Re: CF and Celiac Disease Grandma Bev...Thanks :-))

[Guest guest]

Kathy,

How old are your children? Do you have family close by to help you

out? I hope so. Everyone needs a little help. I am glad the the

headaches have stopped. That had to have been very stressful.

Hang in there,

Gale

> Love you soooooooooo much!!! Well, gastro says take her off the

enzymes for

> this weekend and see how she does. Okay, then... And...... says

he's ready

> to do a biopsy as soon as the celiac disease blood test returns.

I just

> wanna know, ya know??? Thanks for your prayers. By the way, my

son did have

> to have the shunt revised less than six weeks later it's

replacement. The

> second doc says the first one had left the disconnected catheter in

his head,

> along with part of the old valve that was no longer being

used...He's been

> without ANY headache or vomiting or seizures EVER since the second

surgery on

> October 22!!!! Yayyyyyyyyyyyyeeeeeeee......

> Today, I had my girl in the Er complaining of severe chest pains,

left

> shoulder pain and tingling in her left arm and hand. The buttholes

ONLY did

> a chest x-ray, didn't check out her heart at all (though I know

they

> should've!) and sent her home! I wanna screammmmmmmmm.........

It's so

> useless! Gotta go now. Thanks for caring! :-) I'll keep ya

posted! bye,

> love, Kathy

> Mom of one w/ suspected CF and two sons with other unrelated

multiple medical

> probs.....(I noticed that's how everyone else signs their emails to

the list,

> so I figured I'd finally do it, too)

>

>

>