Re: pancrecarb--any users?

Posted October 27, 2002 · October 27, 2002

can you try to use antispasmodic herbs in teas to calm down the pain in his

tummy

pancrecarb--any users?

We are considering using pancrecarb for our son who eats exclusively

via g-tube. This has some other medications in it that we already

take such as prilosec and ursodial. Does anyone else use this

medication and did it fully replace the use of prilosec (or

zantac?)? It seems to be taking forever for our dietician to get

back to us on this one.

Posted October 27, 2002 · October 27, 2002

We use Pancrecarb (though Jake does not have a G tube). We never did use

reflux meds but I think we were heading down that path. Jake no longer

suffers from reflux or the awful digestion that he had while on Creon

(lots of painful gas, acidic poops that burned his bottom).

)O(

mama to , 2yo, wCF and alpha-1

and to , 4 yo, w/alpha-1 but no CF

pancrecarb--any users?

We are considering using pancrecarb for our son who eats exclusively

via g-tube. This has some other medications in it that we already

take such as prilosec and ursodial. Does anyone else use this

medication and did it fully replace the use of prilosec (or

zantac?)? It seems to be taking forever for our dietician to get

back to us on this one.

Posted October 27, 2002 · October 27, 2002

We use Pancrecarb (though Jake does not have a G tube). We never did use

reflux meds but I think we were heading down that path. Jake no longer

suffers from reflux or the awful digestion that he had while on Creon

(lots of painful gas, acidic poops that burned his bottom).

)O(

mama to , 2yo, wCF and alpha-1

and to , 4 yo, w/alpha-1 but no CF

pancrecarb--any users?

We are considering using pancrecarb for our son who eats exclusively

via g-tube. This has some other medications in it that we already

take such as prilosec and ursodial. Does anyone else use this

medication and did it fully replace the use of prilosec (or

zantac?)? It seems to be taking forever for our dietician to get

back to us on this one.

Posted October 27, 2002 · October 27, 2002

Speaking of antacids - when my daughter was first

diagnosed she was put on Zantac 3x day. Then her GI put

her on a special preparation of Prevacid in a syrup.

Advantages:

Just 1 dose of 2mls per day (every 24 hrs)

No gas, no diaper rash, or tummy aches -just make sure

you don't miss a dose.

Disadvantages:

The pharmacy has to make it special and so it can take a

few days to refill, (and sometimes the pharmacists moan

and groan a little.)

The preparation has to be refrigerated, it lasts only 30

days, and separates like crazy so you really have to

shake it well.

- mom of three (6 yrs, 4 yrs w/o CF, 10 months

w/CF)

> can you try to use antispasmodic herbs in teas to calm down the pain in his

> tummy

> pancrecarb--any users?

>

> We are considering using pancrecarb for our son who eats exclusively

> via g-tube. This has some other medications in it that we already

> take such as prilosec and ursodial. Does anyone else use this

> medication and did it fully replace the use of prilosec (or

> zantac?)? It seems to be taking forever for our dietician to get

> back to us on this one.

>

Posted October 27, 2002 · October 27, 2002

Oh, thanks, he is fine now, though. The enzyme change did the trick. Or