Guest guest Posted March 23, 2002 Report Share Posted March 23, 2002 My dear follows; The main purpose of cea - support mailing list was to exchange informations. While I think it might be equally useful if we have an oranization to help our fellow suffers. The things I am thinking of can be done through this organation as : 1.we can donate moneys to help someone who can not afford to seek medical treatment. My personal is quite willing to donate $1000 each year as long as I work. There are some time I read emails about people postpone treatments because financial problem. 2.we can have region representives, lots of time we might have to travel out of town to seek our treatment, if having some one there we know or willing to help us arrange either hotel, or provide a temp room to stay or just chat for a while, will be helpful. I live in Sunnyvale,CA, quite near los gatos, so if some one want to seek treatments from Bitter Sr, and you are not living in this area, if you need help as arrange room and board, I think I am willing to help. 3.We can write to congress to urge a bill passed to allow insurance company paid for the laser surgery about rosacea.(It is difficult). 4. we can educate some derms so will not give steroid to patients for long term use(my personal is the victim of this). 5. we can try to let medical research people pay more attention to this problem. ...... there are lots of things I can think about,for instance maybe some derms willing to give discount for the laser treatment for our potential orgnization. This is an idea. And I hope some people in this group will be interested, so we can start. Thanks for your reading; Jane Quote Link to comment Share on other sites More sharing options...
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