Re: CF and Celiac Disease Grandma Bev...Thanks :-)) (DEB!!)

November 9, 2002

My son isn't suspected to have CF. Hi shunt was originally placed when he

was three weeks old, due to hydrocephalus. He kept that shunt for ten years

before docs at Shands in Gainesville scwewed him up royally by replacing the

shunt and leaving the old valve and disconnected cathetar in his head and

sending him home with a 102fever and unable to function at all for over a

month, before a second doc in St. Pete at All Children's Hospital went in and

took out all the garbage left by the idiots at Shands and took out the

malfunctioning " new " shunt they'd just put in less than six weeks before she

had to replace it! He's doing GREAT now! I thank GOD for the internet and

this computer that cost me an arm and a leg! It helped me get to the ONE doc

who was able to save my son's life and let him be a kid again :_)) Blessings

and hugs to you and your little girl!

November 10, 2002

Cause my daughter is suspected of having it :-/

I came here looking for information at first and now I'm convinced that the

doc that put her on pancrease and suspects CF (but won't make a definitive

diagnosis) was right. I tried taking her off the pancrease this

weekend...(cause he told me to try it and see what happened) Well, she had

another attack of abdominal pain and is back on the pancrease with every meal

and snack. I just don't think I can go trhu hospitalization after

hospitalization again with her!

November 10, 2002