Re: Clinical Trials at the NIH and associated institutions

[Guest guest]

we as rosaceans are lost. we can't wait for the next edition of the

map to be re-drawn, we must seek directions from those in the

neighborhood, garnering info from their dead-ends and wrong turns,

and those who have sucessfully found where they're going. individual

cases are just that. please, when people post their individual

anectodotal cases, include the brand, dose, frequency of the topical

and/or oral you are applying. do not just say I took some benzoyl

peroxide, say I put triaz 3%, q hs for 2 weeks and this is what

happened, etc. include relevent medical history, and sun exposure,

as well. maybe we can attatch digital images to our posts!

we can learn from everyone's mistakes here. lets start posting our

mistakes!

> Thinking about clinical trials, not only regarding hormone use but

> also with respect to Dr. Nase's research and the laudable desire

many

> have expressed here to " do more " for rosacea.

>

> I just logged onto www.clinicaltrials.gov, which is a site used to

> recruit people for various clinical trials conducted by the

National

> Institutes of Health. It doesn't begin to list the majority of

> research going on in the US, but it is a Web convenience and all

> studies have the near-assurance of the highest quality research.

> That's one of the downsides: they are so well-constructed and well-

> regarded that they have their choice of subjects, it's hard to get

> accepted into one of the studies. But those listed on the site are

> actively recruiting.

>

> Nothing when I searched 'rosacea', sadly, but this study may be of

> interest for those who know or wonder if there's a connection

between

> their skin condition and one of the connective diseases:

>

> http://www.clinicaltrials.gov/ct/gui/c/w2b/show/NCT00001506?

> order=7&JServSessionIdzone_ct=nhvc8i5vf1

>

> Unrelated to rosacea, there are a number of clinical trials in

> Alternative Medicine which may interest some of you (keep on

> scrolling past all the cancer studies):

>

> http://www.clinicaltrials.gov/ct/gui/c/w2b/action/SearchAction?

>

JServSessionIdzone_ct=nhvc8i5vf1&Term=alternative+medicine&submit=Sear

> ch

>

> Nothing more on rosacea, and nothing I could find for photoderm or

> lasers related to rosacea.

>

> Nothing on growth hormone that doesn't involve treatment for a pre-

> existing condition (but when searched under 'melatonin' several

> studies return for treatment of depression)

>

> But this is only a moment in time, new research is opening up all

the

> time. There's also other resources, though the list isn't available

> to me right now. I'll look around as I have the time. I'm also

aware

> of the number of rosaceans from other countries that post here, and

> I'll keep my eyes open for other countries as well. (Including

those

> Down Under who put shrimp-by-any-other-name on their barbie.)

>

>

> Marjorie

>

> Marjorie Lazoff, MD