Re: Emotional Support

[Guest guest]

Hi Amber;

My heart breaks for you. I can empathize with your situation. My daughter is 3

yo and mod/severely autistic. I also have a 2 yo daughter. I have to watch

them constantly as my eldest daughter attacks her sister (although from what I

hear this is pretty normal behaviour for kids :-) ).

I'm also in Canada. I'm guessing you moved to Alberta to pursue IBI treatment?

We were considering the move too but are trying to tough it out here in Ontario

with no funding.

Don't give up hope! What kind of biomed things are you doing for your son? My

daughter is also a tough nut, but I continue to research and am determined to

find the missing piece to the puzzle that will get her on the road to recovery.

I am also getting ready to start the SCD. I think we are on the right path with

this one...

Feel free to email me off list if you want to talk...

kimandglen.quinn@...

Hugs,

Kim :-)

Re: Emotional Support

Kelli,

I am new here- I can't give you any hope that this diet will help your son,

I haven't even really started it myself yet. As far as being the parent of

an asd child- I have more experience. My son just turned 5- he's severely

asd. We had to move my whole family a few months ago half way across Canada

just to get some treatment for him (I have 3 kids, my 9 yr old nt son is

still miserable about the move) We don't know a soul out here, and we are

very alone. My asd son, is, like I said, severe. He's very hard on all of

us. He has severe OCD, and screams, slaps himself in the head, bangs his

head on the floor when he doesn't get his way. He pulls my younger

daughter's hair, and attacks my older son. Every time I change the diaper on

a child who should have been toilet trained for at least 3 years now, I get

depressed. Every day his aid shows up to do therapy with him, I think at my

older son's age, he was going to kindergarten by himself. I am doing some

bio-medical things with him, hoping that every new thing that we do, we will

see some improvement- nothing yet. I worry every second of the day about his

future, I cry myself to sleep almost every night grieving the loss of my

son's 'normal' life. I worry myself sick that he will be picked on, and

taken advantage of. I also worry about what will happen to him someday when

I am not able to take care of him anymore.

I'm sorry, I guess I didn't make you feel better. I wish I could help you.

Amber

new to SCD- haven't started yet.

>

>

>

> Ok, here is the good news. We had 2 solid brown BMs on Monday, first time

> in

> I don't know how long. YAY!

>

> Otherwise, I am having a really hard time dealing. Kai is so emotionally

> difficult and persistent that I am finding it hard to be his parent. I

> know

> we all go through this at some point or another but this challenging

> behavior has really picked up recently (last month or so) and then after

> starting the intro, has become a full day event. On Monday, he was happy

> and

> easy and I thought well maybe this weekend was it. Well it returned full

> force after school yesterday and he has been a screaming crying

> oppositional

> nightmare. Please give me some hope!

>

>

>

> Kelli

>

> SAHM to Kai 3 1/2- ASD and Tatum 1 1/2 NT

>

> SCD since 5/05, off for 3 months, back on 3/10/06

>

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>

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>

>

>

>

[Guest guest]

Hi Kelli;

Congratulations on your sons solid BM's! That would be a big deal at my house

too :-)

I haven't started SCD yet but am planning to in the near future. Sorry to hear

you're having a hard time dealing with your son. I know how you're feeling. We

have kids around the same ages (mine are 3.5 ASD and almost 2 NT). I am so

wiped out at the end of the day I barely have the energy to plan/prepare to

start the SCD.

My kids too have roller-coaster behaviour - some days good, some days bad, some

days horrid. When I'm having one of those horrid days I try to remember the

little improvements my daughter has made. Anything to keep me going.

You're doing a great job. It's tough being a Mommy!

Kim :-)

Pre SCD (3 yo ASD, 2 yo NT)