Re: stool tests was: recommended tests/GFCF diet not working

[Guest guest]

Okay, this is great information but I'm still wondering about stool tests for

candida and gluten/casein/lactose intolerance. Any thoughts?

gwen

luca - 3

scd 3 weeks second time around

Bunce ajbunce@...> wrote:

Guess what Guys, our story is a little different.....OUR CELIAC BLOOD WORK WAS

NEGATIVE...I insisted on the biopsy on both me and my husband and IT CAME BACK

POSITIVE FOR CELIAC DISEASE/Celiac Sprue! Our kids clearly showed all the signs

(they where comfirmed by doctor with out any of our " negative tests " !.......at

first THEY thought it was only about gluten....and then once thought it could be

the proteins in dairy.......and now to know what Elaine knew (something that

none of these doctors could tell us!).....I wish we would have known this 15

months ago....you see the gluten free diet gave a little relief....and CF diet a

little more....when we became so desperate we limited ourselves even more and

ate only fruits, meats and vegetables (cheating often with starch and sugar/not

to mention our vitamins and supplements having it in it).....more yet....BUT

NOTHING LIKE THE SUCCESS WE ARE HAVING NOW! You see, Celiac Disease is so

misunderstood! THE CSA-USA (Celiac Sprue

Association) gets 6 to 8 calls a week with people like us who are not faring

well on the gluten free diet (all diagnosed with Celiac Disease!). Thought I

would add this to the conversation....tests are not everything! We would have

slipped through the cracks/ my entire family...if it hadn't been for my

persistence, pissing doctors off (even being fired by one!)....and finding two

that would finally listen.

Antoinette (SCD entire family day 28/Family Problems: Celiac Disease, Dermatitis

Herpetiformis, Malabsorption Syndrome, Leaky Gut, ADD, ADHD, ASD, Mental

Illness, And other neurological problems related to having a damaged gut!)

Re: Re: recommended tests

I was diagnosed with celiac via the blood test. Yes, my doctor could have

ordered the biopsy, but he said I would know for sure just by going on the

gluten free diet.

[Guest guest]

I hope I haven't missed the answer to this - I have a hard time

keeping up with the digests.

Don't you have to be actively ingesting wheat to show up with the

gluten sensitivity? This was how my tests were. The doc said the

blood test should register since I had only been GF for 6 months.

But it didn't register. Then he made me eat wheat for a month before

the biopsy - I'm not sure I did a good job - it hurt too much. And

my biopsy was inconclusive. But I definetly now have the dermatitis

if I eat wheat by accident (prior to SCD), so I definetly have

celiac. And we've always kept my daughter away from wheat, based on

her other intolerances - dairy, soy, egg and our STRONG family

history of celiac and IBS. But I would love to have a test that

would work without putting her on Gluten so that the DIL's would

belief that this is for life. :-) Not complaining, just that its

hard for people to understand if they don't have gut problems or

don't pay attention to them. Thanks for any info.

Colby, celiac

scd - self, daughter 2 1/2 weeks, dh -trying to be compliant - its a

journey and I'm proud of him for trying so hard