit. I have just feed

him to sleep on the bed, he actually wanted my breast to comfort which was nice

for both of us.

mum to Liam

[Guest guest]

thnaks for youe info

Liam has been diagnosed with Silent reflux too. They put him on zantac but it

didnt seem to work. I have stoped it and am now using 5 drops of lemon juice

during the day in water, this helps to alkaline the stomach and make it less

acid. I have dont that all day today and he has had a very good day with

feeding, he even was happy laying down, NO screaming!!! horray for the mother

who carries Liam around all day apart from when he sleeps.

monique mum to Liam4 months wcf

Re: appetite problems breastfeeding stressful

,

This can be a sign of acid reflux. My daughter Emma, who is now two

years old and diagnosed at birth with CF, was a breastfeed baby

supplemented with formula (as instructed by her CF doctors). She had

severe feeding problems which started right around when five months or

so. She showed absolutely none of the typical signs of acid reflux, no

crying when laying down, no throwing up (while her sister vomited

constantly when she was an infant she went through 3-5 outfits a day), no

signs of acid reflux at all. She just slowly over time started getting

progressively worse about eating. I brought it up to her doctors and

they felt I was making her nervous or upset when she was eating and gave

me instructions to relax when I was feeding her. This did not help at

all. I kept pushing and pushing the issue because I was getting more and

more frustrated with her not eating hardly anything. Eventually they

tested her for acid reflux (milk scan it is often called) as well as how

well her stomach empties (swallow study). The test for acid reflux

indicated she did in fact have acid reflux. They labeled it as silent

acid reflux since there were no real symptoms present other than lack of

appetite or desire to eat. She was put on meds but they didn't do much

for her. She eventually stopped drinking and eating totally. Her

doctors were less than attentive when this happened (the fact that she

was not peeing at all at night didn't seem to bother them). I lost it on

them and transferred her to her current CF team at CHOP. They

hospitalized her that day for dehydration and when she left, we started

using an NG tube to supplement her feeding. Her meds were also changed

and she started eating again. At that point, she finally started

vomiting on a regular basis but at least she was eating. It is now a

year and a half later and she still has a G tube because she won't drink

enough liquids during the day. She only eats pureed foods but for the

most part, she keeps them down (vomits here and there) and her weight is

great. She's around the 50th percentile (much heavier than her older

non-CF sister at this age). So ... if it continues, I would talk to your

doctors about getting him tested for acid reflux. Silent acid reflux is

not common and they made me feel like I was totally crazy and neurotic

about her eating. I wished I had know earlier about silent reflux, I

would have insisted they test her a lot sooner rather than four months

after it all started. Good Luck. If you need any more information, let

me know.

Law - mom to Emma 2 years w/cf and reflux and Isabelle 4 years old

wo/cf

________________________________________________________________

Sign Up for Juno Platinum Internet Access Today

Only $9.95 per month!

Visit www.juno.com

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------