Guest guest Posted March 20, 2006 Report Share Posted March 20, 2006 When my husband and my biopsy came back positive with our NEGATIVE BLOOD WORK...we found a pediatrician that confirmed our kids as having Celiac Disease....as word of caution......again.....for US THE GLUTEN FREE DIET DID NOT WORK! I don't know if it was because of our negative blood or not (we didn't show a blood reaction to gluten!). Yet we all had COUNTLESS RED FLAGS for Celiac Disease. OUR CONFIRMATION FROM OUR KIDS CAME FROM CHANGING THE WAY WE EAT........the SCDiet has WORKED FAR THE BEST!!!!!! Thank you ELAINE and Sydney Valentine Haas M.D.! Day 28 and doing so much better....still have to heal more....but so much better! We also didn't want to put our kids thought this " gold standard " of EGD (KiKI was so sick (infant daughter), neither did her NEW and proactive pediatrician!)...........we where told the intestines of an adult have the surface area of a tennis court...that the damage could be any where.....and if it isn't " classic " damage....will not be labeled celiac anyways...and often is MISSED OR NOT DIAGNOSED AS ANYTHING BEING WRONG! THE EGD...only looks at a tiny section of the " tennis court " ........this is very disturbing....plus our insurance wouldn't cover much of it! Antoinette (SCD ENTIRE FAMILY OF SILLY YAKS!) P.S. I call us silly yaks/instead of celiac's...because nothing else describes us! You may discover that this is true to you too....IS CONFIRMATION that important in light of knowing this? Please I urge you to reread " The Celiac Story " in BTVC....Elaine herself explains why so many celiac's are being missed! Right now the diagnosis of Celiac is too darn " BLACK AND WHITE.....if you are in the gray area....with negative tests.....YOU WILL BE MISSED! recommended tests Hello everyone, I'm wondering what medical/naturopathic testing you all would recommend for my son and I as we start this SCDiet? Someone mentioned nutritional analysis, which I've had done and it was fine. Any others? Did any of you have any luck getting a celiac diagnosis with a negative blood test and NO endoscopy biopsy? I do not want to put my child through either of these tests. Any luck with stool tests for celiac/candiasis? gwen luca ds 3 yrs, scd 3 weeks. " Today a new sun rises for me; everything lives, everything is animated, everything seems to speak to me of my passion, everything invites me to cherish it. " --Anne de Lenclos-- --------------------------------- Yahoo! Mail Use Photomail to share photos without annoying attachments. Quote Link to comment Share on other sites More sharing options...
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