Guest guest Posted December 21, 2002 Report Share Posted December 21, 2002 My son also struggled with weight. He was 11 weeks premature and had the meconium ileus blockage. We went through so many things to try to get Ashton to gain weight. He breastfed most of the time (keep that up as long as you can!!) but some bottles with expressed milk to which we added pregestimil, polycose and canola oil. He didn't like it much at all. In fact, he stopped eating altogether and now is fed exclusively through a g-tube. Before that was put in, we gave him solids with margarine added as well as rice cereal to bulk it up. My son also hated the #3 foods. We gave him lots of avacado--tons of fat! My best advice--keep him excited about food. Don't force him to eat anything and if he enjoys breastfeeding, keep it up. I truly think if I hadn't tried so hard (too hard) to get him to eat, he would still enjoy food. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2002 Report Share Posted December 21, 2002 My daughter, who is 18 months old, also struggles with weight.She only likes drinking bottles with formula/milk.I am always worried that she will not get enough vitamins etc. I guess we are also a potential candidate for a g-tube. I don't know much about these tubes. How does it work for example if you travel? And don't the kids mind the tube while sleeping? Greetings from rainy Germany Tana w Chri 3 years wocf and Mira 18 months wcf J. schrieb: > My son also struggled with weight. He was 11 weeks premature and had > the meconium ileus blockage. We went through so many things to try > to get Ashton to gain weight. He breastfed most of the time (keep > that up as long as you can!!) but some bottles with expressed milk to > which we added pregestimil, polycose and canola oil. He didn't like > it much at all. In fact, he stopped eating altogether and now is fed > exclusively through a g-tube. Before that was put in, we gave him > solids with margarine added as well as rice cereal to bulk it up. My > son also hated the #3 foods. We gave him lots of avacado--tons of > fat! > > My best advice--keep him excited about food. Don't force him to eat > anything and if he enjoys breastfeeding, keep it up. I truly think > if I hadn't tried so hard (too hard) to get him to eat, he would > still enjoy food. > > > > > ------------------------------------------- > The opinions and information exchanged on this list should IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > ------------------------------------ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2002 Report Share Posted December 21, 2002 My daughter, who is 18 months old, also struggles with weight.She only likes drinking bottles with formula/milk.I am always worried that she will not get enough vitamins etc. I guess we are also a potential candidate for a g-tube. I don't know much about these tubes. How does it work for example if you travel? And don't the kids mind the tube while sleeping? Greetings from rainy Germany Tana w Chri 3 years wocf and Mira 18 months wcf J. schrieb: > My son also struggled with weight. He was 11 weeks premature and had > the meconium ileus blockage. We went through so many things to try > to get Ashton to gain weight. He breastfed most of the time (keep > that up as long as you can!!) but some bottles with expressed milk to > which we added pregestimil, polycose and canola oil. He didn't like > it much at all. In fact, he stopped eating altogether and now is fed > exclusively through a g-tube. Before that was put in, we gave him > solids with margarine added as well as rice cereal to bulk it up. My > son also hated the #3 foods. We gave him lots of avacado--tons of > fat! > > My best advice--keep him excited about food. Don't force him to eat > anything and if he enjoys breastfeeding, keep it up. I truly think > if I hadn't tried so hard (too hard) to get him to eat, he would > still enjoy food. > > > > > ------------------------------------------- > The opinions and information exchanged on this list should IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > ------------------------------------ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2002 Report Share Posted December 22, 2002 The g-tube was the best thing we ever did for our son. He gained weight very well on it. All his medicine goes in the tube as well. We have a pump that is on a battery pack that we can take anywhere-- airplane, restaurant, on the road, etc. It is the size of a small book. When he sleeps, he is fed and doesn't even notice it. It is great. > My daughter, who is 18 months old, also struggles with weight.She only likes > drinking bottles with formula/milk.I am always worried that she will not get > enough vitamins etc. I guess we are also a potential candidate for a g-tube. I > don't know much about these tubes. How does it work for example if you travel? > And don't the kids mind the tube while sleeping? > > Greetings from rainy Germany > Tana w Chri 3 years wocf and Mira 18 months wcf > > > J. schrieb: > > My son also struggled with weight. He was 11 weeks premature and had > > the meconium ileus blockage. We went through so many things to try > > to get Ashton to gain weight. He breastfed most of the time (keep > > that up as long as you can!!) but some bottles with expressed milk to > > which we added pregestimil, polycose and canola oil. He didn't like > > it much at all. In fact, he stopped eating altogether and now is fed > > exclusively through a g-tube. Before that was put in, we gave him > > solids with margarine added as well as rice cereal to bulk it up. My > > son also hated the #3 foods. We gave him lots of avacado--tons of > > fat! > > > > My best advice--keep him excited about food. Don't force him to eat > > anything and if he enjoys breastfeeding, keep it up. I truly think > > if I hadn't tried so hard (too hard) to get him to eat, he would > > still enjoy food. > > > > > > > > > > ------------------------------------------- > > The opinions and information exchanged on this list should IN NO WAY > > be construed as medical advice. > > > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > > > ------------------------------------ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2002 Report Share Posted December 24, 2002 Triana always hated the #3 baby foods, too. Something about the texture. We eventually gave up and went from #2's to real food. Stuff like mashed potatoes (she likes them with lots of garlic), and even bits of meat and stuff. She always acted like she was choking on the 3's, too...and she doesn't have reflux. Does Adam like the baby cereal stuff? Triana still eats it (at age 2.5). We put a little light Karo syrup in it, plus some applesauce or a #2 or #3 fruit. She loves it (and is up to eating a full bowl now). I'm trying to think what else she ate at that age. She liked soups, too. You might just start trying some big people foods on him (ones that he can actually eat) and see how he does. I know that in her case the issue wasn't so much that she gagged from the size, but that she gagged from the taste. (Baby food tastes pretty awful, especially compared to big people food.) Try some savory stuff...like the mashed potatoes with butter and garlic. (Some of 'em like garlic, some don't...good for 'em though.) She ate mountains of potatoes at that age. Can't say she gained weight off of them, but then we didn't know she had CF at that point, and she wasn't taking enzymes. Can he eat peanut butter yet? Nice protein there...and a lot of kids love the taste. Can't think of anything else right at the moment...but look around at the stuff you guys eat, and see what there is that might conform to his standards of texture. A lot of it is texture at that age, more so than size. Shanna mom of Triana, age 2 wcf weight issue Adam is 10 months old but barely weighs 14 pounds. He has acid reflux (prilosec twice daily and urecholine three times a day) -- we make sure not to freak out when he throws up, so now when ever he does it he just smiles at us as we clean him up and then cries as we change his clothes AGAIN! He has now been on Urso 250mg, half a tablet every morning for his liver for almost two months. He also takes three ultrase enzyme capsules with each feeding (thank heaven/scandipharm for CAREFIRST for CF). He hates the #3 baby foods. He acts like he's choking on those tiny peices of carrots and potatoes, but he LOVES my cream of chicken soup! What do I do? Any suggestions on how to put the pounds on him? The nutritionist at the clinic suggested in November that we mix his formula 24cal/oz and we add 1/4 tsp of veggie oil to his solids (2-3 times a day). Still it doesn't seem to be making a lot of difference. He's at the 10th percentile for length but falling farther and farther away from the weight charting. I put him in clothes that are 6-9 or 12mo sizes and they fit great in the legs (length) but barely stay up at his waist! I'm so frustrated!! Please advise! Thanks in advance, Crystal mom to Adam 10mo wcf, le 3yr nocf. p.s. maybe I'm a little touchy about weight too, since le weighed in at 42 lbs at her 3 yr checkup in November. She's going to be an athlete the way she's built! ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
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