Re: knowing how lucky we are

[Guest guest]

>

> I am greatful for the input of Dr. Lazoff, thanks very much

Marjorie !

Thanks for the kind words, . Support groups like this one are a

godsend, and you do a great job with rosacea-support.

Marjorie

[Guest guest]

Hi ,

Some points in your post I agree with, some I really don't and must comment

on:

> As a group we can wander aimlessly, sometimes quite close to `the edge' with

> some quite bizarre messages. It is a good thing to have the views of someone

> with medical training and good mind. We need them to keep the group from

> going over the edge and becoming dangerous.

I think the idea that the group needs anyone here, with medical training or

otherwise, to " keep them from going over the edge and becoming dangerous " is

absurd! I think, by and large, the innate intelligence of individual group

members will always rule, regardless of what their " training " is.

> So I'm asking us to look for the good in all members and concentrate on the

> benefits of everyone's opinion. That takes effort and discipline. Of course

> it is far easier to become cynical, but for the benefit of us at large it

> gets us no where.

It depends on how you are defining cynicism of course. From one point of

view, cynicism can be a huge benefit and can take you far. Cynicism of what

unaware dermatologists prescribe as treatment has led many rosaceans to

question, for example, use of steroids on their skin. I would say that a

healthy degree of cynicism is what leads people to this very list.

I would also disagree with cynicism being the easier road to take. Not at

all....as a friend of mine likes to say " it takes a live one to swim

upstream. "

Cheers,

[Guest guest]

> I have to agree with most of public-posted messages that having a

> physician on the board can be helpful in offering the " strictly

> clinical " viewpoint re: cea. By the same token, I would prefer

> that we not discredit the " over the edge public posters " as being

> totally outlandish. We all get stuck in paradigms and have to

> encourage ourselves to think beyond the box. That's what I like

> about this board, it encourages thinking beyond the borders.

> Much what is posted here is anecdotal, that I hope one day will be

> worthy of the golden double-blind clinical study

Hear, Hear! I've already expressed my opinion on the issue of strictly

clinical vs. the anecdotal, some may say " over the edge " posts but hearing

the way GT has worded it all has reaffirmed it for me.

Thinking beyond the box is what so many of us here are doing and the

strictly clinical view is so, well, boxy.

Here's to a little creativity,

>

> As a former scientist, I use to think that strictly botanial-based

> skin care products were laughable. Of course, now I know better.

> GT

[Guest guest]

I was unaware that there was a problem of harassing, mean-spirited or, as

another post referred to, hate mails being exchanged. Hate mail sounds so

extreme a phrase. If someone is receiving emails that are that bad, I think

this would be a reason to contact the list manager.....and as Matija

suggests, set up a block to bounce them away.

>

> Date: Fri, 22 Mar 2002 22:49:29 +0000

> To: rosacea-support

> Subject: Re: knowing how lucky we are

>

> Just an aside, if you are receiving personal emails from rosacea-

> support posters that you find to be harassing or mean-spirited,

> simply block that address in your email program. You won't receive

> mail from the person anymore, and the problem is solved.

>

> If a person won't discuss issues rationally and has to resort to

> anger and name-calling, I figure they have something else on their

> agenda other than rosacea.

>

> Take care,

> Matija

[Guest guest]

Pascoe and any moderator can remove/ban a member who violates the

rules of the group

Brady

> I was unaware that there was a problem of harassing, mean-spirited or,

> as

> another post referred to, hate mails being exchanged. Hate mail sounds

> so

> extreme a phrase. If someone is receiving emails that are that bad, I

> think

> this would be a reason to contact the list manager.....and as Matija

> suggests, set up a block to bounce them away.

>

>

>

>>

>> Date: Fri, 22 Mar 2002 22:49:29 +0000

>> To: rosacea-support

>> Subject: Re: knowing how lucky we are

>>

>> Just an aside, if you are receiving personal emails from rosacea-

>> support posters that you find to be harassing or mean-spirited,

>> simply block that address in your email program. You won't receive

>> mail from the person anymore, and the problem is solved.

>>

>> If a person won't discuss issues rationally and has to resort to

>> anger and name-calling, I figure they have something else on their

>> agenda other than rosacea.

>>

>> Take care,

>> Matija

>

>

>

> --

> Please read the list highlights before posting to the whole group

> (http://rosacea.ii.net/toc.html). Your post will be delayed if you

> don't give a meaningful subject or trim your reply text. You must

> change the subject when replying to a digest !

>

> See http://www.drnase.com for info on his recently published book.

>

> To leave the list send an email to rosacea-support-

> unsubscribe

>

>

[Guest guest]

Pascoe and any moderator can remove/ban a member who violates the

rules of the group

Brady

> I was unaware that there was a problem of harassing, mean-spirited or,

> as

> another post referred to, hate mails being exchanged. Hate mail sounds

> so

> extreme a phrase. If someone is receiving emails that are that bad, I

> think

> this would be a reason to contact the list manager.....and as Matija

> suggests, set up a block to bounce them away.

>

>

>

>>

>> Date: Fri, 22 Mar 2002 22:49:29 +0000

>> To: rosacea-support

>> Subject: Re: knowing how lucky we are

>>

>> Just an aside, if you are receiving personal emails from rosacea-

>> support posters that you find to be harassing or mean-spirited,

>> simply block that address in your email program. You won't receive

>> mail from the person anymore, and the problem is solved.

>>

>> If a person won't discuss issues rationally and has to resort to

>> anger and name-calling, I figure they have something else on their

>> agenda other than rosacea.

>>

>> Take care,

>> Matija

>

>

>

> --

> Please read the list highlights before posting to the whole group

> (http://rosacea.ii.net/toc.html). Your post will be delayed if you

> don't give a meaningful subject or trim your reply text. You must

> change the subject when replying to a digest !

>

> See http://www.drnase.com for info on his recently published book.

>

> To leave the list send an email to rosacea-support-

> unsubscribe

>

>

[Guest guest]

Pascoe and any moderator can remove/ban a member who violates the

rules of the group

Brady

> I was unaware that there was a problem of harassing, mean-spirited or,

> as

> another post referred to, hate mails being exchanged. Hate mail sounds

> so

> extreme a phrase. If someone is receiving emails that are that bad, I

> think

> this would be a reason to contact the list manager.....and as Matija

> suggests, set up a block to bounce them away.

>

>

>

>>

>> Date: Fri, 22 Mar 2002 22:49:29 +0000

>> To: rosacea-support

>> Subject: Re: knowing how lucky we are

>>

>> Just an aside, if you are receiving personal emails from rosacea-

>> support posters that you find to be harassing or mean-spirited,

>> simply block that address in your email program. You won't receive

>> mail from the person anymore, and the problem is solved.

>>

>> If a person won't discuss issues rationally and has to resort to

>> anger and name-calling, I figure they have something else on their

>> agenda other than rosacea.

>>

>> Take care,

>> Matija

>

>

>

> --

> Please read the list highlights before posting to the whole group

> (http://rosacea.ii.net/toc.html). Your post will be delayed if you

> don't give a meaningful subject or trim your reply text. You must

> change the subject when replying to a digest !

>

> See http://www.drnase.com for info on his recently published book.

>

> To leave the list send an email to rosacea-support-

> unsubscribe

>

>