Meeting other people from the list...

[Guest guest]

OK NOW I am frustrated, lol....I just wrote a long reply and then

yahoo wanted my password when I hit send, and the whole reply went

away...ugh....I will never be able to recreate it as it was....

I completely understand what your needs are. I still think that it is

somewhat easier on my kids, and their cousins, since there are five of

them total CF to them does not seem quite so abnormal, and they are

able to support one another.

We have met several people from the list. My bestest Canadian Friend

MO, where we met in canada a few summers ago (long story how it

happened, but CF parents list is responsible...thanks..) anyway, now

every summer we spend at least a weekend at our cottage together. The

kids get along terrific, (except the time jojo was still a baby and

bit Jordi, lol...), and Mo says it helps Ali because they are the only

other kids that Ali knows with CF (plus, she is still hoping my kids

ravenous appetites will rub off on Ali, while watching eat as

many as 5 hotdogs at a time, amazing what cooking over the fire pit

will do, lol) It is truly one of those friendships we will all cherish

for a lifetime...

We also met Lori from Florida here in TN at the pumpkin patch. My

girls think that Samual is a hunk, and the little girls hit it off

really well, still asking about each other from time to time. We

actually even compared culture results ahead of time...went something

like this...I said, you know my kids have pseudo, and she responded,

so does she, almost like so what else is new....or like we were

describing whether the kids were blonde haired and blue eyed...

We also have met , aka Triplet mom and beautiful , though

the majority of time I went to visit with bailey in the hospital or we

met for lunch and I was not dragging kiddos along, though we have met

at CF walks all of us.

I still have many regrets that I never figured a way to make the trek

out west to meet sweet, caring, wonderful . but not a day goes

by that I don't think of her and consider her my kids special angel

watching over them...

I have rambled on enough....

take care,

Jen

Mommy of 7, 3 with CF

> Very good point Lenora. I would just LOVE to meet other moms who

are having

> to deal with the same thing we are. It feels so lonely not being

able to

> pick up the phone and talk with someone else who knows what I " m

talking

> about. Someone who understands why I'm happy PJ had a solid BM or

why

> is so active, or that Yolo isn't coughing that much. I think it

would blow

> 's mind to actually see another kid take meds before they ate.

I did

> meet one gal off cystic-l, when we were in FL. It was pretty awsome

to talk

> with someone else who knew what I was talking about, lol.

>

> Jen A. mom to 4, Yolo 2, and Phynix 6months all w/cf.

>

>

>

>

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