Guest guest Posted December 5, 2002 Report Share Posted December 5, 2002 My daughter has the CF genes A455E(rare) and F508(common). I was told by her Dr. that they are finding out that kids with this kind of combination are found to be doing good overall. is doing really good. Her height is in the 95% and her wt. is around the 65%. The Dr.'s are pleased with her progress. , Mom to 11wocf, Nikki 9wocf, Luke 6wocf and 4wcf > We have over seven inches of snow (Pennsylvania), the kids are loving it!!! > > I do have a question if anyone can help me, I have 2 children w/cf, I am > remarried so my children have different cf genes, my 14 old has Delta F 508 & > G178R.(which is very rare) my 11 wk of son has 2 Delta F 508's. My Dr. said > that some of the cf mutations have different effects, > I'm really concerned because my daughter is doing great, she's 5'2 116lbs. > FEV1 is 105 she is admitted to the hospital 2-3x a year, the drs. tell me > that she is doing great and if you were to look at her xrays you wouldn't > be able to tell she has cf. When she's well she does NOT cough at all. > My son has already been in the hospital for 16 days and he's barely 3 months > I'm afraid that because he has 2 of the most common gene that he won't remain > as healthy as my daughter. Does anyone have any info. on this, my doctor > said that we just have to wait and see but thats easy for him to say. > > Thanks > > Mom to 14 w/cf, Cody 11 wocf, Zoey 3 wocf, Evan 11 wks w/cf > > > Quote Link to comment Share on other sites More sharing options...
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