What is DAN? Do we need professional help for our one year old daughter?

[Guest guest]

I read alot about DAN. What does this stand for and what does it mean?

We have been battling " celiac disease " /malabsorption of the intestines

for over a year now. With lots of experimentaiton we went from

traditional gluten free diet/dairy free, to paleo(grain free/milk

free/potato and leguem free) back to gluten free/paleo and now we are

newcombers to the SCD. What a year, it has been up and down with

success and we want a change for the better. We wittness our daughter

do her best regarding autistic related behaviors when eating close to

SCD...but did not realize that " close " does not cut it until I

reviewed Elaine's book, reading it again in desperation for 100%

remission. I have learned now understand that it has to be " fanatical

adherance " ....I look forward to all of her autistic problems

disappearing. Is this hope to high?

We are now on day four and already seeing improvement...white coated

tongue is disappearing. Has anybody wittnessed a miracle/cure and all

autistic behaviors vanish. She will be two this Spring and is still

not talking. Will not participate in speech therapy, due to her

inability of coping with strangers and being outside of her comfort

zone: mommies arms or home. Yet most behviors of " fadding out " , " not

responding when talked too " , night terrors (where she does not

recognize who I am), and so much more happens much less now. She has

yet to be professionaly diagnosed as " autistic " ...is this needed...or

will she " heal " out of this conditon? Do I need professional help, or

just this diet?

Thanks for your reply.

[Guest guest]

Please make an appointment with a DAN! There is so much that has to be learned

about this condition, and a DAN is going to help you get through this at a

quicker pace. SCD is definitely where you need to start in helping your child,

but many of them need other treatments/therapies to supplement it. Also,

evidence points to the idea that younger children respond the best to the

treatments, so my point is that time is of the essence. Don't wait! Get in to

a DAN!

I want to echo the last response. You want to find a good, experienced one.

While the intentions of DAN doctors are all good, they are not equal in ability.

Do some homework, and I recommend making an appointment.

Personally, I know I would not survive this if we didn't have our DAN. Good

luck!

Jeni Lynn (gastrointestinal problems)

SCD 6 days

mom to Margeaux, 5 yr. (add)

, 3 yr. (undiagnosed gastrointestinal problems)

Elle, 16 mo. (leaky gut, eczema, heavy metal toxicity)

SCD since 12/1/05

Re: What is DAN? Do we need professional help for our

one year old daughter?

I read alot about DAN. What does this stand for and what does it mean?

> ....I look forward to all of her autistic problems disappearing. Is

this hope to high? She has yet to be professionaly diagnosed as

" autistic " ...is this needed...or will she " heal " out of this conditon?

Do I need professional help, or just this diet?

>

Thanks for your reply.

[Guest guest]

Please make an appointment with a DAN! There is so much that has to be learned

about this condition, and a DAN is going to help you get through this at a

quicker pace. SCD is definitely where you need to start in helping your child,

but many of them need other treatments/therapies to supplement it. Also,

evidence points to the idea that younger children respond the best to the

treatments, so my point is that time is of the essence. Don't wait! Get in to

a DAN!

I want to echo the last response. You want to find a good, experienced one.

While the intentions of DAN doctors are all good, they are not equal in ability.

Do some homework, and I recommend making an appointment.

Personally, I know I would not survive this if we didn't have our DAN. Good

luck!

Jeni Lynn (gastrointestinal problems)

SCD 6 days

mom to Margeaux, 5 yr. (add)

, 3 yr. (undiagnosed gastrointestinal problems)

Elle, 16 mo. (leaky gut, eczema, heavy metal toxicity)

SCD since 12/1/05

Re: What is DAN? Do we need professional help for our

one year old daughter?

I read alot about DAN. What does this stand for and what does it mean?

> ....I look forward to all of her autistic problems disappearing. Is

this hope to high? She has yet to be professionaly diagnosed as

" autistic " ...is this needed...or will she " heal " out of this conditon?

Do I need professional help, or just this diet?

>

Thanks for your reply.

[Guest guest]

Please make an appointment with a DAN! There is so much that has to be learned

about this condition, and a DAN is going to help you get through this at a

quicker pace. SCD is definitely where you need to start in helping your child,

but many of them need other treatments/therapies to supplement it. Also,

evidence points to the idea that younger children respond the best to the

treatments, so my point is that time is of the essence. Don't wait! Get in to

a DAN!

I want to echo the last response. You want to find a good, experienced one.

While the intentions of DAN doctors are all good, they are not equal in ability.

Do some homework, and I recommend making an appointment.

Personally, I know I would not survive this if we didn't have our DAN. Good

luck!

Jeni Lynn (gastrointestinal problems)

SCD 6 days

mom to Margeaux, 5 yr. (add)

, 3 yr. (undiagnosed gastrointestinal problems)

Elle, 16 mo. (leaky gut, eczema, heavy metal toxicity)

SCD since 12/1/05

Re: What is DAN? Do we need professional help for our

one year old daughter?

I read alot about DAN. What does this stand for and what does it mean?

> ....I look forward to all of her autistic problems disappearing. Is

this hope to high? She has yet to be professionaly diagnosed as

" autistic " ...is this needed...or will she " heal " out of this conditon?

Do I need professional help, or just this diet?

>

Thanks for your reply.

[Guest guest]

You are so lucky to have found this diet for your little girl at such a young

age. She will grow up healthy and will never know that she's " missing "

Mcdonalds because she will never have had it. However, I can't stress this

enough:

GET HER EVALUATED!!!

Knowledge is power. You need to know what issues she has, if any, so you can

get her any additional services, supplements, etc. to help her. Sure, she may

be fine without anything except the diet, but there is so much more out there to

help her if needed. The longer you wait the more the " window of opportunity

begins to slowly close. My son will be 4 next month and he was diagnosed with

PDD/autism at 22 mos. By 24 mos, he had 20 hours/week of ABA therapy with the

most wonderful therapists in our home. One year ago, almost to the day, he

started going to DDI, a school where he gets 1:1 ABA therapy and interacts with

other children. His progress, along with SCD, has been remarkable. His speech

is finally coming (that's his biggest deficit), he hardly ever " stims " , he's

very engaged now; he is hopefully on the way to recovery. He also takes

supplements under the supervision of a DAN (defeat autism now) doctor. I thank

God every day that we caught this thing early and faced it-even though it was so

hard to make the call for the evaluation and face the fear that something was

wrong with our baby. We live in Long Island, NY and have some of the best

school districts in the country when it comes to special services. Call your

local school district and see if it has a social services dept or early

intervention dept. They will come to our home and evaluate your daughter. In

our case, they then sent a psychologist as a follow up who then made the

diagnosis of PDD (pervasive developmental disorder). A second opinion from an

MD called a developmental pediatrician confirmed the diagnosis, though he said

autism. It's really just semantics. Get the diagnosis and if needed, get the

help/services for your girl. Your regular pediatrician may be able to refer you

too, but if he/she tells you to wait, I say trust your gut and don't wait. I

always said to myself back then " What if I'm wrong and he doesn't need all this

therapy and its just a speech delay? " Then I figured, well he can't be hurt by

the therapy and he'll have had private tutoring until time shows us he's fine.

Then I asked myself " What if I do nothing and I am wrong? " So now I'll ask you..

what if you do nothing and you're wrong? Isn't it better to know what, if

anything, you're dealing with and then to face it? Trust your gut-its your

child. Fight for every service she may need now and your chances for a full

recovery will be greater. I know my son is better and I love the SCD and it has

had a MAJOR impact for him, but I know the other therapies are also a major part

of his recovering,as are the supplements (some of which require a doctor's

prescription/supervision). Sorry this is so long, but I can't stress enough

that you need a professional on board with this and as soon as possible. Your

daughter will get used to working with a therapist--it may take some rough

sessions, but the right therapist will prevail. Good luck to you.

Clay's mom 3yo/SCD 6 mos

What is DAN? Do we need professional help for our one

year old daughter?

I read alot about DAN. What does this stand for and what does it mean?

We have been battling " celiac disease " /malabsorption of the intestines

for over a year now. With lots of experimentaiton we went from

traditional gluten free diet/dairy free, to paleo(grain free/milk

free/potato and leguem free) back to gluten free/paleo and now we are

newcombers to the SCD. What a year, it has been up and down with

success and we want a change for the better. We wittness our daughter

do her best regarding autistic related behaviors when eating close to

SCD...but did not realize that " close " does not cut it until I

reviewed Elaine's book, reading it again in desperation for 100%

remission. I have learned now understand that it has to be " fanatical

adherance " ....I look forward to all of her autistic problems

disappearing. Is this hope to high?

We are now on day four and already seeing improvement...white coated

tongue is disappearing. Has anybody wittnessed a miracle/cure and all

autistic behaviors vanish. She will be two this Spring and is still

not talking. Will not participate in speech therapy, due to her

inability of coping with strangers and being outside of her comfort

zone: mommies arms or home. Yet most behviors of " fadding out " , " not

responding when talked too " , night terrors (where she does not

recognize who I am), and so much more happens much less now. She has

yet to be professionaly diagnosed as " autistic " ...is this needed...or

will she " heal " out of this conditon? Do I need professional help, or

just this diet?

Thanks for your reply.

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com

[Guest guest]

You are so lucky to have found this diet for your little girl at such a young

age. She will grow up healthy and will never know that she's " missing "

Mcdonalds because she will never have had it. However, I can't stress this

enough:

GET HER EVALUATED!!!

Knowledge is power. You need to know what issues she has, if any, so you can

get her any additional services, supplements, etc. to help her. Sure, she may

be fine without anything except the diet, but there is so much more out there to

help her if needed. The longer you wait the more the " window of opportunity

begins to slowly close. My son will be 4 next month and he was diagnosed with

PDD/autism at 22 mos. By 24 mos, he had 20 hours/week of ABA therapy with the

most wonderful therapists in our home. One year ago, almost to the day, he

started going to DDI, a school where he gets 1:1 ABA therapy and interacts with

other children. His progress, along with SCD, has been remarkable. His speech

is finally coming (that's his biggest deficit), he hardly ever " stims " , he's

very engaged now; he is hopefully on the way to recovery. He also takes

supplements under the supervision of a DAN (defeat autism now) doctor. I thank

God every day that we caught this thing early and faced it-even though it was so

hard to make the call for the evaluation and face the fear that something was

wrong with our baby. We live in Long Island, NY and have some of the best

school districts in the country when it comes to special services. Call your

local school district and see if it has a social services dept or early

intervention dept. They will come to our home and evaluate your daughter. In

our case, they then sent a psychologist as a follow up who then made the

diagnosis of PDD (pervasive developmental disorder). A second opinion from an

MD called a developmental pediatrician confirmed the diagnosis, though he said

autism. It's really just semantics. Get the diagnosis and if needed, get the

help/services for your girl. Your regular pediatrician may be able to refer you

too, but if he/she tells you to wait, I say trust your gut and don't wait. I

always said to myself back then " What if I'm wrong and he doesn't need all this

therapy and its just a speech delay? " Then I figured, well he can't be hurt by

the therapy and he'll have had private tutoring until time shows us he's fine.

Then I asked myself " What if I do nothing and I am wrong? " So now I'll ask you..

what if you do nothing and you're wrong? Isn't it better to know what, if

anything, you're dealing with and then to face it? Trust your gut-its your

child. Fight for every service she may need now and your chances for a full

recovery will be greater. I know my son is better and I love the SCD and it has

had a MAJOR impact for him, but I know the other therapies are also a major part

of his recovering,as are the supplements (some of which require a doctor's

prescription/supervision). Sorry this is so long, but I can't stress enough

that you need a professional on board with this and as soon as possible. Your

daughter will get used to working with a therapist--it may take some rough

sessions, but the right therapist will prevail. Good luck to you.

Clay's mom 3yo/SCD 6 mos

What is DAN? Do we need professional help for our one

year old daughter?

I read alot about DAN. What does this stand for and what does it mean?

We have been battling " celiac disease " /malabsorption of the intestines

for over a year now. With lots of experimentaiton we went from

traditional gluten free diet/dairy free, to paleo(grain free/milk

free/potato and leguem free) back to gluten free/paleo and now we are

newcombers to the SCD. What a year, it has been up and down with

success and we want a change for the better. We wittness our daughter

do her best regarding autistic related behaviors when eating close to

SCD...but did not realize that " close " does not cut it until I

reviewed Elaine's book, reading it again in desperation for 100%

remission. I have learned now understand that it has to be " fanatical

adherance " ....I look forward to all of her autistic problems

disappearing. Is this hope to high?

We are now on day four and already seeing improvement...white coated

tongue is disappearing. Has anybody wittnessed a miracle/cure and all

autistic behaviors vanish. She will be two this Spring and is still

not talking. Will not participate in speech therapy, due to her

inability of coping with strangers and being outside of her comfort

zone: mommies arms or home. Yet most behviors of " fadding out " , " not

responding when talked too " , night terrors (where she does not

recognize who I am), and so much more happens much less now. She has

yet to be professionaly diagnosed as " autistic " ...is this needed...or

will she " heal " out of this conditon? Do I need professional help, or

just this diet?

Thanks for your reply.

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com

[Guest guest]

You are so lucky to have found this diet for your little girl at such a young

age. She will grow up healthy and will never know that she's " missing "

Mcdonalds because she will never have had it. However, I can't stress this

enough:

GET HER EVALUATED!!!

Knowledge is power. You need to know what issues she has, if any, so you can

get her any additional services, supplements, etc. to help her. Sure, she may

be fine without anything except the diet, but there is so much more out there to

help her if needed. The longer you wait the more the " window of opportunity

begins to slowly close. My son will be 4 next month and he was diagnosed with

PDD/autism at 22 mos. By 24 mos, he had 20 hours/week of ABA therapy with the

most wonderful therapists in our home. One year ago, almost to the day, he

started going to DDI, a school where he gets 1:1 ABA therapy and interacts with

other children. His progress, along with SCD, has been remarkable. His speech

is finally coming (that's his biggest deficit), he hardly ever " stims " , he's

very engaged now; he is hopefully on the way to recovery. He also takes

supplements under the supervision of a DAN (defeat autism now) doctor. I thank

God every day that we caught this thing early and faced it-even though it was so

hard to make the call for the evaluation and face the fear that something was

wrong with our baby. We live in Long Island, NY and have some of the best

school districts in the country when it comes to special services. Call your

local school district and see if it has a social services dept or early

intervention dept. They will come to our home and evaluate your daughter. In

our case, they then sent a psychologist as a follow up who then made the

diagnosis of PDD (pervasive developmental disorder). A second opinion from an

MD called a developmental pediatrician confirmed the diagnosis, though he said

autism. It's really just semantics. Get the diagnosis and if needed, get the

help/services for your girl. Your regular pediatrician may be able to refer you

too, but if he/she tells you to wait, I say trust your gut and don't wait. I

always said to myself back then " What if I'm wrong and he doesn't need all this

therapy and its just a speech delay? " Then I figured, well he can't be hurt by

the therapy and he'll have had private tutoring until time shows us he's fine.

Then I asked myself " What if I do nothing and I am wrong? " So now I'll ask you..

what if you do nothing and you're wrong? Isn't it better to know what, if

anything, you're dealing with and then to face it? Trust your gut-its your

child. Fight for every service she may need now and your chances for a full

recovery will be greater. I know my son is better and I love the SCD and it has

had a MAJOR impact for him, but I know the other therapies are also a major part

of his recovering,as are the supplements (some of which require a doctor's

prescription/supervision). Sorry this is so long, but I can't stress enough

that you need a professional on board with this and as soon as possible. Your

daughter will get used to working with a therapist--it may take some rough

sessions, but the right therapist will prevail. Good luck to you.

Clay's mom 3yo/SCD 6 mos

What is DAN? Do we need professional help for our one

year old daughter?

I read alot about DAN. What does this stand for and what does it mean?

We have been battling " celiac disease " /malabsorption of the intestines

for over a year now. With lots of experimentaiton we went from

traditional gluten free diet/dairy free, to paleo(grain free/milk

free/potato and leguem free) back to gluten free/paleo and now we are

newcombers to the SCD. What a year, it has been up and down with

success and we want a change for the better. We wittness our daughter

do her best regarding autistic related behaviors when eating close to

SCD...but did not realize that " close " does not cut it until I

reviewed Elaine's book, reading it again in desperation for 100%

remission. I have learned now understand that it has to be " fanatical

adherance " ....I look forward to all of her autistic problems

disappearing. Is this hope to high?

We are now on day four and already seeing improvement...white coated

tongue is disappearing. Has anybody wittnessed a miracle/cure and all

autistic behaviors vanish. She will be two this Spring and is still

not talking. Will not participate in speech therapy, due to her

inability of coping with strangers and being outside of her comfort

zone: mommies arms or home. Yet most behviors of " fadding out " , " not

responding when talked too " , night terrors (where she does not

recognize who I am), and so much more happens much less now. She has

yet to be professionaly diagnosed as " autistic " ...is this needed...or

will she " heal " out of this conditon? Do I need professional help, or

just this diet?

Thanks for your reply.

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com