Re: Questions questions and update.

[Guest guest]

In a message dated 11/5/2002 4:29:42 PM Central Standard Time,

cfkids2@... writes:

> Genetics question. I racking my brain trying to figure out how we got so

> " lucky " with three cfer's. If my husband or I had cf(neither one of us

> shows any signs) it would be a 50/50 chance as long as the other was a

> carrier, correct? So would that mean that there are 2 different gene

> sequences(don't know if I'm wording this correct) that could happen? Or

> would it be the same two each time? I've been debating on us getting

> tested

> just to try and figure out what is going on, but if he was tested and it

> was

> positive we'd be out of insurance and he'd have no job. Gotta love the

> military.

Jen A

I have two girls with CF and when they drew blood from my oldest so they

could test to see what kind of mutation she had (because they wanted to know

what they were dealing with) I said are you going to draw blood from my

youngest one to and they said No only unless she has a different father their

mutations would be the same. So they way I understand you can only each have

one mutation of CF because they told me that there mutations would be the

same because it came from each of us. Hope this helps. Deb A

[Guest guest]

In a message dated 11/5/2002 4:29:42 PM Central Standard Time,

cfkids2@... writes:

> Genetics question. I racking my brain trying to figure out how we got so

> " lucky " with three cfer's. If my husband or I had cf(neither one of us

> shows any signs) it would be a 50/50 chance as long as the other was a

> carrier, correct? So would that mean that there are 2 different gene

> sequences(don't know if I'm wording this correct) that could happen? Or

> would it be the same two each time? I've been debating on us getting

> tested

> just to try and figure out what is going on, but if he was tested and it

> was

> positive we'd be out of insurance and he'd have no job. Gotta love the

> military.

Jen A

I have two girls with CF and when they drew blood from my oldest so they

could test to see what kind of mutation she had (because they wanted to know

what they were dealing with) I said are you going to draw blood from my

youngest one to and they said No only unless she has a different father their

mutations would be the same. So they way I understand you can only each have

one mutation of CF because they told me that there mutations would be the

same because it came from each of us. Hope this helps. Deb A

[Guest guest]

DEAR JEN,

What a nice thing to say, Thank you so very much. it is always to 'overhear "

others say something so nice. I really appreciate that. As always, I do wish

you the best & this wee one is going to do just fine..

LOVE & HUGS,

GrandmomBEV

Questions questions and update.

Hey got a couple questions. I've been talking to a lady who is preg and due

around the same time I am. She had a lvl 2 U/S done and they found a cyst

on the babies brain. The doc said that can be a marker for CF. I have

never heard of this and was wondering if anyone had any info on it that I

could share with her. They also saw that the baby's bowels were shadded.

PJ had the same thing at this stage also.

Genetics question. I racking my brain trying to figure out how we got so

" lucky " with three cfer's. If my husband or I had cf(neither one of us

shows any signs) it would be a 50/50 chance as long as the other was a

carrier, correct? So would that mean that there are 2 different gene

sequences(don't know if I'm wording this correct) that could happen? Or

would it be the same two each time? I've been debating on us getting tested

just to try and figure out what is going on, but if he was tested and it was

positive we'd be out of insurance and he'd have no job. Gotta love the

military.

So far we are all doing good. PJ seems to be coughing a bit more but

doesn't seem to be getting sick. HOPEFULLY we'll have kicked this stupid PA

the first time around. Yolo is getting ready for her 3rd birthday on the

16th. We're still having some behavior problems with her, so hopefully I

can get her evaled. is ding great. She's LOVES preschool and is

talking up a storm now. It is so weird having a 4 year old that talks to

you and carrys on some type of conversation. So far this preg is going.

Everything looks right on track and I go in for one of many lvl 2 u/s's

soon. TJ is going to school now for the Air Force for another stripe. SO

his grandmother is comming down, she's an awsome lady. Kinda how I picture

Grandma Bev to be. Other than that we're doing great.

Jen A. mom to 4, Yolo 2 1/2 and Phynix 6 months all w/cf.

_________________________________________________________________

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-------------------------------------------

The opinions and information exchanged on this list should

IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

--------------------------------------------------

[Guest guest]

DEAR JEN,

What a nice thing to say, Thank you so very much. it is always to 'overhear "

others say something so nice. I really appreciate that. As always, I do wish

you the best & this wee one is going to do just fine..

LOVE & HUGS,

GrandmomBEV

Questions questions and update.

Hey got a couple questions. I've been talking to a lady who is preg and due

around the same time I am. She had a lvl 2 U/S done and they found a cyst

on the babies brain. The doc said that can be a marker for CF. I have

never heard of this and was wondering if anyone had any info on it that I

could share with her. They also saw that the baby's bowels were shadded.

PJ had the same thing at this stage also.

Genetics question. I racking my brain trying to figure out how we got so

" lucky " with three cfer's. If my husband or I had cf(neither one of us

shows any signs) it would be a 50/50 chance as long as the other was a

carrier, correct? So would that mean that there are 2 different gene

sequences(don't know if I'm wording this correct) that could happen? Or

would it be the same two each time? I've been debating on us getting tested

just to try and figure out what is going on, but if he was tested and it was

positive we'd be out of insurance and he'd have no job. Gotta love the

military.

So far we are all doing good. PJ seems to be coughing a bit more but

doesn't seem to be getting sick. HOPEFULLY we'll have kicked this stupid PA

the first time around. Yolo is getting ready for her 3rd birthday on the

16th. We're still having some behavior problems with her, so hopefully I

can get her evaled. is ding great. She's LOVES preschool and is

talking up a storm now. It is so weird having a 4 year old that talks to

you and carrys on some type of conversation. So far this preg is going.

Everything looks right on track and I go in for one of many lvl 2 u/s's

soon. TJ is going to school now for the Air Force for another stripe. SO

his grandmother is comming down, she's an awsome lady. Kinda how I picture

Grandma Bev to be. Other than that we're doing great.

Jen A. mom to 4, Yolo 2 1/2 and Phynix 6 months all w/cf.

_________________________________________________________________

Protect your PC - get McAfee.com VirusScan Online

http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963

PLEASE do not post religious emails to the list.

-------------------------------------------

The opinions and information exchanged on this list should

IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

--------------------------------------------------

[Guest guest]

Jen

I think there was some link to some kind of cysts in the brain in a

few CF babies...and think there was a study, or some reference.

However, thats about all I remember, sorry....

The bowels will look " bright " on ultrasound, or atleast that is what

they said they were watching for with ph, and what they

eventuallly did see (somewhere between 28 and 34 weeks, I am not for

sure when, too many pregnancies to keep track of all the details, lol)

take care

Jen

>

>

> Hey got a couple questions. I've been talking to a lady who is preg

and due

> around the same time I am. She had a lvl 2 U/S done and they found

a cyst

> on the babies brain. The doc said that can be a marker for CF. I

have

> never heard of this and was wondering if anyone had any info on it

that I

> could share with her. They also saw that the baby's bowels were

shadded.

> PJ had the same thing at this stage also.

>

> Genetics question. I racking my brain trying to figure out how we

got so

> " lucky " with three cfer's. If my husband or I had cf(neither one of

us

> shows any signs) it would be a 50/50 chance as long as the other was

a

> carrier, correct? So would that mean that there are 2 different

gene

> sequences(don't know if I'm wording this correct) that could happen?

Or

> would it be the same two each time? I've been debating on us

getting tested

> just to try and figure out what is going on, but if he was tested

and it was

> positive we'd be out of insurance and he'd have no job. Gotta love

the

> military.

>

> So far we are all doing good. PJ seems to be coughing a bit more

but

> doesn't seem to be getting sick. HOPEFULLY we'll have kicked this

stupid PA

> the first time around. Yolo is getting ready for her 3rd birthday

on the

> 16th. We're still having some behavior problems with her, so

hopefully I

> can get her evaled. is ding great. She's LOVES preschool and

is

> talking up a storm now. It is so weird having a 4 year old that

talks to

> you and carrys on some type of conversation. So far this preg is

going.

> Everything looks right on track and I go in for one of many lvl 2

u/s's

> soon. TJ is going to school now for the Air Force for another

stripe. SO

> his grandmother is comming down, she's an awsome lady. Kinda how I

picture

> Grandma Bev to be. Other than that we're doing great.

>

> Jen A. mom to 4, Yolo 2 1/2 and Phynix 6 months all w/cf.

>

>

>

> _________________________________________________________________

> Protect your PC - get McAfee.com VirusScan Online

> http://clinic.mcafee.com/clini

[Guest guest]

Jen

I think there was some link to some kind of cysts in the brain in a

few CF babies...and think there was a study, or some reference.

However, thats about all I remember, sorry....

The bowels will look " bright " on ultrasound, or atleast that is what

they said they were watching for with ph, and what they

eventuallly did see (somewhere between 28 and 34 weeks, I am not for

sure when, too many pregnancies to keep track of all the details, lol)

take care

Jen

>

>

> Hey got a couple questions. I've been talking to a lady who is preg

and due

> around the same time I am. She had a lvl 2 U/S done and they found

a cyst

> on the babies brain. The doc said that can be a marker for CF. I

have

> never heard of this and was wondering if anyone had any info on it

that I

> could share with her. They also saw that the baby's bowels were

shadded.

> PJ had the same thing at this stage also.

>

> Genetics question. I racking my brain trying to figure out how we

got so

> " lucky " with three cfer's. If my husband or I had cf(neither one of

us

> shows any signs) it would be a 50/50 chance as long as the other was

a

> carrier, correct? So would that mean that there are 2 different

gene

> sequences(don't know if I'm wording this correct) that could happen?

Or

> would it be the same two each time? I've been debating on us

getting tested

> just to try and figure out what is going on, but if he was tested

and it was

> positive we'd be out of insurance and he'd have no job. Gotta love

the

> military.

>

> So far we are all doing good. PJ seems to be coughing a bit more

but

> doesn't seem to be getting sick. HOPEFULLY we'll have kicked this

stupid PA

> the first time around. Yolo is getting ready for her 3rd birthday

on the

> 16th. We're still having some behavior problems with her, so

hopefully I

> can get her evaled. is ding great. She's LOVES preschool and

is

> talking up a storm now. It is so weird having a 4 year old that

talks to

> you and carrys on some type of conversation. So far this preg is

going.

> Everything looks right on track and I go in for one of many lvl 2

u/s's

> soon. TJ is going to school now for the Air Force for another

stripe. SO

> his grandmother is comming down, she's an awsome lady. Kinda how I

picture

> Grandma Bev to be. Other than that we're doing great.

>

> Jen A. mom to 4, Yolo 2 1/2 and Phynix 6 months all w/cf.

>

>

>

> _________________________________________________________________

> Protect your PC - get McAfee.com VirusScan Online

> http://clinic.mcafee.com/clini

[Guest guest]

Jen,

Why would they kick him out of the military if he is a carrier of

CF? Steve is military and a carrier. Also why would you lose

insurance? If he does have CF and it isn't affecting his health and

he passes all of the physicals they have no solid reason to discharge

him from service. My friends neighbor has about a million things

wrong with him and just had brain surgery and should be (in my

opinion) honorably discharged for medical reasons and they are

keeping him in. (I say my opinion because he is very sick, he's been

in forever and is of no use to the Navy if we go to war so i think he

should retire early and they should ask him to go-my opinion)

Anyways, I'm just curious because that doesn't seem right to me.

Thanks. Christy MOm of Wyatt 7wcf and hunter 2.5 wocf

>

>

> Hey got a couple questions. I've been talking to a lady who is

preg and due

> around the same time I am. She had a lvl 2 U/S done and they found

a cyst

> on the babies brain. The doc said that can be a marker for CF. I

have

> never heard of this and was wondering if anyone had any info on it

that I

> could share with her. They also saw that the baby's bowels were

shadded.

> PJ had the same thing at this stage also.

>

> Genetics question. I racking my brain trying to figure out how we

got so

> " lucky " with three cfer's. If my husband or I had cf(neither one

of us

> shows any signs) it would be a 50/50 chance as long as the other

was a

> carrier, correct? So would that mean that there are 2 different

gene

> sequences(don't know if I'm wording this correct) that could

happen? Or

> would it be the same two each time? I've been debating on us

getting tested

> just to try and figure out what is going on, but if he was tested

and it was

> positive we'd be out of insurance and he'd have no job. Gotta love

the

> military.

>

> So far we are all doing good. PJ seems to be coughing a bit more

but

> doesn't seem to be getting sick. HOPEFULLY we'll have kicked this

stupid PA

> the first time around. Yolo is getting ready for her 3rd birthday

on the

> 16th. We're still having some behavior problems with her, so

hopefully I

> can get her evaled. is ding great. She's LOVES preschool and

is

> talking up a storm now. It is so weird having a 4 year old that

talks to

> you and carrys on some type of conversation. So far this preg is

going.

> Everything looks right on track and I go in for one of many lvl 2

u/s's

> soon. TJ is going to school now for the Air Force for another

stripe. SO

> his grandmother is comming down, she's an awsome lady. Kinda how I

picture

> Grandma Bev to be. Other than that we're doing great.

>

> Jen A. mom to 4, Yolo 2 1/2 and Phynix 6 months all w/cf.

>

>

>

> _________________________________________________________________

> Protect your PC - get McAfee.com VirusScan Online

> http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963

[Guest guest]

Jen,

Why would they kick him out of the military if he is a carrier of

CF? Steve is military and a carrier. Also why would you lose

insurance? If he does have CF and it isn't affecting his health and

he passes all of the physicals they have no solid reason to discharge

him from service. My friends neighbor has about a million things

wrong with him and just had brain surgery and should be (in my

opinion) honorably discharged for medical reasons and they are

keeping him in. (I say my opinion because he is very sick, he's been

in forever and is of no use to the Navy if we go to war so i think he

should retire early and they should ask him to go-my opinion)

Anyways, I'm just curious because that doesn't seem right to me.

Thanks. Christy MOm of Wyatt 7wcf and hunter 2.5 wocf

>

>

> Hey got a couple questions. I've been talking to a lady who is

preg and due

> around the same time I am. She had a lvl 2 U/S done and they found

a cyst

> on the babies brain. The doc said that can be a marker for CF. I

have

> never heard of this and was wondering if anyone had any info on it

that I

> could share with her. They also saw that the baby's bowels were

shadded.

> PJ had the same thing at this stage also.

>

> Genetics question. I racking my brain trying to figure out how we

got so

> " lucky " with three cfer's. If my husband or I had cf(neither one

of us

> shows any signs) it would be a 50/50 chance as long as the other

was a

> carrier, correct? So would that mean that there are 2 different

gene

> sequences(don't know if I'm wording this correct) that could

happen? Or

> would it be the same two each time? I've been debating on us

getting tested

> just to try and figure out what is going on, but if he was tested

and it was

> positive we'd be out of insurance and he'd have no job. Gotta love

the

> military.

>

> So far we are all doing good. PJ seems to be coughing a bit more

but

> doesn't seem to be getting sick. HOPEFULLY we'll have kicked this

stupid PA

> the first time around. Yolo is getting ready for her 3rd birthday

on the

> 16th. We're still having some behavior problems with her, so

hopefully I

> can get her evaled. is ding great. She's LOVES preschool and

is

> talking up a storm now. It is so weird having a 4 year old that

talks to

> you and carrys on some type of conversation. So far this preg is

going.

> Everything looks right on track and I go in for one of many lvl 2

u/s's

> soon. TJ is going to school now for the Air Force for another

stripe. SO

> his grandmother is comming down, she's an awsome lady. Kinda how I

picture

> Grandma Bev to be. Other than that we're doing great.

>

> Jen A. mom to 4, Yolo 2 1/2 and Phynix 6 months all w/cf.

>

>

>

> _________________________________________________________________

> Protect your PC - get McAfee.com VirusScan Online

> http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963

[Guest guest]

Jen A.

Both of my sons have cf. They both have the same mutations, but they both

carry two, which are F508 & N1303K. I don't know anything at all about this,

but I always thought one from me and one from my hubby. Wrong?

Vondie

mom of & both w/cf

Re: Questions questions and update.

In a message dated 11/5/2002 4:29:42 PM Central Standard Time,

cfkids2@... writes:

> Genetics question. I racking my brain trying to figure out how we got so

> " lucky " with three cfer's. If my husband or I had cf(neither one of us

> shows any signs) it would be a 50/50 chance as long as the other was a

> carrier, correct? So would that mean that there are 2 different gene

> sequences(don't know if I'm wording this correct) that could happen? Or

> would it be the same two each time? I've been debating on us getting

> tested

> just to try and figure out what is going on, but if he was tested and it

> was

> positive we'd be out of insurance and he'd have no job. Gotta love the

> military.

Jen A

I have two girls with CF and when they drew blood from my oldest so they

could test to see what kind of mutation she had (because they wanted to know

what they were dealing with) I said are you going to draw blood from my

youngest one to and they said No only unless she has a different father their

mutations would be the same. So they way I understand you can only each have

one mutation of CF because they told me that there mutations would be the

same because it came from each of us. Hope this helps. Deb A

[Guest guest]

Jen A.

Both of my sons have cf. They both have the same mutations, but they both

carry two, which are F508 & N1303K. I don't know anything at all about this,

but I always thought one from me and one from my hubby. Wrong?

Vondie

mom of & both w/cf

Re: Questions questions and update.

In a message dated 11/5/2002 4:29:42 PM Central Standard Time,

cfkids2@... writes:

> Genetics question. I racking my brain trying to figure out how we got so

> " lucky " with three cfer's. If my husband or I had cf(neither one of us

> shows any signs) it would be a 50/50 chance as long as the other was a

> carrier, correct? So would that mean that there are 2 different gene

> sequences(don't know if I'm wording this correct) that could happen? Or

> would it be the same two each time? I've been debating on us getting

> tested

> just to try and figure out what is going on, but if he was tested and it

> was

> positive we'd be out of insurance and he'd have no job. Gotta love the

> military.

Jen A

I have two girls with CF and when they drew blood from my oldest so they

could test to see what kind of mutation she had (because they wanted to know

what they were dealing with) I said are you going to draw blood from my

youngest one to and they said No only unless she has a different father their

mutations would be the same. So they way I understand you can only each have

one mutation of CF because they told me that there mutations would be the

same because it came from each of us. Hope this helps. Deb A

[Guest guest]

Hi Vondie,

no that's correct. Furtheron, if either you or your hubby has family

roots in southern france, there is a good chance that he/she carries

the N1303K mutation, because it's a typical mutation for that region.

Jen A,

it's sufficient to have your kids tested. If they all have the same

combination of mutations, then you simply have had bad luck. But if

there really comes a third mutation into the game, then one of the

parents has to have CF too (though theoretically there is also the

one in a million chance that a spontaneous mutation has occured).

Peace

Torsten, dad of Fiona 5wcf

> Jen A.

> Both of my sons have cf. They both have the same mutations, but

they both carry two, which are F508 & N1303K. I don't know anything

at all about this, but I always thought one from me and one from my

hubby. Wrong?

> Vondie

> mom of & both w/cf

[Guest guest]

Jen,

Yes, if you or your husband have two mutations, and the other has

only one mutation, then there is a 50/50 chance the child will have

cf. If you BOTH carry two mutations, then there's a 100% chance the

child will have cf. The mutations of the children are one from you

and one from your husband, so any combination thereof could result.

If you think that you or your husband may carry two mutations and

don't want to get tested yourselves, there is a way around. Have the

children's (all of them) mutations discovered through genetic

testing. If more than two mutations come up, you know one of you

carries more than one copy of the cf gene. This isn't foolproof, but

it might give a clue. The dna testing can be done by blood draw or

by taking a swab inside the cheek. Maybe it could be done during

routine blood draws so that it's not an extra needle stick for the

kids?

Good luck figuring it out.

~

>

> Genetics question. I racking my brain trying to figure out how we

got so

> " lucky " with three cfer's. If my husband or I had cf(neither one

of us

> shows any signs) it would be a 50/50 chance as long as the other

was a

> carrier, correct? So would that mean that there are 2 different

gene

> sequences(don't know if I'm wording this correct) that could

happen? Or

> would it be the same two each time? I've been debating on us

getting tested

> just to try and figure out what is going on, but if he was tested

and it was

> positive we'd be out of insurance and he'd have no job. Gotta love

the

> military.

> Jen A. mom to 4, Yolo 2 1/2 and Phynix 6 months all w/cf.

>

[Guest guest]

Here's how to SEE it. (I taught biology for a year -- I'm really a

physics teacher of 7yrs -- and genetics is a hobby).

It's called a punett square:

Make a grid 2x2 box. Outside the box on the top above the first

column write C and the second column c (notice capitalization

matters, this represents the father who is a carrier of cf). And on

the side by the first row write C and the second c (this represents

the mother who is a carrier of cf). Inside each box write the

combination. In the first box you'll have CC the next over is Cc. In

the second row you'll find you have Cc and next to it the cc. C =

normal cftr gene, c = mutated problematic cftr gene.

The CC means the child is absolutely normal and doesn't even carry

the cf mutation. The Cc means a carrier and the cc means the child HAS

cf. This shows the probability with each child. You have a 1 in 4

chance of the child not even being a carrier. There's a 2 in 4 chance

of the child being a carrier. And a 1 in 4 chance of the child having

CF. These are the same chances EACH child has. This is a

representation of how your genes mix each time you make a child with

the same spouse. This is why if a child of a couple has cf and a

sibling of the same couple have cf they'll have the exact same

mutations.

Hope I've helped.

Crystal

mom to Adam (homozygous f508) 8mo, and le 3 this month nocf.

(I'm leaving it to le when she's older to be tested as a

carrier.)

> >

>

> > Genetics question. I racking my brain trying to figure out how

we

> got so

> > " lucky " with three cfer's. If my husband or I had cf(neither one

> of us

> > shows any signs) it would be a 50/50 chance as long as the other

> was a

> > carrier, correct? So would that mean that there are 2 different

> gene

> > sequences(don't know if I'm wording this correct) that could

> happen? Or

> > would it be the same two each time? I've been debating on us

> getting tested

> > just to try and figure out what is going on, but if he was tested

> and it was

> > positive we'd be out of insurance and he'd have no job. Gotta

love

> the

> > military.

> > Jen A. mom to 4, Yolo 2 1/2 and Phynix 6 months all w/cf.

> >

[Guest guest]

Here's how to SEE it. (I taught biology for a year -- I'm really a

physics teacher of 7yrs -- and genetics is a hobby).

It's called a punett square:

Make a grid 2x2 box. Outside the box on the top above the first

column write C and the second column c (notice capitalization

matters, this represents the father who is a carrier of cf). And on

the side by the first row write C and the second c (this represents

the mother who is a carrier of cf). Inside each box write the

combination. In the first box you'll have CC the next over is Cc. In

the second row you'll find you have Cc and next to it the cc. C =

normal cftr gene, c = mutated problematic cftr gene.

The CC means the child is absolutely normal and doesn't even carry

the cf mutation. The Cc means a carrier and the cc means the child HAS

cf. This shows the probability with each child. You have a 1 in 4

chance of the child not even being a carrier. There's a 2 in 4 chance

of the child being a carrier. And a 1 in 4 chance of the child having

CF. These are the same chances EACH child has. This is a

representation of how your genes mix each time you make a child with

the same spouse. This is why if a child of a couple has cf and a

sibling of the same couple have cf they'll have the exact same

mutations.

Hope I've helped.

Crystal

mom to Adam (homozygous f508) 8mo, and le 3 this month nocf.

(I'm leaving it to le when she's older to be tested as a

carrier.)

> >

>

> > Genetics question. I racking my brain trying to figure out how

we

> got so

> > " lucky " with three cfer's. If my husband or I had cf(neither one

> of us

> > shows any signs) it would be a 50/50 chance as long as the other

> was a

> > carrier, correct? So would that mean that there are 2 different

> gene

> > sequences(don't know if I'm wording this correct) that could

> happen? Or

> > would it be the same two each time? I've been debating on us

> getting tested

> > just to try and figure out what is going on, but if he was tested

> and it was

> > positive we'd be out of insurance and he'd have no job. Gotta

love

> the

> > military.

> > Jen A. mom to 4, Yolo 2 1/2 and Phynix 6 months all w/cf.

> >

[Guest guest]

Yes, we are catagory 5 on the EFM Program. We can't go overseas

either which actually doesn't make sense to me seeing as how there

are clinics in Europe that could handle the disease. That's ok I'd

rather stay close to family anyways. My husband is a Seabee in the

Navy so we have two choices for bases when he is in a battalion. Port

Hueneme, California and Gulfport, Mississippi. We are from west coast

so go there. There are other bases for shore duty. Right now we are

in Hawaii. Wyatt was actually born at Air Force Base in

California. Best military hospital I've ever been to

Christy

> My husband is Air Force. If he's a carrier nothing would happen.

If he has

> it they will give him an honorable medical discharge. Why? I don't

> understand. I think it's the same thing as AIDS, death is

> inevitable(DAUUUUU we're all going to die). Other than that I'm

clueless on

> this, lol. Do you guys have an EFMP? We got coded so that we

can't move

> out of the states. Does the Navy have the same thing? Just

curious.

>

> Jen, mom to ALex 4, Yolo 2 1/2, and Phynix 6months. all w/cf.

>

>

>

>

> _________________________________________________________________

> Protect your PC - get McAfee.com VirusScan Online

> http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963

[Guest guest]

Yes, we are catagory 5 on the EFM Program. We can't go overseas

either which actually doesn't make sense to me seeing as how there

are clinics in Europe that could handle the disease. That's ok I'd

rather stay close to family anyways. My husband is a Seabee in the

Navy so we have two choices for bases when he is in a battalion. Port

Hueneme, California and Gulfport, Mississippi. We are from west coast

so go there. There are other bases for shore duty. Right now we are

in Hawaii. Wyatt was actually born at Air Force Base in

California. Best military hospital I've ever been to

Christy

> My husband is Air Force. If he's a carrier nothing would happen.

If he has

> it they will give him an honorable medical discharge. Why? I don't

> understand. I think it's the same thing as AIDS, death is

> inevitable(DAUUUUU we're all going to die). Other than that I'm

clueless on

> this, lol. Do you guys have an EFMP? We got coded so that we

can't move

> out of the states. Does the Navy have the same thing? Just

curious.

>

> Jen, mom to ALex 4, Yolo 2 1/2, and Phynix 6months. all w/cf.

>

>

>

>

> _________________________________________________________________

> Protect your PC - get McAfee.com VirusScan Online

> http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963

[Guest guest]

Unless one of you happened to have two mutations, then your kids

mutations should be the same.

Jen

> In a message dated 11/5/2002 4:29:42 PM Central Standard Time,

> cfkids2@h... writes:

>

>

> > Genetics question. I racking my brain trying to figure out how we

got so

> > " lucky " with three cfer's. If my husband or I had cf(neither one

of us

> > shows any signs) it would be a 50/50 chance as long as the other

was a

> > carrier, correct? So would that mean that there are 2 different

gene

> > sequences(don't know if I'm wording this correct) that could

happen? Or

> > would it be the same two each time? I've been debating on us

getting

> > tested

> > just to try and figure out what is going on, but if he was tested

and it

> > was

> > positive we'd be out of insurance and he'd have no job. Gotta

love the

> > military.

>

> Jen A

> I have two girls with CF and when they drew blood from my oldest so

they

> could test to see what kind of mutation she had (because they wanted

to know

> what they were dealing with) I said are you going to draw blood from

my

> youngest one to and they said No only unless she has a different

father their

> mutations would be the same. So they way I understand you can only

each have

> one mutation of CF because they told me that there mutations would

be the

> same because it came from each of us. Hope this helps. Deb A

>

>

> [Non-text portions of this message hav

[Guest guest]

Unless one of you happened to have two mutations, then your kids

mutations should be the same.

Jen

> In a message dated 11/5/2002 4:29:42 PM Central Standard Time,

> cfkids2@h... writes:

>

>

> > Genetics question. I racking my brain trying to figure out how we

got so

> > " lucky " with three cfer's. If my husband or I had cf(neither one

of us

> > shows any signs) it would be a 50/50 chance as long as the other

was a

> > carrier, correct? So would that mean that there are 2 different

gene

> > sequences(don't know if I'm wording this correct) that could

happen? Or

> > would it be the same two each time? I've been debating on us

getting

> > tested

> > just to try and figure out what is going on, but if he was tested

and it

> > was

> > positive we'd be out of insurance and he'd have no job. Gotta

love the

> > military.

>

> Jen A

> I have two girls with CF and when they drew blood from my oldest so

they

> could test to see what kind of mutation she had (because they wanted

to know

> what they were dealing with) I said are you going to draw blood from

my

> youngest one to and they said No only unless she has a different

father their

> mutations would be the same. So they way I understand you can only

each have

> one mutation of CF because they told me that there mutations would

be the

> same because it came from each of us. Hope this helps. Deb A

>

>

> [Non-text portions of this message hav

[Guest guest]

Unless one of you happened to have two mutations, then your kids

mutations should be the same.

Jen

> In a message dated 11/5/2002 4:29:42 PM Central Standard Time,

> cfkids2@h... writes:

>

>

> > Genetics question. I racking my brain trying to figure out how we

got so

> > " lucky " with three cfer's. If my husband or I had cf(neither one

of us

> > shows any signs) it would be a 50/50 chance as long as the other

was a

> > carrier, correct? So would that mean that there are 2 different

gene

> > sequences(don't know if I'm wording this correct) that could

happen? Or

> > would it be the same two each time? I've been debating on us

getting

> > tested

> > just to try and figure out what is going on, but if he was tested

and it

> > was

> > positive we'd be out of insurance and he'd have no job. Gotta

love the

> > military.

>

> Jen A

> I have two girls with CF and when they drew blood from my oldest so

they

> could test to see what kind of mutation she had (because they wanted

to know

> what they were dealing with) I said are you going to draw blood from

my

> youngest one to and they said No only unless she has a different

father their

> mutations would be the same. So they way I understand you can only

each have

> one mutation of CF because they told me that there mutations would

be the

> same because it came from each of us. Hope this helps. Deb A

>

>

> [Non-text portions of this message hav