Guest guest Posted October 20, 2002 Report Share Posted October 20, 2002 it is so hard when it is unexpected. Our first baby died of CF and we had decided not to try again and we had a opps!!! Along came our baby boy Liam and he also had CF, I could not have ever terminated because i dont feel right about it so it was never an option. I am happy that we have him but the same time I hope this never happens again that I get pregnant because i think it is to scary. " know how you feel " I hope all goes well with you and your family. You are one brave mother! mom to baby Liam 7 weeks with CF It's been a while Hi, don't know if anyone remembers me I was on briefly a few years ago. I am the mom to andria 4 and Yolanda 2 1/2 both with CF. We recently had a baby boy who was gaining weight and doing awsome, or so we thought. We found out last week that Phynix has CF also, along with pseudonomus. So the girls are being tested for that tomorrow at their CF clinic visit. I feel like such a failure as a mother. For the last 3 years, I've been trying to keep them staph free as possible, and now this happens. We are expecting number 4 ten days before PJ turns 1. It was quiet unexpected. We can't do any of the genetic screens before hand because the kids have an unidentified gene, so if this one does have cf we won't be able to find out till about 4 months down the road. Fun fun. Well it's nice to be back, and can't wait to hear from ya'll. Jen A. mom to 4, Yolo 2 1/2, and Phynix 6 months. All w/cf. _________________________________________________________________ Internet access plans that fit your lifestyle -- join MSN. http://resourcecenter.msn.com/access/plans/default.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2002 Report Share Posted October 21, 2002 Hi Jen, welcome back and belated congrats to the birth of Phynix! Sorry to hear that you have 3 out of 3 with CF now :-(( We all try to keep PA away from our kids as long as possible but sadly 80% od the parents " fail " on that. It just happens and so far no one knows why and how to prevent it. Two studies about possible vaccinations are running in Europe. I hope that your clinic treats the PA agressively and that your girls haven't caught it yet. Peace Torsten, dad of Fiona 5wcf > > Hi, don't know if anyone remembers me I was on briefly a few years ago. I > am the mom to andria 4 and Yolanda 2 1/2 both with CF. We recently had > a baby boy who was gaining weight and doing awsome, or so we thought. We > found out last week that Phynix has CF also, along with pseudonomus. So the > girls are being tested for that tomorrow at their CF clinic visit. I feel > like such a failure as a mother. For the last 3 years, I've been trying to > keep them staph free as possible, and now this happens. We are expecting > number 4 ten days before PJ turns 1. It was quiet unexpected. We can't do > any of the genetic screens before hand because the kids have an unidentified > gene, so if this one does have cf we won't be able to find out till about 4 > months down the road. Fun fun. Well it's nice to be back, and can't wait > to hear from ya'll. > > Jen A. mom to 4, Yolo 2 1/2, and Phynix 6 months. All w/cf. > > > > > _________________________________________________________________ > Internet access plans that fit your lifestyle -- join MSN. > http://resourcecenter.msn.com/access/plans/default.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2002 Report Share Posted October 21, 2002 Hi Jen, welcome back and belated congrats to the birth of Phynix! Sorry to hear that you have 3 out of 3 with CF now :-(( We all try to keep PA away from our kids as long as possible but sadly 80% od the parents " fail " on that. It just happens and so far no one knows why and how to prevent it. Two studies about possible vaccinations are running in Europe. I hope that your clinic treats the PA agressively and that your girls haven't caught it yet. Peace Torsten, dad of Fiona 5wcf > > Hi, don't know if anyone remembers me I was on briefly a few years ago. I > am the mom to andria 4 and Yolanda 2 1/2 both with CF. We recently had > a baby boy who was gaining weight and doing awsome, or so we thought. We > found out last week that Phynix has CF also, along with pseudonomus. So the > girls are being tested for that tomorrow at their CF clinic visit. I feel > like such a failure as a mother. For the last 3 years, I've been trying to > keep them staph free as possible, and now this happens. We are expecting > number 4 ten days before PJ turns 1. It was quiet unexpected. We can't do > any of the genetic screens before hand because the kids have an unidentified > gene, so if this one does have cf we won't be able to find out till about 4 > months down the road. Fun fun. Well it's nice to be back, and can't wait > to hear from ya'll. > > Jen A. mom to 4, Yolo 2 1/2, and Phynix 6 months. All w/cf. > > > > > _________________________________________________________________ > Internet access plans that fit your lifestyle -- join MSN. > http://resourcecenter.msn.com/access/plans/default.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2002 Report Share Posted October 21, 2002 Hi Jen, welcome back and belated congrats to the birth of Phynix! Sorry to hear that you have 3 out of 3 with CF now :-(( We all try to keep PA away from our kids as long as possible but sadly 80% od the parents " fail " on that. It just happens and so far no one knows why and how to prevent it. Two studies about possible vaccinations are running in Europe. I hope that your clinic treats the PA agressively and that your girls haven't caught it yet. Peace Torsten, dad of Fiona 5wcf > > Hi, don't know if anyone remembers me I was on briefly a few years ago. I > am the mom to andria 4 and Yolanda 2 1/2 both with CF. We recently had > a baby boy who was gaining weight and doing awsome, or so we thought. We > found out last week that Phynix has CF also, along with pseudonomus. So the > girls are being tested for that tomorrow at their CF clinic visit. I feel > like such a failure as a mother. For the last 3 years, I've been trying to > keep them staph free as possible, and now this happens. We are expecting > number 4 ten days before PJ turns 1. It was quiet unexpected. We can't do > any of the genetic screens before hand because the kids have an unidentified > gene, so if this one does have cf we won't be able to find out till about 4 > months down the road. Fun fun. Well it's nice to be back, and can't wait > to hear from ya'll. > > Jen A. mom to 4, Yolo 2 1/2, and Phynix 6 months. All w/cf. > > > > > _________________________________________________________________ > Internet access plans that fit your lifestyle -- join MSN. > http://resourcecenter.msn.com/access/plans/default.asp Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.