Re: CF and Celiac Disease Grandma Bev...Thanks :-))

[Guest guest]

Love you soooooooooo much!!! Well, gastro says take her off the enzymes for

this weekend and see how she does. Okay, then... And...... says he's ready

to do a biopsy as soon as the celiac disease blood test returns. I just

wanna know, ya know??? Thanks for your prayers. By the way, my son did have

to have the shunt revised less than six weeks later it's replacement. The

second doc says the first one had left the disconnected catheter in his head,

along with part of the old valve that was no longer being used...He's been

without ANY headache or vomiting or seizures EVER since the second surgery on

October 22!!!! Yayyyyyyyyyyyyeeeeeeee......

Today, I had my girl in the Er complaining of severe chest pains, left

shoulder pain and tingling in her left arm and hand. The buttholes ONLY did

a chest x-ray, didn't check out her heart at all (though I know they

should've!) and sent her home! I wanna screammmmmmmmm......... It's so

useless! Gotta go now. Thanks for caring! :-) I'll keep ya posted! bye,

love, Kathy

Mom of one w/ suspected CF and two sons with other unrelated multiple medical

probs.....(I noticed that's how everyone else signs their emails to the list,

so I figured I'd finally do it, too)

[Guest guest]

Love you soooooooooo much!!! Well, gastro says take her off the enzymes for

this weekend and see how she does. Okay, then... And...... says he's ready

to do a biopsy as soon as the celiac disease blood test returns. I just

wanna know, ya know??? Thanks for your prayers. By the way, my son did have

to have the shunt revised less than six weeks later it's replacement. The

second doc says the first one had left the disconnected catheter in his head,

along with part of the old valve that was no longer being used...He's been

without ANY headache or vomiting or seizures EVER since the second surgery on

October 22!!!! Yayyyyyyyyyyyyeeeeeeee......

Today, I had my girl in the Er complaining of severe chest pains, left

shoulder pain and tingling in her left arm and hand. The buttholes ONLY did

a chest x-ray, didn't check out her heart at all (though I know they

should've!) and sent her home! I wanna screammmmmmmmm......... It's so

useless! Gotta go now. Thanks for caring! :-) I'll keep ya posted! bye,

love, Kathy

Mom of one w/ suspected CF and two sons with other unrelated multiple medical

probs.....(I noticed that's how everyone else signs their emails to the list,

so I figured I'd finally do it, too)

[Guest guest]

In a message dated 11/7/2002 9:40:47 PM Central Standard Time,

kas1cat@... writes:

> wanna know, ya know??? Thanks for your prayers. By the way, my son did

> have

> to have the shunt revised less than six weeks later it's replacement. The

> second doc says the first one had left the disconnected catheter in his

> head,

> along with part of the old valve that was no longer being used...He's been

> without ANY headache or vomiting or seizures EVER since the second surgery

> on

>

Shunt revised I have a daughter that has CF and a shunt. She has had it

revised once. How old is your son? Deb A

[Guest guest]

In a message dated 11/7/2002 9:40:47 PM Central Standard Time,

kas1cat@... writes:

> wanna know, ya know??? Thanks for your prayers. By the way, my son did

> have

> to have the shunt revised less than six weeks later it's replacement. The

> second doc says the first one had left the disconnected catheter in his

> head,

> along with part of the old valve that was no longer being used...He's been

> without ANY headache or vomiting or seizures EVER since the second surgery

> on

>

Shunt revised I have a daughter that has CF and a shunt. She has had it

revised once. How old is your son? Deb A

[Guest guest]

In a message dated 11/7/2002 9:40:47 PM Central Standard Time,

kas1cat@... writes:

> wanna know, ya know??? Thanks for your prayers. By the way, my son did

> have

> to have the shunt revised less than six weeks later it's replacement. The

> second doc says the first one had left the disconnected catheter in his

> head,

> along with part of the old valve that was no longer being used...He's been

> without ANY headache or vomiting or seizures EVER since the second surgery

> on

>

Shunt revised I have a daughter that has CF and a shunt. She has had it

revised once. How old is your son? Deb A

[Guest guest]

Your doing all the right moves, What a terrible mistake. I am really an

advocate of .QUESTION.......QUESTION all the time. It seems to act like they

" Don't " know is best. Let them prove they know what they are doing. I have

to say, most do-------but,- when you get one that doesn't, it isn't just a

bad job they are doing, its your OR your loved ones life ! ! !. Keep up the

great job MOMMY!!!

I am holding all my thoughts, wishes & all else available to me ......for

you & yours.

Do keep us updated!!:)

Thanks for your lovely message to me as well --Love ya too, gal!!

LOVE & HUGS, gtrandmomBEV

Re: CF and Celiac Disease Grandma Bev...Thanks :-))

Love you soooooooooo much!!! Well, gastro says take her off the enzymes for

this weekend and see how she does. Okay, then... And...... says he's ready

to do a biopsy as soon as the celiac disease blood test returns. I just

wanna know, ya know??? Thanks for your prayers. By the way, my son did

have

to have the shunt revised less than six weeks later it's replacement. The

second doc says the first one had left the disconnected catheter in his

head,

along with part of the old valve that was no longer being used...He's been

without ANY headache or vomiting or seizures EVER since the second surgery

on

October 22!!!! Yayyyyyyyyyyyyeeeeeeee......

Today, I had my girl in the Er complaining of severe chest pains, left

shoulder pain and tingling in her left arm and hand. The buttholes ONLY did

a chest x-ray, didn't check out her heart at all (though I know they

should've!) and sent her home! I wanna screammmmmmmmm......... It's so

useless! Gotta go now. Thanks for caring! :-) I'll keep ya posted! bye,

love, Kathy

Mom of one w/ suspected CF and two sons with other unrelated multiple

medical

probs.....(I noticed that's how everyone else signs their emails to the

list,

so I figured I'd finally do it, too)

[Guest guest]

Your doing all the right moves, What a terrible mistake. I am really an

advocate of .QUESTION.......QUESTION all the time. It seems to act like they

" Don't " know is best. Let them prove they know what they are doing. I have

to say, most do-------but,- when you get one that doesn't, it isn't just a

bad job they are doing, its your OR your loved ones life ! ! !. Keep up the

great job MOMMY!!!

I am holding all my thoughts, wishes & all else available to me ......for

you & yours.

Do keep us updated!!:)

Thanks for your lovely message to me as well --Love ya too, gal!!

LOVE & HUGS, gtrandmomBEV

Re: CF and Celiac Disease Grandma Bev...Thanks :-))

Love you soooooooooo much!!! Well, gastro says take her off the enzymes for

this weekend and see how she does. Okay, then... And...... says he's ready

to do a biopsy as soon as the celiac disease blood test returns. I just

wanna know, ya know??? Thanks for your prayers. By the way, my son did

have

to have the shunt revised less than six weeks later it's replacement. The

second doc says the first one had left the disconnected catheter in his

head,

along with part of the old valve that was no longer being used...He's been

without ANY headache or vomiting or seizures EVER since the second surgery

on

October 22!!!! Yayyyyyyyyyyyyeeeeeeee......

Today, I had my girl in the Er complaining of severe chest pains, left

shoulder pain and tingling in her left arm and hand. The buttholes ONLY did

a chest x-ray, didn't check out her heart at all (though I know they

should've!) and sent her home! I wanna screammmmmmmmm......... It's so

useless! Gotta go now. Thanks for caring! :-) I'll keep ya posted! bye,

love, Kathy

Mom of one w/ suspected CF and two sons with other unrelated multiple

medical

probs.....(I noticed that's how everyone else signs their emails to the

list,

so I figured I'd finally do it, too)

[Guest guest]

Kathy,

How old are your children? Do you have family close by to help you

out? I hope so. Everyone needs a little help. I am glad the the

headaches have stopped. That had to have been very stressful.

Hang in there,

Gale

> Love you soooooooooo much!!! Well, gastro says take her off the

enzymes for

> this weekend and see how she does. Okay, then... And...... says

he's ready

> to do a biopsy as soon as the celiac disease blood test returns.

I just

> wanna know, ya know??? Thanks for your prayers. By the way, my

son did have

> to have the shunt revised less than six weeks later it's

replacement. The

> second doc says the first one had left the disconnected catheter in

his head,

> along with part of the old valve that was no longer being

used...He's been

> without ANY headache or vomiting or seizures EVER since the second

surgery on

> October 22!!!! Yayyyyyyyyyyyyeeeeeeee......

> Today, I had my girl in the Er complaining of severe chest pains,

left

> shoulder pain and tingling in her left arm and hand. The buttholes

ONLY did

> a chest x-ray, didn't check out her heart at all (though I know

they

> should've!) and sent her home! I wanna screammmmmmmmm.........

It's so

> useless! Gotta go now. Thanks for caring! :-) I'll keep ya

posted! bye,

> love, Kathy

> Mom of one w/ suspected CF and two sons with other unrelated

multiple medical

> probs.....(I noticed that's how everyone else signs their emails to

the list,

> so I figured I'd finally do it, too)

>

>

>