Guest guest Posted March 21, 2002 Report Share Posted March 21, 2002 Hmm, ok, I have a juicy emergency medical question Well... not really juicy.... and not really an emergency... but am curious nonetheless If I had a bad reaction to protopic, (too much irritation, much increased flushing, and a bit of a weird rash) is Elidel still something I may want to try for my Seb derm? Or are they closely enough related that I would have the same problem? Adam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2002 Report Share Posted March 21, 2002 Hmm, ok, I have a juicy emergency medical question Well... not really juicy.... and not really an emergency... but am curious nonetheless If I had a bad reaction to protopic, (too much irritation, much increased flushing, and a bit of a weird rash) is Elidel still something I may want to try for my Seb derm? Or are they closely enough related that I would have the same problem? Adam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2002 Report Share Posted March 21, 2002 Hmm, ok, I have a juicy emergency medical question Well... not really juicy.... and not really an emergency... but am curious nonetheless If I had a bad reaction to protopic, (too much irritation, much increased flushing, and a bit of a weird rash) is Elidel still something I may want to try for my Seb derm? Or are they closely enough related that I would have the same problem? Adam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2002 Report Share Posted March 21, 2002 I'm sorry, Bridget, but I don't have any suggestions for you beyond what I'm certain you've already tried: eliminating offending cosmetics and skin care products, nail polish and hand creams (a surprisingly common culprit for eye allergies), hair dye products, nickle-containing jewelry around the upper face, contact lens solution, laundry detergent, and pillow case/pillow materials. These allergies can be subtle so you have to really think them out. Assuming it's not an allergy but truly rosacea, whatever fluid accumulation occurs at night should drain off relatively quickly once you're up and moving about. The upper eyelids are the thinnest skin in the body -- which means it only takes a little bit of fluid to puff up eyelids quite dramatically. It's not uncommon to wake up with swollen eyes, but if they don't improve as the day progresses or you have other symptoms then you might want to be examined by an ophthalmologist. If you insist, a high pillow wedge that allows your upper body and head to be elevated as a unit at a slant may be more successful (and comfortable solution for your neck) than a high pillow, which will only elevate your head. Experiment so you don't defeat the whole purpose by sliding down in the middle of the night, to wake up in a little horizontal curl at the bottom of the wedge. But be aware that any posturing or unnaturally high pillow may help your eyes but interfere with a good quality sleep, which is inarguably the most important thing. It's not just convenience, Bridget, we all need good sleep. Geez, no one has a juicy emergency medicine question to ask, like about a ruptured globe or something? Don't take any of this as medical advice, it's not intended that way, and you are not my patient. You really need to discuss this with your doctor. I can't know if this is due to ocular rosacea or some other condition, and no one else on the Internet can either. Best of luck. Marjorie Marjorie Lazoff, MD > > Hi > > I'm not sure if anyone has any advice other than using high pillow but my edema is getting very extreme in the mornings. My eyes are nearly so puffed up they are shut and my cheeks are huge. Does anyone else have this? > > I thought about having two sleeps rather than one long one, pbviously this isn't that convenient but... > > The problem is I am not red when I wake up in fact very pale - although I feel hot if that makes sense. I just wonder if the vessels aren't dilated why are they leaking so much fluid. > > Can anyone help? > > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2002 Report Share Posted March 21, 2002 I'm sorry, Bridget, but I don't have any suggestions for you beyond what I'm certain you've already tried: eliminating offending cosmetics and skin care products, nail polish and hand creams (a surprisingly common culprit for eye allergies), hair dye products, nickle-containing jewelry around the upper face, contact lens solution, laundry detergent, and pillow case/pillow materials. These allergies can be subtle so you have to really think them out. Assuming it's not an allergy but truly rosacea, whatever fluid accumulation occurs at night should drain off relatively quickly once you're up and moving about. The upper eyelids are the thinnest skin in the body -- which means it only takes a little bit of fluid to puff up eyelids quite dramatically. It's not uncommon to wake up with swollen eyes, but if they don't improve as the day progresses or you have other symptoms then you might want to be examined by an ophthalmologist. If you insist, a high pillow wedge that allows your upper body and head to be elevated as a unit at a slant may be more successful (and comfortable solution for your neck) than a high pillow, which will only elevate your head. Experiment so you don't defeat the whole purpose by sliding down in the middle of the night, to wake up in a little horizontal curl at the bottom of the wedge. But be aware that any posturing or unnaturally high pillow may help your eyes but interfere with a good quality sleep, which is inarguably the most important thing. It's not just convenience, Bridget, we all need good sleep. Geez, no one has a juicy emergency medicine question to ask, like about a ruptured globe or something? Don't take any of this as medical advice, it's not intended that way, and you are not my patient. You really need to discuss this with your doctor. I can't know if this is due to ocular rosacea or some other condition, and no one else on the Internet can either. Best of luck. Marjorie Marjorie Lazoff, MD > > Hi > > I'm not sure if anyone has any advice other than using high pillow but my edema is getting very extreme in the mornings. My eyes are nearly so puffed up they are shut and my cheeks are huge. Does anyone else have this? > > I thought about having two sleeps rather than one long one, pbviously this isn't that convenient but... > > The problem is I am not red when I wake up in fact very pale - although I feel hot if that makes sense. I just wonder if the vessels aren't dilated why are they leaking so much fluid. > > Can anyone help? > > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2002 Report Share Posted March 21, 2002 Bridget, When my swelling was really bad, I would wake up to a really swollen face/ eyes/nose every morning. I was always the worst in the morning. I had no fluid in my face--my swelling was just from lying down for many hours. The hot skin would swell and there was no gravity to help it out. It was very frustrating, sometimes it would take the whole day to do down. Some days it would get better after a few hours. I found elevating my head helped a lot--I used two pillows. Waking up like that made me not want to sleep at all, or at least sleep less, but I soon found that getting enough sleep was more important. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2002 Report Share Posted March 21, 2002 Bridget, When my swelling was really bad, I would wake up to a really swollen face/ eyes/nose every morning. I was always the worst in the morning. I had no fluid in my face--my swelling was just from lying down for many hours. The hot skin would swell and there was no gravity to help it out. It was very frustrating, sometimes it would take the whole day to do down. Some days it would get better after a few hours. I found elevating my head helped a lot--I used two pillows. Waking up like that made me not want to sleep at all, or at least sleep less, but I soon found that getting enough sleep was more important. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2002 Report Share Posted March 21, 2002 Bridget, When my swelling was really bad, I would wake up to a really swollen face/ eyes/nose every morning. I was always the worst in the morning. I had no fluid in my face--my swelling was just from lying down for many hours. The hot skin would swell and there was no gravity to help it out. It was very frustrating, sometimes it would take the whole day to do down. Some days it would get better after a few hours. I found elevating my head helped a lot--I used two pillows. Waking up like that made me not want to sleep at all, or at least sleep less, but I soon found that getting enough sleep was more important. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2002 Report Share Posted March 21, 2002 > > > Hmm, ok, I have a juicy emergency medical question Well... not really > juicy.... and not really an emergency... but am curious nonetheless If I > had a bad reaction to protopic, (too much irritation, much increased > flushing, and a bit of a weird rash) is Elidel still something I may want to > try for my Seb derm? Or are they closely enough related that I would have > the same problem? Curiosity in lieu of a juicy emergency, huh? Well, maybe I could resuscitate the cat it killed. I didn't answer your other post because I don't know anything about Protopic or Elidel except from this group. In quickly scanning the literature (of which there's very little) it appears as if Elidel is in the same class as Protopic, just put out by another company. Its marketing talks about less systemic absorption and burning on application than Protopic, but its official printed material has essentially identical warnings as Protopic. Marjorie Marjorie Lazoff, MD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2002 Report Share Posted March 21, 2002 Hi B, I think your derm diagnosed you with rosacea lymphedema if I'm not mistaken. (sorry if I'm wrong on that.) I know some people have used a cooling device on their pillows called the chillow - Here's a link to one of the sites carrying it. It looked like there were quite a few sites selling this item. It might help your face feel cool. http://www.soothsoft.com/chillow.htm Also, have you considered clonidine. I don't know if you tried it or not, but some people have had success with it when other means to control the flushing didn't work. Take care, Matija > > Hi > > I'm not sure if anyone has any advice other than using high pillow but my edema is getting very extreme in the mornings. My eyes are nearly so puffed up they are shut and my cheeks are huge. Does anyone else have this? > > I thought about having two sleeps rather than one long one, pbviously this isn't that convenient but... > > The problem is I am not red when I wake up in fact very pale - although I feel hot if that makes sense. I just wonder if the vessels aren't dilated why are they leaking so much fluid. > > Can anyone help? > > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2002 Report Share Posted March 22, 2002 > I'm not sure if anyone has any advice other than > using high pillow but my edema is getting very > extreme in the mornings. I would agree with all of the things Marjorie listed, but I also suggest keeping a food/symptom diary for at least three weeks to see if you can detect a pattern. Also, if you eat similar foods for dinner and/or evening snack, you might try changing the patterns to see if the swelling improves. (Ice cream and bowls of cereal are two common evening snacks that might cause swelling if a person was sensitive to dairy or grains, just as an example, and not to imply these are your issues.) Suzi __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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