Re: Re: Zithromax upset

[Guest guest]

Kim,

That is a good point. His spirometry tests always show his lungs in the

" normal " range. He is on the heavy side, we have had to maintain his weight

for 2 years now as he has no trouble gaining weight. (88 lbs) (He has both

Delta F508) so it is very strange.

Anyway, Has anyone that has had an allergic reaction before, such as welts

ever been able to take it again in the future?

Darci

8wcf and 2 sibs nocf

Re: Zithromax upset

> Darci,

>

> From your email it sounds like your doctor is putting all her

> CF patients on Zithromax only to see if it increases lung function.

>

> I'm wondering about her CF patients that already have lung function

> over 100% or who don't show much lung involvement, mainly digestive

> involvement (or neither)? Oh, well...

>

> People can develop an allergy to an antibiotic even if they've taken

> it before. It stinks but it happens. My son and I are both now

> allergic to sulfa antibiotics (such as Bactrim), and I hate that

> because for us it was always such a nice, cheap effective med against

> sinus infections.

>

> My daughter developed a penicillin allergy after taking it a couple

> times, so now she can only take a macrolide antibiotic when she gets

> strep throat.

>

> You said, " We are getting our meds from the pharmacy and paying for

> them ourselves. " I'm not sure what you mean by this but I do hope your

> doctor wrote the prescription for a 30-day supply. If not, and you're

> only getting the standard " Z-pack " or standard 6-day supply, then

> you're paying more than you have to. Do you have insurance? If so,

> they insurance will pay for a 30-day supply as long as the doctor

> writes the 'script that way. If the pharmacy or insurance company

> argues that this is not the FDA-approved dosing, then you need to

> inform them that it is different for people with CF. Your doctor

> is supposed to be informed enough to back you up on this -- that's

> part of her job -- but I don't know how well versed your doctor is in

> dealing with these issues.

>

> I don't know how much your 8-yr. old weighs, but maybe 500 mg. three

> times a week is too much for him. My son was 10-years old, and average

> weight when his doctor finally started prescribing antibiotics in the

> 500 mg. range. If your son is light weight, 500 mg. may be too much.

> Zithromax stays in the body for several days after discontinuing so

> this is building up in him. 250 mg. may be just right.

>

> My son (about 165 pounds, 6 ft. tall) has been taking 250 mg. daily

> since April 99. At this dose, for him, stomach upset isn't a problem,

> and I keep fingers crossed an allergy doesn't develop.

>

> Do let your doctor know about the hives right away. You don't want

> to risk other potentionally life-threatening allergic symptoms to

> develop, so the doctor needs to know about these symptoms.

>

> Kim

> Mom to (23 with cf and asthma) and (20 asthma no cf)

>

>

>

> Thank you everyone who has responded. My doctor went to the big CF

> conference in New Orleans. There they talked about zithromax being

> used and how the studies showed increased lung function. The study

> was small, but promising. So she is starting her patients on Zithro

> for 6 months as a study. I don't think there is a placebo involved.

> We are getting our meds from the pharmacy and paying for them

> ourselves. I'm just upset as he is not responding well to the

> zithromax due to the tummy aches and big red spots on him. He has

> taken this med for infections in the past. I will call today and see

> if he can go to 250 on Mon. Wed. and Fri. or if he has to stop it

> completely.

>

> Darci

> 8 y/o wcf 2 sibs nocf

>

>

> -------------------------------------------

> The opinions and information exchanged on this list should IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

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