Guest guest Posted October 20, 2002 Report Share Posted October 20, 2002 The girls had problems with this when they were on Creon too. We had them maxed on BOTH creon and prilosec. So their doc changed them to Pancreacarb and a lower dosage of prilosec and that seems to have " fixed " that problem for now. Might ask them if they think that might work on her. Good luck, aren't some cf docs just " fun " ? > >Reply-To: cfparents >To: cfparents >Subject: Couple Concerns >Date: Mon, 21 Oct 2002 05:09:25 -0000 > >I haven't been contributing here in a while due to time constraints, >but I have been reading posts from time to time. Regardless, I now >have some questions I'd love your input on. > >Joy has what appears to be a yeast infection on her tongue, however >it hasn't responded to typical medication (Nystatin) and the design >on her tongue seems a bit atypical. Her tongue has a white coating >on it looking like milk everywhere except the center -- towards the >back there is a heart shaped rather red spot. Anyone seen anything >like this? > >One of the other many concerns I have right now is her poop (ya >gotta love these questions). Joy's poop is ALWAYS yellow and >oftentimes it floats. She's maxed out on Creon for her weight, and >she already uses Zantac to combat too much acid affecting the >enzymes. Anyone have any advice on this? The doctors NEVER have >any input on her yellow poop, but it seems rather strange to me -- >after all, my poop is rarely yellow. I was wondering if maybe she >needed some Lacto Bacillus and Acidophilus in large quantities or >something. Someone suggested it may be due to dairy products, but >even when we remove the abundance of dairy we give her, she still >has yellow poop. Should I be concerned? > >All my other questions can wait for the doctors, but these two have >been presented already to the docs and they have no successful >input. > >Thanks for your help, > >Ann (mommy of Joy who will be three next month) > > _________________________________________________________________ Get faster connections -- switch to MSN Internet Access! http://resourcecenter.msn.com/access/plans/default.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2002 Report Share Posted October 20, 2002 The girls had problems with this when they were on Creon too. We had them maxed on BOTH creon and prilosec. So their doc changed them to Pancreacarb and a lower dosage of prilosec and that seems to have " fixed " that problem for now. Might ask them if they think that might work on her. Good luck, aren't some cf docs just " fun " ? > >Reply-To: cfparents >To: cfparents >Subject: Couple Concerns >Date: Mon, 21 Oct 2002 05:09:25 -0000 > >I haven't been contributing here in a while due to time constraints, >but I have been reading posts from time to time. Regardless, I now >have some questions I'd love your input on. > >Joy has what appears to be a yeast infection on her tongue, however >it hasn't responded to typical medication (Nystatin) and the design >on her tongue seems a bit atypical. Her tongue has a white coating >on it looking like milk everywhere except the center -- towards the >back there is a heart shaped rather red spot. Anyone seen anything >like this? > >One of the other many concerns I have right now is her poop (ya >gotta love these questions). Joy's poop is ALWAYS yellow and >oftentimes it floats. She's maxed out on Creon for her weight, and >she already uses Zantac to combat too much acid affecting the >enzymes. Anyone have any advice on this? The doctors NEVER have >any input on her yellow poop, but it seems rather strange to me -- >after all, my poop is rarely yellow. I was wondering if maybe she >needed some Lacto Bacillus and Acidophilus in large quantities or >something. Someone suggested it may be due to dairy products, but >even when we remove the abundance of dairy we give her, she still >has yellow poop. Should I be concerned? > >All my other questions can wait for the doctors, but these two have >been presented already to the docs and they have no successful >input. > >Thanks for your help, > >Ann (mommy of Joy who will be three next month) > > _________________________________________________________________ Get faster connections -- switch to MSN Internet Access! http://resourcecenter.msn.com/access/plans/default.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2002 Report Share Posted October 20, 2002 The girls had problems with this when they were on Creon too. We had them maxed on BOTH creon and prilosec. So their doc changed them to Pancreacarb and a lower dosage of prilosec and that seems to have " fixed " that problem for now. Might ask them if they think that might work on her. Good luck, aren't some cf docs just " fun " ? > >Reply-To: cfparents >To: cfparents >Subject: Couple Concerns >Date: Mon, 21 Oct 2002 05:09:25 -0000 > >I haven't been contributing here in a while due to time constraints, >but I have been reading posts from time to time. Regardless, I now >have some questions I'd love your input on. > >Joy has what appears to be a yeast infection on her tongue, however >it hasn't responded to typical medication (Nystatin) and the design >on her tongue seems a bit atypical. Her tongue has a white coating >on it looking like milk everywhere except the center -- towards the >back there is a heart shaped rather red spot. Anyone seen anything >like this? > >One of the other many concerns I have right now is her poop (ya >gotta love these questions). Joy's poop is ALWAYS yellow and >oftentimes it floats. She's maxed out on Creon for her weight, and >she already uses Zantac to combat too much acid affecting the >enzymes. Anyone have any advice on this? The doctors NEVER have >any input on her yellow poop, but it seems rather strange to me -- >after all, my poop is rarely yellow. I was wondering if maybe she >needed some Lacto Bacillus and Acidophilus in large quantities or >something. Someone suggested it may be due to dairy products, but >even when we remove the abundance of dairy we give her, she still >has yellow poop. Should I be concerned? > >All my other questions can wait for the doctors, but these two have >been presented already to the docs and they have no successful >input. > >Thanks for your help, > >Ann (mommy of Joy who will be three next month) > > _________________________________________________________________ Get faster connections -- switch to MSN Internet Access! http://resourcecenter.msn.com/access/plans/default.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2002 Report Share Posted October 21, 2002 The tongue thing could be geographic tongue...which can be from reflux or from allergies, from what I understand. The red spot is what makes it sound like it might be geographic tongue. Our son has this rather frequently. If it is thrush....it might be from inhaled steroids and it is hard to get rid of in that case. We found that only diflucan worked for this type of thrush (which happened when they were babies and it was hard to rinse the inhaled steroids out.) Inhaled steroids are stuff like pulmicort respules, or pulmocort or flovent inhalers. You need to really rinse their mouths when they use these things to keep trush from developing. Of course, antibiotics can also lead to thrush. There is also something called hand, foot and mouth disease (coxsackie virus). the lesions inthis case are usually very painful so you should be able to tell if they have this. Also I didn't catch how old your child is...but if it is a younger child and you are doing enzymes by opening the capsule and dumping into the mouth, this may be the culprit (almost likethe enzymes are digesting the tongue....)....also possible if mixing with food and all the beads don't go down. This is alot of the reason we taught the kids to swallow their enzymes when they were really really little. ph was about 9 or 10 months when he learned to swallow his prilosec capsules. Hopethis helps. Jen Mommy of 7, 3 with CF ages 3, 5 and 6 > I haven't been contributing here in a while due to time constraints, > but I have been reading posts from time to time. Regardless, I now > have some questions I'd love your input on. > > Joy has what appears to be a yeast infection on her tongue, however > it hasn't responded to typical medication (Nystatin) and the design > on her tongue seems a bit atypical. Her tongue has a white coating > on it looking like milk everywhere except the center -- towards the > back there is a heart shaped rather red spot. Anyone seen anything > like this? > > One of the other many concerns I have right now is her poop (ya > gotta love these questions). Joy's poop is ALWAYS yellow and > oftentimes it floats. She's maxed out on Creon for her weight, and > she already uses Zantac to combat too much acid affecting the > enzymes. Anyone have any advice on this? The doctors NEVER have > any input on her yellow poop, but it seems rather strange to me -- > after all, my poop is rarely yellow. I was wondering if maybe she > needed some Lacto Bacillus and Acidophilus in large quantities or > something. Someone suggested it may be due to dairy products, but > even when we remove the abundance of dairy we give her, she still > has yellow poop. Should I be concerned? > > All my other questions can wait for the doctors, but these two have > been presented already to the docs and they have no successful > input. > > Thanks for your help, > > Ann (mommy of Joy who will be Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2002 Report Share Posted October 21, 2002 The tongue thing could be geographic tongue...which can be from reflux or from allergies, from what I understand. The red spot is what makes it sound like it might be geographic tongue. Our son has this rather frequently. If it is thrush....it might be from inhaled steroids and it is hard to get rid of in that case. We found that only diflucan worked for this type of thrush (which happened when they were babies and it was hard to rinse the inhaled steroids out.) Inhaled steroids are stuff like pulmicort respules, or pulmocort or flovent inhalers. You need to really rinse their mouths when they use these things to keep trush from developing. Of course, antibiotics can also lead to thrush. There is also something called hand, foot and mouth disease (coxsackie virus). the lesions inthis case are usually very painful so you should be able to tell if they have this. Also I didn't catch how old your child is...but if it is a younger child and you are doing enzymes by opening the capsule and dumping into the mouth, this may be the culprit (almost likethe enzymes are digesting the tongue....)....also possible if mixing with food and all the beads don't go down. This is alot of the reason we taught the kids to swallow their enzymes when they were really really little. ph was about 9 or 10 months when he learned to swallow his prilosec capsules. Hopethis helps. Jen Mommy of 7, 3 with CF ages 3, 5 and 6 > I haven't been contributing here in a while due to time constraints, > but I have been reading posts from time to time. Regardless, I now > have some questions I'd love your input on. > > Joy has what appears to be a yeast infection on her tongue, however > it hasn't responded to typical medication (Nystatin) and the design > on her tongue seems a bit atypical. Her tongue has a white coating > on it looking like milk everywhere except the center -- towards the > back there is a heart shaped rather red spot. Anyone seen anything > like this? > > One of the other many concerns I have right now is her poop (ya > gotta love these questions). Joy's poop is ALWAYS yellow and > oftentimes it floats. She's maxed out on Creon for her weight, and > she already uses Zantac to combat too much acid affecting the > enzymes. Anyone have any advice on this? The doctors NEVER have > any input on her yellow poop, but it seems rather strange to me -- > after all, my poop is rarely yellow. I was wondering if maybe she > needed some Lacto Bacillus and Acidophilus in large quantities or > something. Someone suggested it may be due to dairy products, but > even when we remove the abundance of dairy we give her, she still > has yellow poop. Should I be concerned? > > All my other questions can wait for the doctors, but these two have > been presented already to the docs and they have no successful > input. > > Thanks for your help, > > Ann (mommy of Joy who will be Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2002 Report Share Posted October 21, 2002 The tongue thing could be geographic tongue...which can be from reflux or from allergies, from what I understand. The red spot is what makes it sound like it might be geographic tongue. Our son has this rather frequently. If it is thrush....it might be from inhaled steroids and it is hard to get rid of in that case. We found that only diflucan worked for this type of thrush (which happened when they were babies and it was hard to rinse the inhaled steroids out.) Inhaled steroids are stuff like pulmicort respules, or pulmocort or flovent inhalers. You need to really rinse their mouths when they use these things to keep trush from developing. Of course, antibiotics can also lead to thrush. There is also something called hand, foot and mouth disease (coxsackie virus). the lesions inthis case are usually very painful so you should be able to tell if they have this. Also I didn't catch how old your child is...but if it is a younger child and you are doing enzymes by opening the capsule and dumping into the mouth, this may be the culprit (almost likethe enzymes are digesting the tongue....)....also possible if mixing with food and all the beads don't go down. This is alot of the reason we taught the kids to swallow their enzymes when they were really really little. ph was about 9 or 10 months when he learned to swallow his prilosec capsules. Hopethis helps. Jen Mommy of 7, 3 with CF ages 3, 5 and 6 > I haven't been contributing here in a while due to time constraints, > but I have been reading posts from time to time. Regardless, I now > have some questions I'd love your input on. > > Joy has what appears to be a yeast infection on her tongue, however > it hasn't responded to typical medication (Nystatin) and the design > on her tongue seems a bit atypical. Her tongue has a white coating > on it looking like milk everywhere except the center -- towards the > back there is a heart shaped rather red spot. Anyone seen anything > like this? > > One of the other many concerns I have right now is her poop (ya > gotta love these questions). Joy's poop is ALWAYS yellow and > oftentimes it floats. She's maxed out on Creon for her weight, and > she already uses Zantac to combat too much acid affecting the > enzymes. Anyone have any advice on this? The doctors NEVER have > any input on her yellow poop, but it seems rather strange to me -- > after all, my poop is rarely yellow. I was wondering if maybe she > needed some Lacto Bacillus and Acidophilus in large quantities or > something. Someone suggested it may be due to dairy products, but > even when we remove the abundance of dairy we give her, she still > has yellow poop. Should I be concerned? > > All my other questions can wait for the doctors, but these two have > been presented already to the docs and they have no successful > input. > > Thanks for your help, > > Ann (mommy of Joy who will be Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2002 Report Share Posted October 21, 2002 I have input on one of your questions. Wyatt's poop is also yellow sometimes. I've never actually thought twice of the color bc it's never been a " normal " color. He actually rarely ever has formed poop at all. He was gettting very high on his Creon too and taking Zantac. our doctor and dietician put him on Pancreacarb MS-8. That takes away the need for Zantac too. He is 7yrs old, 46 " tall and 47lbs and takes 5 capsules w/ meals and 3 w/ snacks. His poop is still not " normal " but he's growing and gaining weight just fine. He knows how to swallow pills but if Joy doesn't they are the beads so they can be opened and dumped in pudding or something. Hope that helps...you can maybe bring that up to the docs. Christy mom of Wyatt7wcf and Hunter 2wocf > I haven't been contributing here in a while due to time constraints, > but I have been reading posts from time to time. Regardless, I now > have some questions I'd love your input on. > > Joy has what appears to be a yeast infection on her tongue, however > it hasn't responded to typical medication (Nystatin) and the design > on her tongue seems a bit atypical. Her tongue has a white coating > on it looking like milk everywhere except the center -- towards the > back there is a heart shaped rather red spot. Anyone seen anything > like this? > > One of the other many concerns I have right now is her poop (ya > gotta love these questions). Joy's poop is ALWAYS yellow and > oftentimes it floats. She's maxed out on Creon for her weight, and > she already uses Zantac to combat too much acid affecting the > enzymes. Anyone have any advice on this? The doctors NEVER have > any input on her yellow poop, but it seems rather strange to me -- > after all, my poop is rarely yellow. I was wondering if maybe she > needed some Lacto Bacillus and Acidophilus in large quantities or > something. Someone suggested it may be due to dairy products, but > even when we remove the abundance of dairy we give her, she still > has yellow poop. Should I be concerned? > > All my other questions can wait for the doctors, but these two have > been presented already to the docs and they have no successful > input. > > Thanks for your help, > > Ann (mommy of Joy who will be three next month) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2002 Report Share Posted October 21, 2002 I have input on one of your questions. Wyatt's poop is also yellow sometimes. I've never actually thought twice of the color bc it's never been a " normal " color. He actually rarely ever has formed poop at all. He was gettting very high on his Creon too and taking Zantac. our doctor and dietician put him on Pancreacarb MS-8. That takes away the need for Zantac too. He is 7yrs old, 46 " tall and 47lbs and takes 5 capsules w/ meals and 3 w/ snacks. His poop is still not " normal " but he's growing and gaining weight just fine. He knows how to swallow pills but if Joy doesn't they are the beads so they can be opened and dumped in pudding or something. Hope that helps...you can maybe bring that up to the docs. Christy mom of Wyatt7wcf and Hunter 2wocf > I haven't been contributing here in a while due to time constraints, > but I have been reading posts from time to time. Regardless, I now > have some questions I'd love your input on. > > Joy has what appears to be a yeast infection on her tongue, however > it hasn't responded to typical medication (Nystatin) and the design > on her tongue seems a bit atypical. Her tongue has a white coating > on it looking like milk everywhere except the center -- towards the > back there is a heart shaped rather red spot. Anyone seen anything > like this? > > One of the other many concerns I have right now is her poop (ya > gotta love these questions). Joy's poop is ALWAYS yellow and > oftentimes it floats. She's maxed out on Creon for her weight, and > she already uses Zantac to combat too much acid affecting the > enzymes. Anyone have any advice on this? The doctors NEVER have > any input on her yellow poop, but it seems rather strange to me -- > after all, my poop is rarely yellow. I was wondering if maybe she > needed some Lacto Bacillus and Acidophilus in large quantities or > something. Someone suggested it may be due to dairy products, but > even when we remove the abundance of dairy we give her, she still > has yellow poop. Should I be concerned? > > All my other questions can wait for the doctors, but these two have > been presented already to the docs and they have no successful > input. > > Thanks for your help, > > Ann (mommy of Joy who will be three next month) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2002 Report Share Posted October 21, 2002 I have input on one of your questions. Wyatt's poop is also yellow sometimes. I've never actually thought twice of the color bc it's never been a " normal " color. He actually rarely ever has formed poop at all. He was gettting very high on his Creon too and taking Zantac. our doctor and dietician put him on Pancreacarb MS-8. That takes away the need for Zantac too. He is 7yrs old, 46 " tall and 47lbs and takes 5 capsules w/ meals and 3 w/ snacks. His poop is still not " normal " but he's growing and gaining weight just fine. He knows how to swallow pills but if Joy doesn't they are the beads so they can be opened and dumped in pudding or something. Hope that helps...you can maybe bring that up to the docs. Christy mom of Wyatt7wcf and Hunter 2wocf > I haven't been contributing here in a while due to time constraints, > but I have been reading posts from time to time. Regardless, I now > have some questions I'd love your input on. > > Joy has what appears to be a yeast infection on her tongue, however > it hasn't responded to typical medication (Nystatin) and the design > on her tongue seems a bit atypical. Her tongue has a white coating > on it looking like milk everywhere except the center -- towards the > back there is a heart shaped rather red spot. Anyone seen anything > like this? > > One of the other many concerns I have right now is her poop (ya > gotta love these questions). Joy's poop is ALWAYS yellow and > oftentimes it floats. She's maxed out on Creon for her weight, and > she already uses Zantac to combat too much acid affecting the > enzymes. Anyone have any advice on this? The doctors NEVER have > any input on her yellow poop, but it seems rather strange to me -- > after all, my poop is rarely yellow. I was wondering if maybe she > needed some Lacto Bacillus and Acidophilus in large quantities or > something. Someone suggested it may be due to dairy products, but > even when we remove the abundance of dairy we give her, she still > has yellow poop. Should I be concerned? > > All my other questions can wait for the doctors, but these two have > been presented already to the docs and they have no successful > input. > > Thanks for your help, > > Ann (mommy of Joy who will be three next month) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2002 Report Share Posted October 21, 2002 In a message dated 10/21/2002 12:37:26 AM Central Daylight Time, ann-e@... writes: > Ann How does she take her enzymes? Because beads from the enzymes can cause irritation in the mouth if they are not swallowed. About the floating poop my daughters will to once in a while too but there is know grease floating in the toilet which I think it more of a concern then when they float. My doctors tell me if they are formed and No greasy stools we are OK. Hope this helps. Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2002 Report Share Posted October 21, 2002 In a message dated 10/21/2002 12:37:26 AM Central Daylight Time, ann-e@... writes: > Ann How does she take her enzymes? Because beads from the enzymes can cause irritation in the mouth if they are not swallowed. About the floating poop my daughters will to once in a while too but there is know grease floating in the toilet which I think it more of a concern then when they float. My doctors tell me if they are formed and No greasy stools we are OK. Hope this helps. Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2002 Report Share Posted October 21, 2002 In a message dated 10/21/2002 12:37:26 AM Central Daylight Time, ann-e@... writes: > Ann How does she take her enzymes? Because beads from the enzymes can cause irritation in the mouth if they are not swallowed. About the floating poop my daughters will to once in a while too but there is know grease floating in the toilet which I think it more of a concern then when they float. My doctors tell me if they are formed and No greasy stools we are OK. Hope this helps. Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2002 Report Share Posted October 21, 2002 Hi Ann, nice to see you posting here again :-)) Fiona has had yellow floaters for four years. After I read numerous positive reports about the change of poop due to the supplementation of Crataegus (for details please read the archive of the crataegus list if interested at http://groups.yahoo.com/group/crataegus/ we tried that too. Her stools now, one and a half year later are either brown and sinking or orange and oily. The latter shows that mom or dad have miscalculated the needed dosage again :-(( I have to admit though that Fiona hasn't gained much weight during the time that her poop is normal now. Other factors come in to play here of course, but we didn't see the results we were hoping for. Peace Torsten Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2002 Report Share Posted October 21, 2002 Hi, Still waiting on reports from the biopsies, etc. but just wanted to comment on the yellow stools. Caden's are almost always yellow, some times orange and have been rarely off white! But, almost always yellow and loosely formed, very oily and floating. This has been to the extreme this past weekend. I can't wait to find something out. He goes for his sinus CT tomorrow. His stuffy but not like he has been. I think that Extendryl helped. It is root beer flavored. Anyone else ever used this? OH, Caden does have a geographical tongue. It is not white. It actually looks like a road map. It is regular color, only there are spots that are very pink/raw looking... Kinda like a map...It is aggravated by different foods.We are yet to figure out for sure which ones they are! I do know that when it is flared up, salty things burn. As of now, you can't see it. It only flares up on occasion, however, when he was a baby, it practically stayed that way all of the time. He has also had the thrush. That is blisters in the mouth. They painted his tongue with some ginger violet stuff. I think that is what you call it. I read somewhere that the Thrush can be caused from malnourishment. Krystena s mom to: Caden 4 yrs Glutaric Aciduria type II (testing for CF) 10 yrs (half sibling) -Diabetic Warren 7yrs- (half sibling) Not tested Couple Concerns I haven't been contributing here in a while due to time constraints, but I have been reading posts from time to time. Regardless, I now have some questions I'd love your input on. Joy has what appears to be a yeast infection on her tongue, however it hasn't responded to typical medication (Nystatin) and the design on her tongue seems a bit atypical. Her tongue has a white coating on it looking like milk everywhere except the center -- towards the back there is a heart shaped rather red spot. Anyone seen anything like this? One of the other many concerns I have right now is her poop (ya gotta love these questions). Joy's poop is ALWAYS yellow and oftentimes it floats. She's maxed out on Creon for her weight, and she already uses Zantac to combat too much acid affecting the enzymes. Anyone have any advice on this? The doctors NEVER have any input on her yellow poop, but it seems rather strange to me -- after all, my poop is rarely yellow. I was wondering if maybe she needed some Lacto Bacillus and Acidophilus in large quantities or something. Someone suggested it may be due to dairy products, but even when we remove the abundance of dairy we give her, she still has yellow poop. Should I be concerned? All my other questions can wait for the doctors, but these two have been presented already to the docs and they have no successful input. Thanks for your help, Ann (mommy of Joy who will be three next month) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2002 Report Share Posted October 21, 2002 Hi, Still waiting on reports from the biopsies, etc. but just wanted to comment on the yellow stools. Caden's are almost always yellow, some times orange and have been rarely off white! But, almost always yellow and loosely formed, very oily and floating. This has been to the extreme this past weekend. I can't wait to find something out. He goes for his sinus CT tomorrow. His stuffy but not like he has been. I think that Extendryl helped. It is root beer flavored. Anyone else ever used this? OH, Caden does have a geographical tongue. It is not white. It actually looks like a road map. It is regular color, only there are spots that are very pink/raw looking... Kinda like a map...It is aggravated by different foods.We are yet to figure out for sure which ones they are! I do know that when it is flared up, salty things burn. As of now, you can't see it. It only flares up on occasion, however, when he was a baby, it practically stayed that way all of the time. He has also had the thrush. That is blisters in the mouth. They painted his tongue with some ginger violet stuff. I think that is what you call it. I read somewhere that the Thrush can be caused from malnourishment. Krystena s mom to: Caden 4 yrs Glutaric Aciduria type II (testing for CF) 10 yrs (half sibling) -Diabetic Warren 7yrs- (half sibling) Not tested Couple Concerns I haven't been contributing here in a while due to time constraints, but I have been reading posts from time to time. Regardless, I now have some questions I'd love your input on. Joy has what appears to be a yeast infection on her tongue, however it hasn't responded to typical medication (Nystatin) and the design on her tongue seems a bit atypical. Her tongue has a white coating on it looking like milk everywhere except the center -- towards the back there is a heart shaped rather red spot. Anyone seen anything like this? One of the other many concerns I have right now is her poop (ya gotta love these questions). Joy's poop is ALWAYS yellow and oftentimes it floats. She's maxed out on Creon for her weight, and she already uses Zantac to combat too much acid affecting the enzymes. Anyone have any advice on this? The doctors NEVER have any input on her yellow poop, but it seems rather strange to me -- after all, my poop is rarely yellow. I was wondering if maybe she needed some Lacto Bacillus and Acidophilus in large quantities or something. Someone suggested it may be due to dairy products, but even when we remove the abundance of dairy we give her, she still has yellow poop. Should I be concerned? All my other questions can wait for the doctors, but these two have been presented already to the docs and they have no successful input. Thanks for your help, Ann (mommy of Joy who will be three next month) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2002 Report Share Posted October 21, 2002 Hi, Still waiting on reports from the biopsies, etc. but just wanted to comment on the yellow stools. Caden's are almost always yellow, some times orange and have been rarely off white! But, almost always yellow and loosely formed, very oily and floating. This has been to the extreme this past weekend. I can't wait to find something out. He goes for his sinus CT tomorrow. His stuffy but not like he has been. I think that Extendryl helped. It is root beer flavored. Anyone else ever used this? OH, Caden does have a geographical tongue. It is not white. It actually looks like a road map. It is regular color, only there are spots that are very pink/raw looking... Kinda like a map...It is aggravated by different foods.We are yet to figure out for sure which ones they are! I do know that when it is flared up, salty things burn. As of now, you can't see it. It only flares up on occasion, however, when he was a baby, it practically stayed that way all of the time. He has also had the thrush. That is blisters in the mouth. They painted his tongue with some ginger violet stuff. I think that is what you call it. I read somewhere that the Thrush can be caused from malnourishment. Krystena s mom to: Caden 4 yrs Glutaric Aciduria type II (testing for CF) 10 yrs (half sibling) -Diabetic Warren 7yrs- (half sibling) Not tested Couple Concerns I haven't been contributing here in a while due to time constraints, but I have been reading posts from time to time. Regardless, I now have some questions I'd love your input on. Joy has what appears to be a yeast infection on her tongue, however it hasn't responded to typical medication (Nystatin) and the design on her tongue seems a bit atypical. Her tongue has a white coating on it looking like milk everywhere except the center -- towards the back there is a heart shaped rather red spot. Anyone seen anything like this? One of the other many concerns I have right now is her poop (ya gotta love these questions). Joy's poop is ALWAYS yellow and oftentimes it floats. She's maxed out on Creon for her weight, and she already uses Zantac to combat too much acid affecting the enzymes. Anyone have any advice on this? The doctors NEVER have any input on her yellow poop, but it seems rather strange to me -- after all, my poop is rarely yellow. I was wondering if maybe she needed some Lacto Bacillus and Acidophilus in large quantities or something. Someone suggested it may be due to dairy products, but even when we remove the abundance of dairy we give her, she still has yellow poop. Should I be concerned? All my other questions can wait for the doctors, but these two have been presented already to the docs and they have no successful input. Thanks for your help, Ann (mommy of Joy who will be three next month) Quote Link to comment Share on other sites More sharing options...
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