RE: Why don't the experts agree??

[Guest guest]

I agree that these doctors don't really know much about rosacea and am not

sure if they would ever give us the remedy even if they found one (they're

making too much money and all of the politics in the drug industry today).

That's why I posted my Gold Bond remedy. It looks like about 5 people have

responded with positive results and 1 neutral response (didn't help but

didn't hurt either). One poster said Gold Bond has done more for her in a

week than all the derm cream she's used.

>

>Reply-To: " Dennis & Galway " dgalway@...>

>To: rosacea-support >

>Subject: Why don't the experts agree??

>Date: Wed, 20 Feb 2002 11:53:39 -0330

>

>I am so confused. Why are the so-called experts contradicting each other.

>One says no cetyl alcohol and propylene glycol yet those ingredients just

>happen to be in the products which he/she recommends. Or else, another

>experts says that these same products are okay for rosacea. What about

>salicylic acid. a begoun while not an expert in rosacea certainly knows

>her way around the skincare field says that 'research indicates salicylic

>acid is good for rosacea. Dr. Sy has this ingredient in one of her products

>which is recommended to seb. derm. and acne rosacea.

>Yet, Dr. NAse says that salicylic is a big NO NO. Don't we all have

>rosacea. Why the contradiction? I don't buy it that everyone is different.

>How??

>sorry to venmt. But I am at the end of my ropes with this disease, curse,

>afliction. whatever you call it.

>

>

>

[Guest guest]

As well as cea (which the Gold Bond seems to helping after about a week)

I also have severe bouts with seb derm and I have had some success with

salcyic acid clearing up a very stubborn spot on the bridge of my nose--it

was a very low concentration about .5% that was in a Neutrogena product

designed as an oil control gel. Perhaps in low doses over long periods

there may be some benefits of the BHAs--it is all trial and error with every

product but you never know what will work if you don't try it.

Just because Nase has rosacea himself does not make him the almighty expert

on this subject and with respect to him I don't think he thinks of himself

in this way but many people on this board have lived by the regimens and

advice in his book and guess what, they are still coming here to get more

advice so I think there is truth in the idea that we are all different and

different remedies work for some and not for others--many people who had

photoderm say it helps and just as many say it does nothing.

I think the bigger issue is that people that are successful with treatments

and remedies probably never come back to post here and we may be missing out

on some vaulable advice--I think we always need to come back here every day

or week even if you think you are " cured " just let others know what is

working not just what is not working.

>

>To: dgalway@...

>CC: rosacea-support

>Subject: Re: Why don't the experts agree??

>Date: Wed, 20 Feb 2002 10:08:58 -0600

>

>I agree that these doctors don't really know much about rosacea and am not

>sure if they would ever give us the remedy even if they found one (they're

>making too much money and all of the politics in the drug industry today).

>That's why I posted my Gold Bond remedy. It looks like about 5 people have

>responded with positive results and 1 neutral response (didn't help but

>didn't hurt either). One poster said Gold Bond has done more for her in a

>week than all the derm cream she's used.

>

>

> >

> >Reply-To: " Dennis & Galway " dgalway@...>

> >To: rosacea-support >

> >Subject: Why don't the experts agree??

> >Date: Wed, 20 Feb 2002 11:53:39 -0330

> >

> >I am so confused. Why are the so-called experts contradicting each other.

> >One says no cetyl alcohol and propylene glycol yet those ingredients just

> >happen to be in the products which he/she recommends. Or else, another

> >experts says that these same products are okay for rosacea. What about

> >salicylic acid. a begoun while not an expert in rosacea certainly

>knows

> >her way around the skincare field says that 'research indicates salicylic

> >acid is good for rosacea. Dr. Sy has this ingredient in one of her

>products

> >which is recommended to seb. derm. and acne rosacea.

> >Yet, Dr. NAse says that salicylic is a big NO NO. Don't we all have

> >rosacea. Why the contradiction? I don't buy it that everyone is

>different.

> >How??

> >sorry to venmt. But I am at the end of my ropes with this disease, curse,

> >afliction. whatever you call it.

> >

> >

> >

[Guest guest]

Because there is no consistency in what works for cea. What works for

one person makes another worse. So the experts can only comment on what they

have seen, and what works " most of the time " when they prescribe it.

The apparently random nature of the ebb and flow of this (and similar) skin

conditions makes it very difficult to tell whether a particular treatment

actually caused an improvement or a worsening of the condition - or whether

it was about to happen anyway!

Of course many " experts " aren't!

Barry Hunt

[Guest guest]

Snowskiman:

Before you go get all high and mighty on your gold Bond remedy,

I'd like to say that it has irritated my skin, making it redder in the

process. Also, a said, " Well, I have stopped using the Gold

Bond... the initial burning of it that it did to my skin in the first

few minutes each time I used it, well, it started making my face

redder. " Your little remedy is not as perfect as you make it out to be.

-

[Guest guest]

Snowskiman:

Before you go get all high and mighty on your gold Bond remedy,

I'd like to say that it has irritated my skin, making it redder in the

process. Also, a said, " Well, I have stopped using the Gold

Bond... the initial burning of it that it did to my skin in the first

few minutes each time I used it, well, it started making my face

redder. " Your little remedy is not as perfect as you make it out to be.

-

[Guest guest]

Why is everyone so hard on this snowman guy? If you

use the product and it doesn't work, so be it. Why

send out snotty messages?

--- wwillie70 james.r.hall@...> wrote:

> Snowskiman:

>

> Before you go get all high and mighty on your gold

> Bond remedy,

> I'd like to say that it has irritated my skin,

> making it redder in the

> process. Also, a said, " Well, I have stopped

> using the Gold

> Bond... the initial burning of it that it did to my

> skin in the first

> few minutes each time I used it, well, it started

> making my face

> redder. " Your little remedy is not as perfect as you

> make it out to be.

>

> -

>

>

>

>

> --

> Please read the list highlights before posting to

> the whole group (http://rosacea.ii.net/toc.html).

> Your post will be delayed if you don't give a

> meaningful subject or trim your reply text. You must

> change the subject when replying to a digest !

>

> See http://www.drnase.com for info on his recently

> published book.

>

> To leave the list send an email to

> rosacea-support-unsubscribe

>

>

[Guest guest]

Why is everyone so hard on this snowman guy? If you

use the product and it doesn't work, so be it. Why

send out snotty messages?

--- wwillie70 james.r.hall@...> wrote:

> Snowskiman:

>

> Before you go get all high and mighty on your gold

> Bond remedy,

> I'd like to say that it has irritated my skin,

> making it redder in the

> process. Also, a said, " Well, I have stopped

> using the Gold

> Bond... the initial burning of it that it did to my

> skin in the first

> few minutes each time I used it, well, it started

> making my face

> redder. " Your little remedy is not as perfect as you

> make it out to be.

>

> -

>

>

>

>

> --

> Please read the list highlights before posting to

> the whole group (http://rosacea.ii.net/toc.html).

> Your post will be delayed if you don't give a

> meaningful subject or trim your reply text. You must

> change the subject when replying to a digest !

>

> See http://www.drnase.com for info on his recently

> published book.

>

> To leave the list send an email to

> rosacea-support-unsubscribe

>

>

[Guest guest]

I agree wholheartedly with you, Moya. What is with the nasty and snide

comments these days? It is a waste of time and ruins the whole idea of

trying to help each other. If Skisnowman's rememdy does not work for all and

does work for some, then that is about par for the course with rosacea and

everything we have learned from being in this support group (and I emphasize

" support " ). Jackie

[Guest guest]

I agree wholheartedly with you, Moya. What is with the nasty and snide

comments these days? It is a waste of time and ruins the whole idea of

trying to help each other. If Skisnowman's rememdy does not work for all and

does work for some, then that is about par for the course with rosacea and

everything we have learned from being in this support group (and I emphasize

" support " ). Jackie

[Guest guest]

I agree wholheartedly with you, Moya. What is with the nasty and snide

comments these days? It is a waste of time and ruins the whole idea of

trying to help each other. If Skisnowman's rememdy does not work for all and

does work for some, then that is about par for the course with rosacea and

everything we have learned from being in this support group (and I emphasize

" support " ). Jackie

[Guest guest]

Sorry for the late response. When I first got this thing in 1997, I spent the

next couple of years seeing docs. I saw 10+ specialists, and received very few

diagnoses. All they knew was that facial flushing was occurring as a result of

vasodilation of the face/neck/ears. My MD did a lot of testing and

experimentation, and came up with a combination of clonidine, clonazepam

(relative of Prince Valium) and Nortriptyline, an anti-depressant. These

medications helped but did not eliminate the flushing and burning. Later I

received 13 rounds of photoderm, the last three rounds were high filtration IPL

(2 passes) combined with one pass using the vasculight (YAG 1064 laser, takes

out large, deep vessels). These treatments helped immensly, but this is a

resiliant condition, I am not totally symptom free, and I expect to be getting a

couple more IPL/Vasculite TX's soon. I also use the Ester C / GSE combo, but am

unable to determine how much it has belped.

I believe that we have a couple of things working against rosacea in the medical

field. For one thing, I do not believe that doctors receive adequate training.

Numerous docs looked at my red, burning face and could not even give my

condition a NAME. Most derms which I have encountered were worse than useless. I

was given 2.5% hydrocortisone by (2) derms and (1) GP. Most derms do not appear

to care much about rosacea; they seem more interested in $facelifts$ and such.

Consequently rosacea gets short shrift from most of the derms.

, I hope this sheds some light on the confusion. Perhaps some of the

treatments I have mentioned can help you. Snow, if your GB remedy has helped

even a few people, it was worth posting about IMHO. I hope the GB keeps working

for you, and can help some other folks.

- Jim

--- " snow skiman " snowskiman@...> wrote:

I agree that these doctors don't really know much about rosacea and am not sure

if they would ever give us the remedy even if they found one (they're making too

much money and all of the politics in the drug industry today). That's why I

posted my Gold Bond remedy. It looks like about 5 people have responded with

positive results and 1 neutral response (didn't help but didn't hurt either).

One poster said Gold Bond has done more for her in a week than all the derm

cream she's used.

>

>Reply-To: " Dennis & Galway " dgalway@...>

>To: rosacea-support >

>Subject: Why don't the experts agree??

>Date: Wed, 20 Feb 2002 11:53:39 -0330

>

>I am so confused. Why are the so-called experts contradicting each other. One

says no cetyl alcohol and propylene glycol yet those ingredients just happen to

be in the products which he/she recommends. Or else, another experts says that

these same products are okay for rosacea. What about salicylic acid. a

begoun while not an expert in rosacea certainly knows her way around the

skincare field says that 'research indicates salicylic acid is good for rosacea.

Dr. Sy has this ingredient in one of her products which is recommended to seb.

derm. and acne rosacea. Yet, Dr. NAse says that salicylic is a big NO NO. Don't

we all have rosacea.

Why the contradiction? I don't buy it that everyone is different.

>How?? sorry to venmt. But I am at the end of my ropes with this disease, curse,

>afliction. whatever you call it.

_____________________________________________________________

Get FREE Email and FREE Websites at

http://www.chaosmagic.com

_____________________________________________________________

You deserve a better email address! Get personalized email @yourname

or @yourcompany from Everyone.net --> http://www.everyone.net?tag

[Guest guest]

Sorry for the late response. When I first got this thing in 1997, I spent the

next couple of years seeing docs. I saw 10+ specialists, and received very few

diagnoses. All they knew was that facial flushing was occurring as a result of

vasodilation of the face/neck/ears. My MD did a lot of testing and

experimentation, and came up with a combination of clonidine, clonazepam

(relative of Prince Valium) and Nortriptyline, an anti-depressant. These

medications helped but did not eliminate the flushing and burning. Later I

received 13 rounds of photoderm, the last three rounds were high filtration IPL

(2 passes) combined with one pass using the vasculight (YAG 1064 laser, takes

out large, deep vessels). These treatments helped immensly, but this is a

resiliant condition, I am not totally symptom free, and I expect to be getting a

couple more IPL/Vasculite TX's soon. I also use the Ester C / GSE combo, but am

unable to determine how much it has belped.

I believe that we have a couple of things working against rosacea in the medical

field. For one thing, I do not believe that doctors receive adequate training.

Numerous docs looked at my red, burning face and could not even give my

condition a NAME. Most derms which I have encountered were worse than useless. I

was given 2.5% hydrocortisone by (2) derms and (1) GP. Most derms do not appear

to care much about rosacea; they seem more interested in $facelifts$ and such.

Consequently rosacea gets short shrift from most of the derms.

, I hope this sheds some light on the confusion. Perhaps some of the

treatments I have mentioned can help you. Snow, if your GB remedy has helped

even a few people, it was worth posting about IMHO. I hope the GB keeps working

for you, and can help some other folks.

- Jim

--- " snow skiman " snowskiman@...> wrote:

I agree that these doctors don't really know much about rosacea and am not sure

if they would ever give us the remedy even if they found one (they're making too

much money and all of the politics in the drug industry today). That's why I

posted my Gold Bond remedy. It looks like about 5 people have responded with

positive results and 1 neutral response (didn't help but didn't hurt either).

One poster said Gold Bond has done more for her in a week than all the derm

cream she's used.

>

>Reply-To: " Dennis & Galway " dgalway@...>

>To: rosacea-support >

>Subject: Why don't the experts agree??

>Date: Wed, 20 Feb 2002 11:53:39 -0330

>

>I am so confused. Why are the so-called experts contradicting each other. One

says no cetyl alcohol and propylene glycol yet those ingredients just happen to

be in the products which he/she recommends. Or else, another experts says that

these same products are okay for rosacea. What about salicylic acid. a

begoun while not an expert in rosacea certainly knows her way around the

skincare field says that 'research indicates salicylic acid is good for rosacea.

Dr. Sy has this ingredient in one of her products which is recommended to seb.

derm. and acne rosacea. Yet, Dr. NAse says that salicylic is a big NO NO. Don't

we all have rosacea.

Why the contradiction? I don't buy it that everyone is different.

>How?? sorry to venmt. But I am at the end of my ropes with this disease, curse,

>afliction. whatever you call it.

_____________________________________________________________

Get FREE Email and FREE Websites at

http://www.chaosmagic.com

_____________________________________________________________

You deserve a better email address! Get personalized email @yourname

or @yourcompany from Everyone.net --> http://www.everyone.net?tag

[Guest guest]

Sorry for the late response. When I first got this thing in 1997, I spent the

next couple of years seeing docs. I saw 10+ specialists, and received very few

diagnoses. All they knew was that facial flushing was occurring as a result of

vasodilation of the face/neck/ears. My MD did a lot of testing and

experimentation, and came up with a combination of clonidine, clonazepam

(relative of Prince Valium) and Nortriptyline, an anti-depressant. These

medications helped but did not eliminate the flushing and burning. Later I

received 13 rounds of photoderm, the last three rounds were high filtration IPL

(2 passes) combined with one pass using the vasculight (YAG 1064 laser, takes

out large, deep vessels). These treatments helped immensly, but this is a

resiliant condition, I am not totally symptom free, and I expect to be getting a

couple more IPL/Vasculite TX's soon. I also use the Ester C / GSE combo, but am

unable to determine how much it has belped.

I believe that we have a couple of things working against rosacea in the medical

field. For one thing, I do not believe that doctors receive adequate training.

Numerous docs looked at my red, burning face and could not even give my

condition a NAME. Most derms which I have encountered were worse than useless. I

was given 2.5% hydrocortisone by (2) derms and (1) GP. Most derms do not appear

to care much about rosacea; they seem more interested in $facelifts$ and such.

Consequently rosacea gets short shrift from most of the derms.

, I hope this sheds some light on the confusion. Perhaps some of the

treatments I have mentioned can help you. Snow, if your GB remedy has helped

even a few people, it was worth posting about IMHO. I hope the GB keeps working

for you, and can help some other folks.

- Jim

--- " snow skiman " snowskiman@...> wrote:

I agree that these doctors don't really know much about rosacea and am not sure

if they would ever give us the remedy even if they found one (they're making too

much money and all of the politics in the drug industry today). That's why I

posted my Gold Bond remedy. It looks like about 5 people have responded with

positive results and 1 neutral response (didn't help but didn't hurt either).

One poster said Gold Bond has done more for her in a week than all the derm

cream she's used.

>

>Reply-To: " Dennis & Galway " dgalway@...>

>To: rosacea-support >

>Subject: Why don't the experts agree??

>Date: Wed, 20 Feb 2002 11:53:39 -0330

>

>I am so confused. Why are the so-called experts contradicting each other. One

says no cetyl alcohol and propylene glycol yet those ingredients just happen to

be in the products which he/she recommends. Or else, another experts says that

these same products are okay for rosacea. What about salicylic acid. a

begoun while not an expert in rosacea certainly knows her way around the

skincare field says that 'research indicates salicylic acid is good for rosacea.

Dr. Sy has this ingredient in one of her products which is recommended to seb.

derm. and acne rosacea. Yet, Dr. NAse says that salicylic is a big NO NO. Don't

we all have rosacea.

Why the contradiction? I don't buy it that everyone is different.

>How?? sorry to venmt. But I am at the end of my ropes with this disease, curse,

>afliction. whatever you call it.

_____________________________________________________________

Get FREE Email and FREE Websites at

http://www.chaosmagic.com

_____________________________________________________________

You deserve a better email address! Get personalized email @yourname

or @yourcompany from Everyone.net --> http://www.everyone.net?tag

[Guest guest]

Kathleen,

The Vasculight aka YAG is designed for penetrating deep and destroying large

vessels. I would not be optimistic about its effectiveness in reducing swelling.

However, you might check with a practitioner who is experienced with photoderm

IPL and YAG treatment. My own problem has been limited to heavy facial flushing

and burning. I have never had problems with swelling; consequently I have not

researched it and and am unfamiliar with causes other than allergic

reactions/sensitivities. You might find more information in Dr. Nase's book, and

I also recommend researching the condition further in order to isolate

causes and treatments. There should be a good amount of information on the web.

- Jim

--- Kathleen Hertzig kbhertz@...> wrote:

>I agree with you regarding your post. I cannot believe that doctors

are still prescribing retin A to people with rosacea.

May I ask you more about your treatment. I am getting Vbeam laser to

my nose and cheeks. It has been helpful in some respects, however, it

has not solved my biggest problem which is swelling of the nose.

Have you heard or read if the YAG laser can help swelling?

Kathleen

_____________________________________________________________

Get FREE Email and FREE Websites at

http://www.chaosmagic.com

_____________________________________________________________

You deserve a better email address! Get personalized email @yourname

or @yourcompany from Everyone.net --> http://www.everyone.net?tag

[Guest guest]

Kathleen,

The Vasculight aka YAG is designed for penetrating deep and destroying large

vessels. I would not be optimistic about its effectiveness in reducing swelling.

However, you might check with a practitioner who is experienced with photoderm

IPL and YAG treatment. My own problem has been limited to heavy facial flushing

and burning. I have never had problems with swelling; consequently I have not

researched it and and am unfamiliar with causes other than allergic

reactions/sensitivities. You might find more information in Dr. Nase's book, and

I also recommend researching the condition further in order to isolate

causes and treatments. There should be a good amount of information on the web.

- Jim

--- Kathleen Hertzig kbhertz@...> wrote:

>I agree with you regarding your post. I cannot believe that doctors

are still prescribing retin A to people with rosacea.

May I ask you more about your treatment. I am getting Vbeam laser to

my nose and cheeks. It has been helpful in some respects, however, it

has not solved my biggest problem which is swelling of the nose.

Have you heard or read if the YAG laser can help swelling?

Kathleen

_____________________________________________________________

Get FREE Email and FREE Websites at

http://www.chaosmagic.com

_____________________________________________________________

You deserve a better email address! Get personalized email @yourname

or @yourcompany from Everyone.net --> http://www.everyone.net?tag

[Guest guest]

Kathleen,

The Vasculight aka YAG is designed for penetrating deep and destroying large

vessels. I would not be optimistic about its effectiveness in reducing swelling.

However, you might check with a practitioner who is experienced with photoderm

IPL and YAG treatment. My own problem has been limited to heavy facial flushing

and burning. I have never had problems with swelling; consequently I have not

researched it and and am unfamiliar with causes other than allergic

reactions/sensitivities. You might find more information in Dr. Nase's book, and

I also recommend researching the condition further in order to isolate

causes and treatments. There should be a good amount of information on the web.

- Jim

--- Kathleen Hertzig kbhertz@...> wrote:

>I agree with you regarding your post. I cannot believe that doctors

are still prescribing retin A to people with rosacea.

May I ask you more about your treatment. I am getting Vbeam laser to

my nose and cheeks. It has been helpful in some respects, however, it

has not solved my biggest problem which is swelling of the nose.

Have you heard or read if the YAG laser can help swelling?

Kathleen

_____________________________________________________________

Get FREE Email and FREE Websites at

http://www.chaosmagic.com

_____________________________________________________________

You deserve a better email address! Get personalized email @yourname

or @yourcompany from Everyone.net --> http://www.everyone.net?tag