RE: So the time has come...

[Guest guest]

,

I'm so sorry to hear of your frustrations with your husband giving

Milan her meds. Sometimes I think because I am the primary caregiver

(given the fact my hubby deploys for long periods of time) he doesn't

seem to get how important it may be to give the treatments. He is a

million times better now than he used to be. He gets sidetracked if

he's watching tv. Drives me nuts!

Anyways, just wanted to say " I hear ya! " and I know how frustrating

this is. Hope you have a better day tomorrow and I think you keeping

her in daycare full time is probably a good solution for now. Then

when he wants to keep her for a day maybe he'll be more cautious to

make a mental note to do what is needed.

Christy

[Guest guest]

,

I'm so sorry to hear of your frustrations with your husband giving

Milan her meds. Sometimes I think because I am the primary caregiver

(given the fact my hubby deploys for long periods of time) he doesn't

seem to get how important it may be to give the treatments. He is a

million times better now than he used to be. He gets sidetracked if

he's watching tv. Drives me nuts!

Anyways, just wanted to say " I hear ya! " and I know how frustrating

this is. Hope you have a better day tomorrow and I think you keeping

her in daycare full time is probably a good solution for now. Then

when he wants to keep her for a day maybe he'll be more cautious to

make a mental note to do what is needed.

Christy

[Guest guest]

In a message dated 11/6/2002 12:05:10 AM Central Standard Time,

milanfoundation@... writes:

>

> Imagine a very upset Black woman screaming and you have me pictured

> perfectly as you read this.

>

> Once a week Milan's dad keeps her for a day. Today was that day. Since

> she just started on her 28-day on TOBI session this week I wrote out her

> nebulised items on a piece of paper (seems he does not remember from one

> week to another what the proper doses are) and went over them with him

> before leaving for work.

>

> Suffice it to say, I honestly expected that he would actually do them.

> Well guess I gave him TOO much credit. When I went to clean her neb cup

> (because I know he did not do it), I found that it was bone dry. Well that

> seemed odd since it had not left the machine all day so I went to the

> fridge because I know that if he gave her meds that morning a new envelope

> of TOBI had to be opened. Well what did I find but the confirmation that

> he did not give her meds this morning.

>

> What in heavens name does it take to freaking give her meds? He did not

> have to be anywhere in a hurray since he does not work days and his next

> day for work is not until tomorrow.

>

> As a result I wrote him a very " bring it home " letter basically saying that

> from now on she is at daycare full time and that until he starts taking her

> CF more seriously, that is how it is going to be and that he needs to make

> sure that she is getting her meds or the doctor will have to put her on

> IV's (well no one has really said that but if it works then I am all for

> it). I also told him that she does have lung damage (that part is true)

> and that makes her meds even more imperative.

>

> I could not be more upset. Well that is not true. If he had not given her

> enzymes today, that would have been the straw for sure.

>

> I do hope the rest of you are having a better day.

>

>

> Tucker

> Mom of Milan 4 wcf

Good for you !!! I think I would even us the threat if he can't do her

med.'s then maybe you better have someone with him at all times when they are

together. Or maybe if he can't be responsible enough he wouldn't be able to

see her at all. I know that is not fair for Milan but he's got to know you

mean business. Her health is more important! Deb A

[Guest guest]

In a message dated 11/6/2002 12:05:10 AM Central Standard Time,

milanfoundation@... writes:

>

> Imagine a very upset Black woman screaming and you have me pictured

> perfectly as you read this.

>

> Once a week Milan's dad keeps her for a day. Today was that day. Since

> she just started on her 28-day on TOBI session this week I wrote out her

> nebulised items on a piece of paper (seems he does not remember from one

> week to another what the proper doses are) and went over them with him

> before leaving for work.

>

> Suffice it to say, I honestly expected that he would actually do them.

> Well guess I gave him TOO much credit. When I went to clean her neb cup

> (because I know he did not do it), I found that it was bone dry. Well that

> seemed odd since it had not left the machine all day so I went to the

> fridge because I know that if he gave her meds that morning a new envelope

> of TOBI had to be opened. Well what did I find but the confirmation that

> he did not give her meds this morning.

>

> What in heavens name does it take to freaking give her meds? He did not

> have to be anywhere in a hurray since he does not work days and his next

> day for work is not until tomorrow.

>

> As a result I wrote him a very " bring it home " letter basically saying that

> from now on she is at daycare full time and that until he starts taking her

> CF more seriously, that is how it is going to be and that he needs to make

> sure that she is getting her meds or the doctor will have to put her on

> IV's (well no one has really said that but if it works then I am all for

> it). I also told him that she does have lung damage (that part is true)

> and that makes her meds even more imperative.

>

> I could not be more upset. Well that is not true. If he had not given her

> enzymes today, that would have been the straw for sure.

>

> I do hope the rest of you are having a better day.

>

>

> Tucker

> Mom of Milan 4 wcf

Good for you !!! I think I would even us the threat if he can't do her

med.'s then maybe you better have someone with him at all times when they are

together. Or maybe if he can't be responsible enough he wouldn't be able to

see her at all. I know that is not fair for Milan but he's got to know you

mean business. Her health is more important! Deb A

[Guest guest]

In a message dated 11/6/2002 8:06:26 AM Central Standard Time,

mntecrlo@... writes:

> Vondie

>

Welcome Vondie!! Tells us more about yourself. I will tell you a little about

me. I have three daughters 10,8, and 5 my 10 year old and my 5 year old have

CF. They were diagnosed when my oldest was 6. She had polyps in her nose that

is how we found out. She has had two surgeries so far for the polyps. They

are both doing pretty good other then fight psuedomonas. Where do you live?

We are in Iowa. Deb A

[Guest guest]

In a message dated 11/6/2002 8:06:26 AM Central Standard Time,

mntecrlo@... writes:

> Vondie

>

Welcome Vondie!! Tells us more about yourself. I will tell you a little about

me. I have three daughters 10,8, and 5 my 10 year old and my 5 year old have

CF. They were diagnosed when my oldest was 6. She had polyps in her nose that

is how we found out. She has had two surgeries so far for the polyps. They

are both doing pretty good other then fight psuedomonas. Where do you live?

We are in Iowa. Deb A

[Guest guest]

In a message dated 11/6/2002 8:06:26 AM Central Standard Time,

mntecrlo@... writes:

> Vondie

>

Welcome Vondie!! Tells us more about yourself. I will tell you a little about

me. I have three daughters 10,8, and 5 my 10 year old and my 5 year old have

CF. They were diagnosed when my oldest was 6. She had polyps in her nose that

is how we found out. She has had two surgeries so far for the polyps. They

are both doing pretty good other then fight psuedomonas. Where do you live?

We are in Iowa. Deb A

[Guest guest]

,

It sounds like you let your feelings be known. Maybe your husband

will now understand how important the meds are. Putting it in

writing was a good idea. There are fewer emotions getting in the way

of the communication when it is written. If I bitch at , he

ignores me. If I write him a note, he pays attention. I also

noticed that if we got in to a verbal confrontation, I would get

really upset and end up crying. , on the other hand, would set

down in front of the TV and eat something (no visible distress).

Is your husband jealous of the time and attention that you give to

Milan? was jealous of the attention that I gave to Abby at

first (Abby is our granddaughter). It was during Abby's

hospitalisation. I would spend nights on the couch in Abby's

hospital room. I wouldn't come home from the hospital for two or

three days at a time and even then I would go back in less than 12

hours. I " needed " to be with Abby. I couldn't help myself. Also, I

didn't want to leave my daughter alone (Abby's mom). Her husband

would only visit the hospital for several hours a day. Abby spent

about 6 weeks in the hospital in a three month period. I was afraid

that she might die, in the beginning. One of my children died and I

couldn't stand the thought of my daughter going through that pain and

I didn't want to lose Abby.

Abby is 10 months old now and already a lot has changed. She is

doing much, much better. She stays with and me every Friday

night and Saturday. This gives her parents a break and allows

and I to hug her as much as we want. We have her for about 24 hours,

all to ourselves. Abby favors over me. He is more fun.

eats that up! Sometimes, I can hardly get Abby away from him. I

have to wait until she soils her diaper, before will let me

have her.

I guess what I am trying to say is that things change and sometimes

you can influence the change. We just need to understand the

reasoning behind the behavior (assuming that there is some sort of

reasoning). If Abby were hospitalised today, it would be " "

that we'd have to pry off the couch in her hospital room.

I hope that Milan is feeling better very soon!

I wish you good luck,

Gale

>

> Imagine a very upset Black woman screaming and you have me pictured

perfectly as you read this.

>

[Guest guest]

,

It sounds like you let your feelings be known. Maybe your husband

will now understand how important the meds are. Putting it in

writing was a good idea. There are fewer emotions getting in the way

of the communication when it is written. If I bitch at , he

ignores me. If I write him a note, he pays attention. I also

noticed that if we got in to a verbal confrontation, I would get

really upset and end up crying. , on the other hand, would set

down in front of the TV and eat something (no visible distress).

Is your husband jealous of the time and attention that you give to

Milan? was jealous of the attention that I gave to Abby at

first (Abby is our granddaughter). It was during Abby's

hospitalisation. I would spend nights on the couch in Abby's

hospital room. I wouldn't come home from the hospital for two or

three days at a time and even then I would go back in less than 12

hours. I " needed " to be with Abby. I couldn't help myself. Also, I

didn't want to leave my daughter alone (Abby's mom). Her husband

would only visit the hospital for several hours a day. Abby spent

about 6 weeks in the hospital in a three month period. I was afraid

that she might die, in the beginning. One of my children died and I

couldn't stand the thought of my daughter going through that pain and

I didn't want to lose Abby.

Abby is 10 months old now and already a lot has changed. She is

doing much, much better. She stays with and me every Friday

night and Saturday. This gives her parents a break and allows

and I to hug her as much as we want. We have her for about 24 hours,

all to ourselves. Abby favors over me. He is more fun.

eats that up! Sometimes, I can hardly get Abby away from him. I

have to wait until she soils her diaper, before will let me

have her.

I guess what I am trying to say is that things change and sometimes

you can influence the change. We just need to understand the

reasoning behind the behavior (assuming that there is some sort of

reasoning). If Abby were hospitalised today, it would be " "

that we'd have to pry off the couch in her hospital room.

I hope that Milan is feeling better very soon!

I wish you good luck,

Gale

>

> Imagine a very upset Black woman screaming and you have me pictured

perfectly as you read this.

>

[Guest guest]

,

It sounds like you let your feelings be known. Maybe your husband

will now understand how important the meds are. Putting it in

writing was a good idea. There are fewer emotions getting in the way

of the communication when it is written. If I bitch at , he

ignores me. If I write him a note, he pays attention. I also

noticed that if we got in to a verbal confrontation, I would get

really upset and end up crying. , on the other hand, would set

down in front of the TV and eat something (no visible distress).

Is your husband jealous of the time and attention that you give to

Milan? was jealous of the attention that I gave to Abby at

first (Abby is our granddaughter). It was during Abby's

hospitalisation. I would spend nights on the couch in Abby's

hospital room. I wouldn't come home from the hospital for two or

three days at a time and even then I would go back in less than 12

hours. I " needed " to be with Abby. I couldn't help myself. Also, I

didn't want to leave my daughter alone (Abby's mom). Her husband

would only visit the hospital for several hours a day. Abby spent

about 6 weeks in the hospital in a three month period. I was afraid

that she might die, in the beginning. One of my children died and I

couldn't stand the thought of my daughter going through that pain and

I didn't want to lose Abby.

Abby is 10 months old now and already a lot has changed. She is

doing much, much better. She stays with and me every Friday

night and Saturday. This gives her parents a break and allows

and I to hug her as much as we want. We have her for about 24 hours,

all to ourselves. Abby favors over me. He is more fun.

eats that up! Sometimes, I can hardly get Abby away from him. I

have to wait until she soils her diaper, before will let me

have her.

I guess what I am trying to say is that things change and sometimes

you can influence the change. We just need to understand the

reasoning behind the behavior (assuming that there is some sort of

reasoning). If Abby were hospitalised today, it would be " "

that we'd have to pry off the couch in her hospital room.

I hope that Milan is feeling better very soon!

I wish you good luck,

Gale

>

> Imagine a very upset Black woman screaming and you have me pictured

perfectly as you read this.

>