Re: Subject: Re: cheating?

March 12, 2006

Hi Suzanne and to all,

Our neighbors think we are crazy....first gluten free...then gluten free

casein....then paleo like and now SCD.....imagine what they are thinking? One

told me that they couldn't possible have SCD, because they don't act like " RAIN

MAN " ! They just think we are " starving " them to death...in light of my loosing

weight again...and Ki Ki having loss too. I look forward to this SCD diet

continuing to work miracles. I have gained three pounds!!!!!! YEAH...and Ki Ki

is looking better too...so much for SCD being a starvation diet! But they will

possibly never understand until they see our miracle!

Antoinette (SCD day 18 entire family)

Re: cheating?

Hi Suzanne,

You are so right. advice runs freely, but help is very thin on the ground.

It is another aspect to the whole autism thing, old friends fade away into the

distance. SCD brings such a weight of negative judgement from family & friends

not to mention schools (depriving a child of bread, cereal, potatoes & rice

seems to many, like a parent gone over the top) and a basically " its your own

fault for all the stress " , kind of attitude.

Honestly, sometimes the only support I have are the familiar names on this &

one or two other boards. The moderators on this board are always so helpful,

patient & encouraging.

The apple sauce drives me crazy too, because I use so much of it. My best

friend has been a big pot & freezer bags. I have " chicken stew days " , " cooking

bean days " ,

and " apple sauce days " whenever I catch the time. It is so nice to be able

to reach into the freezer & take out those instant meals. The first few months

are a struggle, but like everything else you get used to it.

Good luck,

Philomena Mom of 5 ASD SCD 15mths

Boy, it sure would be great if that were an option. We could use the

help. Hiring someone is out of the question. We're paying $60,000 a

year for Tom's ABA therapy, and I just lost my job. Our old friends

don't understand our life AT ALL and we rarely see them. We've asked

for help from our family and they just think we're complaining. Our

new friends, the ones who get it, are parents of autistic kids of

their own, and of course they already have their hands full. We live

in a state that provides no respite care funding.

I wish it were easy to get help, but we sure have tried in the past

and we've never found any.

Suzanne

> > " Convenience food " deserves a better name. How about " saving

mommy

> > from the loony bin " food?

> >

> > Off to cook,

> > Suzanne

> >

> Suzanne,

> I am going to just run the idea by you once more of hiring someone

or enlisting a friend

> for a day to prepare food in advance that can be portion packed in

Ziploc type containers

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March 12, 2006

I meant that they " couldn't possibly have ASD " ! not " SCD " oooops.....because

they don't act like " Rain Man " !

Re: cheating?

Hi Suzanne,

You are so right. advice runs freely, but help is very thin on the

ground. It is another aspect to the whole autism thing, old friends fade away

into the distance. SCD brings such a weight of negative judgement from family &

friends not to mention schools (depriving a child of bread, cereal, potatoes &

rice seems to many, like a parent gone over the top) and a basically " its your

own fault for all the stress " , kind of attitude.

Honestly, sometimes the only support I have are the familiar names on this

& one or two other boards. The moderators on this board are always so helpful,