Re: sinus surgery - Deb A.

[Guest guest]

In a message dated 12/2/2002 3:48:13 PM Central Standard Time,

gale.harris@... writes:

>

> If you don't mind, I was wondering what 's shunt is for?

> Thanks,

> Gale

She also has hydrocephalus unrelated to her CF. She had her first shunt put

in when she was a year old and the same week we found out about her CF we

found out she needed her shunt revised for the first time. It was the week

every I think I was in limbo for a long time after that. It was such a shock

to not only know she has to deal with hydrocephalus but also CF. Deb A

[Guest guest]

In a message dated 12/2/2002 3:48:13 PM Central Standard Time,

gale.harris@... writes:

>

> If you don't mind, I was wondering what 's shunt is for?

> Thanks,

> Gale

She also has hydrocephalus unrelated to her CF. She had her first shunt put

in when she was a year old and the same week we found out about her CF we

found out she needed her shunt revised for the first time. It was the week

every I think I was in limbo for a long time after that. It was such a shock

to not only know she has to deal with hydrocephalus but also CF. Deb A

[Guest guest]

If you don't mind, I was wondering what 's shunt is for?

Thanks,

Gale

> In a message dated 12/2/2002 11:36:41 AM Central Standard Time,

> krystena@b... writes:

>

>

> > Krystena s

>

> did very well. The first surgery I think was the hardest

because

> there were so many polpys in there. The only problems she had was

keep food

> down. She felt sick to her stomach a lot. But you got to remember

too when

> she had her first surgery was when she was first diagnosed so she

hadn't been

> feeling very good before hand. Also two months before that she had

her shunt

> revised. So she had two strikes against her so that might be why it

was so

> tuff the first time. The second surgery we were out much faster.

They didn't

> even put her in a room just recovery and they sent us home with

lots of pain

> pills and antiboitics. I hope this helps. Deb A

>

>

>

[Guest guest]

Is her shunt related to Arnold Chiari malformation? This is too

bizaar. There seems to be quite a few cfers with Arnold Chiari type

symptoms.

* difficulty swallowing

* numbness in the arms or legs

* headaches

* acid reflux

* dizziness

* blurred vision

* hydrocephalus

Someone with Arnold Chiari can have all or some of these symptoms.

The symptoms are usually worse when the person is tired. Bed rest

typically helps to reduce the effects of the symptoms. There are

varying degrees of Arnold Chiari malformation. The basic description

of Arnold Chiari is that the brain stems extends too far down the

spinal cord. This malformation can cause restricted spinal fluid

flow and even apply pressure to the vagus nerve, which " could " cause

the reflux action.

Torsten found several medical abstracts connecting Arnold Chiari to

CF. The connection is still not conclusive, but you really have to

wonder!

Abigail is scheduled to have surgery this month for her Arnold Chiari

malformation.

Just food for thought. :>)

Gale

> In a message dated 12/2/2002 3:48:13 PM Central Standard Time,

> gale.harris@h... writes:

>

>

> >

> > If you don't mind, I was wondering what 's shunt is for?

> > Thanks,

> > Gale

>

> She also has hydrocephalus unrelated to her CF. She had her first

shunt put

> in when she was a year old and the same week we found out about her

CF we

> found out she needed her shunt revised for the first time. It was

the week

> every I think I was in limbo for a long time after that. It was

such a shock

> to not only know she has to deal with hydrocephalus but also CF.

Deb A

>

>

>

[Guest guest]

Is her shunt related to Arnold Chiari malformation? This is too

bizaar. There seems to be quite a few cfers with Arnold Chiari type

symptoms.

* difficulty swallowing

* numbness in the arms or legs

* headaches

* acid reflux

* dizziness

* blurred vision

* hydrocephalus

Someone with Arnold Chiari can have all or some of these symptoms.

The symptoms are usually worse when the person is tired. Bed rest

typically helps to reduce the effects of the symptoms. There are

varying degrees of Arnold Chiari malformation. The basic description

of Arnold Chiari is that the brain stems extends too far down the

spinal cord. This malformation can cause restricted spinal fluid

flow and even apply pressure to the vagus nerve, which " could " cause

the reflux action.

Torsten found several medical abstracts connecting Arnold Chiari to

CF. The connection is still not conclusive, but you really have to

wonder!

Abigail is scheduled to have surgery this month for her Arnold Chiari

malformation.

Just food for thought. :>)

Gale

> In a message dated 12/2/2002 3:48:13 PM Central Standard Time,

> gale.harris@h... writes:

>

>

> >

> > If you don't mind, I was wondering what 's shunt is for?

> > Thanks,

> > Gale

>

> She also has hydrocephalus unrelated to her CF. She had her first

shunt put

> in when she was a year old and the same week we found out about her

CF we

> found out she needed her shunt revised for the first time. It was

the week

> every I think I was in limbo for a long time after that. It was

such a shock

> to not only know she has to deal with hydrocephalus but also CF.

Deb A

>

>

>

[Guest guest]

Is her shunt related to Arnold Chiari malformation? This is too

bizaar. There seems to be quite a few cfers with Arnold Chiari type

symptoms.

* difficulty swallowing

* numbness in the arms or legs

* headaches

* acid reflux

* dizziness

* blurred vision

* hydrocephalus

Someone with Arnold Chiari can have all or some of these symptoms.

The symptoms are usually worse when the person is tired. Bed rest

typically helps to reduce the effects of the symptoms. There are

varying degrees of Arnold Chiari malformation. The basic description

of Arnold Chiari is that the brain stems extends too far down the

spinal cord. This malformation can cause restricted spinal fluid

flow and even apply pressure to the vagus nerve, which " could " cause

the reflux action.

Torsten found several medical abstracts connecting Arnold Chiari to

CF. The connection is still not conclusive, but you really have to

wonder!

Abigail is scheduled to have surgery this month for her Arnold Chiari

malformation.

Just food for thought. :>)

Gale

> In a message dated 12/2/2002 3:48:13 PM Central Standard Time,

> gale.harris@h... writes:

>

>

> >

> > If you don't mind, I was wondering what 's shunt is for?

> > Thanks,

> > Gale

>

> She also has hydrocephalus unrelated to her CF. She had her first

shunt put

> in when she was a year old and the same week we found out about her

CF we

> found out she needed her shunt revised for the first time. It was

the week

> every I think I was in limbo for a long time after that. It was

such a shock

> to not only know she has to deal with hydrocephalus but also CF.

Deb A

>

>

>

[Guest guest]

In a message dated 12/4/2002 9:46:24 AM Central Standard Time,

gale.harris@... writes:

>

> Is her shunt related to Arnold Chiari malformation? This is too

> bizaar. There seems to be quite a few cfers with Arnold Chiari type

> symptoms.

>

> * difficulty swallowing

> * numbness in the arms or legs

> * headaches

> * acid reflux

> * dizziness

> * blurred vision

> * hydrocephalus

>

> Someone with Arnold Chiari can have all or some of these symptoms.

> The symptoms are usually worse when the person is tired. Bed rest

> typically helps to reduce the effects of the symptoms. There are

> varying degrees of Arnold Chiari malformation. The basic description

> of Arnold Chiari is that the brain stems extends too far down the

> spinal cord. This malformation can cause restricted spinal fluid

> flow and even apply pressure to the vagus nerve, which " could " cause

> the reflux action.

>

> Torsten found several medical abstracts connecting Arnold Chiari to

> CF. The connection is still not conclusive, but you really have to

> wonder!

>

> Abigail is scheduled to have surgery this month for her Arnold Chiari

> malformation.

>

> Just food for thought. :>)

>

> Gale

I don't know? Her neurosurgeon told us that her hydrocephalus was not related

to her CF. You will have to send me more information on this. I have never

heard anything about this. Deb A