Re: Paige and CF

[Guest guest]

Dear ,

Thank you so much for your input... unfortunately BOTH my OB/GYN and primary

care physician are not interested in testing ME. They assume that since my

son is double Delta 508, my husband and I are each carriers of the Delta 508

gene. Guess they don't want to spend the time or money... whereas I AM.

Any ideas about where I might get answers?

Appreciatively,

Paige

Could I have CF? Does pre-authorization cover you

> for a series of vaccines?

>

>

> Dear Group,

>

> I've posted fairly infrequently since my son (now 19 months old with CF)

was

> diagnosed, so I am humbly asking for your ANY and all opinions regarding

my

> two questions:

>

> 1) I'm in a tough spot as my husband recently lost his job and I'm

> wondering about how to spend what's left of our yearly alotted insurance

> dollars in the next three months. My son is my primary concern, of

course.

> His daily meds (at this time) run about $200/month (THANKFULLY just

enzymes

> and vitamins for now). Our insurance has approved him for a second year

of

> Synagis (for RSV: considering he was severely premature and has CF) and

> received one vaccination in October. If my husband's insurance changes

(ie,

> we have to go to Cobra), can the insurance company effectively PULL the

> preauthorization on my son's Synagis (as I understand it's done

> month-to-month)?

>

> 2) I've ALWAYS been a cougher, even when well, and in the past

> ten-or-so-years, have been bothered by morning coughing in efforts to

get

> the " settled " overnight junk out of my lungs. Since recovering from

some

> weird bug that really whipped me (and my husband) over a month ago, I

> actually cough up " plugs " of mucous every morning. Also, I am thin

because

> of my " inability " to keep anything in my system. In Junior High I was

> diagnosed with " irritable bowel syndrome " , given drugs, and then

couldn't

> " go " if I had to. Twenty years later, I know the location of EVERY

public

> restroom in the Tri-State-Area!!

>

> Here are my questions, that I would so ENORMOUSLY appreciate ANY

responses

> to:

>

> 1) Does anyone know if my son's RSV vaccines could be halted? Once a

kid

> gets pre-authorized is it per VACCINE, or per SEASON?

>

> 2) I think I could possibly have CF and not know it. Could anyone

> recommend a fairly reasonably-priced lab (in the tri-state area) that

tests

> adults for CF? (We cannot afford Ambry)

>

>

> Thank you so much for reading my rant.... I am so VERY depressed.

> Love to All,

> Paige

>

>

>

> PLEASE do not post religious emails to the list.

>

>

> -------------------------------------------

>

>

> The opinions and information exchanged on this list should

> IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> --------------------------------------------------

>

>

>