Re: Have not posted here in a while- questions concerning enzymes

[Guest guest]

Deborah,

Where do you live? I am in Iowa and that is what my daughters take to but

have not heard of any increase or had any problems with my insurance not

paying for them. Deb A

[Guest guest]

Deborah,

We give the Adek with the LIPRAM , but do not give the shakes. We can be

reached for more info at 1-. hope all works out for you. The

folks who make the LIPRAM have exhibited at the CFF conference several

years ago , so many of the docs that attended then , have seen all the

literature. Also a recent study has been done 7 many feel that depending

on the patents own needs , they work quite well. We have been having

many requested for them lately .

LOVE & HUGS, grandmomBEV

Re: Have not posted here in a while- questions

concerning enzymes

Hi Deborah,

I think that Kris has given the correct advice how to handle this and

it is to hope that the problem will be solved. But if not, Ray

Goldstein from Cystic-L has found out last year, that Ultrase and

Lipram are both produced by the same company and are identical. I had

forwarded Ray's message to this list, one should find it in the

archive when you search for Lipram. But I am afraid you'll lose the

free Scandishakes and ADEKs when you switch to Lipram, so try Kris

advice first.

Peace

Torsten

> Deborah,

>

> When our daughters' Medicaid and insurance tried to switch us to

the generic brand of enzymes all we had to do was get a note from

them, and a script that stated " No Substitutions " and that took care

of it. We have problems off and on with various meds and I can

generally call the numbers that they provide if there is a question

and explain our situation, occasionally I do have to write a letter,

but overall they have never forced us to switch a medication or pay

extra if it is documented that this is the only one that is effective

for the child.

> This has worked for me so far, hope it helps.

> Kris in Idaho

> Morgen and Eme bwcf

>

>

>