Guest guest Posted January 28, 2006 Report Share Posted January 28, 2006 Hey, Sharon Are you also in the BIA4KIDS group? You sound familiar. I'm praying for you and your little guy to make significant progress on this diet. It has been helpful for my son. Agape, SHARON CRUIKSHANK mag5jas2@...> wrote: It sounds like you are getting him off to a healthy start. I remember once having heard of a diet that would induce ketosis in most people - very high fat - but helps forms of epilepsy. Have you heard of this? take care, Fay Fay, the ketogenic diet is the epilepsy treatment you are thinking of. While it can be very effective, it also can have a lot of nasty side effects and is not a " healthy " diet. That is why I am here, as I am hoping that SCD will help and avoid going on the keto. I posted about the SCD on the infantilespasms web group so that is why is here. , given you are just starting to feed solids, I would try following the guidelines for introducing SCD foods and avoid the illegals - wheat, dairy, starch, soy and sugar. I've been feeding SCD " Stage 1 " for a few days now with the exception of his bottle and his poops have turned a lovely light green (no, I won't post pictures!), but I believe this means that the " die off " phase is starting. I met with the keto nurse yesterday. will likely start the Keto in April, so I have 2 months to give SCD a try. The protocol they use for starting the diet is to use RCF (Ross Carbohydrate Free) formula (soy-based), microlipids and polycose for 2-3 months via g-tube - no oral feeds. I'm not too keen on this as eats/drinks orally but she said that they've had the most success with this protocol. After 2-3 months, assuming he is stable and the diet is working for him, we could start with oral keto meals (about 80% fat, 10% protien, 10% carbs). In the meantime, I need to fatten him up as he has dropped off the weight chart, so I'm going to do 50% carbs, 30% fat and 20% protein with SCD-legal foods. Wish me luck, Sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2006 Report Share Posted January 28, 2006 Thanks Agape, yes I am on the BIA4KIDS group too. only had one small cluster of seizures today vs. 3-4, so along with the poop, I am very happy. Re: To Fay and Hey, Sharon Are you also in the BIA4KIDS group? You sound familiar. I'm praying for you and your little guy to make significant progress on this diet. It has been helpful for my son. Agape, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2006 Report Share Posted January 28, 2006 > > I know there is a member from this list (may not be currently posting) who > had her daughter on the keto diet for a severe seizure disorder. She had to > stop because of the side effects and found that SCD was as, if not more, > effective with seizure control. Maybe someone here can remember who it was? > I don't know if they would be willing to share their experience but it might > be helpful. > > Robbie > That was Pay Dubuvric and daughter Katera. Carol F. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2006 Report Share Posted January 28, 2006 > > I know there is a member from this list (may not be currently posting) who > had her daughter on the keto diet for a severe seizure disorder. She had to > stop because of the side effects and found that SCD was as, if not more, > effective with seizure control. Maybe someone here can remember who it was? > I don't know if they would be willing to share their experience but it might > be helpful. > > Robbie > That was Pay Dubuvric and daughter Katera. Carol F. Quote Link to comment Share on other sites More sharing options...
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