Guest guest Posted November 9, 2002 Report Share Posted November 9, 2002 Hi Rosemary, first, a HAPPY BIRTHDAY to !! Hope he has a georgeous day! I have found the following about the mental health of chronically ill children. Don't know if it helps though. Is a loner by choice or by fate? Fiona likes to be on her own or together with one or two friends. But she dislikes larger groups. Peace Torsten Arch Pediatr Adolesc Med 2002 Jun;156(6):533-9 Related Articles, Links A randomized, controlled trial of a community-based support program for families of children with chronic illness: pediatric outcomes. Chernoff RG, Ireys HT, DeVet KA, Kim YJ. Department of Pediatrics, School of Medicine, Hopkins University, 600 N Broadway, Baltimore, MD 21287, USA. rchernof@... BACKGROUND: Children with chronic illnesses have a heightened risk for mental health problems. OBJECTIVES: To develop, implement, and evaluate child outcomes of a 15-month, community-based, family- support intervention designed to reduce risk for poor adjustment and mental health problems in children with 1 of 4 chronic illnesses (diabetes mellitus, sickle cell anemia, cystic fibrosis, or moderate to severe asthma) and their mothers. DESIGN: Randomized, controlled clinical trial design with multiple measures of mental health based on both child and parent reports taken 1 year apart. SETTING: Community-based intervention linked to subspecialty and general pediatric clinics and practices in Baltimore, Md. PARTICIPANTS: One hundred thirty-six mothers and children aged 7 to 11 years with diabetes mellitus, sickle cell anemia, cystic fibrosis, or moderate to severe asthma. INTERVENTION: The program, provided by " experienced mothers " and child life specialists, included telephone contacts, face-to-face visits, and special family events. MAIN OUTCOME MEASURES: Outcomes were measured using the following instruments: the Personal Adjustment and Role Skills Scale III, the Children's Depression Inventory, the Revised Children's Manifest Anxiety Scale, and the Self-Perception Profile for Children. RESULTS: The experimental group's mean adjustment score increased over the intervention period while the control group's mean adjustment score decreased. Analysis of variance demonstrated that the intervention had a significant main effect on postintervention adjustment controlling for baseline scores (P =.01). Using a cutoff score indicating maladjustment, the percentage of experimental group children in the maladjustment range fell from 19% at baseline to 10% after the intervention; the percentage of control group children in the maladjustment range rose from 15% at baseline to 21% after the intervention. The effect of the intervention was more pronounced for children who had low physical self-esteem than for those who had moderate to high physical self-esteem at the beginning of the program. CONCLUSIONS: Our results demonstrate modest positive effects of a family support intervention in promoting the adjustment of children with selective chronic health conditions. Including child life specialists in a community-based intervention may be especially salient for children with chronic illnesses who have low physical self-esteem. The intervention had a similar outcome for all diagnostic groups, suggesting that it could be effective for children with any chronic illness and implemented in a variety of pediatric settings. Publication Types: Clinical Trial Multicenter Study Randomized Controlled Trial PMID: 12038883 [PubMed - indexed for MEDLINE] > Has anything been written about the personality traits of people with CF? My > daughter is a loner? > > > > Rosemary in New York with 3 children with CF - they are 12, 9.11, 6...I > coined the phrase " BREATHE DAMMIT " ; and now we have a dog named - are you > ready for this - TOBI after their medication! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2002 Report Share Posted November 10, 2002 We must be starting a trend here. too prefers more to be with less people. She is not outgoing as far as making friends. she only has a few close onesand that is is I tell her she needs to makes more friends and she says she has all the friends she wants and needs. She don't like to visit family for more than a couple of days. That may be because they wear her out though. She nevers asks for friends to come over I have to bring it up to her. Maybe these kids don't want ot get attached to very many people for not knowing what the future holds for them?????? Dana 12 1/2 > Has anything been written about the personality traits of people with CF? My > daughter is a loner? > > > > Rosemary in New York with 3 children with CF - they are 12, 9.11, 6...I > coined the phrase " BREATHE DAMMIT " ; and now we have a dog named - are you > ready for this - TOBI after their medication! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2002 Report Share Posted November 10, 2002 My daughter with CF is also the most outgoing of all my children. My son is very reserved. My older daughter is somewhere in the middle, and Mycah is a social butterfly as they say. So if I was doing a study based on three, I would have concluded that CF makes kids more outgoing! Lori in Florida Personality Traits Has anything been written about the personality traits of people with CF? My daughter is a loner? Rosemary in New York with 3 children with CF - they are 12, 9.11, 6...I coined the phrase " BREATHE DAMMIT " ; and now we have a dog named - are you ready for this - TOBI after their medication! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2002 Report Share Posted November 11, 2002 HMMMM Sometimes I have (often, actually) thought that our kids with CF are actually emotionally more healthy than the other kids? They sure do seem more confident, yet in some ways wiser, more easily adaptable, etc..I could go on and on. I always wondered if it was from the increased attention and contact with adults, incl. adults outside the family.... so I am not sure with the study what to think. I wonder if only children have different personalities than kids from multiple sib families? I would bet that to be a more likely influence on personality...there are also lots and lots of studies about birth order and kids places in the family, etcd.... ok, enough rambling... Jen > > Has anything been written about the personality traits of people > with CF? My > > daughter is a loner? > > > > > > > > Rosemary in New York with 3 children with CF - they are 12, 9.11, > 6...I > > coined the phrase " BREATHE DAMMIT " ; and now we have a dog named - > are you > > ready for this - TOBI after their medication! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2002 Report Share Posted November 11, 2002 HMMMM Sometimes I have (often, actually) thought that our kids with CF are actually emotionally more healthy than the other kids? They sure do seem more confident, yet in some ways wiser, more easily adaptable, etc..I could go on and on. I always wondered if it was from the increased attention and contact with adults, incl. adults outside the family.... so I am not sure with the study what to think. I wonder if only children have different personalities than kids from multiple sib families? I would bet that to be a more likely influence on personality...there are also lots and lots of studies about birth order and kids places in the family, etcd.... ok, enough rambling... Jen > > Has anything been written about the personality traits of people > with CF? My > > daughter is a loner? > > > > > > > > Rosemary in New York with 3 children with CF - they are 12, 9.11, > 6...I > > coined the phrase " BREATHE DAMMIT " ; and now we have a dog named - > are you > > ready for this - TOBI after their medication! > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.