Re: CF and Celiac Disease Grandma Bev...Thanks :-)) (DEB!!)

[Guest guest]

My son isn't suspected to have CF. Hi shunt was originally placed when he

was three weeks old, due to hydrocephalus. He kept that shunt for ten years

before docs at Shands in Gainesville scwewed him up royally by replacing the

shunt and leaving the old valve and disconnected cathetar in his head and

sending him home with a 102fever and unable to function at all for over a

month, before a second doc in St. Pete at All Children's Hospital went in and

took out all the garbage left by the idiots at Shands and took out the

malfunctioning " new " shunt they'd just put in less than six weeks before she

had to replace it! He's doing GREAT now! I thank GOD for the internet and

this computer that cost me an arm and a leg! It helped me get to the ONE doc

who was able to save my son's life and let him be a kid again :_)) Blessings

and hugs to you and your little girl!

[Guest guest]

In a message dated 11/9/2002 1:10:18 PM Central Standard Time,

kas1cat@... writes:

> My son isn't suspected to have CF. Hi shunt was originally placed when he

> was three weeks old, due to hydrocephalus. He kept that shunt for ten

> years

> before docs at Shands in Gainesville scwewed him up royally by replacing

> the

> shunt and leaving the old valve and disconnected cathetar in his head and

> sending him home with a 102fever and unable to function at all for over a

> month, before a second doc in St. Pete at All Children's Hospital went in

> and

> took out all the garbage left by the idiots at Shands and took out the

> malfunctioning " new " shunt they'd just put in less than six weeks before

> she

> had to replace it! He's doing GREAT now! I thank GOD for the internet and

>

> this computer that cost me an arm and a leg! It helped me get to the ONE

> doc

> who was able to save my son's life and let him be a kid again :_))

> Blessings

> and hugs to you and your little girl!

WOW!!! You have been through a lot. I thought our daughter had lot of

problems. So why are you on the CFparent list if your son does not have CF?

Deb A

[Guest guest]

In a message dated 11/9/2002 1:10:18 PM Central Standard Time,

kas1cat@... writes:

> My son isn't suspected to have CF. Hi shunt was originally placed when he

> was three weeks old, due to hydrocephalus. He kept that shunt for ten

> years

> before docs at Shands in Gainesville scwewed him up royally by replacing

> the

> shunt and leaving the old valve and disconnected cathetar in his head and

> sending him home with a 102fever and unable to function at all for over a

> month, before a second doc in St. Pete at All Children's Hospital went in

> and

> took out all the garbage left by the idiots at Shands and took out the

> malfunctioning " new " shunt they'd just put in less than six weeks before

> she

> had to replace it! He's doing GREAT now! I thank GOD for the internet and

>

> this computer that cost me an arm and a leg! It helped me get to the ONE

> doc

> who was able to save my son's life and let him be a kid again :_))

> Blessings

> and hugs to you and your little girl!

WOW!!! You have been through a lot. I thought our daughter had lot of

problems. So why are you on the CFparent list if your son does not have CF?

Deb A

[Guest guest]

In a message dated 11/9/2002 1:10:18 PM Central Standard Time,

kas1cat@... writes:

> My son isn't suspected to have CF. Hi shunt was originally placed when he

> was three weeks old, due to hydrocephalus. He kept that shunt for ten

> years

> before docs at Shands in Gainesville scwewed him up royally by replacing

> the

> shunt and leaving the old valve and disconnected cathetar in his head and

> sending him home with a 102fever and unable to function at all for over a

> month, before a second doc in St. Pete at All Children's Hospital went in

> and

> took out all the garbage left by the idiots at Shands and took out the

> malfunctioning " new " shunt they'd just put in less than six weeks before

> she

> had to replace it! He's doing GREAT now! I thank GOD for the internet and

>

> this computer that cost me an arm and a leg! It helped me get to the ONE

> doc

> who was able to save my son's life and let him be a kid again :_))

> Blessings

> and hugs to you and your little girl!

WOW!!! You have been through a lot. I thought our daughter had lot of

problems. So why are you on the CFparent list if your son does not have CF?

Deb A