Guest guest Posted March 19, 2006 Report Share Posted March 19, 2006 When K had tested back in Dec. doc Buie had a more senitive test that's new for K because she had been on the SCd for 6 months already. They both came out negative! Tahnk God for that! Jenn Re: recommended tests > Gwen, > > There is a genetic screening for Celiac, but it is not 100% reliable. > Even if it is positive, it doesn't " prove " that someone has Celaic > disease. If it is negative, it doesn't completely rule out the > possibility. > > I don't think that a doctor will give a definitive Celiac diagnosis > without the biopsy. > And to do that, I am pretty certain that the person will have to go > back to eating a regular diet for an extended period of time (6 weeks > I think). > > > Jody > mom to -7 and -9 > SCD 1/03 > > > > > > For information on the Specific Carbohydrate Diet, please read the book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following websites: > http://www.breakingtheviciouscycle.info > and > http://www.pecanbread.com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2006 Report Share Posted March 19, 2006 When K had tested back in Dec. doc Buie had a more senitive test that's new for K because she had been on the SCd for 6 months already. They both came out negative! Tahnk God for that! Jenn Re: recommended tests > Gwen, > > There is a genetic screening for Celiac, but it is not 100% reliable. > Even if it is positive, it doesn't " prove " that someone has Celaic > disease. If it is negative, it doesn't completely rule out the > possibility. > > I don't think that a doctor will give a definitive Celiac diagnosis > without the biopsy. > And to do that, I am pretty certain that the person will have to go > back to eating a regular diet for an extended period of time (6 weeks > I think). > > > Jody > mom to -7 and -9 > SCD 1/03 > > > > > > For information on the Specific Carbohydrate Diet, please read the book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following websites: > http://www.breakingtheviciouscycle.info > and > http://www.pecanbread.com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2006 Report Share Posted March 19, 2006 When K had tested back in Dec. doc Buie had a more senitive test that's new for K because she had been on the SCd for 6 months already. They both came out negative! Tahnk God for that! Jenn Re: recommended tests > Gwen, > > There is a genetic screening for Celiac, but it is not 100% reliable. > Even if it is positive, it doesn't " prove " that someone has Celaic > disease. If it is negative, it doesn't completely rule out the > possibility. > > I don't think that a doctor will give a definitive Celiac diagnosis > without the biopsy. > And to do that, I am pretty certain that the person will have to go > back to eating a regular diet for an extended period of time (6 weeks > I think). > > > Jody > mom to -7 and -9 > SCD 1/03 > > > > > > For information on the Specific Carbohydrate Diet, please read the book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following websites: > http://www.breakingtheviciouscycle.info > and > http://www.pecanbread.com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2006 Report Share Posted March 19, 2006 " Jody G. " momtobandj@...> wrote: There is a genetic screening for Celiac, but it is not 100% reliable. Even if it is positive, it doesn't " prove " that someone has Celaic disease. If it is negative, it doesn't completely rule out the possibility. I don't think that a doctor will give a definitive Celiac diagnosis without the biopsy. And to do that, I am pretty certain that the person will have to go back to eating a regular diet for an extended period of time (6 weeks I think). " Yes, this was what we learned. I'm really interested in what people think about the stool testing through some of the other labs like Entero or Great Plains? Have other celiac been diagnosed by a doc, by stool testing or by their own intuition? gwen Luca-3 scd 3 weeks " Today a new sun rises for me; everything lives, everything is animated, everything seems to speak to me of my passion, everything invites me to cherish it. " --Anne de Lenclos-- --------------------------------- Yahoo! Travel Find great deals to the top 10 hottest destinations! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2006 Report Share Posted March 19, 2006 " Jody G. " momtobandj@...> wrote: There is a genetic screening for Celiac, but it is not 100% reliable. Even if it is positive, it doesn't " prove " that someone has Celaic disease. If it is negative, it doesn't completely rule out the possibility. I don't think that a doctor will give a definitive Celiac diagnosis without the biopsy. And to do that, I am pretty certain that the person will have to go back to eating a regular diet for an extended period of time (6 weeks I think). " Yes, this was what we learned. I'm really interested in what people think about the stool testing through some of the other labs like Entero or Great Plains? Have other celiac been diagnosed by a doc, by stool testing or by their own intuition? gwen Luca-3 scd 3 weeks " Today a new sun rises for me; everything lives, everything is animated, everything seems to speak to me of my passion, everything invites me to cherish it. " --Anne de Lenclos-- --------------------------------- Yahoo! Travel Find great deals to the top 10 hottest destinations! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2006 Report Share Posted March 19, 2006 Jim and Jen jlessard@...> wrote: When K had tested back in Dec. doc Buie had a more senitive test that's new for K because she had been on the SCd for 6 months already. They both came out negative! Tahnk God for that! Jenn " That's great. could you tell me more? Was it a stool test or a blood test? Do you think she was celiac before the diet? gwen luca-3 scd 3 weeks Re: recommended tests > Gwen, > > There is a genetic screening for Celiac, but it is not 100% reliable. > Even if it is positive, it doesn't " prove " that someone has Celaic > disease. If it is negative, it doesn't completely rule out the > possibility. > > I don't think that a doctor will give a definitive Celiac diagnosis > without the biopsy. > And to do that, I am pretty certain that the person will have to go > back to eating a regular diet for an extended period of time (6 weeks > I think). > > > Jody > mom to -7 and -9 > SCD 1/03 > > > > > > For information on the Specific Carbohydrate Diet, please read the book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following websites: > http://www.breakingtheviciouscycle.info > and > http://www.pecanbread.com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2006 Report Share Posted March 19, 2006 Jim and Jen jlessard@...> wrote: When K had tested back in Dec. doc Buie had a more senitive test that's new for K because she had been on the SCd for 6 months already. They both came out negative! Tahnk God for that! Jenn " That's great. could you tell me more? Was it a stool test or a blood test? Do you think she was celiac before the diet? gwen luca-3 scd 3 weeks Re: recommended tests > Gwen, > > There is a genetic screening for Celiac, but it is not 100% reliable. > Even if it is positive, it doesn't " prove " that someone has Celaic > disease. If it is negative, it doesn't completely rule out the > possibility. > > I don't think that a doctor will give a definitive Celiac diagnosis > without the biopsy. > And to do that, I am pretty certain that the person will have to go > back to eating a regular diet for an extended period of time (6 weeks > I think). > > > Jody > mom to -7 and -9 > SCD 1/03 > > > > > > For information on the Specific Carbohydrate Diet, please read the book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following websites: > http://www.breakingtheviciouscycle.info > and > http://www.pecanbread.com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2006 Report Share Posted March 19, 2006 I was diagnosed with celiac via the blood test. Yes, my doctor could have ordered the biopsy, but he said I would know for sure just by going on the gluten free diet. The improvement was so dramatic, that there's no way that I am not a celiac. The way we saw it, was that there's no reason to rack up more bills (I had been through years of tests and the bills were running quite high) just to prove what we could prove through diet. HTH, ~ > >Reply-To: pecanbread >To: pecanbread >Subject: Re: Re: recommended tests >Date: Sun, 19 Mar 2006 19:08:26 -0800 (PST) > > > > " Jody G. " momtobandj@...> wrote: >There is a genetic screening for Celiac, but it is not 100% reliable. >Even if it is positive, it doesn't " prove " that someone has Celaic >disease. If it is negative, it doesn't completely rule out the >possibility. > >I don't think that a doctor will give a definitive Celiac diagnosis >without the biopsy. >And to do that, I am pretty certain that the person will have to go >back to eating a regular diet for an extended period of time (6 weeks >I think). " > > Yes, this was what we learned. I'm really interested in what people >think about the stool testing through some of the other labs like Entero or >Great Plains? Have other celiac been diagnosed by a doc, by stool testing >or by their own intuition? > > gwen > >Luca-3 > scd 3 weeks > > > " Today a new sun rises for me; everything lives, >everything is animated, everything seems to speak >to me of my passion, everything invites me to cherish it. " > >--Anne de Lenclos-- > >--------------------------------- >Yahoo! Travel > Find great deals to the top 10 hottest destinations! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2006 Report Share Posted March 20, 2006 K barely ever had D. Mostly just constipation. She does react to gluten but, I tests came out negative. I have already known for quite some time that my daughter has the " autobrewery syndrome " going on as she used to constantly act drunk and get hurt but, not actually hurt. I put her on this diet myself when Jody found me. After I read " the science behind the diet, I knew this diet would help her. I just didn't realize how much. Jenn & K 10 months SCD ---- Original Message ----- To: pecanbread > Sent: Sunday, March 19, 2006 10:10 PM Subject: Re: Re: recommended tests > > > Jim and Jen jlessard@...> wrote: When K had tested back in Dec. doc Buie had a more senitive test that's new > for K because she had been on the SCd for 6 months already. They both came > out negative! Tahnk God for that! Jenn " > That's great. could you tell me more? Was it a stool test or a blood test? Do you think she was celiac before the diet? > > gwen > luca-3 > scd 3 weeks > > Re: recommended tests > > > > Gwen, > > > > There is a genetic screening for Celiac, but it is not 100% reliable. > > Even if it is positive, it doesn't " prove " that someone has Celaic > > disease. If it is negative, it doesn't completely rule out the > > possibility. > > > > I don't think that a doctor will give a definitive Celiac diagnosis > > without the biopsy. > > And to do that, I am pretty certain that the person will have to go > > back to eating a regular diet for an extended period of time (6 weeks > > I think). > > > > > > Jody > > mom to -7 and -9 > > SCD 1/03 > > > > > > > > > > > > For information on the Specific Carbohydrate Diet, please read the book > _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following > websites: > > http://www.breakingtheviciouscycle.info > > and > > http://www.pecanbread.com > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2006 Report Share Posted March 20, 2006 K barely ever had D. Mostly just constipation. She does react to gluten but, I tests came out negative. I have already known for quite some time that my daughter has the " autobrewery syndrome " going on as she used to constantly act drunk and get hurt but, not actually hurt. I put her on this diet myself when Jody found me. After I read " the science behind the diet, I knew this diet would help her. I just didn't realize how much. Jenn & K 10 months SCD ---- Original Message ----- To: pecanbread > Sent: Sunday, March 19, 2006 10:10 PM Subject: Re: Re: recommended tests > > > Jim and Jen jlessard@...> wrote: When K had tested back in Dec. doc Buie had a more senitive test that's new > for K because she had been on the SCd for 6 months already. They both came > out negative! Tahnk God for that! Jenn " > That's great. could you tell me more? Was it a stool test or a blood test? Do you think she was celiac before the diet? > > gwen > luca-3 > scd 3 weeks > > Re: recommended tests > > > > Gwen, > > > > There is a genetic screening for Celiac, but it is not 100% reliable. > > Even if it is positive, it doesn't " prove " that someone has Celaic > > disease. If it is negative, it doesn't completely rule out the > > possibility. > > > > I don't think that a doctor will give a definitive Celiac diagnosis > > without the biopsy. > > And to do that, I am pretty certain that the person will have to go > > back to eating a regular diet for an extended period of time (6 weeks > > I think). > > > > > > Jody > > mom to -7 and -9 > > SCD 1/03 > > > > > > > > > > > > For information on the Specific Carbohydrate Diet, please read the book > _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following > websites: > > http://www.breakingtheviciouscycle.info > > and > > http://www.pecanbread.com > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2006 Report Share Posted March 20, 2006 Thought I would share again.......after spending hundreds of dollar for the DNA test...KiKi came back negative! At this time she was only gaining 3 ounces a month (breast feeding 14 time a day and eating non stop!) yet not gaining weight, had steatorrhea (undigested fat and food in her stools), low albumin (low protein) and was border line diabetic!.....the pediatrician said that this was Celiac Disease...that she didn't care what these DNA tests or Celiac Panel said! That she was to weak/thin/sick to be put through a biopsy and EGD testing (gold standard) that she was " CONFIRMED " ! That to put her through any more tests would be " child abuse! " ...her doctor truly said this! Yet again I tell you guys...the gluten free diet did not work, nor did GF/CF!!!! This is the only thing that has worked the best...experimented with many ways of eating.....SCDIET is the only thing that is working the miracle we wanted! For some of us the confirmation comes when you see the changes to the better! My husband and I are the only ones that where confirmed with " gold standard " of testing....and again our celiac panel was negative...and again the GF die did not work! Elaine explains everything......in the " Celiac Story " in her BTVC book...I urge us all to review! Antoinette (day 28 entire family SCD/Celiac disease/malabsorption/leaky gut....neurological problems because of it....and healing) Re: recommended tests Gwen, There is a genetic screening for Celiac, but it is not 100% reliable. Even if it is positive, it doesn't " prove " that someone has Celaic disease. If it is negative, it doesn't completely rule out the possibility. I don't think that a doctor will give a definitive Celiac diagnosis without the biopsy. And to do that, I am pretty certain that the person will have to go back to eating a regular diet for an extended period of time (6 weeks I think). Jody mom to -7 and -9 SCD 1/03 For information on the Specific Carbohydrate Diet, please read the book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following websites: http://www.breakingtheviciouscycle.infohttp://www.breakingtheviciouscycle.info/\ > and http://www.pecanbread.comhttp://www.pecanbread.com/> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2006 Report Share Posted March 20, 2006 Thanks for this info. I need the details. My son sounds a little like your Kiki except that my son, after treatment for anemia, does quite well. He gains steadily but hasn't jumped back up on the growth chart. Some of this is what is considered normal and no doc has ever told me that he looks off. He has had lots of energy since anemia days and poops are just either big and dry or soft and mushy. He sometimes has undigested foods but not as often as when he was little and not chewing things well. He never has really had undigested fats in his bms. He looks thin but super healthy. This is where I get lost between the cracks because he just seems healthy though I think no pooping is bad for a person and because the last time we went on the diet he gained a pound in less than a month! gwen Bunce ajbunce@...> wrote: Thought I would share again.......after spending hundreds of dollar for the DNA test...KiKi came back negative! At this time she was only gaining 3 ounces a month (breast feeding 14 time a day and eating non stop!) yet not gaining weight, had steatorrhea (undigested fat and food in her stools), low albumin (low protein) and was border line diabetic!.....the pediatrician said that this was Celiac Disease...that she didn't care what these DNA tests or Celiac Panel said! That she was to weak/thin/sick to be put through a biopsy and EGD testing (gold standard) that she was " CONFIRMED " ! That to put her through any more tests would be " child abuse! " ...her doctor truly said this! Yet again I tell you guys...the gluten free diet did not work, nor did GF/CF!!!! This is the only thing that has worked the best...experimented with many ways of eating.....SCDIET is the only thing that is working the miracle we wanted! For some of us the confirmation comes when you see the changes to the better! My husband and I are the only ones that where confirmed with " gold standard " of testing....and again our celiac panel was negative...and again the GF die did not work! Elaine explains everything......in the " Celiac Story " in her BTVC book...I urge us all to review! Antoinette (day 28 entire family SCD/Celiac disease/malabsorption/leaky gut....neurological problems because of it....and healing) Re: recommended tests Gwen, There is a genetic screening for Celiac, but it is not 100% reliable. Even if it is positive, it doesn't " prove " that someone has Celaic disease. If it is negative, it doesn't completely rule out the possibility. I don't think that a doctor will give a definitive Celiac diagnosis without the biopsy. And to do that, I am pretty certain that the person will have to go back to eating a regular diet for an extended period of time (6 weeks I think). Jody mom to -7 and -9 SCD 1/03 For information on the Specific Carbohydrate Diet, please read the book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following websites: http://www.breakingtheviciouscycle.infohttp://www.breakingtheviciouscycle.info/\ > and http://www.pecanbread.comhttp://www.pecanbread.com/> Quote Link to comment Share on other sites More sharing options...
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