Re: My Husband is Clubbing it

[Guest guest]

Becki-

Who is doc was your doc at UNC? Who is his doc. I would like to know

more about your experiences because my so goes there. Where

you treated there always before Wake who is your doc there? Thank you

for any imput you have. I have my own opinion about the docs there.

Crystal, mother to 19 monthswcf

> By the way Brad's ( My husband who has CF) in the hospital....they

finally

> admitted him.HE should have been admitted month ago but we'll not

go

> there.He went from a lung function of 73% to 54% and lost 10

pounds...looks

> sooo tiny right now.Plus he was running a 101 fever.UNC Pulmonary

STOPPED all

> direct admits.You either go to the ER or you wait until clinic day.

He had an

> appt in CF clinic last week and we knew he needed to go in but the

ice storm

> happened and so he had to wait another week to see the

> doc....GRRRRRRRRRRrrrrrrrrrrrrrrrr

> UGHHHHHHHHHHhhhhhhhhhhhhhhhhh...then he couldn't get a PICC LINE

b/c they

> don't put PICC 's in on the weekends or after 3pm on Friday. It

took them 12

> hours to finally clean the room ! ! ! ! We waited for 2 hours b/c I

told him

> NOT to go there when they told him too. I am so glad I have a new

doc...I

> HATE that hospital ! ! !

> So now he's getting Vancomycin and its literally eating up his

veins....he

> had just a regular IV in right now until Monday when the IV team

comes to put

> a PICC in. THis is not good b/c BRAD hates needles and is totally

and

> completely allergic to any type of pain....=)

> Need I say...I love my port.

> His IV infiltrated and the ceftaz was leaking under his skin and it

got super

> red and he got hives up and down that arm .....Things better change

there b/c

> they are ticking off a bunch of people.It was good though to see

the

> therapists and nurses who have taken care of me through the years.

They knew

> after the last admission in Sept there I wouldn't be back. I kinda

miss

> them....not the doctors though. The care I get at Wake in better. I

am their

> youngest patient and their only Cf so they think Im the neatest

thing since

> peanut butter and jelly was invented....They make me food so I'll

eat and sit

> with me for hours and talk.Plus they sneak me in their offices to

use the

> computer.

> Anyways....Bradley is in the hospital and I know he would love some

> cards....he gets jealose I have so many friends.

>

> His addy is :

> Bradley Snyder

> UNC HOSPITALS

> Patient Room 6302

> Chapel Hill, NC 27599

>

>

> Becki

> YOUR FAVORITE LilGooberGirl

> YOUNGLUNG EMAIL SUPPORT LIST

> www.topica.com/lists/younglung

> Pediatric Interstitial Lung Disease Society

> http://groups.yahoo.com/group/InterstitialLung_Kids/

>

>

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