What is the best Pancreas Clinic

[Guest guest]

I am trying to research where the best place would be for my sister

to go to for her problem with recurrent acute pancreatitis. After

several ERCPs, cat scans, and a Sphincter of Oddi test nothing can

be found that is causing this. I have heard the doctors at Indiana

University are good, but are they only good if you havent had these

tests done before. Where would be a good place to go. We are in

Michigan and her dr. is thinking about Mayo or the Cleveland Clinic.

I am just looking around for opinions I guess.

Thanks...

[Guest guest]

In a message dated 10/08/2002 15:31:55 US Eastern Standard Time,

golightly18@... writes:

> Crystal Galloway

> > Where would be a good place to go. We are in Michigan and her dr. is

> thinking about Mayo or the Cleveland Clinic. I am just looking around for

> opinions I guess.

I have only received care at the Indiana University Hospital in Indianapolis.

The nursing care I received was probably comprable to most hospitals. The

medical care was excellent. My only issue with the care I received was that I

was not given full information about what all of the treatment options were

for persons with Pancreatitis. Like said earlier, you need to take

the responsibility to make sure you have all the data. That's tough when you

are newly diagnosed, scared, hurting....you trust your health care team. You

can't. I trust them to provide good quality medical care, but I know expect

everyone to hold their own personal opinion of what treatments are good

options or not.

As a healthcare provider, myself, I have always believed in laying out all

the choices for the patient. If they wanted my opinion I would tell them.

But, the choice has to be the patients, they are the ones who will be living

with what ever choices are made. And any choice regarding Pancreatitis is a

life altering choice.

Karyn , RN

Founder / Exec. Director

http://www.pancassociation.org

KarynWms@.../

Pancreatitis Association International

Many People, Many Faces, One Voice

[Guest guest]

On the west coast the Pancreatitis expert is at the University of

Washington hospital in Seattle.

When I was in the hospital for my pancreatitis in 1999, he was

consulted and came in and reccommended that they take out my

gallbladder regarless of my condition, which was weakend due to

repeated attacks.

Turned out this decision may have saved my life. The gallbladder was

full of stones and I would have continued to have attacks and get

weaker and weaker until I couldn't fight them anymore.

He was extremely busy and just stopped by on his way to California.

Presumably to speak at a symposium.

-stan

(on clouds for 10 days since our adoption referral)

[Guest guest]

On the west coast the Pancreatitis expert is at the University of

Washington hospital in Seattle.

When I was in the hospital for my pancreatitis in 1999, he was

consulted and came in and reccommended that they take out my

gallbladder regarless of my condition, which was weakend due to

repeated attacks.

Turned out this decision may have saved my life. The gallbladder was

full of stones and I would have continued to have attacks and get

weaker and weaker until I couldn't fight them anymore.

He was extremely busy and just stopped by on his way to California.

Presumably to speak at a symposium.

-stan

(on clouds for 10 days since our adoption referral)

[Guest guest]

On the west coast the Pancreatitis expert is at the University of

Washington hospital in Seattle.

When I was in the hospital for my pancreatitis in 1999, he was

consulted and came in and reccommended that they take out my

gallbladder regarless of my condition, which was weakend due to

repeated attacks.

Turned out this decision may have saved my life. The gallbladder was

full of stones and I would have continued to have attacks and get

weaker and weaker until I couldn't fight them anymore.

He was extremely busy and just stopped by on his way to California.

Presumably to speak at a symposium.

-stan

(on clouds for 10 days since our adoption referral)