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Great letter.......You should have CC a copy to the Chief of Staff

Mark E. Armstrong

www.top5plus5.com

NW Chapter Rep

Pancreatitis Association, International

My letter to Dr. Conwell copied and pasted

>

>

> Dear Dr. Conwell,

>

>

> After my visit with you yesterday (8/28/02) I felt compelled to write

you

> and hope in your busy schedule you will take a moment and read it.

>

> I first saw you back on July 10, 2002. My GI doc in Columbus had

> referred me to you at my request. I had been battling attacks since

August

> 2001.

>

> My first visit was wonderful! You listened, explained and even drew

me a

> diagram of the pancreas to give me a great understanding. I had a glimmer

of

> hope! Even though I had to settle with loads of blood work and wait for

> answers I was content. We discussed an ERCP and pressure studies and you

> even understood that I would probably have an attack. Finally a doctor

that

> gets it!

>

> I patiently waited the 5 weeks to see you again and get the lab

results.

> Then yesterday my world crashed. That doctor who cared was no longer

there!

> You came in and didn't even know who I was. The first thing you asked me

was

> if you had seen me before. I don't expect you to remember every patient

you

> see, but would it have been so hard to glance thru my chart before you

> entered the room? I wouldn't have felt like just another number. I was

also

> unnerved that my lab results hadn't even been looked at before the day of

my

> appointment.

>

> You also had felt at my first appointment that an ERCP would be

necessary

> depending on my lab results. How hard would it have been to schedule the

> ERCP then since it takes over a month to schedule one? We would have been

a

> month ahead on treatment and if the labs had shown it wasn't necessary it

> could have been cancelled and another person could have filled the slot.

>

> I may just sound like a person who likes to complain, but let me

explain

> I have to voice my feelings, and you are the lucky doctor! My last straw

was

> finally broken. I am a 26 year old mother of 3 young children. I have 4

> horses and I do dog rescue. I have always lead a very active life. Now I

> can't do much dog rescue, I can't take care of my horses, and my poor

> children have their lives turned upside down every time I have to be

> hospitalized. On painful days I have to take pain meds and am unable to

> drive or be active with my children. When I go to an ER I have to find

> someone to watch the children why I go be accused of drinking myself into

> this disease.

>

> In April I was put on TPN and told it would only be for 4 weeks. My

> first catheter became infected and now my 2nd one is. When I tried to

> discuss this with you I was blown off. Thanks for caring!

>

> I pray you never have to live with this disease. Besides the pain

itself

> you need to realize what your patients are going thru. The family

upheaval

> and the emotional distress. I wish you knew how many times in the past

year

> I have thought how much easier it would be to end my life than to live

like

> this. A little compassion and understanding would go a LONG way. What

> really scares me is that others have this worse than I do. Ever wonder

how

> many have just given up? After my visit yesterday I wanted to die. Here

the

> specialist I went to see was having another doctor perform the ERCP on me.

> The specialist I went to see didn't seem to care I was going to be

miserable

> for another month. Then when the receptionist told me it couldn't be

> scheduled until October I lost it! I actually told her to never mind and

> ran outside crying. My sister was concerned enough to stay and make the

> appointment for me.

>

> This letter is meant as a wake up call. You need to treat the whole

> patient not just their pancreas. If it weren't for the loving support of

my

> family and friends. And the support I get from hundreds of strangers off

the

> internet that have the same problem, I'm not sure if I would be here today

to

> write this letter. I'm even struggling with the thought of keeping the

> appointment for the ERCP. Why should I go thru all that if no one is

going

> to care about the results? I am contacting my GI doc with my concerns I

> didn't get to discuss yesterday since I was such an inconvenience. He may

> not be a specialist, but at least he cares and listens. I will call and

> cancel well in advance my ERCP if I decide I can't go thru with it. If I

do

> go thru with it I hope this letter will make you understand and care about

> the results. If you were just having a bad day hopefully this letter will

> make you understand how you patients feel when you let it show.\

>

> Sincerely,

>

>

> Jenise Ewing

> 163 Carpenter Rd.

> Mansfield, OH 44903

>

> Jenise4790@...

>

>

>

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Share on other sites

Great letter.......You should have CC a copy to the Chief of Staff

Mark E. Armstrong

www.top5plus5.com

NW Chapter Rep

Pancreatitis Association, International

My letter to Dr. Conwell copied and pasted

>

>

> Dear Dr. Conwell,

>

>

> After my visit with you yesterday (8/28/02) I felt compelled to write

you

> and hope in your busy schedule you will take a moment and read it.

>

> I first saw you back on July 10, 2002. My GI doc in Columbus had

> referred me to you at my request. I had been battling attacks since

August

> 2001.

>

> My first visit was wonderful! You listened, explained and even drew

me a

> diagram of the pancreas to give me a great understanding. I had a glimmer

of

> hope! Even though I had to settle with loads of blood work and wait for

> answers I was content. We discussed an ERCP and pressure studies and you

> even understood that I would probably have an attack. Finally a doctor

that

> gets it!

>

> I patiently waited the 5 weeks to see you again and get the lab

results.

> Then yesterday my world crashed. That doctor who cared was no longer

there!

> You came in and didn't even know who I was. The first thing you asked me

was

> if you had seen me before. I don't expect you to remember every patient

you

> see, but would it have been so hard to glance thru my chart before you

> entered the room? I wouldn't have felt like just another number. I was

also

> unnerved that my lab results hadn't even been looked at before the day of

my

> appointment.

>

> You also had felt at my first appointment that an ERCP would be

necessary

> depending on my lab results. How hard would it have been to schedule the

> ERCP then since it takes over a month to schedule one? We would have been

a

> month ahead on treatment and if the labs had shown it wasn't necessary it

> could have been cancelled and another person could have filled the slot.

>

> I may just sound like a person who likes to complain, but let me

explain

> I have to voice my feelings, and you are the lucky doctor! My last straw

was

> finally broken. I am a 26 year old mother of 3 young children. I have 4

> horses and I do dog rescue. I have always lead a very active life. Now I

> can't do much dog rescue, I can't take care of my horses, and my poor

> children have their lives turned upside down every time I have to be

> hospitalized. On painful days I have to take pain meds and am unable to

> drive or be active with my children. When I go to an ER I have to find

> someone to watch the children why I go be accused of drinking myself into

> this disease.

>

> In April I was put on TPN and told it would only be for 4 weeks. My

> first catheter became infected and now my 2nd one is. When I tried to

> discuss this with you I was blown off. Thanks for caring!

>

> I pray you never have to live with this disease. Besides the pain

itself

> you need to realize what your patients are going thru. The family

upheaval

> and the emotional distress. I wish you knew how many times in the past

year

> I have thought how much easier it would be to end my life than to live

like

> this. A little compassion and understanding would go a LONG way. What

> really scares me is that others have this worse than I do. Ever wonder

how

> many have just given up? After my visit yesterday I wanted to die. Here

the

> specialist I went to see was having another doctor perform the ERCP on me.

> The specialist I went to see didn't seem to care I was going to be

miserable

> for another month. Then when the receptionist told me it couldn't be

> scheduled until October I lost it! I actually told her to never mind and

> ran outside crying. My sister was concerned enough to stay and make the

> appointment for me.

>

> This letter is meant as a wake up call. You need to treat the whole

> patient not just their pancreas. If it weren't for the loving support of

my

> family and friends. And the support I get from hundreds of strangers off

the

> internet that have the same problem, I'm not sure if I would be here today

to

> write this letter. I'm even struggling with the thought of keeping the

> appointment for the ERCP. Why should I go thru all that if no one is

going

> to care about the results? I am contacting my GI doc with my concerns I

> didn't get to discuss yesterday since I was such an inconvenience. He may

> not be a specialist, but at least he cares and listens. I will call and

> cancel well in advance my ERCP if I decide I can't go thru with it. If I

do

> go thru with it I hope this letter will make you understand and care about

> the results. If you were just having a bad day hopefully this letter will

> make you understand how you patients feel when you let it show.\

>

> Sincerely,

>

>

> Jenise Ewing

> 163 Carpenter Rd.

> Mansfield, OH 44903

>

> Jenise4790@...

>

>

>

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Share on other sites

Great letter.......You should have CC a copy to the Chief of Staff

Mark E. Armstrong

www.top5plus5.com

NW Chapter Rep

Pancreatitis Association, International

My letter to Dr. Conwell copied and pasted

>

>

> Dear Dr. Conwell,

>

>

> After my visit with you yesterday (8/28/02) I felt compelled to write

you

> and hope in your busy schedule you will take a moment and read it.

>

> I first saw you back on July 10, 2002. My GI doc in Columbus had

> referred me to you at my request. I had been battling attacks since

August

> 2001.

>

> My first visit was wonderful! You listened, explained and even drew

me a

> diagram of the pancreas to give me a great understanding. I had a glimmer

of

> hope! Even though I had to settle with loads of blood work and wait for

> answers I was content. We discussed an ERCP and pressure studies and you

> even understood that I would probably have an attack. Finally a doctor

that

> gets it!

>

> I patiently waited the 5 weeks to see you again and get the lab

results.

> Then yesterday my world crashed. That doctor who cared was no longer

there!

> You came in and didn't even know who I was. The first thing you asked me

was

> if you had seen me before. I don't expect you to remember every patient

you

> see, but would it have been so hard to glance thru my chart before you

> entered the room? I wouldn't have felt like just another number. I was

also

> unnerved that my lab results hadn't even been looked at before the day of

my

> appointment.

>

> You also had felt at my first appointment that an ERCP would be

necessary

> depending on my lab results. How hard would it have been to schedule the

> ERCP then since it takes over a month to schedule one? We would have been

a

> month ahead on treatment and if the labs had shown it wasn't necessary it

> could have been cancelled and another person could have filled the slot.

>

> I may just sound like a person who likes to complain, but let me

explain

> I have to voice my feelings, and you are the lucky doctor! My last straw

was

> finally broken. I am a 26 year old mother of 3 young children. I have 4

> horses and I do dog rescue. I have always lead a very active life. Now I

> can't do much dog rescue, I can't take care of my horses, and my poor

> children have their lives turned upside down every time I have to be

> hospitalized. On painful days I have to take pain meds and am unable to

> drive or be active with my children. When I go to an ER I have to find

> someone to watch the children why I go be accused of drinking myself into

> this disease.

>

> In April I was put on TPN and told it would only be for 4 weeks. My

> first catheter became infected and now my 2nd one is. When I tried to

> discuss this with you I was blown off. Thanks for caring!

>

> I pray you never have to live with this disease. Besides the pain

itself

> you need to realize what your patients are going thru. The family

upheaval

> and the emotional distress. I wish you knew how many times in the past

year

> I have thought how much easier it would be to end my life than to live

like

> this. A little compassion and understanding would go a LONG way. What

> really scares me is that others have this worse than I do. Ever wonder

how

> many have just given up? After my visit yesterday I wanted to die. Here

the

> specialist I went to see was having another doctor perform the ERCP on me.

> The specialist I went to see didn't seem to care I was going to be

miserable

> for another month. Then when the receptionist told me it couldn't be

> scheduled until October I lost it! I actually told her to never mind and

> ran outside crying. My sister was concerned enough to stay and make the

> appointment for me.

>

> This letter is meant as a wake up call. You need to treat the whole

> patient not just their pancreas. If it weren't for the loving support of

my

> family and friends. And the support I get from hundreds of strangers off

the

> internet that have the same problem, I'm not sure if I would be here today

to

> write this letter. I'm even struggling with the thought of keeping the

> appointment for the ERCP. Why should I go thru all that if no one is

going

> to care about the results? I am contacting my GI doc with my concerns I

> didn't get to discuss yesterday since I was such an inconvenience. He may

> not be a specialist, but at least he cares and listens. I will call and

> cancel well in advance my ERCP if I decide I can't go thru with it. If I

do

> go thru with it I hope this letter will make you understand and care about

> the results. If you were just having a bad day hopefully this letter will

> make you understand how you patients feel when you let it show.\

>

> Sincerely,

>

>

> Jenise Ewing

> 163 Carpenter Rd.

> Mansfield, OH 44903

>

> Jenise4790@...

>

>

>

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If anyone out there has an address for the person in charge of the Cleveland

Clinic I would gladly send it to them, but since the suggestion I haven't

been able to find anyone in charge at the Cleveland Clinic or even a customer

relations person off their website.

Jenise

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If anyone out there has an address for the person in charge of the Cleveland

Clinic I would gladly send it to them, but since the suggestion I haven't

been able to find anyone in charge at the Cleveland Clinic or even a customer

relations person off their website.

Jenise

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Share on other sites

If anyone out there has an address for the person in charge of the Cleveland

Clinic I would gladly send it to them, but since the suggestion I haven't

been able to find anyone in charge at the Cleveland Clinic or even a customer

relations person off their website.

Jenise

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Share on other sites

Jenise -

I think your letter is very appropriate. I, as well as everyone on here (I'm

sure), have encountered a doctor such as this during our struggle to find one

that actually cares. I agree with Mark that you should cc: this to his

superiors. Nothing might happen, but at least he might be embarrased of his

actions if he knows (I'd put the cc: in plain view on your letter if you haven't

sent it already) that someone else is reading this.

I would think very hard - if you have any reservations at all - before having

this procedure by someone that you have bad feelings about. Having an ERCP is

bad enough, but to have it at the hands of someone who you aren't comfortable

with is worse! There are other doctors out there that will and do care about

their patients. My doctor is one of those. He actually got on the phone and

talked to me the other day just to see if I was doing okay.

I hope you find peace that allows you to make the best decision for yourself. I

have cried several times after seeing a harsh doctor who thought I was just a

hypochondriac. It is a terrible feeling, and I am so sorry that this doctor

made you so clearly upset.

Best wishes and prayers to you.

in KY

Jenise4790@... wrote:

Dear Dr. Conwell,

After my visit with you yesterday (8/28/02) I felt compelled to write you

and hope in your busy schedule you will take a moment and read it.

I first saw you back on July 10, 2002. My GI doc in Columbus had

referred me to you at my request. I had been battling attacks since August

2001.

My first visit was wonderful! You listened, explained and even drew me a

diagram of the pancreas to give me a great understanding. I had a glimmer of

hope! Even though I had to settle with loads of blood work and wait for

answers I was content. We discussed an ERCP and pressure studies and you

even understood that I would probably have an attack. Finally a doctor that

gets it!

I patiently waited the 5 weeks to see you again and get the lab results.

Then yesterday my world crashed. That doctor who cared was no longer there!

You came in and didn't even know who I was. The first thing you asked me was

if you had seen me before. I don't expect you to remember every patient you

see, but would it have been so hard to glance thru my chart before you

entered the room? I wouldn't have felt like just another number. I was also

unnerved that my lab results hadn't even been looked at before the day of my

appointment.

You also had felt at my first appointment that an ERCP would be necessary

depending on my lab results. How hard would it have been to schedule the

ERCP then since it takes over a month to schedule one? We would have been a

month ahead on treatment and if the labs had shown it wasn't necessary it

could have been cancelled and another person could have filled the slot.

I may just sound like a person who likes to complain, but let me explain

I have to voice my feelings, and you are the lucky doctor! My last straw was

finally broken. I am a 26 year old mother of 3 young children. I have 4

horses and I do dog rescue. I have always lead a very active life. Now I

can't do much dog rescue, I can't take care of my horses, and my poor

children have their lives turned upside down every time I have to be

hospitalized. On painful days I have to take pain meds and am unable to

drive or be active with my children. When I go to an ER I have to find

someone to watch the children why I go be accused of drinking myself into

this disease.

In April I was put on TPN and told it would only be for 4 weeks. My

first catheter became infected and now my 2nd one is. When I tried to

discuss this with you I was blown off. Thanks for caring!

I pray you never have to live with this disease. Besides the pain itself

you need to realize what your patients are going thru. The family upheaval

and the emotional distress. I wish you knew how many times in the past year

I have thought how much easier it would be to end my life than to live like

this. A little compassion and understanding would go a LONG way. What

really scares me is that others have this worse than I do. Ever wonder how

many have just given up? After my visit yesterday I wanted to die. Here the

specialist I went to see was having another doctor perform the ERCP on me.

The specialist I went to see didn't seem to care I was going to be miserable

for another month. Then when the receptionist told me it couldn't be

scheduled until October I lost it! I actually told her to never mind and

ran outside crying. My sister was concerned enough to stay and make the

appointment for me.

This letter is meant as a wake up call. You need to treat the whole

patient not just their pancreas. If it weren't for the loving support of my

family and friends. And the support I get from hundreds of strangers off the

internet that have the same problem, I'm not sure if I would be here today to

write this letter. I'm even struggling with the thought of keeping the

appointment for the ERCP. Why should I go thru all that if no one is going

to care about the results? I am contacting my GI doc with my concerns I

didn't get to discuss yesterday since I was such an inconvenience. He may

not be a specialist, but at least he cares and listens. I will call and

cancel well in advance my ERCP if I decide I can't go thru with it. If I do

go thru with it I hope this letter will make you understand and care about

the results. If you were just having a bad day hopefully this letter will

make you understand how you patients feel when you let it show.\

Sincerely,

Jenise Ewing

163 Carpenter Rd.

Mansfield, OH 44903

Jenise4790@...

Link to comment
Share on other sites

Jenise -

I think your letter is very appropriate. I, as well as everyone on here (I'm

sure), have encountered a doctor such as this during our struggle to find one

that actually cares. I agree with Mark that you should cc: this to his

superiors. Nothing might happen, but at least he might be embarrased of his

actions if he knows (I'd put the cc: in plain view on your letter if you haven't

sent it already) that someone else is reading this.

I would think very hard - if you have any reservations at all - before having

this procedure by someone that you have bad feelings about. Having an ERCP is

bad enough, but to have it at the hands of someone who you aren't comfortable

with is worse! There are other doctors out there that will and do care about

their patients. My doctor is one of those. He actually got on the phone and

talked to me the other day just to see if I was doing okay.

I hope you find peace that allows you to make the best decision for yourself. I

have cried several times after seeing a harsh doctor who thought I was just a

hypochondriac. It is a terrible feeling, and I am so sorry that this doctor

made you so clearly upset.

Best wishes and prayers to you.

in KY

Jenise4790@... wrote:

Dear Dr. Conwell,

After my visit with you yesterday (8/28/02) I felt compelled to write you

and hope in your busy schedule you will take a moment and read it.

I first saw you back on July 10, 2002. My GI doc in Columbus had

referred me to you at my request. I had been battling attacks since August

2001.

My first visit was wonderful! You listened, explained and even drew me a

diagram of the pancreas to give me a great understanding. I had a glimmer of

hope! Even though I had to settle with loads of blood work and wait for

answers I was content. We discussed an ERCP and pressure studies and you

even understood that I would probably have an attack. Finally a doctor that

gets it!

I patiently waited the 5 weeks to see you again and get the lab results.

Then yesterday my world crashed. That doctor who cared was no longer there!

You came in and didn't even know who I was. The first thing you asked me was

if you had seen me before. I don't expect you to remember every patient you

see, but would it have been so hard to glance thru my chart before you

entered the room? I wouldn't have felt like just another number. I was also

unnerved that my lab results hadn't even been looked at before the day of my

appointment.

You also had felt at my first appointment that an ERCP would be necessary

depending on my lab results. How hard would it have been to schedule the

ERCP then since it takes over a month to schedule one? We would have been a

month ahead on treatment and if the labs had shown it wasn't necessary it

could have been cancelled and another person could have filled the slot.

I may just sound like a person who likes to complain, but let me explain

I have to voice my feelings, and you are the lucky doctor! My last straw was

finally broken. I am a 26 year old mother of 3 young children. I have 4

horses and I do dog rescue. I have always lead a very active life. Now I

can't do much dog rescue, I can't take care of my horses, and my poor

children have their lives turned upside down every time I have to be

hospitalized. On painful days I have to take pain meds and am unable to

drive or be active with my children. When I go to an ER I have to find

someone to watch the children why I go be accused of drinking myself into

this disease.

In April I was put on TPN and told it would only be for 4 weeks. My

first catheter became infected and now my 2nd one is. When I tried to

discuss this with you I was blown off. Thanks for caring!

I pray you never have to live with this disease. Besides the pain itself

you need to realize what your patients are going thru. The family upheaval

and the emotional distress. I wish you knew how many times in the past year

I have thought how much easier it would be to end my life than to live like

this. A little compassion and understanding would go a LONG way. What

really scares me is that others have this worse than I do. Ever wonder how

many have just given up? After my visit yesterday I wanted to die. Here the

specialist I went to see was having another doctor perform the ERCP on me.

The specialist I went to see didn't seem to care I was going to be miserable

for another month. Then when the receptionist told me it couldn't be

scheduled until October I lost it! I actually told her to never mind and

ran outside crying. My sister was concerned enough to stay and make the

appointment for me.

This letter is meant as a wake up call. You need to treat the whole

patient not just their pancreas. If it weren't for the loving support of my

family and friends. And the support I get from hundreds of strangers off the

internet that have the same problem, I'm not sure if I would be here today to

write this letter. I'm even struggling with the thought of keeping the

appointment for the ERCP. Why should I go thru all that if no one is going

to care about the results? I am contacting my GI doc with my concerns I

didn't get to discuss yesterday since I was such an inconvenience. He may

not be a specialist, but at least he cares and listens. I will call and

cancel well in advance my ERCP if I decide I can't go thru with it. If I do

go thru with it I hope this letter will make you understand and care about

the results. If you were just having a bad day hopefully this letter will

make you understand how you patients feel when you let it show.\

Sincerely,

Jenise Ewing

163 Carpenter Rd.

Mansfield, OH 44903

Jenise4790@...

Link to comment
Share on other sites

Jenise -

I think your letter is very appropriate. I, as well as everyone on here (I'm

sure), have encountered a doctor such as this during our struggle to find one

that actually cares. I agree with Mark that you should cc: this to his

superiors. Nothing might happen, but at least he might be embarrased of his

actions if he knows (I'd put the cc: in plain view on your letter if you haven't

sent it already) that someone else is reading this.

I would think very hard - if you have any reservations at all - before having

this procedure by someone that you have bad feelings about. Having an ERCP is

bad enough, but to have it at the hands of someone who you aren't comfortable

with is worse! There are other doctors out there that will and do care about

their patients. My doctor is one of those. He actually got on the phone and

talked to me the other day just to see if I was doing okay.

I hope you find peace that allows you to make the best decision for yourself. I

have cried several times after seeing a harsh doctor who thought I was just a

hypochondriac. It is a terrible feeling, and I am so sorry that this doctor

made you so clearly upset.

Best wishes and prayers to you.

in KY

Jenise4790@... wrote:

Dear Dr. Conwell,

After my visit with you yesterday (8/28/02) I felt compelled to write you

and hope in your busy schedule you will take a moment and read it.

I first saw you back on July 10, 2002. My GI doc in Columbus had

referred me to you at my request. I had been battling attacks since August

2001.

My first visit was wonderful! You listened, explained and even drew me a

diagram of the pancreas to give me a great understanding. I had a glimmer of

hope! Even though I had to settle with loads of blood work and wait for

answers I was content. We discussed an ERCP and pressure studies and you

even understood that I would probably have an attack. Finally a doctor that

gets it!

I patiently waited the 5 weeks to see you again and get the lab results.

Then yesterday my world crashed. That doctor who cared was no longer there!

You came in and didn't even know who I was. The first thing you asked me was

if you had seen me before. I don't expect you to remember every patient you

see, but would it have been so hard to glance thru my chart before you

entered the room? I wouldn't have felt like just another number. I was also

unnerved that my lab results hadn't even been looked at before the day of my

appointment.

You also had felt at my first appointment that an ERCP would be necessary

depending on my lab results. How hard would it have been to schedule the

ERCP then since it takes over a month to schedule one? We would have been a

month ahead on treatment and if the labs had shown it wasn't necessary it

could have been cancelled and another person could have filled the slot.

I may just sound like a person who likes to complain, but let me explain

I have to voice my feelings, and you are the lucky doctor! My last straw was

finally broken. I am a 26 year old mother of 3 young children. I have 4

horses and I do dog rescue. I have always lead a very active life. Now I

can't do much dog rescue, I can't take care of my horses, and my poor

children have their lives turned upside down every time I have to be

hospitalized. On painful days I have to take pain meds and am unable to

drive or be active with my children. When I go to an ER I have to find

someone to watch the children why I go be accused of drinking myself into

this disease.

In April I was put on TPN and told it would only be for 4 weeks. My

first catheter became infected and now my 2nd one is. When I tried to

discuss this with you I was blown off. Thanks for caring!

I pray you never have to live with this disease. Besides the pain itself

you need to realize what your patients are going thru. The family upheaval

and the emotional distress. I wish you knew how many times in the past year

I have thought how much easier it would be to end my life than to live like

this. A little compassion and understanding would go a LONG way. What

really scares me is that others have this worse than I do. Ever wonder how

many have just given up? After my visit yesterday I wanted to die. Here the

specialist I went to see was having another doctor perform the ERCP on me.

The specialist I went to see didn't seem to care I was going to be miserable

for another month. Then when the receptionist told me it couldn't be

scheduled until October I lost it! I actually told her to never mind and

ran outside crying. My sister was concerned enough to stay and make the

appointment for me.

This letter is meant as a wake up call. You need to treat the whole

patient not just their pancreas. If it weren't for the loving support of my

family and friends. And the support I get from hundreds of strangers off the

internet that have the same problem, I'm not sure if I would be here today to

write this letter. I'm even struggling with the thought of keeping the

appointment for the ERCP. Why should I go thru all that if no one is going

to care about the results? I am contacting my GI doc with my concerns I

didn't get to discuss yesterday since I was such an inconvenience. He may

not be a specialist, but at least he cares and listens. I will call and

cancel well in advance my ERCP if I decide I can't go thru with it. If I do

go thru with it I hope this letter will make you understand and care about

the results. If you were just having a bad day hopefully this letter will

make you understand how you patients feel when you let it show.\

Sincerely,

Jenise Ewing

163 Carpenter Rd.

Mansfield, OH 44903

Jenise4790@...

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Jenise,

Bravo! I think you deserve a full fledged pat on the back and all that goes

along with it. Too many people sit back on thier laurels and never do tell the

docs what they think of them... I know, I was one of them for a long time. Now

I speak my mind (sometimes it makes the docs think I am a little off, but it

helps, they know how I feel...and wether they like it or not it is how I feel

that matters most.) I hope that you not only sent it to him but as Mark said to

the chief of staff or the manager of the clinic he is in... His superior

anyhoo...

I hope that you get some good answers to this letter and maybe, just maybe he

will check himself next time before he wrecks his Image. Maybe he needs to

carry one of those little pocket sized mirrors around with him... and when he is

feeling a little full of himself, check the mirror to make sure he is still just

a human being and not a God.

I hope you are feeling better and that you take care to stay feeling better!

{{{HUGZ}}}

---------------------------------

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Jenise,

Bravo! I think you deserve a full fledged pat on the back and all that goes

along with it. Too many people sit back on thier laurels and never do tell the

docs what they think of them... I know, I was one of them for a long time. Now

I speak my mind (sometimes it makes the docs think I am a little off, but it

helps, they know how I feel...and wether they like it or not it is how I feel

that matters most.) I hope that you not only sent it to him but as Mark said to

the chief of staff or the manager of the clinic he is in... His superior

anyhoo...

I hope that you get some good answers to this letter and maybe, just maybe he

will check himself next time before he wrecks his Image. Maybe he needs to

carry one of those little pocket sized mirrors around with him... and when he is

feeling a little full of himself, check the mirror to make sure he is still just

a human being and not a God.

I hope you are feeling better and that you take care to stay feeling better!

{{{HUGZ}}}

---------------------------------

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Jenise,

Bravo! I think you deserve a full fledged pat on the back and all that goes

along with it. Too many people sit back on thier laurels and never do tell the

docs what they think of them... I know, I was one of them for a long time. Now

I speak my mind (sometimes it makes the docs think I am a little off, but it

helps, they know how I feel...and wether they like it or not it is how I feel

that matters most.) I hope that you not only sent it to him but as Mark said to

the chief of staff or the manager of the clinic he is in... His superior

anyhoo...

I hope that you get some good answers to this letter and maybe, just maybe he

will check himself next time before he wrecks his Image. Maybe he needs to

carry one of those little pocket sized mirrors around with him... and when he is

feeling a little full of himself, check the mirror to make sure he is still just

a human being and not a God.

I hope you are feeling better and that you take care to stay feeling better!

{{{HUGZ}}}

---------------------------------

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Share on other sites

Jenise,

I have sent you my reply to your private e-mail address and your see why. I so

sorry that you had to have such an awful experience. Plus had to wait so long

for your return appt. His actions were totally inexcusable. I'm so glad that

you wrote to him.

Take Care,

Louie in WV

My letter to Dr. Conwell copied and pasted

Dear Dr. Conwell,

After my visit with you yesterday (8/28/02) I felt compelled to write you

and hope in your busy schedule you will take a moment and read it.

I first saw you back on July 10, 2002. My GI doc in Columbus had

referred me to you at my request. I had been battling attacks since August

2001.

My first visit was wonderful! You listened, explained and even drew me a

diagram of the pancreas to give me a great understanding. I had a glimmer of

hope! Even though I had to settle with loads of blood work and wait for

answers I was content. We discussed an ERCP and pressure studies and you

even understood that I would probably have an attack. Finally a doctor that

gets it!

I patiently waited the 5 weeks to see you again and get the lab results.

Then yesterday my world crashed. That doctor who cared was no longer there!

You came in and didn't even know who I was. The first thing you asked me was

if you had seen me before. I don't expect you to remember every patient you

see, but would it have been so hard to glance thru my chart before you

entered the room? I wouldn't have felt like just another number. I was also

unnerved that my lab results hadn't even been looked at before the day of my

appointment.

You also had felt at my first appointment that an ERCP would be necessary

depending on my lab results. How hard would it have been to schedule the

ERCP then since it takes over a month to schedule one? We would have been a

month ahead on treatment and if the labs had shown it wasn't necessary it

could have been cancelled and another person could have filled the slot.

I may just sound like a person who likes to complain, but let me explain

I have to voice my feelings, and you are the lucky doctor! My last straw was

finally broken. I am a 26 year old mother of 3 young children. I have 4

horses and I do dog rescue. I have always lead a very active life. Now I

can't do much dog rescue, I can't take care of my horses, and my poor

children have their lives turned upside down every time I have to be

hospitalized. On painful days I have to take pain meds and am unable to

drive or be active with my children. When I go to an ER I have to find

someone to watch the children why I go be accused of drinking myself into

this disease.

In April I was put on TPN and told it would only be for 4 weeks. My

first catheter became infected and now my 2nd one is. When I tried to

discuss this with you I was blown off. Thanks for caring!

I pray you never have to live with this disease. Besides the pain itself

you need to realize what your patients are going thru. The family upheaval

and the emotional distress. I wish you knew how many times in the past year

I have thought how much easier it would be to end my life than to live like

this. A little compassion and understanding would go a LONG way. What

really scares me is that others have this worse than I do. Ever wonder how

many have just given up? After my visit yesterday I wanted to die. Here the

specialist I went to see was having another doctor perform the ERCP on me.

The specialist I went to see didn't seem to care I was going to be miserable

for another month. Then when the receptionist told me it couldn't be

scheduled until October I lost it! I actually told her to never mind and

ran outside crying. My sister was concerned enough to stay and make the

appointment for me.

This letter is meant as a wake up call. You need to treat the whole

patient not just their pancreas. If it weren't for the loving support of my

family and friends. And the support I get from hundreds of strangers off the

internet that have the same problem, I'm not sure if I would be here today to

write this letter. I'm even struggling with the thought of keeping the

appointment for the ERCP. Why should I go thru all that if no one is going

to care about the results? I am contacting my GI doc with my concerns I

didn't get to discuss yesterday since I was such an inconvenience. He may

not be a specialist, but at least he cares and listens. I will call and

cancel well in advance my ERCP if I decide I can't go thru with it. If I do

go thru with it I hope this letter will make you understand and care about

the results. If you were just having a bad day hopefully this letter will

make you understand how you patients feel when you let it show.\

Sincerely,

Jenise Ewing

163 Carpenter Rd.

Mansfield, OH 44903

Jenise4790@...

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========Original Message========

Subj: My letter to Dr. Conwell copied and pasted

Date: 9/1/02 2:08:05 PM Central Daylight Time

From: Jenise4790@...Jenise4790@...

Dear Jenise,

I just got the chance to read your letter and I am sitting here crying. I am

so sorry you had to go through such an experience, and am reminded that this

has happend to fellow member too many times. Thank you for taking to the

time to copy and paste the letter to share with us. I see there are many

responses, so I won't make this long (can't see the screen through the tears

anyway.) I pray God opens this man's eyes... please know we care and let me

know what I can do to help.

God bless you and keep us informed,

Gail West, Indiana Chapter

Pancreatitis Associaton International

Adm. Asst. Program Development

www.pancassociation.org

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========Original Message========

Subj: My letter to Dr. Conwell copied and pasted

Date: 9/1/02 2:08:05 PM Central Daylight Time

From: Jenise4790@...Jenise4790@...

Dear Jenise,

I just got the chance to read your letter and I am sitting here crying. I am

so sorry you had to go through such an experience, and am reminded that this

has happend to fellow member too many times. Thank you for taking to the

time to copy and paste the letter to share with us. I see there are many

responses, so I won't make this long (can't see the screen through the tears

anyway.) I pray God opens this man's eyes... please know we care and let me

know what I can do to help.

God bless you and keep us informed,

Gail West, Indiana Chapter

Pancreatitis Associaton International

Adm. Asst. Program Development

www.pancassociation.org

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Share on other sites

That letter is excellent and tells the story of so many patients and

Drs. Thank you for writing it.

>

>

> Dear Dr. Conwell,

>

>

> After my visit with you yesterday (8/28/02) I felt compelled

to write you

> and hope in your busy schedule you will take a moment and read it.

>

> I first saw you back on July 10, 2002. My GI doc in Columbus

had

> referred me to you at my request. I had been battling attacks

since August

> 2001.

>

> My first visit was wonderful! You listened, explained and

even drew me a

> diagram of the pancreas to give me a great understanding. I had a

glimmer of

> hope! Even though I had to settle with loads of blood work and

wait for

> answers I was content. We discussed an ERCP and pressure studies

and you

> even understood that I would probably have an attack. Finally a

doctor that

> gets it!

>

> I patiently waited the 5 weeks to see you again and get the

lab results.

> Then yesterday my world crashed. That doctor who cared was no

longer there!

> You came in and didn't even know who I was. The first thing you

asked me was

> if you had seen me before. I don't expect you to remember every

patient you

> see, but would it have been so hard to glance thru my chart before

you

> entered the room? I wouldn't have felt like just another number.

I was also

> unnerved that my lab results hadn't even been looked at before the

day of my

> appointment.

>

> You also had felt at my first appointment that an ERCP would

be necessary

> depending on my lab results. How hard would it have been to

schedule the

> ERCP then since it takes over a month to schedule one? We would

have been a

> month ahead on treatment and if the labs had shown it wasn't

necessary it

> could have been cancelled and another person could have filled the

slot.

>

> I may just sound like a person who likes to complain, but let

me explain

> I have to voice my feelings, and you are the lucky doctor! My

last straw was

> finally broken. I am a 26 year old mother of 3 young children. I

have 4

> horses and I do dog rescue. I have always lead a very active

life. Now I

> can't do much dog rescue, I can't take care of my horses, and my

poor

> children have their lives turned upside down every time I have to

be

> hospitalized. On painful days I have to take pain meds and am

unable to

> drive or be active with my children. When I go to an ER I have to

find

> someone to watch the children why I go be accused of drinking

myself into

> this disease.

>

> In April I was put on TPN and told it would only be for 4

weeks. My

> first catheter became infected and now my 2nd one is. When I

tried to

> discuss this with you I was blown off. Thanks for caring!

>

> I pray you never have to live with this disease. Besides the

pain itself

> you need to realize what your patients are going thru. The family

upheaval

> and the emotional distress. I wish you knew how many times in the

past year

> I have thought how much easier it would be to end my life than to

live like

> this. A little compassion and understanding would go a LONG way.

What

> really scares me is that others have this worse than I do. Ever

wonder how

> many have just given up? After my visit yesterday I wanted to

die. Here the

> specialist I went to see was having another doctor perform the

ERCP on me.

> The specialist I went to see didn't seem to care I was going to be

miserable

> for another month. Then when the receptionist told me it couldn't

be

> scheduled until October I lost it! I actually told her to never

mind and

> ran outside crying. My sister was concerned enough to stay and

make the

> appointment for me.

>

> This letter is meant as a wake up call. You need to treat the

whole

> patient not just their pancreas. If it weren't for the loving

support of my

> family and friends. And the support I get from hundreds of

strangers off the

> internet that have the same problem, I'm not sure if I would be

here today to

> write this letter. I'm even struggling with the thought of

keeping the

> appointment for the ERCP. Why should I go thru all that if no one

is going

> to care about the results? I am contacting my GI doc with my

concerns I

> didn't get to discuss yesterday since I was such an

inconvenience. He may

> not be a specialist, but at least he cares and listens. I will

call and

> cancel well in advance my ERCP if I decide I can't go thru with

it. If I do

> go thru with it I hope this letter will make you understand and

care about

> the results. If you were just having a bad day hopefully this

letter will

> make you understand how you patients feel when you let it show.\

>

> Sincerely,

>

>

> Jenise Ewing

> 163 Carpenter Rd.

> Mansfield, OH 44903

>

> Jenise4790@a...

>

>

>

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