Guest guest Posted March 21, 2002 Report Share Posted March 21, 2002 Majorie, I was diagnosed with (first) perioral dermatitis and then rosacea by two different derms and my GP. All of them seemed to be lumping these diagnoses into one category and applying the same treatment protocol. It appears that raw tomatoes, raw onions and all gluten-containing foods and cosmetics are what make me flush and breakout. When I told my current derm this, he said " oh yeah, that could do it too " . I was refered to an allergist and was refused by his nurse (over the phone) because I'm not having a life-threatening allergy. If I avoid these foods, I'm relieved of a host of physical complaints, and my skin stays (mostly) clear. The swelling across my cheeks and nose have disappeared. I'm most battling the red marks my breakouts have left behind. I never thought I had (what I've seen/read about) classic rosacea, but each of the doctors jumped to that conclusion without exploring other possibilities or asking about symptoms in any other part of my body (and there were some good ones... I was seeing a GI specialist at the same time). I think this is, in part, because my local health care (in No. California) has become very insurance-driven. I'm sure the allergist knew that my HMO wouldn't pay for allergy testing, and the derms knew the HMO would want to know why they didn't treat me for rosacea before jumping to other testing. As of last year, my HMO was offering doctors a end-of-year bonus for NOT referring patients for additional testing. I think that's still true. Please understand, it's not my intent to diagnose anyone over the internet, and I think the group participants I've communicated with in the past year would agree, but I stand by what I was intending in my previous post -- there are some symptoms that are not part of " classic " rosacea and really shouldn't be ignored. I look at it this way -- if my child called from college and said his lips and eyes were swollen and his face was burning, I'd suggest he find a doctor, fast. If he was wheezing or having other trouble breathing, I'd suggest he call 911. Of course, the other question is why do I stick around on the list if I'm 95% certain I don't have " classic " rosacea? Because I'm convinced many list participants don't have it either, and they need to hear that there are other possibilities... it may save them time, money, and frustration. Suzi __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2002 Report Share Posted March 21, 2002 Majorie, I was diagnosed with (first) perioral dermatitis and then rosacea by two different derms and my GP. All of them seemed to be lumping these diagnoses into one category and applying the same treatment protocol. It appears that raw tomatoes, raw onions and all gluten-containing foods and cosmetics are what make me flush and breakout. When I told my current derm this, he said " oh yeah, that could do it too " . I was refered to an allergist and was refused by his nurse (over the phone) because I'm not having a life-threatening allergy. If I avoid these foods, I'm relieved of a host of physical complaints, and my skin stays (mostly) clear. The swelling across my cheeks and nose have disappeared. I'm most battling the red marks my breakouts have left behind. I never thought I had (what I've seen/read about) classic rosacea, but each of the doctors jumped to that conclusion without exploring other possibilities or asking about symptoms in any other part of my body (and there were some good ones... I was seeing a GI specialist at the same time). I think this is, in part, because my local health care (in No. California) has become very insurance-driven. I'm sure the allergist knew that my HMO wouldn't pay for allergy testing, and the derms knew the HMO would want to know why they didn't treat me for rosacea before jumping to other testing. As of last year, my HMO was offering doctors a end-of-year bonus for NOT referring patients for additional testing. I think that's still true. Please understand, it's not my intent to diagnose anyone over the internet, and I think the group participants I've communicated with in the past year would agree, but I stand by what I was intending in my previous post -- there are some symptoms that are not part of " classic " rosacea and really shouldn't be ignored. I look at it this way -- if my child called from college and said his lips and eyes were swollen and his face was burning, I'd suggest he find a doctor, fast. If he was wheezing or having other trouble breathing, I'd suggest he call 911. Of course, the other question is why do I stick around on the list if I'm 95% certain I don't have " classic " rosacea? Because I'm convinced many list participants don't have it either, and they need to hear that there are other possibilities... it may save them time, money, and frustration. Suzi __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2002 Report Share Posted March 21, 2002 Majorie, I was diagnosed with (first) perioral dermatitis and then rosacea by two different derms and my GP. All of them seemed to be lumping these diagnoses into one category and applying the same treatment protocol. It appears that raw tomatoes, raw onions and all gluten-containing foods and cosmetics are what make me flush and breakout. When I told my current derm this, he said " oh yeah, that could do it too " . I was refered to an allergist and was refused by his nurse (over the phone) because I'm not having a life-threatening allergy. If I avoid these foods, I'm relieved of a host of physical complaints, and my skin stays (mostly) clear. The swelling across my cheeks and nose have disappeared. I'm most battling the red marks my breakouts have left behind. I never thought I had (what I've seen/read about) classic rosacea, but each of the doctors jumped to that conclusion without exploring other possibilities or asking about symptoms in any other part of my body (and there were some good ones... I was seeing a GI specialist at the same time). I think this is, in part, because my local health care (in No. California) has become very insurance-driven. I'm sure the allergist knew that my HMO wouldn't pay for allergy testing, and the derms knew the HMO would want to know why they didn't treat me for rosacea before jumping to other testing. As of last year, my HMO was offering doctors a end-of-year bonus for NOT referring patients for additional testing. I think that's still true. Please understand, it's not my intent to diagnose anyone over the internet, and I think the group participants I've communicated with in the past year would agree, but I stand by what I was intending in my previous post -- there are some symptoms that are not part of " classic " rosacea and really shouldn't be ignored. I look at it this way -- if my child called from college and said his lips and eyes were swollen and his face was burning, I'd suggest he find a doctor, fast. If he was wheezing or having other trouble breathing, I'd suggest he call 911. Of course, the other question is why do I stick around on the list if I'm 95% certain I don't have " classic " rosacea? Because I'm convinced many list participants don't have it either, and they need to hear that there are other possibilities... it may save them time, money, and frustration. Suzi __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2002 Report Share Posted March 22, 2002 I am one of those that probably do not have " classic " rosacea. I have had the red face and flares for many years. My skin is now extremely sensitive. I also have been diagnosed by 2 GPs and a GI specialist with IBS. I have many allergies, but have never seen an allergist. I have just treated the symptoms. I have learned so much from this group. I especially appreciate Suzi's posts because they seem to apply to my situation. --- Suzi LeBaron suzi_lebaron@...> wrote: > Majorie, > > I was diagnosed with (first) perioral dermatitis and > then rosacea by two different derms and my GP. All > of > them seemed to be lumping these diagnoses into one > category and applying the same treatment protocol. > > It appears that raw tomatoes, raw onions and all > gluten-containing foods and cosmetics are what make > me > flush and breakout. When I told my current derm > this, > he said " oh yeah, that could do it too " . I was > refered > to an allergist and was refused by his nurse (over > the > phone) because I'm not having a life-threatening > allergy. > > If I avoid these foods, I'm relieved of a host of > physical complaints, and my skin stays (mostly) > clear. > The swelling across my cheeks and nose have > disappeared. I'm most battling the red marks my > breakouts have left behind. > > I never thought I had (what I've seen/read about) > classic rosacea, but each of the doctors jumped to > that conclusion without exploring other > possibilities > or asking about symptoms in any other part of my > body > (and there were some good ones... I was seeing a GI > specialist at the same time). > > I think this is, in part, because my local health > care > (in No. California) has become very > insurance-driven. > I'm sure the allergist knew that my HMO wouldn't pay > for allergy testing, and the derms knew the HMO > would > want to know why they didn't treat me for rosacea > before jumping to other testing. As of last year, my > HMO was offering doctors a end-of-year bonus for NOT > referring patients for additional testing. I think > that's still true. > > Please understand, it's not my intent to diagnose > anyone over the internet, and I think the group > participants I've communicated with in the past year > would agree, but I stand by what I was intending in > my > previous post -- there are some symptoms that are > not > part of " classic " rosacea and really shouldn't be > ignored. > > I look at it this way -- if my child called from > college and said his lips and eyes were swollen and > his face was burning, I'd suggest he find a doctor, > fast. If he was wheezing or having other trouble > breathing, I'd suggest he call 911. > > Of course, the other question is why do I stick > around > on the list if I'm 95% certain I don't have > " classic " > rosacea? Because I'm convinced many list > participants > don't have it either, and they need to hear that > there > are other possibilities... it may save them time, > money, and frustration. > > Suzi > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
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