Re: appetite problems breastfeeding stressful

[Guest guest]

thnaks for youe info

Liam has been diagnosed with Silent reflux too. They put him on zantac but it

didnt seem to work. I have stoped it and am now using 5 drops of lemon juice

during the day in water, this helps to alkaline the stomach and make it less

acid. I have dont that all day today and he has had a very good day with

feeding, he even was happy laying down, NO screaming!!! horray for the mother

who carries Liam around all day apart from when he sleeps.

monique mum to Liam4 months wcf

Re: appetite problems breastfeeding stressful

,

This can be a sign of acid reflux. My daughter Emma, who is now two

years old and diagnosed at birth with CF, was a breastfeed baby

supplemented with formula (as instructed by her CF doctors). She had

severe feeding problems which started right around when five months or

so. She showed absolutely none of the typical signs of acid reflux, no

crying when laying down, no throwing up (while her sister vomited

constantly when she was an infant she went through 3-5 outfits a day), no

signs of acid reflux at all. She just slowly over time started getting

progressively worse about eating. I brought it up to her doctors and

they felt I was making her nervous or upset when she was eating and gave

me instructions to relax when I was feeding her. This did not help at

all. I kept pushing and pushing the issue because I was getting more and

more frustrated with her not eating hardly anything. Eventually they

tested her for acid reflux (milk scan it is often called) as well as how

well her stomach empties (swallow study). The test for acid reflux

indicated she did in fact have acid reflux. They labeled it as silent

acid reflux since there were no real symptoms present other than lack of

appetite or desire to eat. She was put on meds but they didn't do much

for her. She eventually stopped drinking and eating totally. Her

doctors were less than attentive when this happened (the fact that she

was not peeing at all at night didn't seem to bother them). I lost it on

them and transferred her to her current CF team at CHOP. They

hospitalized her that day for dehydration and when she left, we started

using an NG tube to supplement her feeding. Her meds were also changed

and she started eating again. At that point, she finally started

vomiting on a regular basis but at least she was eating. It is now a

year and a half later and she still has a G tube because she won't drink

enough liquids during the day. She only eats pureed foods but for the

most part, she keeps them down (vomits here and there) and her weight is

great. She's around the 50th percentile (much heavier than her older

non-CF sister at this age). So ... if it continues, I would talk to your

doctors about getting him tested for acid reflux. Silent acid reflux is

not common and they made me feel like I was totally crazy and neurotic

about her eating. I wished I had know earlier about silent reflux, I

would have insisted they test her a lot sooner rather than four months

after it all started. Good Luck. If you need any more information, let

me know.

Law - mom to Emma 2 years w/cf and reflux and Isabelle 4 years old

wo/cf

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