Re: My Husband is Clubbing it

[Guest guest]

So very sorry to hear this. YES, he should change docs-hospitals too.

Letters need to be written by all the folks that are having these same

problems. I never heard of them having such problems before. I am very sorry

to hear that. Please know cards will be in mail tomorrow too!!

Love & hugs, GrandmomBEV

My Husband is Clubbing it

By the way Brad's ( My husband who has CF) in the hospital....they finally

admitted him.HE should have been admitted month ago but we'll not go

there.He went from a lung function of 73% to 54% and lost 10 pounds...looks

sooo tiny right now.Plus he was running a 101 fever.UNC Pulmonary STOPPED

all

direct admits.You either go to the ER or you wait until clinic day. He had

an

appt in CF clinic last week and we knew he needed to go in but the ice storm

happened and so he had to wait another week to see the

doc....GRRRRRRRRRRrrrrrrrrrrrrrrrr

UGHHHHHHHHHHhhhhhhhhhhhhhhhhh...then he couldn't get a PICC LINE b/c they

don't put PICC 's in on the weekends or after 3pm on Friday. It took them 12

hours to finally clean the room ! ! ! ! We waited for 2 hours b/c I told him

NOT to go there when they told him too. I am so glad I have a new doc...I

HATE that hospital ! ! !

So now he's getting Vancomycin and its literally eating up his veins....he

had just a regular IV in right now until Monday when the IV team comes to

put

a PICC in. THis is not good b/c BRAD hates needles and is totally and

completely allergic to any type of pain....=)

Need I say...I love my port.

His IV infiltrated and the ceftaz was leaking under his skin and it got

super

red and he got hives up and down that arm .....Things better change there

b/c

they are ticking off a bunch of people.It was good though to see the

therapists and nurses who have taken care of me through the years. They knew

after the last admission in Sept there I wouldn't be back. I kinda miss

them....not the doctors though. The care I get at Wake in better. I am their

youngest patient and their only Cf so they think Im the neatest thing since

peanut butter and jelly was invented....They make me food so I'll eat and

sit

with me for hours and talk.Plus they sneak me in their offices to use the

computer.

Anyways....Bradley is in the hospital and I know he would love some

cards....he gets jealose I have so many friends.

His addy is :

Bradley Snyder

UNC HOSPITALS

Patient Room 6302

Chapel Hill, NC 27599

Becki

YOUR FAVORITE LilGooberGirl

YOUNGLUNG EMAIL SUPPORT LIST

www.topica.com/lists/younglung

Pediatric Interstitial Lung Disease Society

http://groups.yahoo.com/group/InterstitialLung_Kids/

[Guest guest]

Sorry to hear that Brad is ill. I hope tat he is feeling much better

very soon.

I have never her of Vancomycin. I am assuming that it is a strong

antibiotic??? You probably can't go to the hospital too much. This

is the middle of flu and cold season and hospitals are full of bugs.

Does Brad have other family close enough to visit him? I hope so.

I'll send him a card today. Does he ever read cfparents?

Take care,

Gale

[Guest guest]

Sorry to hear that Brad is ill. I hope tat he is feeling much better

very soon.

I have never her of Vancomycin. I am assuming that it is a strong

antibiotic??? You probably can't go to the hospital too much. This

is the middle of flu and cold season and hospitals are full of bugs.

Does Brad have other family close enough to visit him? I hope so.

I'll send him a card today. Does he ever read cfparents?

Take care,

Gale

[Guest guest]

Sorry to hear that Brad is ill. I hope tat he is feeling much better

very soon.

I have never her of Vancomycin. I am assuming that it is a strong

antibiotic??? You probably can't go to the hospital too much. This

is the middle of flu and cold season and hospitals are full of bugs.

Does Brad have other family close enough to visit him? I hope so.

I'll send him a card today. Does he ever read cfparents?

Take care,

Gale

[Guest guest]

Becki-

Who is doc was your doc at UNC? Who is his doc. I would like to know

more about your experiences because my so goes there. Where

you treated there always before Wake who is your doc there? Thank you

for any imput you have. I have my own opinion about the docs there.

Crystal, mother to 19 monthswcf

> By the way Brad's ( My husband who has CF) in the hospital....they

finally

> admitted him.HE should have been admitted month ago but we'll not

go

> there.He went from a lung function of 73% to 54% and lost 10

pounds...looks

> sooo tiny right now.Plus he was running a 101 fever.UNC Pulmonary

STOPPED all

> direct admits.You either go to the ER or you wait until clinic day.

He had an

> appt in CF clinic last week and we knew he needed to go in but the

ice storm

> happened and so he had to wait another week to see the

> doc....GRRRRRRRRRRrrrrrrrrrrrrrrrr

> UGHHHHHHHHHHhhhhhhhhhhhhhhhhh...then he couldn't get a PICC LINE

b/c they

> don't put PICC 's in on the weekends or after 3pm on Friday. It

took them 12

> hours to finally clean the room ! ! ! ! We waited for 2 hours b/c I

told him

> NOT to go there when they told him too. I am so glad I have a new

doc...I

> HATE that hospital ! ! !

> So now he's getting Vancomycin and its literally eating up his

veins....he

> had just a regular IV in right now until Monday when the IV team

comes to put

> a PICC in. THis is not good b/c BRAD hates needles and is totally

and

> completely allergic to any type of pain....=)

> Need I say...I love my port.

> His IV infiltrated and the ceftaz was leaking under his skin and it

got super

> red and he got hives up and down that arm .....Things better change

there b/c

> they are ticking off a bunch of people.It was good though to see

the

> therapists and nurses who have taken care of me through the years.

They knew

> after the last admission in Sept there I wouldn't be back. I kinda

miss

> them....not the doctors though. The care I get at Wake in better. I

am their

> youngest patient and their only Cf so they think Im the neatest

thing since

> peanut butter and jelly was invented....They make me food so I'll

eat and sit

> with me for hours and talk.Plus they sneak me in their offices to

use the

> computer.

> Anyways....Bradley is in the hospital and I know he would love some

> cards....he gets jealose I have so many friends.

>

> His addy is :

> Bradley Snyder

> UNC HOSPITALS

> Patient Room 6302

> Chapel Hill, NC 27599

>

>

> Becki

> YOUR FAVORITE LilGooberGirl

> YOUNGLUNG EMAIL SUPPORT LIST

> www.topica.com/lists/younglung

> Pediatric Interstitial Lung Disease Society

> http://groups.yahoo.com/group/InterstitialLung_Kids/

>

>

>

[Guest guest]

Becki-

Who is doc was your doc at UNC? Who is his doc. I would like to know

more about your experiences because my so goes there. Where

you treated there always before Wake who is your doc there? Thank you

for any imput you have. I have my own opinion about the docs there.

Crystal, mother to 19 monthswcf

> By the way Brad's ( My husband who has CF) in the hospital....they

finally

> admitted him.HE should have been admitted month ago but we'll not

go

> there.He went from a lung function of 73% to 54% and lost 10

pounds...looks

> sooo tiny right now.Plus he was running a 101 fever.UNC Pulmonary

STOPPED all

> direct admits.You either go to the ER or you wait until clinic day.

He had an

> appt in CF clinic last week and we knew he needed to go in but the

ice storm

> happened and so he had to wait another week to see the

> doc....GRRRRRRRRRRrrrrrrrrrrrrrrrr

> UGHHHHHHHHHHhhhhhhhhhhhhhhhhh...then he couldn't get a PICC LINE

b/c they

> don't put PICC 's in on the weekends or after 3pm on Friday. It

took them 12

> hours to finally clean the room ! ! ! ! We waited for 2 hours b/c I

told him

> NOT to go there when they told him too. I am so glad I have a new

doc...I

> HATE that hospital ! ! !

> So now he's getting Vancomycin and its literally eating up his

veins....he

> had just a regular IV in right now until Monday when the IV team

comes to put

> a PICC in. THis is not good b/c BRAD hates needles and is totally

and

> completely allergic to any type of pain....=)

> Need I say...I love my port.

> His IV infiltrated and the ceftaz was leaking under his skin and it

got super

> red and he got hives up and down that arm .....Things better change

there b/c

> they are ticking off a bunch of people.It was good though to see

the

> therapists and nurses who have taken care of me through the years.

They knew

> after the last admission in Sept there I wouldn't be back. I kinda

miss

> them....not the doctors though. The care I get at Wake in better. I

am their

> youngest patient and their only Cf so they think Im the neatest

thing since

> peanut butter and jelly was invented....They make me food so I'll

eat and sit

> with me for hours and talk.Plus they sneak me in their offices to

use the

> computer.

> Anyways....Bradley is in the hospital and I know he would love some

> cards....he gets jealose I have so many friends.

>

> His addy is :

> Bradley Snyder

> UNC HOSPITALS

> Patient Room 6302

> Chapel Hill, NC 27599

>

>

> Becki

> YOUR FAVORITE LilGooberGirl

> YOUNGLUNG EMAIL SUPPORT LIST

> www.topica.com/lists/younglung

> Pediatric Interstitial Lung Disease Society

> http://groups.yahoo.com/group/InterstitialLung_Kids/

>

>

>

[Guest guest]

Becki-

Who is doc was your doc at UNC? Who is his doc. I would like to know

more about your experiences because my so goes there. Where

you treated there always before Wake who is your doc there? Thank you

for any imput you have. I have my own opinion about the docs there.

Crystal, mother to 19 monthswcf

> By the way Brad's ( My husband who has CF) in the hospital....they

finally

> admitted him.HE should have been admitted month ago but we'll not

go

> there.He went from a lung function of 73% to 54% and lost 10

pounds...looks

> sooo tiny right now.Plus he was running a 101 fever.UNC Pulmonary

STOPPED all

> direct admits.You either go to the ER or you wait until clinic day.

He had an

> appt in CF clinic last week and we knew he needed to go in but the

ice storm

> happened and so he had to wait another week to see the

> doc....GRRRRRRRRRRrrrrrrrrrrrrrrrr

> UGHHHHHHHHHHhhhhhhhhhhhhhhhhh...then he couldn't get a PICC LINE

b/c they

> don't put PICC 's in on the weekends or after 3pm on Friday. It

took them 12

> hours to finally clean the room ! ! ! ! We waited for 2 hours b/c I

told him

> NOT to go there when they told him too. I am so glad I have a new

doc...I

> HATE that hospital ! ! !

> So now he's getting Vancomycin and its literally eating up his

veins....he

> had just a regular IV in right now until Monday when the IV team

comes to put

> a PICC in. THis is not good b/c BRAD hates needles and is totally

and

> completely allergic to any type of pain....=)

> Need I say...I love my port.

> His IV infiltrated and the ceftaz was leaking under his skin and it

got super

> red and he got hives up and down that arm .....Things better change

there b/c

> they are ticking off a bunch of people.It was good though to see

the

> therapists and nurses who have taken care of me through the years.

They knew

> after the last admission in Sept there I wouldn't be back. I kinda

miss

> them....not the doctors though. The care I get at Wake in better. I

am their

> youngest patient and their only Cf so they think Im the neatest

thing since

> peanut butter and jelly was invented....They make me food so I'll

eat and sit

> with me for hours and talk.Plus they sneak me in their offices to

use the

> computer.

> Anyways....Bradley is in the hospital and I know he would love some

> cards....he gets jealose I have so many friends.

>

> His addy is :

> Bradley Snyder

> UNC HOSPITALS

> Patient Room 6302

> Chapel Hill, NC 27599

>

>

> Becki

> YOUR FAVORITE LilGooberGirl

> YOUNGLUNG EMAIL SUPPORT LIST

> www.topica.com/lists/younglung

> Pediatric Interstitial Lung Disease Society

> http://groups.yahoo.com/group/InterstitialLung_Kids/

>

>

>

[Guest guest]

Becki-

Who is doc was your doc at UNC? Who is his doc. I would like to know

more about your experiences because my so goes there. Where

you treated there always before Wake who is your doc there? Thank you

for any imput you have. I have my own opinion about the docs there.

Crystal, mother to 19 monthswcf

> By the way Brad's ( My husband who has CF) in the hospital....they

finally

> admitted him.HE should have been admitted month ago but we'll not

go

> there.He went from a lung function of 73% to 54% and lost 10

pounds...looks

> sooo tiny right now.Plus he was running a 101 fever.UNC Pulmonary

STOPPED all

> direct admits.You either go to the ER or you wait until clinic day.

He had an

> appt in CF clinic last week and we knew he needed to go in but the

ice storm

> happened and so he had to wait another week to see the

> doc....GRRRRRRRRRRrrrrrrrrrrrrrrrr

> UGHHHHHHHHHHhhhhhhhhhhhhhhhhh...then he couldn't get a PICC LINE

b/c they

> don't put PICC 's in on the weekends or after 3pm on Friday. It

took them 12

> hours to finally clean the room ! ! ! ! We waited for 2 hours b/c I

told him

> NOT to go there when they told him too. I am so glad I have a new

doc...I

> HATE that hospital ! ! !

> So now he's getting Vancomycin and its literally eating up his

veins....he

> had just a regular IV in right now until Monday when the IV team

comes to put

> a PICC in. THis is not good b/c BRAD hates needles and is totally

and

> completely allergic to any type of pain....=)

> Need I say...I love my port.

> His IV infiltrated and the ceftaz was leaking under his skin and it

got super

> red and he got hives up and down that arm .....Things better change

there b/c

> they are ticking off a bunch of people.It was good though to see

the

> therapists and nurses who have taken care of me through the years.

They knew

> after the last admission in Sept there I wouldn't be back. I kinda

miss

> them....not the doctors though. The care I get at Wake in better. I

am their

> youngest patient and their only Cf so they think Im the neatest

thing since

> peanut butter and jelly was invented....They make me food so I'll

eat and sit

> with me for hours and talk.Plus they sneak me in their offices to

use the

> computer.

> Anyways....Bradley is in the hospital and I know he would love some

> cards....he gets jealose I have so many friends.

>

> His addy is :

> Bradley Snyder

> UNC HOSPITALS

> Patient Room 6302

> Chapel Hill, NC 27599

>

>

> Becki

> YOUR FAVORITE LilGooberGirl

> YOUNGLUNG EMAIL SUPPORT LIST

> www.topica.com/lists/younglung

> Pediatric Interstitial Lung Disease Society

> http://groups.yahoo.com/group/InterstitialLung_Kids/

>

>

>