Guest guest Posted March 15, 2006 Report Share Posted March 15, 2006 On Thu, 16 Mar 2006 00:51:03 -0000 kumadexmom no_reply > writes: > I am a newbie and read on this site for information. I also post > once in a while hoping for some quick answers from some people more > knowledgeable than myself about this diet. > > I have read BTVC several times and keep it on my desk - - opened, > usually - - and refer to it often. I have perused many websites > including Elaine's and am a member of a couple of groups relating to > > the SCD. > > In dealing with a mercury poisoned, highly allergic, non-sleeping, > high needs 11 month old, (and her 2-yr. old sister) I often forget > things I may have read. (I, too, have a mercury poisoned brain that > > I am trying to heal as well.) As a graduate student once, I could > remember many things. Not so much anymore. Instead my brain is > filled with worry for my daughter. I spend every single free second > > reading and studying in the hopes of finding something that will > help her before she is diagnosed with ASD. So . .. I apologize for > sometimes asking a " newbie " question. > > Twice, I have asked questions only to be mocked or replied to in a > less-than-informative manner. Perhaps this is just the personality > of some of the members of this group. However, other newbies > (myself included) may be able to educate someone else through what > we learn here and an answer like " NO " does not feel like a response > meant to educate or support. > > Am I wrong in assuming that this group is for education and > support? > ~Terri > NEWBIE SCD WEEK 6 You are definitely not wrong. I recently unsubbed from a thyroid support group I'm on for about a month or so as my computer time will be limited till then. Some of the long time members, who frequently deal with newbies, have made a request analogous to what you face, to familiarize yourself with BTVC (or in the case of the thyroid group, the homepage that has some excellent links for newbies). Before unsubbing, I made the case that members with clarity should find the patience to answer newbies' questions, in addition to referring them to good sources. I believe that this is especially important - so much so that I consider myself one of those long time members who could answer with (almost) the same level of clarity that Carol, Sheila, Summer, Gay (and my apologies, I must stop here) do here. BUT... There is somewhat of a difference between the thyroid disorder (hyperthyroidism/Graves) and the conditions leading us to SCD. In the case of thyroid disorder, patients may be steered to appropriate treatment, but are not given adequate or correct info. Reading links on the homepage usually raises more questions than answers because of the conflicting info of what too many drs tell their patients vs. what is truly in the patients' best interests. In the case of SCD, most of us were given NO direction, NO info about it, and have no preconceived notions that need to be corrected. I think there is great value in reminding people here of the need to become familiar with the book and website. I do remember one or two questions (not sure if they were yours) recently that were answered fairly tersely, but they seemed like yes or no questions to me. And yet, the BTVC book is very concise, to the degree of not being clear or having detailed info on a number of things - like yogurt, e.g. While the website may have many answers to our questions, it doesn't have them all, and I hope that no one here feels discouraged from asking questions. As the saying goes, the only stupid question is the one that isn't answered. I feel confident that the old timers, and newer people, as they gain clarity, will continue to participate with the patience and thoughtfulness I've been privileged to see till now. Take care, Fay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2006 Report Share Posted March 15, 2006 On Thu, 16 Mar 2006 00:51:03 -0000 kumadexmom no_reply > writes: > I am a newbie and read on this site for information. I also post > once in a while hoping for some quick answers from some people more > knowledgeable than myself about this diet. > > I have read BTVC several times and keep it on my desk - - opened, > usually - - and refer to it often. I have perused many websites > including Elaine's and am a member of a couple of groups relating to > > the SCD. > > In dealing with a mercury poisoned, highly allergic, non-sleeping, > high needs 11 month old, (and her 2-yr. old sister) I often forget > things I may have read. (I, too, have a mercury poisoned brain that > > I am trying to heal as well.) As a graduate student once, I could > remember many things. Not so much anymore. Instead my brain is > filled with worry for my daughter. I spend every single free second > > reading and studying in the hopes of finding something that will > help her before she is diagnosed with ASD. So . .. I apologize for > sometimes asking a " newbie " question. > > Twice, I have asked questions only to be mocked or replied to in a > less-than-informative manner. Perhaps this is just the personality > of some of the members of this group. However, other newbies > (myself included) may be able to educate someone else through what > we learn here and an answer like " NO " does not feel like a response > meant to educate or support. > > Am I wrong in assuming that this group is for education and > support? > ~Terri > NEWBIE SCD WEEK 6 You are definitely not wrong. I recently unsubbed from a thyroid support group I'm on for about a month or so as my computer time will be limited till then. Some of the long time members, who frequently deal with newbies, have made a request analogous to what you face, to familiarize yourself with BTVC (or in the case of the thyroid group, the homepage that has some excellent links for newbies). Before unsubbing, I made the case that members with clarity should find the patience to answer newbies' questions, in addition to referring them to good sources. I believe that this is especially important - so much so that I consider myself one of those long time members who could answer with (almost) the same level of clarity that Carol, Sheila, Summer, Gay (and my apologies, I must stop here) do here. BUT... There is somewhat of a difference between the thyroid disorder (hyperthyroidism/Graves) and the conditions leading us to SCD. In the case of thyroid disorder, patients may be steered to appropriate treatment, but are not given adequate or correct info. Reading links on the homepage usually raises more questions than answers because of the conflicting info of what too many drs tell their patients vs. what is truly in the patients' best interests. In the case of SCD, most of us were given NO direction, NO info about it, and have no preconceived notions that need to be corrected. I think there is great value in reminding people here of the need to become familiar with the book and website. I do remember one or two questions (not sure if they were yours) recently that were answered fairly tersely, but they seemed like yes or no questions to me. And yet, the BTVC book is very concise, to the degree of not being clear or having detailed info on a number of things - like yogurt, e.g. While the website may have many answers to our questions, it doesn't have them all, and I hope that no one here feels discouraged from asking questions. As the saying goes, the only stupid question is the one that isn't answered. I feel confident that the old timers, and newer people, as they gain clarity, will continue to participate with the patience and thoughtfulness I've been privileged to see till now. Take care, Fay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2006 Report Share Posted March 15, 2006 On Thu, 16 Mar 2006 00:51:03 -0000 kumadexmom no_reply > writes: > I am a newbie and read on this site for information. I also post > once in a while hoping for some quick answers from some people more > knowledgeable than myself about this diet. > > I have read BTVC several times and keep it on my desk - - opened, > usually - - and refer to it often. I have perused many websites > including Elaine's and am a member of a couple of groups relating to > > the SCD. > > In dealing with a mercury poisoned, highly allergic, non-sleeping, > high needs 11 month old, (and her 2-yr. old sister) I often forget > things I may have read. (I, too, have a mercury poisoned brain that > > I am trying to heal as well.) As a graduate student once, I could > remember many things. Not so much anymore. Instead my brain is > filled with worry for my daughter. I spend every single free second > > reading and studying in the hopes of finding something that will > help her before she is diagnosed with ASD. So . .. I apologize for > sometimes asking a " newbie " question. > > Twice, I have asked questions only to be mocked or replied to in a > less-than-informative manner. Perhaps this is just the personality > of some of the members of this group. However, other newbies > (myself included) may be able to educate someone else through what > we learn here and an answer like " NO " does not feel like a response > meant to educate or support. > > Am I wrong in assuming that this group is for education and > support? > ~Terri > NEWBIE SCD WEEK 6 You are definitely not wrong. I recently unsubbed from a thyroid support group I'm on for about a month or so as my computer time will be limited till then. Some of the long time members, who frequently deal with newbies, have made a request analogous to what you face, to familiarize yourself with BTVC (or in the case of the thyroid group, the homepage that has some excellent links for newbies). Before unsubbing, I made the case that members with clarity should find the patience to answer newbies' questions, in addition to referring them to good sources. I believe that this is especially important - so much so that I consider myself one of those long time members who could answer with (almost) the same level of clarity that Carol, Sheila, Summer, Gay (and my apologies, I must stop here) do here. BUT... There is somewhat of a difference between the thyroid disorder (hyperthyroidism/Graves) and the conditions leading us to SCD. In the case of thyroid disorder, patients may be steered to appropriate treatment, but are not given adequate or correct info. Reading links on the homepage usually raises more questions than answers because of the conflicting info of what too many drs tell their patients vs. what is truly in the patients' best interests. In the case of SCD, most of us were given NO direction, NO info about it, and have no preconceived notions that need to be corrected. I think there is great value in reminding people here of the need to become familiar with the book and website. I do remember one or two questions (not sure if they were yours) recently that were answered fairly tersely, but they seemed like yes or no questions to me. And yet, the BTVC book is very concise, to the degree of not being clear or having detailed info on a number of things - like yogurt, e.g. While the website may have many answers to our questions, it doesn't have them all, and I hope that no one here feels discouraged from asking questions. As the saying goes, the only stupid question is the one that isn't answered. I feel confident that the old timers, and newer people, as they gain clarity, will continue to participate with the patience and thoughtfulness I've been privileged to see till now. Take care, Fay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2006 Report Share Posted March 15, 2006 Terri, I'm sorry that the list hasn't been as supportive as it could be. I know that pecanbread.com doesn't have the best search engine. Maybe someday we will get some funding from somewhere and we will be able to pay for a better one for the website. As it is now, one mom pays for the website to stay up each month (not a lot of money, but nonetheless coming out of her own pocket) since pecanbread.com doesn't generate any revenue. Sheila and I are the moderators of the list. The list is generating over 100 e-mails a day right now, plus each of us receives a fair number of private e-mails relating to the diet as well. If you think about it, if we spend even 1 minute reading each e-mail, we would spend nearly 2 hours a day just reading the SCD related e-mails. And then add on top of that the time it takes to write a reply, both to the list questions and the private e-mails. The list is unmoderated, meaning that any member can post. So, while we do our best to make sure that people remain helpful and friendly, we don't actually have control over what people post. I hope your post to the list gives people a little reminder to be polite. E-mail is a difficult medium to use at times because tone of voice cannot be determined. Sometimes feelings get hurt, but no one intended to be " gruff " . It just came across that way in writing. Hopefully what I have written will also help you to see why some members of the list constantly remind people to look on Elaine's website, the BTVC book and the pecanbread.com website. Many times the answers can be found, but sometimes not. I do hope you'll stay on the list. I do want it to be a place of mutual support and hope. Kids are getting better. It's fantastic and amazing that a change in diet could make such a difference! Jody mom to -7 and -9 SCD 1/03 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2006 Report Share Posted March 15, 2006 Aww, I am sorry. This list is for education and support. I know I am guilty of frequently telling people to read or reread BTVC, because, either an exact particular that doesn't pertain to my family is in there I don't remember, my copy is usually out on loan, and then, the whole point of SCD itself. Everytime I read BTVC I understand more. Elaine really had an incredible viewpoint, and everytime I read the book, I think of something else it pertains to. The concepts seem simple at first, but they are well thought out and Elaine is a genius. I am just another parent on this list, I am not a moderator, too. Sometimes, when there are a whole bunch of posts, and I can't get to them all, but I want to help if I can, I personally do not always realize how much a person knows/does not know, so I refer them to the book again, if I think the information or idea is there. I hope you feel every bit a part of this community as any of us here. And I hope if it was me referring you to the book, you take it with a grain of salt. I think it is very hard to communicate at times using the internet with people you do not know, the sound of the conversation, the inflection just is not there. More than once, a few of us here have run into these same snafus with each other! I am glad you spoke up with the way you are feeling, because I do not believe anyone for a minute would not want you here, or support you, or help you in any way possible. Good for you, on week 6 SCD! I wish you every success and hope to see you comfortable here! Summer kumadexmom no_reply > wrote: I am a newbie and read on this site for information. I also post once in a while hoping for some quick answers from some people more knowledgeable than myself about this diet. I have read BTVC several times and keep it on my desk - - opened, usually - - and refer to it often. I have perused many websites including Elaine's and am a member of a couple of groups relating to the SCD. In dealing with a mercury poisoned, highly allergic, non-sleeping, high needs 11 month old, (and her 2-yr. old sister) I often forget things I may have read. (I, too, have a mercury poisoned brain that I am trying to heal as well.) As a graduate student once, I could remember many things. Not so much anymore. Instead my brain is filled with worry for my daughter. I spend every single free second reading and studying in the hopes of finding something that will help her before she is diagnosed with ASD. So . .. I apologize for sometimes asking a " newbie " question. Twice, I have asked questions only to be mocked or replied to in a less-than-informative manner. Perhaps this is just the personality of some of the members of this group. However, other newbies (myself included) may be able to educate someone else through what we learn here and an answer like " NO " does not feel like a response meant to educate or support. Am I wrong in assuming that this group is for education and support? ~Terri NEWBIE SCD WEEK 6 --------------------------------- Yahoo! Mail Bring photos to life! New PhotoMail makes sharing a breeze. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2006 Report Share Posted March 15, 2006 Aww, I am sorry. This list is for education and support. I know I am guilty of frequently telling people to read or reread BTVC, because, either an exact particular that doesn't pertain to my family is in there I don't remember, my copy is usually out on loan, and then, the whole point of SCD itself. Everytime I read BTVC I understand more. Elaine really had an incredible viewpoint, and everytime I read the book, I think of something else it pertains to. The concepts seem simple at first, but they are well thought out and Elaine is a genius. I am just another parent on this list, I am not a moderator, too. Sometimes, when there are a whole bunch of posts, and I can't get to them all, but I want to help if I can, I personally do not always realize how much a person knows/does not know, so I refer them to the book again, if I think the information or idea is there. I hope you feel every bit a part of this community as any of us here. And I hope if it was me referring you to the book, you take it with a grain of salt. I think it is very hard to communicate at times using the internet with people you do not know, the sound of the conversation, the inflection just is not there. More than once, a few of us here have run into these same snafus with each other! I am glad you spoke up with the way you are feeling, because I do not believe anyone for a minute would not want you here, or support you, or help you in any way possible. Good for you, on week 6 SCD! I wish you every success and hope to see you comfortable here! Summer kumadexmom no_reply > wrote: I am a newbie and read on this site for information. I also post once in a while hoping for some quick answers from some people more knowledgeable than myself about this diet. I have read BTVC several times and keep it on my desk - - opened, usually - - and refer to it often. I have perused many websites including Elaine's and am a member of a couple of groups relating to the SCD. In dealing with a mercury poisoned, highly allergic, non-sleeping, high needs 11 month old, (and her 2-yr. old sister) I often forget things I may have read. (I, too, have a mercury poisoned brain that I am trying to heal as well.) As a graduate student once, I could remember many things. Not so much anymore. Instead my brain is filled with worry for my daughter. I spend every single free second reading and studying in the hopes of finding something that will help her before she is diagnosed with ASD. So . .. I apologize for sometimes asking a " newbie " question. Twice, I have asked questions only to be mocked or replied to in a less-than-informative manner. Perhaps this is just the personality of some of the members of this group. However, other newbies (myself included) may be able to educate someone else through what we learn here and an answer like " NO " does not feel like a response meant to educate or support. Am I wrong in assuming that this group is for education and support? ~Terri NEWBIE SCD WEEK 6 --------------------------------- Yahoo! Mail Bring photos to life! New PhotoMail makes sharing a breeze. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2006 Report Share Posted March 16, 2006 > > > > On Thu, 16 Mar 2006 00:51:03 -0000 kumadexmom no_reply > > writes: > > I am a newbie and read on this site for information. I also post > > once in a while hoping for some quick answers from some people more > > knowledgeable than myself about this diet. > > > > I have read BTVC several times and keep it on my desk - - opened, > > usually - - and refer to it often. I have perused many websites > > including Elaine's and am a member of a couple of groups relating to > > Upon joining Pecanbread, new members are asked to read the book and check the sites, but when they do not, a reminder is in order. If someone has a comprehension problem and needs extra help, it need only be stated as you have done. The majority will benefit by reading the book,using the index and the search features on the site then if answers are not forthcoming we are here to help each other, I frequently cut and paste the item from our files when people are waiting for their book to arrive or just window shopping the diet and want questions answered that they do not check first. After six years on SCD, I have to refer to the book and web sites every day or research the Inernet because there are rules with exceptions and of course people want to know more than " yes " or " no " they want reasons. Another example is the challenging person who wants to know why they should go on the diet. The book and sites give substantial answers. How many of us would expect to sign up for a course, ask quesions in class and announce they don't have the textbook or haven't read it. We are approaching the 2300 mark in our membership. It is mostly newcomers that post actively but at one time or another almost everyone needed help on the list. When someone asks how to make yogurt and there it is in photos on the website, You can appreciate it is logical to make the referral. Veterans also get questions by private email. We ask that people check the archives. Typically someone will bring up a topic that was discussed in detail only days before. It should not be required to address it in total again. Some questions are either complicated or don't have definitive " one size fits all " answers, like the mercury question. Who mocked you? As for " quick " answers, it is all well and good to expect them but those who help on the list can really get swamped. It has often been noted that we really are fast with answers. Typical urgency springs from, " Should I throw out this batch of yogurt? I need to know right now. " SCD is going to require a lot of patience. All that said, who can fail to realize that autism parents not only have the challenges posed by their children but also have their own problems to deal with. I will continue to recommend reading the book and checking the web sites when it seems appropriate. Just as it's fine to say " I've read the book and checked the sites but did not find the answer. Can someone help? " Do not take it personally please. Carol F. SCD 6 years, celiac Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2006 Report Share Posted March 16, 2006 > > > > On Thu, 16 Mar 2006 00:51:03 -0000 kumadexmom no_reply > > writes: > > I am a newbie and read on this site for information. I also post > > once in a while hoping for some quick answers from some people more > > knowledgeable than myself about this diet. > > > > I have read BTVC several times and keep it on my desk - - opened, > > usually - - and refer to it often. I have perused many websites > > including Elaine's and am a member of a couple of groups relating to > > Upon joining Pecanbread, new members are asked to read the book and check the sites, but when they do not, a reminder is in order. If someone has a comprehension problem and needs extra help, it need only be stated as you have done. The majority will benefit by reading the book,using the index and the search features on the site then if answers are not forthcoming we are here to help each other, I frequently cut and paste the item from our files when people are waiting for their book to arrive or just window shopping the diet and want questions answered that they do not check first. After six years on SCD, I have to refer to the book and web sites every day or research the Inernet because there are rules with exceptions and of course people want to know more than " yes " or " no " they want reasons. Another example is the challenging person who wants to know why they should go on the diet. The book and sites give substantial answers. How many of us would expect to sign up for a course, ask quesions in class and announce they don't have the textbook or haven't read it. We are approaching the 2300 mark in our membership. It is mostly newcomers that post actively but at one time or another almost everyone needed help on the list. When someone asks how to make yogurt and there it is in photos on the website, You can appreciate it is logical to make the referral. Veterans also get questions by private email. We ask that people check the archives. Typically someone will bring up a topic that was discussed in detail only days before. It should not be required to address it in total again. Some questions are either complicated or don't have definitive " one size fits all " answers, like the mercury question. Who mocked you? As for " quick " answers, it is all well and good to expect them but those who help on the list can really get swamped. It has often been noted that we really are fast with answers. Typical urgency springs from, " Should I throw out this batch of yogurt? I need to know right now. " SCD is going to require a lot of patience. All that said, who can fail to realize that autism parents not only have the challenges posed by their children but also have their own problems to deal with. I will continue to recommend reading the book and checking the web sites when it seems appropriate. Just as it's fine to say " I've read the book and checked the sites but did not find the answer. Can someone help? " Do not take it personally please. Carol F. SCD 6 years, celiac Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2006 Report Share Posted March 16, 2006 > > > > On Thu, 16 Mar 2006 00:51:03 -0000 kumadexmom no_reply > > writes: > > I am a newbie and read on this site for information. I also post > > once in a while hoping for some quick answers from some people more > > knowledgeable than myself about this diet. > > > > I have read BTVC several times and keep it on my desk - - opened, > > usually - - and refer to it often. I have perused many websites > > including Elaine's and am a member of a couple of groups relating to > > Upon joining Pecanbread, new members are asked to read the book and check the sites, but when they do not, a reminder is in order. If someone has a comprehension problem and needs extra help, it need only be stated as you have done. The majority will benefit by reading the book,using the index and the search features on the site then if answers are not forthcoming we are here to help each other, I frequently cut and paste the item from our files when people are waiting for their book to arrive or just window shopping the diet and want questions answered that they do not check first. After six years on SCD, I have to refer to the book and web sites every day or research the Inernet because there are rules with exceptions and of course people want to know more than " yes " or " no " they want reasons. Another example is the challenging person who wants to know why they should go on the diet. The book and sites give substantial answers. How many of us would expect to sign up for a course, ask quesions in class and announce they don't have the textbook or haven't read it. We are approaching the 2300 mark in our membership. It is mostly newcomers that post actively but at one time or another almost everyone needed help on the list. When someone asks how to make yogurt and there it is in photos on the website, You can appreciate it is logical to make the referral. Veterans also get questions by private email. We ask that people check the archives. Typically someone will bring up a topic that was discussed in detail only days before. It should not be required to address it in total again. Some questions are either complicated or don't have definitive " one size fits all " answers, like the mercury question. Who mocked you? As for " quick " answers, it is all well and good to expect them but those who help on the list can really get swamped. It has often been noted that we really are fast with answers. Typical urgency springs from, " Should I throw out this batch of yogurt? I need to know right now. " SCD is going to require a lot of patience. All that said, who can fail to realize that autism parents not only have the challenges posed by their children but also have their own problems to deal with. I will continue to recommend reading the book and checking the web sites when it seems appropriate. Just as it's fine to say " I've read the book and checked the sites but did not find the answer. Can someone help? " Do not take it personally please. Carol F. SCD 6 years, celiac Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2006 Report Share Posted March 16, 2006 From: pecanbread [mailto:pecanbread ] On Behalf Of Jody G. Sent: Wednesday, March 15, 2006 11:28 PM To: pecanbread Subject: Re: Totally OT " I know that pecanbread.com doesn't have the best search engine. " _____ The Google Toolbar (http://toolbar.google.com/) allows you to search 'within a web site.' Even if a web site already has a Search feature, the feature on the Google Toolbar that searches within a web site often works much better. I use it all the time. It's free to download. Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2006 Report Share Posted March 16, 2006 Thanks for letting us know about that feature (google toolbar). I've looked into other more powerful search engines to use on the website, but they all cost money. If anyone out there would like to be a sponsor for a better search engine, let me know. But in the meantime, perhaps using the google toolbar search feature will allow a more thorough search of the website. Jody mom to -7 and -9 SCD 1/03 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2006 Report Share Posted March 16, 2006 Me too, Terri what Gertrude said. Gertrude Snicklegrove hunterdrake2001@...> wrote: Aww, I am sorry. This list is for education and support. I know I am guilty of frequently telling people to read or reread BTVC, because, either an exact particular that doesn't pertain to my family is in there I don't remember, my copy is usually out on loan, and then, the whole point of SCD itself. Everytime I read BTVC I understand more. Elaine really had an incredible viewpoint, and everytime I read the book, I think of something else it pertains to. The concepts seem simple at first, but they are well thought out and Elaine is a genius. I am just another parent on this list, I am not a moderator, too. Sometimes, when there are a whole bunch of posts, and I can't get to them all, but I want to help if I can, I personally do not always realize how much a person knows/does not know, so I refer them to the book again, if I think the information or idea is there. I hope you feel every bit a part of this community as any of us here. And I hope if it was me referring you to the book, you take it with a grain of salt. I think it is very hard to communicate at times using the internet with people you do not know, the sound of the conversation, the inflection just is not there. More than once, a few of us here have run into these same snafus with each other! I am glad you spoke up with the way you are feeling, because I do not believe anyone for a minute would not want you here, or support you, or help you in any way possible. Good for you, on week 6 SCD! I wish you every success and hope to see you comfortable here! Summer kumadexmom no_reply > wrote: I am a newbie and read on this site for information. I also post once in a while hoping for some quick answers from some people more knowledgeable than myself about this diet. I have read BTVC several times and keep it on my desk - - opened, usually - - and refer to it often. I have perused many websites including Elaine's and am a member of a couple of groups relating to the SCD. In dealing with a mercury poisoned, highly allergic, non-sleeping, high needs 11 month old, (and her 2-yr. old sister) I often forget things I may have read. (I, too, have a mercury poisoned brain that I am trying to heal as well.) As a graduate student once, I could remember many things. Not so much anymore. Instead my brain is filled with worry for my daughter. I spend every single free second reading and studying in the hopes of finding something that will help her before she is diagnosed with ASD. So . .. I apologize for sometimes asking a " newbie " question. Twice, I have asked questions only to be mocked or replied to in a less-than-informative manner. Perhaps this is just the personality of some of the members of this group. However, other newbies (myself included) may be able to educate someone else through what we learn here and an answer like " NO " does not feel like a response meant to educate or support. Am I wrong in assuming that this group is for education and support? ~Terri NEWBIE SCD WEEK 6 --------------------------------- Yahoo! Mail Bring photos to life! New PhotoMail makes sharing a breeze. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2006 Report Share Posted March 16, 2006 Me too, Terri what Gertrude said. Gertrude Snicklegrove hunterdrake2001@...> wrote: Aww, I am sorry. This list is for education and support. I know I am guilty of frequently telling people to read or reread BTVC, because, either an exact particular that doesn't pertain to my family is in there I don't remember, my copy is usually out on loan, and then, the whole point of SCD itself. Everytime I read BTVC I understand more. Elaine really had an incredible viewpoint, and everytime I read the book, I think of something else it pertains to. The concepts seem simple at first, but they are well thought out and Elaine is a genius. I am just another parent on this list, I am not a moderator, too. Sometimes, when there are a whole bunch of posts, and I can't get to them all, but I want to help if I can, I personally do not always realize how much a person knows/does not know, so I refer them to the book again, if I think the information or idea is there. I hope you feel every bit a part of this community as any of us here. And I hope if it was me referring you to the book, you take it with a grain of salt. I think it is very hard to communicate at times using the internet with people you do not know, the sound of the conversation, the inflection just is not there. More than once, a few of us here have run into these same snafus with each other! I am glad you spoke up with the way you are feeling, because I do not believe anyone for a minute would not want you here, or support you, or help you in any way possible. Good for you, on week 6 SCD! I wish you every success and hope to see you comfortable here! Summer kumadexmom no_reply > wrote: I am a newbie and read on this site for information. I also post once in a while hoping for some quick answers from some people more knowledgeable than myself about this diet. I have read BTVC several times and keep it on my desk - - opened, usually - - and refer to it often. I have perused many websites including Elaine's and am a member of a couple of groups relating to the SCD. In dealing with a mercury poisoned, highly allergic, non-sleeping, high needs 11 month old, (and her 2-yr. old sister) I often forget things I may have read. (I, too, have a mercury poisoned brain that I am trying to heal as well.) As a graduate student once, I could remember many things. Not so much anymore. Instead my brain is filled with worry for my daughter. I spend every single free second reading and studying in the hopes of finding something that will help her before she is diagnosed with ASD. So . .. I apologize for sometimes asking a " newbie " question. Twice, I have asked questions only to be mocked or replied to in a less-than-informative manner. Perhaps this is just the personality of some of the members of this group. However, other newbies (myself included) may be able to educate someone else through what we learn here and an answer like " NO " does not feel like a response meant to educate or support. Am I wrong in assuming that this group is for education and support? ~Terri NEWBIE SCD WEEK 6 --------------------------------- Yahoo! Mail Bring photos to life! New PhotoMail makes sharing a breeze. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2006 Report Share Posted March 16, 2006 Me too, Terri what Gertrude said. Gertrude Snicklegrove hunterdrake2001@...> wrote: Aww, I am sorry. This list is for education and support. I know I am guilty of frequently telling people to read or reread BTVC, because, either an exact particular that doesn't pertain to my family is in there I don't remember, my copy is usually out on loan, and then, the whole point of SCD itself. Everytime I read BTVC I understand more. Elaine really had an incredible viewpoint, and everytime I read the book, I think of something else it pertains to. The concepts seem simple at first, but they are well thought out and Elaine is a genius. I am just another parent on this list, I am not a moderator, too. Sometimes, when there are a whole bunch of posts, and I can't get to them all, but I want to help if I can, I personally do not always realize how much a person knows/does not know, so I refer them to the book again, if I think the information or idea is there. I hope you feel every bit a part of this community as any of us here. And I hope if it was me referring you to the book, you take it with a grain of salt. I think it is very hard to communicate at times using the internet with people you do not know, the sound of the conversation, the inflection just is not there. More than once, a few of us here have run into these same snafus with each other! I am glad you spoke up with the way you are feeling, because I do not believe anyone for a minute would not want you here, or support you, or help you in any way possible. Good for you, on week 6 SCD! I wish you every success and hope to see you comfortable here! Summer kumadexmom no_reply > wrote: I am a newbie and read on this site for information. I also post once in a while hoping for some quick answers from some people more knowledgeable than myself about this diet. I have read BTVC several times and keep it on my desk - - opened, usually - - and refer to it often. I have perused many websites including Elaine's and am a member of a couple of groups relating to the SCD. In dealing with a mercury poisoned, highly allergic, non-sleeping, high needs 11 month old, (and her 2-yr. old sister) I often forget things I may have read. (I, too, have a mercury poisoned brain that I am trying to heal as well.) As a graduate student once, I could remember many things. Not so much anymore. Instead my brain is filled with worry for my daughter. I spend every single free second reading and studying in the hopes of finding something that will help her before she is diagnosed with ASD. So . .. I apologize for sometimes asking a " newbie " question. Twice, I have asked questions only to be mocked or replied to in a less-than-informative manner. Perhaps this is just the personality of some of the members of this group. However, other newbies (myself included) may be able to educate someone else through what we learn here and an answer like " NO " does not feel like a response meant to educate or support. Am I wrong in assuming that this group is for education and support? ~Terri NEWBIE SCD WEEK 6 --------------------------------- Yahoo! Mail Bring photos to life! New PhotoMail makes sharing a breeze. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2006 Report Share Posted March 16, 2006 Hi Terri, I am a " super-newbie " here and thank you for your candid post. I hope that you'll remain on this group b/c I learn so much from your experience as well as your questions. I also want you to know that my heart goes out to you and your 11-month old who seems to be showing signs of ASD. I lost about 8 months worth of sleep worrying about Mia---and about 20 pounds! Everything you are doing to help her will NOT be in vain. Just think - by starting this early you may prevent sooo much damage and have her healed and rehabilitated! You are SO pro-active and your children are so lucky to have you. Hoping and praying for you and your family, Lynn - Mommy to Cameron 3.8 (ASD) SCD 30+ days and Mia Jean 18 months (with severe milk allergy and other intolerances, mostly SCD) ps - My daughter, Mia is in an Infant Sibling Study in a nearby university. Do you have something similar close by that you can get your daughter into? I imagine you have this part all sewn up, since you seem so knowledgeable about ASD... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2006 Report Share Posted March 16, 2006 Hi Terri, I am a " super-newbie " here and thank you for your candid post. I hope that you'll remain on this group b/c I learn so much from your experience as well as your questions. I also want you to know that my heart goes out to you and your 11-month old who seems to be showing signs of ASD. I lost about 8 months worth of sleep worrying about Mia---and about 20 pounds! Everything you are doing to help her will NOT be in vain. Just think - by starting this early you may prevent sooo much damage and have her healed and rehabilitated! You are SO pro-active and your children are so lucky to have you. Hoping and praying for you and your family, Lynn - Mommy to Cameron 3.8 (ASD) SCD 30+ days and Mia Jean 18 months (with severe milk allergy and other intolerances, mostly SCD) ps - My daughter, Mia is in an Infant Sibling Study in a nearby university. Do you have something similar close by that you can get your daughter into? I imagine you have this part all sewn up, since you seem so knowledgeable about ASD... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2006 Report Share Posted March 16, 2006 Hi Terri, I am a " super-newbie " here and thank you for your candid post. I hope that you'll remain on this group b/c I learn so much from your experience as well as your questions. I also want you to know that my heart goes out to you and your 11-month old who seems to be showing signs of ASD. I lost about 8 months worth of sleep worrying about Mia---and about 20 pounds! Everything you are doing to help her will NOT be in vain. Just think - by starting this early you may prevent sooo much damage and have her healed and rehabilitated! You are SO pro-active and your children are so lucky to have you. Hoping and praying for you and your family, Lynn - Mommy to Cameron 3.8 (ASD) SCD 30+ days and Mia Jean 18 months (with severe milk allergy and other intolerances, mostly SCD) ps - My daughter, Mia is in an Infant Sibling Study in a nearby university. Do you have something similar close by that you can get your daughter into? I imagine you have this part all sewn up, since you seem so knowledgeable about ASD... Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.