Guest guest Posted November 20, 2002 Report Share Posted November 20, 2002 If you have a Section 504 accommodation you could make it an accommodation that your child NOT be penalized for absences related to CF with respect to attendance for being exempt from finals, awards, etc. Kids with CF shouldn't be penalized from being absent from school due to CF.....and dr. visits!!! Rosemary in New York with 3 children with CF - they are 12, 10, 6...I coined the phrase " BREATHE DAMMIT " ; and now we have a dog named - are you ready for this - TOBI after their medication! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2002 Report Share Posted November 20, 2002 The exclusion of your child is a form of discrimination. A well- written letter to the local school board pointing this fact out may go a long way in correcting the situation. It's not just " unfair, " it's illegal. A copy of the letter sent to the local newspapers, radio and television stations may help give a nudge in changing these practices. (Make sure that your letter includes details of who's getting copies under the " CC: " at the bottom!) The teachers can be jerks, the principal can be a jerk, but the school board is elected and they will do the right thing so they don't get slammed in the next election. Also, violating this federal rule will snatch away their funding, so they are probably going to be eager to comply once they realize that this is a real problem. See http://www.ed.gov/offices/OCR/disability.html for an overview of disablility discrimination. " Section 504 of the Rehabilitation Act of 1973 prohibits discrimination based on disability in programs or activities receiving federal financial assistance. The U.S. Department of Education gives grants of financial assistance to schools and colleges and to certain other entities, including vocational rehabilitation programs. " If it seems that this is making a big stink over a small infraction, consider how huge this seems to a small child. The responsibility of advocacy for our children falls squarely on our own backs. If we don't push for the changes to be made, no one will. If you don't want to push it yourself, there are lots of attorneys who specialize in pushing for you. Look for one who specializes in civil rights. ~ mommy of 3, 1 with cf > > deal with it. My daughter is in 3rd grade and they get rewarded every > > Friday if they didn't miss during the week, and Brittany misses at least > > one day every other week, and this makes her feel un worthy when she's in > > the library, while her class is having a party, makes me feel like crap, > > and it just makes me want her to stay home every Friday, so she doesn't > > have to sit alone.You would think they would cut her some slack...now if > > that was their child.... > > Tammy > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2002 Report Share Posted November 20, 2002 The exclusion of your child is a form of discrimination. A well- written letter to the local school board pointing this fact out may go a long way in correcting the situation. It's not just " unfair, " it's illegal. A copy of the letter sent to the local newspapers, radio and television stations may help give a nudge in changing these practices. (Make sure that your letter includes details of who's getting copies under the " CC: " at the bottom!) The teachers can be jerks, the principal can be a jerk, but the school board is elected and they will do the right thing so they don't get slammed in the next election. Also, violating this federal rule will snatch away their funding, so they are probably going to be eager to comply once they realize that this is a real problem. See http://www.ed.gov/offices/OCR/disability.html for an overview of disablility discrimination. " Section 504 of the Rehabilitation Act of 1973 prohibits discrimination based on disability in programs or activities receiving federal financial assistance. The U.S. Department of Education gives grants of financial assistance to schools and colleges and to certain other entities, including vocational rehabilitation programs. " If it seems that this is making a big stink over a small infraction, consider how huge this seems to a small child. The responsibility of advocacy for our children falls squarely on our own backs. If we don't push for the changes to be made, no one will. If you don't want to push it yourself, there are lots of attorneys who specialize in pushing for you. Look for one who specializes in civil rights. ~ mommy of 3, 1 with cf > > deal with it. My daughter is in 3rd grade and they get rewarded every > > Friday if they didn't miss during the week, and Brittany misses at least > > one day every other week, and this makes her feel un worthy when she's in > > the library, while her class is having a party, makes me feel like crap, > > and it just makes me want her to stay home every Friday, so she doesn't > > have to sit alone.You would think they would cut her some slack...now if > > that was their child.... > > Tammy > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2002 Report Share Posted November 21, 2002 Hi , I bet all school boards in your district are reliefed that you homeschool, LOL! Seriously, I am baffled about the whole thread. I am out of school for twenty years now, so maybe I have missed a development here. Don't you go to school everyday except when you are sick? And don't those, who are healthy help their sick colleagues anymore? A rewarding system that encourages sick people to go to school and discriminates those who can't is stupid, to say the least. If the teaching at that school is so poor that the teachers have to reward people who sacrifice themselves to attend, then those teachers should waste a thought about their teaching methods. One year to go until Fiona goes to school. I better start to prepare for the worst. And as you know, only circus people homeschool here :-) Peace Torsten > The exclusion of your child is a form of discrimination. A well- > written letter to the local school board pointing this fact out may > go a long way in correcting the situation. It's not just " unfair, " > it's illegal. A copy of the letter sent to the local newspapers, > radio and television stations may help give a nudge in changing these > practices. (Make sure that your letter includes details of who's > getting copies under the " CC: " at the bottom!) > The teachers can be jerks, the principal can be a jerk, but the > school board is elected and they will do the right thing so they > don't get slammed in the next election. Also, violating this federal > rule will snatch away their funding, so they are probably going to be > eager to comply once they realize that this is a real problem. > See http://www.ed.gov/offices/OCR/disability.html for an overview of > disablility discrimination. > " Section 504 of the Rehabilitation Act of 1973 prohibits > discrimination based on disability in programs or activities > receiving federal financial assistance. The U.S. Department of > Education gives grants of financial assistance to schools and > colleges and to certain other entities, including vocational > rehabilitation programs. " > If it seems that this is making a big stink over a small infraction, > consider how huge this seems to a small child. The responsibility of > advocacy for our children falls squarely on our own backs. If we > don't push for the changes to be made, no one will. If you don't > want to push it yourself, there are lots of attorneys who specialize > in pushing for you. Look for one who specializes in civil rights. > > ~ > mommy of 3, 1 with cf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2002 Report Share Posted November 21, 2002 Hi , I bet all school boards in your district are reliefed that you homeschool, LOL! Seriously, I am baffled about the whole thread. I am out of school for twenty years now, so maybe I have missed a development here. Don't you go to school everyday except when you are sick? And don't those, who are healthy help their sick colleagues anymore? A rewarding system that encourages sick people to go to school and discriminates those who can't is stupid, to say the least. If the teaching at that school is so poor that the teachers have to reward people who sacrifice themselves to attend, then those teachers should waste a thought about their teaching methods. One year to go until Fiona goes to school. I better start to prepare for the worst. And as you know, only circus people homeschool here :-) Peace Torsten > The exclusion of your child is a form of discrimination. A well- > written letter to the local school board pointing this fact out may > go a long way in correcting the situation. It's not just " unfair, " > it's illegal. A copy of the letter sent to the local newspapers, > radio and television stations may help give a nudge in changing these > practices. (Make sure that your letter includes details of who's > getting copies under the " CC: " at the bottom!) > The teachers can be jerks, the principal can be a jerk, but the > school board is elected and they will do the right thing so they > don't get slammed in the next election. Also, violating this federal > rule will snatch away their funding, so they are probably going to be > eager to comply once they realize that this is a real problem. > See http://www.ed.gov/offices/OCR/disability.html for an overview of > disablility discrimination. > " Section 504 of the Rehabilitation Act of 1973 prohibits > discrimination based on disability in programs or activities > receiving federal financial assistance. The U.S. Department of > Education gives grants of financial assistance to schools and > colleges and to certain other entities, including vocational > rehabilitation programs. " > If it seems that this is making a big stink over a small infraction, > consider how huge this seems to a small child. The responsibility of > advocacy for our children falls squarely on our own backs. If we > don't push for the changes to be made, no one will. If you don't > want to push it yourself, there are lots of attorneys who specialize > in pushing for you. Look for one who specializes in civil rights. > > ~ > mommy of 3, 1 with cf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2002 Report Share Posted November 21, 2002 Hi , I bet all school boards in your district are reliefed that you homeschool, LOL! Seriously, I am baffled about the whole thread. I am out of school for twenty years now, so maybe I have missed a development here. Don't you go to school everyday except when you are sick? And don't those, who are healthy help their sick colleagues anymore? A rewarding system that encourages sick people to go to school and discriminates those who can't is stupid, to say the least. If the teaching at that school is so poor that the teachers have to reward people who sacrifice themselves to attend, then those teachers should waste a thought about their teaching methods. One year to go until Fiona goes to school. I better start to prepare for the worst. And as you know, only circus people homeschool here :-) Peace Torsten > The exclusion of your child is a form of discrimination. A well- > written letter to the local school board pointing this fact out may > go a long way in correcting the situation. It's not just " unfair, " > it's illegal. A copy of the letter sent to the local newspapers, > radio and television stations may help give a nudge in changing these > practices. (Make sure that your letter includes details of who's > getting copies under the " CC: " at the bottom!) > The teachers can be jerks, the principal can be a jerk, but the > school board is elected and they will do the right thing so they > don't get slammed in the next election. Also, violating this federal > rule will snatch away their funding, so they are probably going to be > eager to comply once they realize that this is a real problem. > See http://www.ed.gov/offices/OCR/disability.html for an overview of > disablility discrimination. > " Section 504 of the Rehabilitation Act of 1973 prohibits > discrimination based on disability in programs or activities > receiving federal financial assistance. The U.S. Department of > Education gives grants of financial assistance to schools and > colleges and to certain other entities, including vocational > rehabilitation programs. " > If it seems that this is making a big stink over a small infraction, > consider how huge this seems to a small child. The responsibility of > advocacy for our children falls squarely on our own backs. If we > don't push for the changes to be made, no one will. If you don't > want to push it yourself, there are lots of attorneys who specialize > in pushing for you. Look for one who specializes in civil rights. > > ~ > mommy of 3, 1 with cf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2002 Report Share Posted November 21, 2002 My children's school doesn't *do* attendance rewards... My girls don't have CF but they still get sick quite often and I know if they were being /punished/ for not attending I'd have to fight tooth and nail (even more than I have to now) to keep them home. Instead what their school does is have BEHAVIOR rewards. If a child can make it through the week without lunch detention, or getting their name on the board, or whatever disciplinary act the teacher has, then they are rewarded. Sometimes it is Free-Jeans day (my girls wear uniforms to school) sometimes it's a School Pizza Party, other's it's just a gift certificate. Whatever. But the reward is based on what they CAN control. Not what they cant...... just a suggestion. MariAn - the librarian - LOL proud momma to 3 beautiful daughters and one young prince! Kaitlynn 11, Halie 7, Kennidy 5 & 12 wks " Life is not measured by the number of breaths you take ~ but by the moments that take your breath away. " > Attendance Rewards > > I was a " perfect attendance " award recipient from kindergarten > through 4th grade (I think). It was important to me at the time (many > years ago!), but now I see it very differently. > > My children's public schools have an a pizza coupon (or a Chick-Fil-A > coupon) which is given each quarter with a letter. It goes home to > the parents and does not get announced in the school. It is based on > attendance, but it is not perfect attendance, which is, in my > opinion, a bad idea (rewarding parents and kids for coming to school > to spread germs, viruses, and many other nasties). I think it is up > to the teacher to determine who receives it. > > I was lucky and very healthy as a kid. I was one of those > over-achievers who cried if my mom suggested I stay home til I felt > better. I saw a doctor maybe once a year and in those days they often > made house calls. > > I don't have a problem with schools having incentive programs and > trying to get kids to see the importance of coming every day and on > time, etc. BUT I really have an issue with the flaunt-it-in-your face > stuff like holding parties and such during school time for those > children who were lucky enough not to be born with a health condition > they have no control over. > > I'm not just talking about the kids with cf, wither. If a child is > vomiting all night at home, or has a fever at 7 am, he/she should not > be pressured into attending school that day for his/her own safety > AND THAT OF THE WHOLE SCHOOL! > > We need to change the way these schools think. > > What ideas do we have? Write to me directly and I'll compile suggestions. > > -Lenora > > lenora@... > > > -- > http://www.lenoradegen.com > Give a gift of art...Charming renderings of a home or > establishment...Original, one-of-a-kind pen & ink or > watercolor...Special prices available only until November 29th, 2002 > > http://www.cfawareness.org > ...in memory...in hope...dispelling the darkness...Learn more about > Cystic Fibrosis and the special people who cope with it every day > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2002 Report Share Posted November 21, 2002 My children's school doesn't *do* attendance rewards... My girls don't have CF but they still get sick quite often and I know if they were being /punished/ for not attending I'd have to fight tooth and nail (even more than I have to now) to keep them home. Instead what their school does is have BEHAVIOR rewards. If a child can make it through the week without lunch detention, or getting their name on the board, or whatever disciplinary act the teacher has, then they are rewarded. Sometimes it is Free-Jeans day (my girls wear uniforms to school) sometimes it's a School Pizza Party, other's it's just a gift certificate. Whatever. But the reward is based on what they CAN control. Not what they cant...... just a suggestion. MariAn - the librarian - LOL proud momma to 3 beautiful daughters and one young prince! Kaitlynn 11, Halie 7, Kennidy 5 & 12 wks " Life is not measured by the number of breaths you take ~ but by the moments that take your breath away. " > Attendance Rewards > > I was a " perfect attendance " award recipient from kindergarten > through 4th grade (I think). It was important to me at the time (many > years ago!), but now I see it very differently. > > My children's public schools have an a pizza coupon (or a Chick-Fil-A > coupon) which is given each quarter with a letter. It goes home to > the parents and does not get announced in the school. It is based on > attendance, but it is not perfect attendance, which is, in my > opinion, a bad idea (rewarding parents and kids for coming to school > to spread germs, viruses, and many other nasties). I think it is up > to the teacher to determine who receives it. > > I was lucky and very healthy as a kid. I was one of those > over-achievers who cried if my mom suggested I stay home til I felt > better. I saw a doctor maybe once a year and in those days they often > made house calls. > > I don't have a problem with schools having incentive programs and > trying to get kids to see the importance of coming every day and on > time, etc. BUT I really have an issue with the flaunt-it-in-your face > stuff like holding parties and such during school time for those > children who were lucky enough not to be born with a health condition > they have no control over. > > I'm not just talking about the kids with cf, wither. If a child is > vomiting all night at home, or has a fever at 7 am, he/she should not > be pressured into attending school that day for his/her own safety > AND THAT OF THE WHOLE SCHOOL! > > We need to change the way these schools think. > > What ideas do we have? Write to me directly and I'll compile suggestions. > > -Lenora > > lenora@... > > > -- > http://www.lenoradegen.com > Give a gift of art...Charming renderings of a home or > establishment...Original, one-of-a-kind pen & ink or > watercolor...Special prices available only until November 29th, 2002 > > http://www.cfawareness.org > ...in memory...in hope...dispelling the darkness...Learn more about > Cystic Fibrosis and the special people who cope with it every day > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2002 Report Share Posted November 21, 2002 We live in Erie, Pennsylvania... about 2 hours north of Pittsburgh. I really like the way the girls' school is ran - we are very fortunate to have such a wonderful principle with such great ideas. I can not believe there are still people out there living in the dark ages. To punish a child for missing school for reasons beyond her control is ludicrous. Have faith - I'm sure you will take the correct action and things will be corrected f_a_s_t..... I've already seen some wonderful ideas come across the board! Your daughter is very lucky to have an advocate like yourself! I love this list! n PS - today is 's 3-month day!!!! He's growing so fast........... proud momma to 3 beautiful daughters and one young prince! Kaitlynn 11, Halie 7, Kennidy 5 & 3 months " Life is not measured by the number of breaths you take ~ but by the moments that take your breath away. " > RE: RE: Attendance Rewards > > That a wonderful way to teach many life's lessons. !! Where do you > live. I wish that would be a standard way to disipline.Good to > incorporate that into home lessons as well. > Thanks for sharing .have a wonderful week > > LOVE & HUGS< > GrandmomBEV > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2002 Report Share Posted November 21, 2002 We live in Erie, Pennsylvania... about 2 hours north of Pittsburgh. I really like the way the girls' school is ran - we are very fortunate to have such a wonderful principle with such great ideas. I can not believe there are still people out there living in the dark ages. To punish a child for missing school for reasons beyond her control is ludicrous. Have faith - I'm sure you will take the correct action and things will be corrected f_a_s_t..... I've already seen some wonderful ideas come across the board! Your daughter is very lucky to have an advocate like yourself! I love this list! n PS - today is 's 3-month day!!!! He's growing so fast........... proud momma to 3 beautiful daughters and one young prince! Kaitlynn 11, Halie 7, Kennidy 5 & 3 months " Life is not measured by the number of breaths you take ~ but by the moments that take your breath away. " > RE: RE: Attendance Rewards > > That a wonderful way to teach many life's lessons. !! Where do you > live. I wish that would be a standard way to disipline.Good to > incorporate that into home lessons as well. > Thanks for sharing .have a wonderful week > > LOVE & HUGS< > GrandmomBEV > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2002 Report Share Posted November 21, 2002 We live in Erie, Pennsylvania... about 2 hours north of Pittsburgh. I really like the way the girls' school is ran - we are very fortunate to have such a wonderful principle with such great ideas. I can not believe there are still people out there living in the dark ages. To punish a child for missing school for reasons beyond her control is ludicrous. Have faith - I'm sure you will take the correct action and things will be corrected f_a_s_t..... I've already seen some wonderful ideas come across the board! Your daughter is very lucky to have an advocate like yourself! I love this list! n PS - today is 's 3-month day!!!! He's growing so fast........... proud momma to 3 beautiful daughters and one young prince! Kaitlynn 11, Halie 7, Kennidy 5 & 3 months " Life is not measured by the number of breaths you take ~ but by the moments that take your breath away. " > RE: RE: Attendance Rewards > > That a wonderful way to teach many life's lessons. !! Where do you > live. I wish that would be a standard way to disipline.Good to > incorporate that into home lessons as well. > Thanks for sharing .have a wonderful week > > LOVE & HUGS< > GrandmomBEV > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2002 Report Share Posted November 21, 2002 Hi Torsten, Actually, I am no longer homeschooling and all three (!) of my children are in public school now. (And for those who feared I would ruin them by teaching them at home those years, I'll note that they are doing exceptionally well.) Levi is in preschool and LOVES it. My (perhaps overzealous) response is part of me getting ready to fight policies for Levi in the future, if need be. Right now, it's all good. His class has fewer than a dozen children with one teacher and one full-time helper. The enzymes stay on the teacher's desk and he tells her which foods require enzymes and which do not. The teacher has played the Bill Nye CF tape for the children so they would understand why he gets enzymes. He has not missed any days of school yet this year, but it's preschool, so it doesn't matter if he misses or not. He only attends two full days each week. I have actually worried more about Levi's severe peanut allergy than his cf in the school environment. Lucky for us, there is another little girl in the school with a severe peanut allergy and the teachers are already use to screening foods before letting the class have them. I think that it is also easier to deal with a small rural school than crowded city schools. Isn't Fiona in school? I was under the impression that she had already started. She will be six in a few months, won't she? I'm not familiar with Germany's school system, though. I seem to remember that Kindy is for three and four years old, and preschool is what 5 year olds go to there, and you once mentioned that only circus people homeschool in Germany but other than that I've no idea about your system. Have a good day! ;] ~ > Hi , > > I bet all school boards in your district are reliefed that you > homeschool, LOL! > > Peace > Torsten Quote Link to comment Share on other sites More sharing options...
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