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Re: To Suzanne, Tom's mom

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I have seen Gastrocom mentioned several times lately, what is it, have

people had good luck with it?

>

>Reply-To: pecanbread

>To: pecanbread

>Subject: To Suzanne, Tom's mom

>Date: Tue, 21 Feb 2006 03:13:03 -0000

>

>

> " These are the foods we're fairly confident that Tom isn't allergic to: "

>

>

>I am writing to verify again that these are all true IgE allergies.

>

>When words like " slight allergy " and numbers like +1 are used, I

>immediately think of IgG tests, blood sensitivities tests like the ELISA.

>

>

>I'm just making certain.

>

>If these are IgE tests, then I would avoid all of them, indefinitely

>and I would ask for the Gastrocrom.

>

>I would suggest making an SCD menu based on the foods that he is not

>allergic to and cook all of the foods, and peel them as needed.

>

>An intro diet is not going to be possible for this child if he has

>true IgE allergies to that many foods.

>

>

>Jody

>mom to -7 and -9

>SCD 1/03

>

>

>

_________________________________________________________________

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I have seen Gastrocom mentioned several times lately, what is it, have

people had good luck with it?

>

>Reply-To: pecanbread

>To: pecanbread

>Subject: To Suzanne, Tom's mom

>Date: Tue, 21 Feb 2006 03:13:03 -0000

>

>

> " These are the foods we're fairly confident that Tom isn't allergic to: "

>

>

>I am writing to verify again that these are all true IgE allergies.

>

>When words like " slight allergy " and numbers like +1 are used, I

>immediately think of IgG tests, blood sensitivities tests like the ELISA.

>

>

>I'm just making certain.

>

>If these are IgE tests, then I would avoid all of them, indefinitely

>and I would ask for the Gastrocrom.

>

>I would suggest making an SCD menu based on the foods that he is not

>allergic to and cook all of the foods, and peel them as needed.

>

>An intro diet is not going to be possible for this child if he has

>true IgE allergies to that many foods.

>

>

>Jody

>mom to -7 and -9

>SCD 1/03

>

>

>

_________________________________________________________________

Express yourself instantly with MSN Messenger! Download today - it's FREE!

http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/

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Share on other sites

I have seen Gastrocom mentioned several times lately, what is it, have

people had good luck with it?

>

>Reply-To: pecanbread

>To: pecanbread

>Subject: To Suzanne, Tom's mom

>Date: Tue, 21 Feb 2006 03:13:03 -0000

>

>

> " These are the foods we're fairly confident that Tom isn't allergic to: "

>

>

>I am writing to verify again that these are all true IgE allergies.

>

>When words like " slight allergy " and numbers like +1 are used, I

>immediately think of IgG tests, blood sensitivities tests like the ELISA.

>

>

>I'm just making certain.

>

>If these are IgE tests, then I would avoid all of them, indefinitely

>and I would ask for the Gastrocrom.

>

>I would suggest making an SCD menu based on the foods that he is not

>allergic to and cook all of the foods, and peel them as needed.

>

>An intro diet is not going to be possible for this child if he has

>true IgE allergies to that many foods.

>

>

>Jody

>mom to -7 and -9

>SCD 1/03

>

>

>

_________________________________________________________________

Express yourself instantly with MSN Messenger! Download today - it's FREE!

http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/

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Share on other sites

" I have seen Gastrocom mentioned several times lately, what is it "

It's an oral mast cell inhibitor.

It's taken before meals and it is designed to block the body from

producing histamine (allergic reactions).

You can read more about exaclty what it does and how it does it by

looking it up on google.

:)

Jody

mom to -7 and -9

SCD 1/03

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" I have seen Gastrocom mentioned several times lately, what is it "

It's an oral mast cell inhibitor.

It's taken before meals and it is designed to block the body from

producing histamine (allergic reactions).

You can read more about exaclty what it does and how it does it by

looking it up on google.

:)

Jody

mom to -7 and -9

SCD 1/03

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Share on other sites

Gastrocrom is a prescription med that blocks allergies from foods. My

daughter has been on it for a couple of weeks now and she wants to eat a

much wider variety of foods and has better bm's. She uses the oral mixed

with some purified water 20 min. before each meal. Jenn & Kali 9 months SCD

Original Message -----

To: pecanbread >

Sent: Monday, February 20, 2006 10:17 PM

Subject: RE: To Suzanne, Tom's mom

> I have seen Gastrocom mentioned several times lately, what is it, have

> people had good luck with it?

>

>

> >

> >Reply-To: pecanbread

> >To: pecanbread

> >Subject: To Suzanne, Tom's mom

> >Date: Tue, 21 Feb 2006 03:13:03 -0000

> >

> >

> > " These are the foods we're fairly confident that Tom isn't allergic to: "

> >

> >

> >I am writing to verify again that these are all true IgE allergies.

> >

> >When words like " slight allergy " and numbers like +1 are used, I

> >immediately think of IgG tests, blood sensitivities tests like the ELISA.

> >

> >

> >I'm just making certain.

> >

> >If these are IgE tests, then I would avoid all of them, indefinitely

> >and I would ask for the Gastrocrom.

> >

> >I would suggest making an SCD menu based on the foods that he is not

> >allergic to and cook all of the foods, and peel them as needed.

> >

> >An intro diet is not going to be possible for this child if he has

> >true IgE allergies to that many foods.

> >

> >

> >Jody

> >mom to -7 and -9

> >SCD 1/03

> >

> >

> >

>

> _________________________________________________________________

> Express yourself instantly with MSN Messenger! Download today - it's FREE!

> http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/

>

>

>

> For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

>

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Share on other sites

Gastrocrom is a prescription med that blocks allergies from foods. My

daughter has been on it for a couple of weeks now and she wants to eat a

much wider variety of foods and has better bm's. She uses the oral mixed

with some purified water 20 min. before each meal. Jenn & Kali 9 months SCD

Original Message -----

To: pecanbread >

Sent: Monday, February 20, 2006 10:17 PM

Subject: RE: To Suzanne, Tom's mom

> I have seen Gastrocom mentioned several times lately, what is it, have

> people had good luck with it?

>

>

> >

> >Reply-To: pecanbread

> >To: pecanbread

> >Subject: To Suzanne, Tom's mom

> >Date: Tue, 21 Feb 2006 03:13:03 -0000

> >

> >

> > " These are the foods we're fairly confident that Tom isn't allergic to: "

> >

> >

> >I am writing to verify again that these are all true IgE allergies.

> >

> >When words like " slight allergy " and numbers like +1 are used, I

> >immediately think of IgG tests, blood sensitivities tests like the ELISA.

> >

> >

> >I'm just making certain.

> >

> >If these are IgE tests, then I would avoid all of them, indefinitely

> >and I would ask for the Gastrocrom.

> >

> >I would suggest making an SCD menu based on the foods that he is not

> >allergic to and cook all of the foods, and peel them as needed.

> >

> >An intro diet is not going to be possible for this child if he has

> >true IgE allergies to that many foods.

> >

> >

> >Jody

> >mom to -7 and -9

> >SCD 1/03

> >

> >

> >

>

> _________________________________________________________________

> Express yourself instantly with MSN Messenger! Download today - it's FREE!

> http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/

>

>

>

> For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

>

Link to comment
Share on other sites

Gastrocrom is a prescription med that blocks allergies from foods. My

daughter has been on it for a couple of weeks now and she wants to eat a

much wider variety of foods and has better bm's. She uses the oral mixed

with some purified water 20 min. before each meal. Jenn & Kali 9 months SCD

Original Message -----

To: pecanbread >

Sent: Monday, February 20, 2006 10:17 PM

Subject: RE: To Suzanne, Tom's mom

> I have seen Gastrocom mentioned several times lately, what is it, have

> people had good luck with it?

>

>

> >

> >Reply-To: pecanbread

> >To: pecanbread

> >Subject: To Suzanne, Tom's mom

> >Date: Tue, 21 Feb 2006 03:13:03 -0000

> >

> >

> > " These are the foods we're fairly confident that Tom isn't allergic to: "

> >

> >

> >I am writing to verify again that these are all true IgE allergies.

> >

> >When words like " slight allergy " and numbers like +1 are used, I

> >immediately think of IgG tests, blood sensitivities tests like the ELISA.

> >

> >

> >I'm just making certain.

> >

> >If these are IgE tests, then I would avoid all of them, indefinitely

> >and I would ask for the Gastrocrom.

> >

> >I would suggest making an SCD menu based on the foods that he is not

> >allergic to and cook all of the foods, and peel them as needed.

> >

> >An intro diet is not going to be possible for this child if he has

> >true IgE allergies to that many foods.

> >

> >

> >Jody

> >mom to -7 and -9

> >SCD 1/03

> >

> >

> >

>

> _________________________________________________________________

> Express yourself instantly with MSN Messenger! Download today - it's FREE!

> http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/

>

>

>

> For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

>

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Share on other sites

Hi Jody,

Thanks for your concern about our plight. It is realy hard to feed a

child with so many allergies, and then to add the SCD to that makes

it nearly impossible. But we are determined to do it. We've

eliminated disaccharides for a month (he ate a few grains and statchy

root veggies) and are seeing great results so far. But we're also

treating yeast at the same time, so it's hard to know what to

attirbute the results to. Nonetheless, his gut is in such bad shape

that the SCD seems necessary. We saw one of his DAN doctors

yesterday, and she felt that we should give the diet a minimum of 3

months before we take any other measures, since he's doing so well.

To answer your questions about allergies, yes, Tom's allergies are

IgE allergies and most of them have been confirmed with skin testing

by a regular allergist. We usually identify them first through

careful food charting, and then we go to the allergist twice a year

for extensive testing. We've been at this since he was 2 months old,

he's a very allergic child. I am still nursing him (trying to get

calories into this kid any way I can!), so my diet is just as

restricted as his is. Along the way I've learned a lot about

allergies (IgE mainly), and have facilitated a food allergy support

group and a breastfeeding support group.

Tom's visible reactions are delayed eczema, which we manage with a

rotation diet and a bit of Elidel cream when the itching gets out of

hand.

Tom's allergies were manageable until he was about 2.5 (he's 3.3 now),

I was able to avoid allergic foods and keep his skin perfectly clear

just with dietary avoidance. But in the last year he's acquired a ton

of new allergies, to the point he tolerates only a few foods - mostly

meats and root vegetables. If I were to feed him only food he was not

alergic to, we would not be able to do the SCD diet. He would be

eating only meat, which is not safe or healthy.

I believe Elaine's position in BTVC on allergies is to not consume

anything that has ever caused anaphylaxis. Fortunately, Tom has never

had a problem with anaphylaxis. If she has had anything to say about

other allergic (IgE) reactions, I'd be very interested to hear it.

While I don't like the idea of feeding my kid foods he's allergic to,

our allergist has said we really need to do it at this point to

ensure Tom can get adequate nutrition. I reluctantly agree.

Since we're down to a very short list of foods that Tom tolerates, we

rotate all foods to hopefully keep him from developing reactions to

the foods he can still eat. He eats each group of foods for two days

(usually a meat, an oil, and one or two veggies, occasionally a bit

of fruit). Then we don't eat those foods again for 5 days. He has 4

different sets of foods.

Gastrocrom, according to my (probably not comprehensive) research,

doesn't work all that well as a routine intervention. When it does

work, it's mostly recommended for planned, special infractions, such

as wanting to eat a wheat cake at one's birthday party. I'm really

interested to hear from people listmates who are using it on a

regular basis. Our allergist offered it to us (mostly out of

desperation that he didn't feel he had anything else to offer), but

we have not pursued it. I haven't ever gotten the feeling that it

would help much in daily living.

Feeding this kid and myself has been an incredible challenge, and I

feel like I'm pretty much out of the realm where anyone else can give

us much help. Even our DAN! has said that modern medicine and the

DAN! protocol doesn't really have anything to offer kids like him. I

am making it up as I go along, so if anyone has advice to offer, I

will gratefully listen!

Suzanne

>

>

> " These are the foods we're fairly confident that Tom isn't

allergic to: "

>

>

>

> When words like " slight allergy " and numbers like +1 are used, I

> immediately think of IgG tests, blood sensitivities tests like the

ELISA.

>

>

> I'm just making certain.

>

> If these are IgE tests, then I would avoid all of them, indefinitely

> and I would ask for the Gastrocrom.

>

> I would suggest making an SCD menu based on the foods that he is not

> allergic to and cook all of the foods, and peel them as needed.

>

> An intro diet is not going to be possible for this child if he has

> true IgE allergies to that many foods.

>

>

> Jody

> mom to -7 and -9

> SCD 1/03

>

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